Indiana · Nonprofit
ELEVATE CHILDHOOD CANCER RESEARCH AND ADVOCACY
ELEVATE CHILDHOOD CANCER RESEARCH AND ADVOCACY (Indiana) receives grants from 1 organization whose IRS filings report $10,000 to it, the largest being VANGUARD CHARITABLE ENDOWMENT PROGRAM ($10,000). 0 of them have funded it in more than one year, and 100% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- Revenue FY2025
- $122k
- Funders on record
- 1
- Grants received
- $10k
- Net assets
- $108k
What Elevate Childhood Cancer Research and Advocacy does
Mission
Elevate Childhood Cancer Research and Advocacy advances its charitable mission through three core pillars: advocacy, empowerment, and strategic investment in research. Advocacy focuses on elevating the voices of patients and caregivers within multi-stakeholder healthcare and research environments, ensuring that lived experience is represented in discussions related to diagnostics, therapeutics, care protocols, and survivorship. Empowerment is defined as equipping families with timely, accurate, and accessible information related to their child or loved one's diagnosis, with a particular focus on rhabdomyosarcoma and pediatric renal cancers, such as Wilms tumor. Strategic Investment supports collaborative scientific efforts to improve understanding of childhood cancers and advance the development of more effective diagnostics and therapeutic approaches.
As stated on its FY2025 Form 990-EZ.
Programs
Strategic Investment Program Accomplishments. Elevate Childhood Cancer Research and Advocacy advances its charitable mission through strategic investments in collaborative and translational research aimed at improving outcomes for children and young people with cancer. These investments focus on addressing critical gaps in research infrastructure, data access, and early-stage scientific development, with an emphasis on rare and. high-risk pediatric cancers, including rhabdomyosarcoma and pediatric renal cancers, such as Wilms. Elevate supported research conducted at Indiana Biosciences Research Institute (IBRI) focused on advancing understanding of pediatric sarcomas, particularly the mechanisms driving metastatic disease. This investment supports translational research infrastructure that enables the development of patient-derived cellular models. During the reporitng period, research efforts included investigation of key signaling pathways involved in metastasis, including PDGFR activity, and the development of monoclonal antibody approaches designed to disrupt these pathways. This work addresses a critical unmet need, as most current therapies target primary tumors rather than…
$0 spentof which $30,000 as grants0% of program spendingEmpowerment Program Accomplishments: Elevate Childhood Cancer Research and Advocacy's empowerment program focuses on equipping patients, families, and caregivers with timely, accurate, and accessible information related to childhood cancer diagnoses, with a particular focus on pediatric sarcomas and renal tumors, including rhabdomyosarcoma and Wilms tumor. These efforts are designed to improve understanding of complex medical information, support informed decision-making, and reduce barriers to accessing high-quality, disease-specific knowledge across the care continuum. During the reporting period, Elevate, in collaboration with members of the Rhabdo Coalition, developed and hosted the State of Sarcoma event at CureFest in Washington, DC. This program convened approximately 80 participants, including patients, families, nonprofit representatives, and others affected by pediatric sarcomas. The event featured presentations from four clinicians and researchers representing high-volume centers of care across the United States, who shared updates on current research, treatment approaches, and emerging areas of study. The program also included dedicated time for questions and answers,…
$5,173 spent19% of program spendingAdvocacy Program Accomplishments. Elevate Childhood Cancer Research and Advocacy's Advocacy Program focuses on elevating the voices of patients and caregivers within multi-stakeholder healthcare and research environments. The program ensures that lived experience is integrated into discussions and planning related to diagnostics, therapeutics, clinical trials, care protocols, and survivorship across childhood cancers, including rhabdomyosarcoma, Wilms tumor, and other pediatric renal cancers. This work is intended to accelerate the development of more effective therapies, improve diagnostic approaches, and strengthen treatment and survivorship protocols for children and young people with cancer by enhancing collaboration, reducing barriers to coordination, and improving alignment across research, clinical, development and policy settings. Elevated participated in and hosted multiple multi-stakeholder programs designed to ensure meaningful inclusion of patient and caregiver perspectives in decision-making processes. These programs brought together patients and families, clinicians, scientists, industry representatives, and policy stakeholders to support shared learning, strengthen…
$22,573 spent81% of program spending
The 3 programs described on its FY2025 Form 990-EZ. Program spending in total: $27,746.
The organization over time
Each line starts at 100 in 2023, so what you read is the shape rather than the size: 150 means half as much again as 2023, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2023 to 2024, from $14k to $75k (+442%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
73% of ELEVATE CHILDHOOD CANCER RESEARCH AND ADVOCACY’s revenue is contributions — about as donation-reliant as the typical peer (87% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 0 of the last 3 reported years ran a deficit.
Leadership and staff
Chief executive
Robyn Spoon
CEO
As listed on its FY2025 Form 990-EZ.
Who funds it, year by year
Grant support over time, funder by funder — shade shows the grant size each year.
1 of 1 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 100% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of ELEVATE CHILDHOOD CANCER RESEARCH AND ADVOCACY’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Where its funders are
100% of ELEVATE CHILDHOOD CANCER RESEARCH AND ADVOCACY's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Too little is directly attributable to place on a map.
Funder states come from each funder’s own filing. $10k arriving through sponsors registered in 1 state is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
ELEVATE CHILDHOOD CANCER RESEARCH AND ADVOCACY has grown faster than three-quarters of the 4,237 philanthropy nonprofits its size.
this organization peer median middle 50% of peers· 4,237 philanthropy nonprofits $100k–$1M, FY2025
Organizations like ELEVATE CHILDHOOD CANCER RESEARCH AND ADVOCACY
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Indiana
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Public support
90%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 1 state
Screen this organization
A dated, signed PDF of the compliance screen for ELEVATE CHILDHOOD CANCER RESEARCH AND ADVOCACY: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds ELEVATE CHILDHOOD CANCER RESEARCH AND ADVOCACY?
- ELEVATE CHILDHOOD CANCER RESEARCH AND ADVOCACY (Indiana) receives grants from 1 organization whose IRS filings report $10,000 to it, the largest being VANGUARD CHARITABLE ENDOWMENT PROGRAM ($10,000). 0 of them have funded it in more than one year, and 100% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- How many funders does ELEVATE CHILDHOOD CANCER RESEARCH AND ADVOCACY have?
- IRS filings report 1 organization giving $10,000 in grants to ELEVATE CHILDHOOD CANCER RESEARCH AND ADVOCACY.
- Who is the largest funder of ELEVATE CHILDHOOD CANCER RESEARCH AND ADVOCACY?
- VANGUARD CHARITABLE ENDOWMENT PROGRAM is the largest funder on record, with $10,000 in grants. The full list of funders is on this page.
- How can an organization like ELEVATE CHILDHOOD CANCER RESEARCH AND ADVOCACY find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Indiana. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2023–2025), and the filings of 1 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing