North Dakota · Nonprofit
CYSTIC FIBROSIS ASSOCIATION OF ND
CYSTIC FIBROSIS ASSOCIATION OF ND (North Dakota) receives grants from 7 organizations whose IRS filings report $5,334 to it, the largest being AMAZONSMILE FOUNDATION ($1,780). 3 of them have funded it in more than one year.
- Revenue FY2025
- $626k
- Funders on record
- 7
- Grants received
- $5k
- Net assets
- $5.1M
What Cystic Fibrosis Association of Nd does
Mission
The mission of cfa is to provide education, relief from suffering, aid and support to persons suffering from cystic fibrosis and those persons incurring extraordinary medical expenses not compensated by insurance. In support of this mission, cfa is dedicated to helping to improve and extend the lives of north dakotans with cystic fibrosis so they may enjoy the benefits of promising research, giving them the opportunity to fully participate as contributing members to north dakota's economy and society.
As stated on its FY2025 Form 990.
Program
Cfa provides assistance for medications and therapeutic equipment, college scholarships for persons with cystic fibrosis, financial assistance for travel associated with medical treatments, support group meetings for educational and emotional support, financial assistance for persons undergoing lung transplants, access to cf conferences and public education. Serving approximately 100 members.
$380,505 spentof which $94,286 as grants100% of program spending
The program described on its FY2024 Form 990. Program spending in total: $380,505.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2020 to 2021, from $3.1M to $3.8M (+23%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2021 18% · 2022 8%. Grants only. Government contracts and fees sit inside program revenue.
24% of CYSTIC FIBROSIS ASSOCIATION OF ND’s revenue is contributions — more earned-revenue than three-quarters of its peers (82% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 0 of the last 9 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Who funds it, year by year
2018 → 2023: the base broadened from 1 funder to 2 funders, grant income rose $72 → $866.
1 of 7 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 33% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of CYSTIC FIBROSIS ASSOCIATION OF ND’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
CYSTIC FIBROSIS ASSOCIATION OF ND leans on a few funders — its largest provides 33% of grant income and the top three 78%; half comes from just 2 funders.
the vertical line marks half of all grant income — 2 funders to its left
33% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund CYSTIC FIBROSIS ASSOCIATION OF ND.
Largest funder’s share by year: 2018 100% · 2019 39% · 2020 63% · 2021 59% · 2022 43% · 2023 58% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Where its funders are
CYSTIC FIBROSIS ASSOCIATION OF ND draws 75% of its grant income from funders outside North Dakota, across 5 states in all.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $2k arriving through sponsors registered in 1 state is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
CYSTIC FIBROSIS ASSOCIATION OF ND holds deeper cash reserves than three-quarters of the 7,883 health nonprofits its size.
this organization peer median middle 50% of peers· 7,883 health nonprofits $100k–$1M, FY2025
Organizations like CYSTIC FIBROSIS ASSOCIATION OF ND
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In North Dakota
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
68% of spending goes to programs.
Governance
Public support
98%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 1 state
Screen this organization
A dated, signed PDF of the compliance screen for CYSTIC FIBROSIS ASSOCIATION OF ND: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds CYSTIC FIBROSIS ASSOCIATION OF ND?
- CYSTIC FIBROSIS ASSOCIATION OF ND (North Dakota) receives grants from 7 organizations whose IRS filings report $5,334 to it, the largest being AMAZONSMILE FOUNDATION ($1,780). 3 of them have funded it in more than one year.
- How many funders does CYSTIC FIBROSIS ASSOCIATION OF ND have?
- IRS filings report 7 organizations giving $5,334 in grants to CYSTIC FIBROSIS ASSOCIATION OF ND, 3 of which have funded it in more than one year.
- Who is the largest funder of CYSTIC FIBROSIS ASSOCIATION OF ND?
- AMAZONSMILE FOUNDATION is the largest funder on record, with $1,780 in grants. The full list of funders is on this page.
- How can an organization like CYSTIC FIBROSIS ASSOCIATION OF ND find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in North Dakota. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2017–2025), and the filings of 7 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing