Kansas · Nonprofit
INTERNATIONAL ESSENTIAL TREMOR FOUNDATION
INTERNATIONAL ESSENTIAL TREMOR FOUNDATION (Kansas) receives grants from 26 organizations whose IRS filings report $541,234 to it, the largest being DONOR ADVISED CHARITABLE GIVING INC ($205,662). 14 of them have funded it in more than one year, and 88% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- Revenue FY2026
- $1.5M
- Funders on record
- 26
- Grants received
- $541k
- Net assets
- $11M
What International Essential Tremor Foundation does
Mission
The IETF provides hope to the ET community worldwide through awareness, education, support, and research.
As stated on its FY2026 Form 990.
Programs
Essential tremor (ET) is a neurological condition that mostly causes a rhythmic trembling of the hands while performing a task such as eating, writing, dressing, or drinking. (1) Each March the International Essential Tremor Foundation (IETF) hosts a special campaign to raise awareness about essential tremor during National Essential Tremor Awareness Month (NETA). Our goal is to achieve a greater understanding and acceptance of essential tremor. (2) Essential Tremor Research James Parkinson first distinguished essential tremor from other tremor disorders (including the disease that carries his namesake) in 1817. More than 200 years later, there are still many unanswered questions about essential tremor. However, researchers are moving our knowledge forward. It is vital to understand what causes ET in order to develop tailored treatment options and a cure for this life-altering condition. IETF Funded Research Essential tremor (ET) has no cure. If only we understood the cause of ET, then new, tailored treatments could be developed. Each year researchers with an interest in studying the various aspects of essential tremor are encouraged to submit scientific proposals for grant…
$820,389 spentof which $325,000 as grants$11,285 earned by the program100% of program spendingOther program services, not described on the e-filed return.
$0 spent0% of program spending
The 2 programs described on its FY2026 Form 990, listed largest first by expense. Program spending in total: $820,389.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2020 to 2021, from $3.7M to $6.5M (+75%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
65% of INTERNATIONAL ESSENTIAL TREMOR FOUNDATION’s revenue is contributions — more donation-reliant than the typical peer (51% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 1 of the last 10 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Chief executive
Patrick McCartney
Executive Director
As listed on its FY2026 Form 990.
Who funds it, year by year
2017 → 2023: the base held at 9 funders, grant income fell $43k → $35k.
10 of 26 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 88% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of INTERNATIONAL ESSENTIAL TREMOR FOUNDATION’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
INTERNATIONAL ESSENTIAL TREMOR FOUNDATION leans on a few funders — its largest provides 38% of grant income and the top three 70%; half comes from just 2 funders.
the vertical line marks half of all grant income — 2 funders to its left
88% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund INTERNATIONAL ESSENTIAL TREMOR FOUNDATION.
Largest funder’s share by year: 2017 30% · 2018 36% · 2019 45% · 2020 31% · 2021 44% · 2022 64% · 2023 56% — growing more concentrated.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
46% of INTERNATIONAL ESSENTIAL TREMOR FOUNDATION's funders are still giving 3 years after their first grant; 54% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
88% of INTERNATIONAL ESSENTIAL TREMOR FOUNDATION's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $62k that is directly attributable, 100% of it comes from funders outside Kansas, across 13 states.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $479k arriving through sponsors registered in 9 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
INTERNATIONAL ESSENTIAL TREMOR FOUNDATION runs a healthier operating margin than three-quarters of the 76 health nonprofits its size.
this organization peer median middle 50% of peers· 76 health nonprofits $1M–$10M, FY2026
Organizations like INTERNATIONAL ESSENTIAL TREMOR FOUNDATION
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Kansas
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
80% of spending goes to programs.
Governance
Public support
58%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 1 state
Screen this organization
A dated, signed PDF of the compliance screen for INTERNATIONAL ESSENTIAL TREMOR FOUNDATION: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds INTERNATIONAL ESSENTIAL TREMOR FOUNDATION?
- INTERNATIONAL ESSENTIAL TREMOR FOUNDATION (Kansas) receives grants from 26 organizations whose IRS filings report $541,234 to it, the largest being DONOR ADVISED CHARITABLE GIVING INC ($205,662). 14 of them have funded it in more than one year, and 88% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- How many funders does INTERNATIONAL ESSENTIAL TREMOR FOUNDATION have?
- IRS filings report 26 organizations giving $541,234 in grants to INTERNATIONAL ESSENTIAL TREMOR FOUNDATION, 14 of which have funded it in more than one year.
- Who is the largest funder of INTERNATIONAL ESSENTIAL TREMOR FOUNDATION?
- DONOR ADVISED CHARITABLE GIVING INC is the largest funder on record, with $205,662 in grants. The full list of funders is on this page.
- How can an organization like INTERNATIONAL ESSENTIAL TREMOR FOUNDATION find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Kansas. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2026 (financials across 2017–2026), and the filings of 26 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 22, 2026. What this page cannot tell you · view filing