Kentucky · Nonprofit
CHILD NEUROLOGY EDUCATION AND RESEARCH FOUNDATION
CHILD NEUROLOGY EDUCATION AND RESEARCH FOUNDATION (Kentucky) receives grants from 19 organizations whose IRS filings report $1,378,027 to it, the largest being PEDIATRIC EPILEPSY RESEARCH FOUNDAT ($903,001). 8 of them have funded it in more than one year.
- Revenue FY2024
- $1.3M
- Funders on record
- 19
- Grants received
- $1.4M
- Net assets
- $269k
What Child Neurology Education and Research Foundation does
Mission
The mission of the Child Neurology Foundation is to serve as a collaborative center of education, resources, and support for children and their families living with neurologic conditions, and facilitate connection with medical professionals who care for them. The Child Neurology Foundation connects partners from all areas of the child neurology community so those navigating the journey of disease diagnosis, management, and care have the ongoing support from those dedicated to treatments and cures. Our expanding network of patients and caregivers, volunteers and advocates, researchers and clinicians is committed to helping one another along the path that leads to the best quality of care - and the highest quality of life-for every child.
As stated on its FY2024 Form 990.
Programs
On its FY2024 return the organization reported a significant change in how it conducts a program.
Within the Community Education & Support category, the multi-year CHICA-CN project concluded in 2023, and thus in 2024 did not incur program expenses for the first time since 2018. Within the Research Grants category, starting in 2024 the Foundation no longer administers the annual Pediatric Epilepsy Research Foundation (PERF) Shields and Eltermann Research Grants totaling $350,000.
Its own explanation, from Schedule O of that return (Part III, line 3).
RESEARCH GRANTS: Since 2001, CNF has proudly awarded grants and scholarships totaling over $6.3M to child neurologists, medical students, institutions, and researchers who are working on treatments and cures for pediatric neurologic diseases. To further the study of solutions in the areas of Transition of Care and Care Coordination, the Foundation awarded thirteen organizations $26,000 Quality Improvement Grants in 2024. To further support and interest in the field of child neurology, the Foundation awarded four Dr. Kenneth F. Swaiman Medical Student Scholarships in the amount of $6,000 for medical students interested in exploring a career in child neurology, plus $1,500 travel stipend for attendance at the Child Neurology Society Annual Meeting. The Foundation further awarded the annual Neurodevelopmental Disabilities Summer Research Scholarship of $3,500 to a medical student who has an interest in training in neurodevelopmental disabilities or child neurology.
$309,261 spentof which $240,000 as grants34% of program spendingCOMMUNITY SUPPORT AND EDUCATION: In 2024 , CNF's largest program provided emotional support to over 750 families, reached over 460 clinicians with education, and built collaborations with over 91 other patient advocacy organizations via the Neurology Social Services Network (NSSN). Through the NSSN CNF provides access to local service organizations such as food shelves, transportation assistance, and housing assistance. In 2024, the NSSN processed 1023 referrals providing resources across 48 states. In 2024 education program topics included family support, digital access, transition of care, shortening the diagnostic odyssey, care coordination, preventing epilepsy deaths, and clinical trials. CNF also collected insights from families and child neurologists via surveys and focus groups. This information influences the development of CNF programming going forward.
$613,781 spentof which $3,500 as grants$11,515 earned by the program66% of program spendingOther program services, not described on the e-filed return.
$0 spent0% of program spending
The 3 programs described on its FY2024 Form 990, listed largest first by expense. Program spending in total: $923,042.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2021 to 2022, from $4.6M to $2.7M (−40%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2018 0% · 2019 0% · 2020 2% · 2021 5% · 2022 3% · 2023 3% · 2024 2%. Grants only. Government contracts and fees sit inside program revenue.
50% of CHILD NEUROLOGY EDUCATION AND RESEARCH FOUNDATION’s revenue is contributions — about as donation-reliant as the typical peer (51% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 4 of the last 8 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Who funds it, year by year
2017 → 2023: the base narrowed from 4 funders to 2 funders, grant income fell $378k → $10k.
8 of 19 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 10% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of CHILD NEUROLOGY EDUCATION AND RESEARCH FOUNDATION’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
CHILD NEUROLOGY EDUCATION AND RESEARCH FOUNDATION leans on a few funders — its largest provides 66% of grant income and the top three 83%; half comes from just 1 funder.
the vertical line marks half of all grant income — 1 funder to its left
Largest funder’s share by year: 2017 91% · 2018 93% · 2019 86% · 2020 60% · 2021 48% · 2022 98% · 2023 98% — growing more concentrated.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
8% of CHILD NEUROLOGY EDUCATION AND RESEARCH FOUNDATION's funders are still giving 3 years after their first grant; 42% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
CHILD NEUROLOGY EDUCATION AND RESEARCH FOUNDATION draws 100% of its grant income from funders outside Kentucky, across 9 states in all.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $133k arriving through sponsors registered in 8 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
CHILD NEUROLOGY EDUCATION AND RESEARCH FOUNDATION receives grants from 19 organizations whose IRS filings report $1.4M to it.
this organization peer median middle 50% of peers· 8,121 health nonprofits $1M–$10M, FY2024
Organizations like CHILD NEUROLOGY EDUCATION AND RESEARCH FOUNDATION
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Kentucky
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
49% of spending goes to programs.
Governance
Public support
57%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 38 states
Screen this organization
A dated, signed PDF of the compliance screen for CHILD NEUROLOGY EDUCATION AND RESEARCH FOUNDATION: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds CHILD NEUROLOGY EDUCATION AND RESEARCH FOUNDATION?
- CHILD NEUROLOGY EDUCATION AND RESEARCH FOUNDATION (Kentucky) receives grants from 19 organizations whose IRS filings report $1,378,027 to it, the largest being PEDIATRIC EPILEPSY RESEARCH FOUNDAT ($903,001). 8 of them have funded it in more than one year.
- How many funders does CHILD NEUROLOGY EDUCATION AND RESEARCH FOUNDATION have?
- IRS filings report 19 organizations giving $1,378,027 in grants to CHILD NEUROLOGY EDUCATION AND RESEARCH FOUNDATION, 8 of which have funded it in more than one year.
- Who is the largest funder of CHILD NEUROLOGY EDUCATION AND RESEARCH FOUNDATION?
- PEDIATRIC EPILEPSY RESEARCH FOUNDAT is the largest funder on record, with $903,001 in grants. The full list of funders is on this page.
- How can an organization like CHILD NEUROLOGY EDUCATION AND RESEARCH FOUNDATION find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Kentucky. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2024 (financials across 2017–2024), and the filings of 19 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing