North Dakota · Nonprofit
Designer Genes of North Dakota Inc
Designer Genes of North Dakota Inc (North Dakota) receives grants from 6 organizations whose IRS filings report $33,105 to it, the largest being AVALYNNS FLY HIGH FOUNDATION ($14,000). 1 of them have funded it in more than one year.
- Revenue FY2025
- $164k
- Funders on record
- 6
- Grants received
- $33k
- Net assets
- $172k
What Designer Genes of North Dakota Inc does
Mission
Designer Genes of North Dakota exists to strengthen opportunities for individuals with Down syndrome and those who support them to earn, learn, and belong.
As stated on its FY2025 Form 990-EZ.
Programs
Membership Community Events - We hosted several community-building events, including:a. The Annual Walk for Down Syndrome, to celebrate the Down syndrome community and raise awareness.b. Seasonal family gatherings like the Annual Picnic, Supper with Santa, and awareness-themed events for World Down Syndrome Day.c. iCan Bike Camp.d. The Bikers 4 Bikers fundraiser, helping raise awareness fnd funding to sustain programs. e. Regional meetups and member connection events throughout the year.f. A key hightlight was the introduction of statewide meetups, a new program service designed to increase connection and accessibilty for families across North Dakota. These meetups created opportunities for individuals and families to build relationships, share experiences, and strengthen local support networks.
$48,012 spent95% of program spendingMember Support - Provided individualized support and navigation to over 250 families across North Dakota. This included guidance on accessing Early Intervention, IEP support, transition services, Medicaid, SSI, and other systems of care. Support was offered through in-person meetings, phone consultations, resource navigation, and referrals. Designer Genes supported all known new diagnoses of Down syndrome across the state with welcome packages, connection to local support networks, and one-on-one family mentoring.We facilitated ongoing community-based life skills and connection programming for individuals ages 18 years and older with Down syndrome and developmental disabilities. GROW focuses on healthy relationships, social engagement, self-advocacy, and belonging.
$2,628 spent5% of program spendingPublic Awareness - Engaged in year-round advocacy at the local, state, and national level. Designer Genes also shared educational campaigns during Down Syndrome Awareness Month.Education and Resource Development - We offered presentations and training for educators, caregivers, and professionals. We supported mock interviews and membership meet-up to support families and individuals navigating life.Designer Genes created and distributed educational materials, including fact sheets on disability systems, Down syndrome awareness and various state conferences throughout the year as well as with program managers.
The 3 programs described on its FY2025 Form 990-EZ. Program spending in total: $50,640.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2018 to 2019, from $57k to $90k (+59%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
97% of Designer Genes of North Dakota Inc’s revenue is contributions — more donation-reliant than the typical peer (91% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 2 of the last 9 reported years ran a deficit.
Who funds it, year by year
2020 → 2023: the base broadened from 1 funder to 3 funders, grant income rose $101 → $26k.
2 of 6 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 17% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of Designer Genes of North Dakota Inc’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
Designer Genes of North Dakota Inc leans on a few funders — its largest provides 42% of grant income and the top three 94%; half comes from just 2 funders.
the vertical line marks half of all grant income — 2 funders to its left
53% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund Designer Genes of North Dakota Inc.
Largest funder’s share by year: 2020 100% · 2021 89% · 2022 100% · 2023 54% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Where its funders are
98% of Designer Genes of North Dakota Inc's grant income comes from North Dakota funders.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $6k arriving through sponsors registered in 2 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
Designer Genes of North Dakota Inc has grown faster than half of the 13,062 human services nonprofits its size.
this organization peer median middle 50% of peers· 13,062 human services nonprofits $100k–$1M, FY2025
Organizations like Designer Genes of North Dakota Inc
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In North Dakota
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Public support
99%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Screen this organization
A dated, signed PDF of the compliance screen for Designer Genes of North Dakota Inc: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds Designer Genes of North Dakota Inc?
- Designer Genes of North Dakota Inc (North Dakota) receives grants from 6 organizations whose IRS filings report $33,105 to it, the largest being AVALYNNS FLY HIGH FOUNDATION ($14,000). 1 of them have funded it in more than one year.
- How many funders does Designer Genes of North Dakota Inc have?
- IRS filings report 6 organizations giving $33,105 in grants to Designer Genes of North Dakota Inc, 1 of which have funded it in more than one year.
- Who is the largest funder of Designer Genes of North Dakota Inc?
- AVALYNNS FLY HIGH FOUNDATION is the largest funder on record, with $14,000 in grants. The full list of funders is on this page.
- How can an organization like Designer Genes of North Dakota Inc find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in North Dakota. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
Play a game about who funds Designer Genes of North Dakota →
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2017–2025), and the filings of 6 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing