New York · Nonprofit
LUPUS AND ALLIED DISEASES ASSOCIATION INC
LUPUS AND ALLIED DISEASES ASSOCIATION INC (New York) receives grants from 10 organizations whose IRS filings report $158,392 to it, the largest being PHARMACEUTICAL RESEARCH AND MANUFACTURERS OF AMERICA ($53,500). 6 of them have funded it in more than one year.
- Revenue FY2025
- $987k
- Funders on record
- 10
- Grants received
- $158k
- Net assets
- $2.8M
What Lupus and Allied Diseases Association Inc does
Mission
The Lupus and Allied Diseases Association's mission is to advocate for those affected by lupus and allied diseases through public awareness, education and research program initiatives to improve quality of life.
As stated on its FY2025 Form 990.
Programs
1. The organization supported lupus research to improve methods of diagnosis and treatment by funding a $150,000 grant to the the Lupus Research Alliance to support SLE Cognitive Impairment Differentiation and Imaging Lupus Nephritis Biopsies Prognosis Projects. 2. The organization supported pediatric lupus research to study Advancing Molecular Profiling and Understanding Adverse Events Projects in the pediatric population by funding a $89,424 grant to the Childhood Arthritis and Rheumatology Research Alliance. 3. The organization also supported $25,000 to support Does Air Pollution Influence the Baseline Characteristics of Pediatric SLE Project to improve the quality of life for the pediatric population with lupus at the Lupus Foundation of America. 4. The organization funded the Marc R. Chevrier, MD, PhD, FACR, Lupus Research Memorial Fund at the Rheumatology Research Foundation by supporting a $25,300 preceptorship grant and a separate $50,000 grant to support Innovative Lupus Research. 5. The organization supported lupus research by funding a $200,000 grant to the Masonic Medical Research Institute to provide $50,000 to support a study on Gain-of-function mutations in SHP2…
$539,724 spentof which $539,724 as grants73% of program spendingThe organization provided public education and advocated for those impacted by lupus and autoimmune diseases in various states and federally through education meetings, briefings, seminars, forums, public testimony, and written comments. The organization also distributed informational materials, newsletters, and issue briefs; developed poster presentations; and represented the lupus and autoimmune patient perspective at education and advocacy initiatives to improve access to medical care and treatments and advance biomedical research to improve patient quality of life. The organization also provided a $25,000 education grant to the Masonic Medical Research Institute to support their general education program and Summer Fellows education program.
$148,292 spentof which $25,000 as grants20% of program spendingThe organization promoted disease awareness by disseminating information at virtual and in person health and wellness events; participating in media interviews, press releases, speaking engagements and press conferences; posting information and resources to websites and through social media, blogs, op-eds, videos, and e-mails; and hosting informational booths in exhibit halls to improve disease awareness to the general public, medical professional community, public officials, the media, researchers, the healthcare industry, and people with lupus and allied diseases and their loved ones.
$48,767 spent7% of program spendingOther program services, not described on the e-filed return.
$0 spent0% of program spending
The 4 programs described on its FY2024 Form 990, listed largest first by expense. Program spending in total: $736,783.
The organization over time
Each line starts at 100 in 2020, so what you read is the shape rather than the size: 150 means half as much again as 2020, 50 means half. The number beside each label in the key is where it ended.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2021 to 2022, from $1.4M to $1.9M (+39%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2020 0% · 2021 9% · 2022 0% · 2023 0% · 2024 0% · 2025 0%. Grants only. Government contracts and fees sit inside program revenue.
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 0 of the last 6 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Chief executive
Kathleen A Arntsen
President and CEO
As listed on its FY2025 Form 990.
Who funds it, year by year
2018 → 2023: the base broadened from 2 funders to 5 funders, grant income rose $12k → $30k.
3 of 10 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 15% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of LUPUS AND ALLIED DISEASES ASSOCIATION INC’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
LUPUS AND ALLIED DISEASES ASSOCIATION INC leans on a few funders — its largest provides 34% of grant income and the top three 66%; half comes from just 2 funders.
the vertical line marks half of all grant income — 2 funders to its left
99% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund LUPUS AND ALLIED DISEASES ASSOCIATION INC.
Largest funder’s share by year: 2018 57% · 2019 100% · 2020 100% · 2021 74% · 2022 39% · 2023 38% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
50% of LUPUS AND ALLIED DISEASES ASSOCIATION INC's funders are still giving 3 years after their first grant; 60% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
LUPUS AND ALLIED DISEASES ASSOCIATION INC draws 98% of its grant income from funders outside New York, across 4 states in all.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $24k arriving through sponsors registered in 3 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Organizations like LUPUS AND ALLIED DISEASES ASSOCIATION INC
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In New York
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
100% of spending goes to programs.
Governance
Public support
95%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 1 state
Screen this organization
A dated, signed PDF of the compliance screen for LUPUS AND ALLIED DISEASES ASSOCIATION INC: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds LUPUS AND ALLIED DISEASES ASSOCIATION INC?
- LUPUS AND ALLIED DISEASES ASSOCIATION INC (New York) receives grants from 10 organizations whose IRS filings report $158,392 to it, the largest being PHARMACEUTICAL RESEARCH AND MANUFACTURERS OF AMERICA ($53,500). 6 of them have funded it in more than one year.
- How many funders does LUPUS AND ALLIED DISEASES ASSOCIATION INC have?
- IRS filings report 10 organizations giving $158,392 in grants to LUPUS AND ALLIED DISEASES ASSOCIATION INC, 6 of which have funded it in more than one year.
- Who is the largest funder of LUPUS AND ALLIED DISEASES ASSOCIATION INC?
- PHARMACEUTICAL RESEARCH AND MANUFACTURERS OF AMERICA is the largest funder on record, with $53,500 in grants. The full list of funders is on this page.
- How can an organization like LUPUS AND ALLIED DISEASES ASSOCIATION INC find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in New York. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2020–2025), and the filings of 10 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 22, 2026. What this page cannot tell you · view filing