Virginia · Nonprofit
SJOGREN'S FOUNDATION INC
SJOGREN'S FOUNDATION INC (Virginia) receives grants from 81 organizations whose IRS filings report $4,814,387 to it, the largest being St Anthony Foundation ($1,005,000). 45 of them have funded it in more than one year.
- Revenue FY2025
- $5.3M
- Funders on record
- 81
- Grants received
- $4.8M
- Net assets
- $4.0M
What Sjogren's Foundation Inc does
Mission
The foundation's mission is to provide education and resources to sjogren's patients and their loved ones, provide credible resources/education to healthcare professionals, serve as the voice of all patients through advocacy and fund innovative research.
As stated on its FY2025 Form 990.
Programs
The sjogren's foundation awarded four research grants under the annual sjogren's foundation grant program to university affiliated researchers in june 2025. Three pilot grants were awarded and one high impact grant awarded. The sjogren's foundation also awarded a dynamic grant to the university of utah for development of international classification criteria for children with sjogren's disease. The foundation paid the third payment to support the foundation for the nih amp aim research project on sjogren's and other autoimmune diseases, and the first payment of the new foundation for the nih sjogren's biomarkers consortium project to discover new biomarkers for sjogren's to aid in improved diagnosis and treatment.the sjogren's foundation also worked closely with multiple pharma companies to prepare for, and bring, phase 2 and phase 3 clinical trials forward. The foundation supported these programs by conferring with pharma on protocols and patient needs, certifying clinical trial investigators on proper use of essdai outcome measures, and engaging patients to encourage trial enrollment, in order to help bring therapies to market.
$1,227,774 spentof which $636,789 as grants35% of program spendingNewsletter - the foundation produces two newsletters. "conquering sjogren's" is a patient focused newsletter with information about sjogren's and its many manifestations. Cs is produced bi-monthly. The "sjogren's quarterly" is a professional publication produced 4 times a year and offered free to all healthcare professionals to increase awareness and education around sjogren's.
$254,954 spent7% of program spendingThe Sjogren's Foundation Increased patient support and education programs in 2025 as well as healthcare provider education and awareness about sjogren's and the systemic, multi-faceted nature of the disease. Of note was the expansion of provider outreach through state of sjogren's and the foundation's cme program as well as partnering with external cme programs for specialties and primary care providers. The foundation also increased our advocacy efforts to highlight the importance of continued autoimmune disease research funding, especially for sjogren's and to highlight the importance of supporting the office of autoimmune disease research. We succeeded in getting a new house resolution #245 to affirm april as sjogren's awareness month which included messaging about the need for more research and we held our first congressional briefing on sjogren's. The foundation also continued our dialog with centers for medicare and medicaid for dental coverage. We continued to advance our relationships with clinicians, researchers, government scientists, and corporate scientists who are interested in sjogren's. In june 2025, the foundation work to change the disease name from sjogren's…
$1,216,516 spent34% of program spendingOther programs within the foundation include strategic governance projects; patient membership and support programs for people living with sjogren's; healthcare provider education such as creating clinical practice guidelines and abstracts, partnering with external cme providers to create sjogren's courses, and presenting at professional conferences; industry support and co-authorship on abstracts to ensure accurate understanding of sjogren's and the need for early patient involvement in research and encouraging further development of sjogren's therapies for all patients.
$851,838 spent$395,510 earned by the program24% of program spending
The 4 programs described on its FY2024 Form 990, listed largest first by expense. Program spending in total: $3,551,082.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2024 to 2025, from $4.2M to $5.2M (+26%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2021 7%. Grants only. Government contracts and fees sit inside program revenue.
89% of SJOGREN'S FOUNDATION INC’s revenue is contributions — more donation-reliant than the typical peer (51% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 0 of the last 9 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Chief executive
Janet Church
President and CEO
As listed on its FY2025 Form 990.
Who funds it, year by year
2017 → 2023: the base broadened from 13 funders to 30 funders, grant income rose $223k → $532k.
14 of 81 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 30% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of SJOGREN'S FOUNDATION INC’s funders (the co-funder graph). Top 30 of 81 funders by total. Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
SJOGREN'S FOUNDATION INC has a broad base — no single funder exceeds 21% of grant income, and it takes 3 funders to reach half.
the vertical line marks half of all grant income — 3 funders to its left
30% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund SJOGREN'S FOUNDATION INC.
Largest funder’s share by year: 2017 90% · 2018 66% · 2019 54% · 2020 40% · 2021 25% · 2022 17% · 2023 33% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
40% of SJOGREN'S FOUNDATION INC's funders are still giving 3 years after their first grant; 56% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
SJOGREN'S FOUNDATION INC draws 100% of its grant income from funders outside Virginia, across 24 states in all.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $1.4M arriving through sponsors registered in 10 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
SJOGREN'S FOUNDATION INC runs a healthier operating margin than three-quarters of the 5,002 health nonprofits its size.
this organization peer median middle 50% of peers· 5,002 health nonprofits $1M–$10M, FY2025
Organizations like SJOGREN'S FOUNDATION INC
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Virginia
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
84% of spending goes to programs.
Governance
Public support
69%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 15 states
Screen this organization
A dated, signed PDF of the compliance screen for SJOGREN'S FOUNDATION INC: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds SJOGREN'S FOUNDATION INC?
- SJOGREN'S FOUNDATION INC (Virginia) receives grants from 81 organizations whose IRS filings report $4,814,387 to it, the largest being St Anthony Foundation ($1,005,000). 45 of them have funded it in more than one year.
- How many funders does SJOGREN'S FOUNDATION INC have?
- IRS filings report 81 organizations giving $4,814,387 in grants to SJOGREN'S FOUNDATION INC, 45 of which have funded it in more than one year.
- Who is the largest funder of SJOGREN'S FOUNDATION INC?
- St Anthony Foundation is the largest funder on record, with $1,005,000 in grants. The full list of funders is on this page.
- How can an organization like SJOGREN'S FOUNDATION INC find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Virginia. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2017–2025), and the filings of 81 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 22, 2026. What this page cannot tell you · view filing