New York · Nonprofit
TOURETTE ASSOCIATION OF AMERICA INC
TOURETTE ASSOCIATION OF AMERICA INC (New York) receives grants from 139 organizations whose IRS filings report $7,692,397 to it, the largest being MORGAN STANLEY GLOBAL IMPACT FUNDING TRUST INC ($1,114,764). 71 of them have funded it in more than one year, and 64% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- Revenue FY2025
- $5.2M
- Funders on record
- 139
- Grants received
- $7.7M
- Net assets
- $7.8M
What Tourette Association of America Inc does
Mission
To identify the cause of, find the cure for, and control the effects of tourette syndrome. The tourette association is dedicated to making life better for all people affected by tourette and tic disorders.
As stated on its FY2025 Form 990.
Programs
Public education - provide education and awareness by raising public awareness and fostering social acceptance. Educating professionals to better serve the needs of children, adults and families challenged by tourette and tic disorders. Advocating for public policies and services that promote positive school, work and social environments. Providing help, hope and a supportive community across the nation. Empowering our community to deal with the complexities of this spectrum of disorders.
$2,225,237 spent$105,365 earned by the program50% of program spendingResearch & medical programs - working to advance scientificunderstanding, treatment options and care options for the disorder byproviding funding for research investigations in the areas ofneurosciences, genetics, behaviorial therapy, clinical trials.
$949,883 spentof which $600,000 as grants21% of program spendingCenters for disease control (cdc) partnership - the association andcdc work together to provide expert education about tourette syndrometo physicians and allied professionals and to encourage physicians toapply to the association's referral lists. Includes programs toeducate schools and communities about tourette syndrome.
$1,124,707 spentof which $73,396 as grants25% of program spendingProfessional education - provides for the education and awareness oftourette syndrome to medical professionals, through among other things,seminars and distribution of research updates.
$126,255 spent3% of program spending
The 4 programs described on its FY2024 Form 990, listed largest first by expense. Program spending in total: $4,426,082.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2017 to 2018, from $11M to $13M (+13%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2017 25% · 2018 13% · 2019 24% · 2020 24% · 2021 30% · 2022 28% · 2023 18% · 2024 29% · 2025 23%. Grants only. Government contracts and fees sit inside program revenue.
90% of TOURETTE ASSOCIATION OF AMERICA INC’s revenue is contributions — more donation-reliant than the typical peer (51% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 7 of the last 9 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Chief executive
Amanda Talty
President & CEO
Board chair
Stephen Barron
Chairman of the board
As listed on its FY2025 Form 990.
The chief executive listed changed between the FY2018 and FY2019 filings.
Who funds it, year by year
2017 → 2023: the base broadened from 25 funders to 51 funders, grant income rose $502k → $1.3M.
31 of 139 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 64% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of TOURETTE ASSOCIATION OF AMERICA INC’s funders (the co-funder graph). Top 30 of 139 funders by total. Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
TOURETTE ASSOCIATION OF AMERICA INC has a broad base — no single funder exceeds 14% of grant income, and it takes 6 funders to reach half.
the vertical line marks half of all grant income — 6 funders to its left
66% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund TOURETTE ASSOCIATION OF AMERICA INC.
Largest funder’s share by year: 2017 30% · 2018 19% · 2019 54% · 2020 29% · 2021 13% · 2022 30% · 2023 16% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
37% of TOURETTE ASSOCIATION OF AMERICA INC's funders are still giving 3 years after their first grant; 51% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
64% of TOURETTE ASSOCIATION OF AMERICA INC's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $2.8M that is directly attributable, 68% of it comes from funders outside New York, across 29 states.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $4.9M arriving through sponsors registered in 18 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
TOURETTE ASSOCIATION OF AMERICA INC's revenue grew 46% between 2017 and 2025.
this organization peer median middle 50% of peers· 4,665 health nonprofits $1M–$10M, FY2025
Government funding TOURETTE ASSOCIATION OF AMERICA INC receives
Grants and contracts to this organization from federal (USASpending) and state checkbooks, reconciled to its EIN. $9.8M on record.
- Department of Health and Human Services$9.8M
Federal grants vs contracts are distinguished; state line items keep their reported category. Matched by name + geography (the BMF), so coverage is partial and precision-first.
Organizations like TOURETTE ASSOCIATION OF AMERICA INC
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In New York
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
76% of spending goes to programs.
Governance
Public support
83%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 30 states
Screen this organization
A dated, signed PDF of the compliance screen for TOURETTE ASSOCIATION OF AMERICA INC: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds TOURETTE ASSOCIATION OF AMERICA INC?
- TOURETTE ASSOCIATION OF AMERICA INC (New York) receives grants from 139 organizations whose IRS filings report $7,692,397 to it, the largest being MORGAN STANLEY GLOBAL IMPACT FUNDING TRUST INC ($1,114,764). 71 of them have funded it in more than one year, and 64% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- How many funders does TOURETTE ASSOCIATION OF AMERICA INC have?
- IRS filings report 139 organizations giving $7,692,397 in grants to TOURETTE ASSOCIATION OF AMERICA INC, 71 of which have funded it in more than one year.
- Who is the largest funder of TOURETTE ASSOCIATION OF AMERICA INC?
- MORGAN STANLEY GLOBAL IMPACT FUNDING TRUST INC is the largest funder on record, with $1,114,764 in grants. The full list of funders is on this page.
- How can an organization like TOURETTE ASSOCIATION OF AMERICA INC find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in New York. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2017–2025), and the filings of 139 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing