Utah · Nonprofit
The Jed Ian Taxel Foundation for Rare Cancer Research Inc
The Jed Ian Taxel Foundation for Rare Cancer Research Inc (Utah) receives grants from 5 organizations whose IRS filings report $219,200 to it, the largest being JEWISH COMMUNITY FOUNDATION OF SAN DIEGO ($100,000). 2 of them have funded it in more than one year, and 100% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- Revenue FY2025
- $420k
- Funders on record
- 5
- Grants received
- $219k
- Net assets
- $253k
What The Jed Ian Taxel Foundation for Rare Cancer Research Inc does
Mission
To inspire and empower scientific breakthroughs, clinical trials and improved treatments which change lives and enable better outcomes for rare cancer patients and their families.
As stated on its FY2025 Form 990.
Program
The Alliance for Rare Cancers (ARC is a program of the Jedi Rare Cancer Foundation. Launched in 2024 as a collaborative consortium of researchers, clinicians, patients, and advocates across the rare cancer innovation system, ARC provides a venue for rare cancer stakeholders to co-create and implement large-scale collaborative partnerships across multiple rare tumor types to accelerate progress for patients. Following the completion of a strategic planning process in 2024 and pilot project development throughout 2025, ARC has moved from concept to execution. In partnership with Case Comprehensive Cancer Center (Case CCC) and the Rare Cancer Research Foundation (RCRF), ARC has initiated an ambitious two-year pilot program to create a scalable national platform for deep characterization of rare tumors. Supported by $1 million catalytic funding from the Chan Zuckerberg Initiative's Biohub and ongoing support from ARC founding sponsor the Jedi Rare Cancer Foundation, the collaboration aims to transform rare cancer research by combining advanced translational science with patient-powered data collection to accelerate the development of breakthrough therapies. The goal of this initiative…
$192,256 spentof which $20,000 as grants100% of program spending
The program described on its FY2025 Form 990. Program spending in total: $192,256.
The organization over time
Each line starts at 100 in 2021, so what you read is the shape rather than the size: 150 means half as much again as 2021, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2024 to 2025, from $149k to $295k (+99%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
96% of The Jed Ian Taxel Foundation for Rare Cancer Research Inc’s revenue is contributions — more donation-reliant than the typical peer (82% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 3 of the last 5 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Chief executive
Harmony Knutsen
President/CEO
Board chair
Mark Taxel
Chair
As listed on its FY2025 Form 990.
Who funds it, year by year
2021 → 2023: the base broadened from 1 funder to 2 funders, grant income rose $500 → $21k.
4 of 5 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 100% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of The Jed Ian Taxel Foundation for Rare Cancer Research Inc’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
The Jed Ian Taxel Foundation for Rare Cancer Research Inc leans on a few funders — its largest provides 46% of grant income and the top three 97%; half comes from just 2 funders.
the vertical line marks half of all grant income — 2 funders to its left
100% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund The Jed Ian Taxel Foundation for Rare Cancer Research Inc.
Largest funder’s share by year: 2021 100% · 2022 70% · 2023 69% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Where its funders are
100% of The Jed Ian Taxel Foundation for Rare Cancer Research Inc's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $500 that is directly attributable, 100% of it comes from funders outside Utah, across 1 state.
Funder states come from each funder’s own filing. $219k arriving through sponsors registered in 4 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
The Jed Ian Taxel Foundation for Rare Cancer Research Inc runs a healthier operating margin than three-quarters of the 7,883 health nonprofits its size.
this organization peer median middle 50% of peers· 7,883 health nonprofits $100k–$1M, FY2025
Organizations like The Jed Ian Taxel Foundation for Rare Cancer Research Inc
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Utah
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
71% of spending goes to programs.
Governance
Public support
65%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 1 state
Screen this organization
A dated, signed PDF of the compliance screen for The Jed Ian Taxel Foundation for Rare Cancer Research Inc: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds The Jed Ian Taxel Foundation for Rare Cancer Research Inc?
- The Jed Ian Taxel Foundation for Rare Cancer Research Inc (Utah) receives grants from 5 organizations whose IRS filings report $219,200 to it, the largest being JEWISH COMMUNITY FOUNDATION OF SAN DIEGO ($100,000). 2 of them have funded it in more than one year, and 100% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- How many funders does The Jed Ian Taxel Foundation for Rare Cancer Research Inc have?
- IRS filings report 5 organizations giving $219,200 in grants to The Jed Ian Taxel Foundation for Rare Cancer Research Inc, 2 of which have funded it in more than one year.
- Who is the largest funder of The Jed Ian Taxel Foundation for Rare Cancer Research Inc?
- JEWISH COMMUNITY FOUNDATION OF SAN DIEGO is the largest funder on record, with $100,000 in grants. The full list of funders is on this page.
- How can an organization like The Jed Ian Taxel Foundation for Rare Cancer Research Inc find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Utah. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2021–2025), and the filings of 5 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing