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Washington, D.C. · Nonprofit

International League Against Epilepsy

International League Against Epilepsy (Washington, D.C.) receives grants from 5 organizations whose IRS filings report $173,266 to it, the largest being NATIONAL PHILANTHROPIC TRUST ($115,000). 2 of them have funded it in more than one year, and 66% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.

Revenue FY2024
$6.1M
Funders on record
5
Grants received
$173k
Net assets
$28M
2/5 repeat funderspeak grant-dependency 1%
01What it does

What International League Against Epilepsy does

Mission

The goals of The International League Against Epilepsy are to advance and disseminate knowledge about epilepsy, promote research, education, and training, and improve services and care for patients, especially by prevention, diagnosis and treatment.

As stated on its FY2024 Form 990.

Programs

  1. Congresses are periodically held conventions located in differing geographic locations. These are medical and scientific meetings designed to advance the world-wide medical profession in its fight to cure epilepsy.

    $2,435,213 spentof which $111,960 as grants$3,282,614 earned by the program
    50% of program spending
  2. Commissions and chapters are located around the world. These chapters function as local affiliates for the International League Against Epilepsy and carry out the mission of the organization locally.

    $918,471 spentof which $149,683 as grants$110,811 earned by the program
    19% of program spending
  3. Publications to educate professionals and others in the field of epilepsy.

    $426,307 spent$1,838,442 earned by the program
    9% of program spending
  4. Academy, Distance Learning, and Other Programs

    $1,079,463 spentof which $67,040 as grants$398,122 earned by the program
    22% of program spending

The 4 programs described on its FY2024 Form 990, listed largest first by expense. Program spending in total: $4,859,454.

02The organization over time

The organization over time

Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.

100 = 20172017 Revenue 100 ($4.0M) Expenses 100 ($3.0M) Net assets 100 ($21M)2018 Revenue 194 ($7.8M) Expenses 155 ($4.7M) Net assets 97 ($20M)2019 Revenue 91 ($3.7M) Expenses 133 ($4.0M) Net assets 107 ($22M)2020 Revenue 107 ($4.3M) Expenses 116 ($3.5M) Net assets 115 ($24M)2021 Revenue 251 ($10M) Expenses 120 ($3.6M) Net assets 132 ($27M)2022 Revenue 114 ($4.6M) Expenses 170 ($5.1M) Net assets 112 ($23M)2023 Revenue 121 ($4.9M) Expenses 187 ($5.7M) Net assets 124 ($26M)2024 Revenue 152 ($6.1M) Expenses 205 ($6.2M) Net assets 138 ($28M)
'17'18'19'20'21'22'23'24
Revenue (152)Expenses (205)Net assets (138)Peer revenue range

Balance sheet

Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2023 to 2024, from $27M to $32M (+20%).

$22M
$21M
$23M
$27M
$29M
$25M
$27M
$32M
'17'18'19'20'21'22'23'24
Total assetsTotal liabilities

How it's funded, over time

Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.

2017
2018
2019
2020
2021
2022
2023
2024
ContributionsProgram revenueInvestmentOther

0% of International League Against Epilepsy’s revenue is contributions — more earned-revenue than three-quarters of its peers (51% for the typical peer).

This organization
Typical peer · 8,611 orgs

Surplus & reserves

Operating surplus or deficit each year, and months of liquidity in hand. 4 of the last 8 reported years ran a deficit.

$984k
’17
$3.1M
’18
−$374k
’19
$775k
’20
$6.4M
’21
−$553k
’22
−$806k
’23
−$101k
’24
1.2
months of
reserve

Leadership and staff

The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.

Chief executive

Julie Hall

Executive Director

As listed on its FY2024 Form 990.

'17'18'19'20'21'22'23'24
Listed511111214151314
Joined·+6+0+1+8+1+0+1
No longer listed·0006020
03Who funds it

Who funds it, year by year

2017 → 2023: the base held at 2 funders, grant income fell $50k → $25k.

2 of 5 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 66% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.

From the IRS filings of International League Against Epilepsy’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

How concentrated its funding is

International League Against Epilepsy leans on a few funders — its largest provides 66% of grant income and the top three 95%; half comes from just 1 funder.

the vertical line marks half of all grant income — 1 funder to its left

88% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund International League Against Epilepsy.

66%
largest funder
95%
top three
~2
effective funders

Largest funder’s share by year: 2017 60% · 2019 71% · 2020 100% · 2021 100% · 2022 50% · 2023 100% — growing more concentrated.

“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

Where its funders are

66% of International League Against Epilepsy's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $58k that is directly attributable, 100% of it comes from funders outside Washington, D.C., across 2 states.

IL
TX

In-state vs out-of-state, by year

’17
’19
’22
Washington, D.C. out of state home

Funder states come from each funder’s own filing. $115k arriving through sponsors registered in 2 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

04Its place in the field

Against its field

International League Against Epilepsy's revenue grew 52% between 2017 and 2024.

Operating margin−2% · below the median
Months of reserve1.2mo · bottom quartile
Revenue growth (annualized)6% · below the median

this organization peer median middle 50% of peers· 8,121 health nonprofits $1M–$10M, FY2024

Organizations like International League Against Epilepsy

Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.

In Washington, D.C.

Nationally

05Profile & governance

Read directly from this organization’s own Form 990, as neutral context.

Where the money goes

78% of spending goes to programs.

Program 78%Management 22%Fundraising 0%

Governance

11
board members
100%
independent
✓Conflict-of-interest policy✓Whistleblower policy✓Document retention✓Board reviewed the 990–Audited financials

Public support

85%

Share of support from the public (Schedule A) — the basis for its public-charity status.

Footprint & structure

Part of a family of 1 related entity

  • ILAE Secretariat · corp_trust

Screen this organization

A dated, signed PDF of the compliance screen for International League Against Epilepsy: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.

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Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf

Questions and answers

Who funds International League Against Epilepsy?
International League Against Epilepsy (Washington, D.C.) receives grants from 5 organizations whose IRS filings report $173,266 to it, the largest being NATIONAL PHILANTHROPIC TRUST ($115,000). 2 of them have funded it in more than one year, and 66% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
How many funders does International League Against Epilepsy have?
IRS filings report 5 organizations giving $173,266 in grants to International League Against Epilepsy, 2 of which have funded it in more than one year.
Who is the largest funder of International League Against Epilepsy?
NATIONAL PHILANTHROPIC TRUST is the largest funder on record, with $115,000 in grants. The full list of funders is on this page.
How can an organization like International League Against Epilepsy find more funders?
Start with the funders already giving here, then look at the foundations that back similar organizations in Washington, D.C.. The funding by cause and by state pages list the largest funders for a given area and how to approach them.

These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2024 (financials across 2017–2024), and the filings of 5 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing