New York · Nonprofit
CHIARI & SYRINGOMYELIA RESEARCH FOUNDATION INC
CHIARI & SYRINGOMYELIA RESEARCH FOUNDATION INC (New York) receives grants from 4 organizations whose IRS filings report $93,642 to it, the largest being NETWORK FOR GOOD ($82,355). 2 of them have funded it in more than one year, and 92% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- Revenue FY2025
- $37k
- Funders on record
- 4
- Grants received
- $94k
- Net assets
- $274k
What Chiari & Syringomyelia Research Foundation Inc does
Mission
Searching for better understanding, treatments and cures for chiari malformation (cm), syringomyelia (sm), neuropathic pain and related disorders
As stated on its FY2025 Form 990-EZ.
Programs
Strive for improved surgical outcomes for chiari malformation and syringomyelia patients including much lower initial complication rates. Ongoing studies: pre- and post-operative morphological characteristics associated with syrinx outcome after posterior fossa decompression for chiari malformation- australia - aproximately 50% of grant paid in 2025. We would expect to pay the remainder in 2026 - aproximately 47,000 - data from two centers collected - manual morphometric data collection is proceeding - "training the ai bot" for a separate analysis is ongoing - statical analysis and determination of "next steps" later in 2026 publish complication rates and surgical techniques from low complication rate centers to set a benchmark for all centers. -one center near submission for publication and one in the discussion stage. Updating clinical data for publication on syrinx shunt placement outcomes.
$67,564 spentof which $67,564 as grants100% of program spendingUnderstanding the biology, chemistry, and fluid dynamics of post traumatic syringomyelia to understand all forms of syringomyelia. -how is csf flow in syringomyelia patients impacted by heart rate, blood pressure and respiration -post traumatic syrinx formation implications from lymphatic drainage recent publications: "how volume changes in epidural space drives respiratory cerebrospinal fluid flow" - journal of biomechanics - december 2025 "chiari malformation does not obstruct csf flow during coughs" - computers in medicine - november of 2025
The 2 programs described on its FY2025 Form 990-EZ. Program spending in total: $67,564.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2018 to 2019, from $202k to $281k (+39%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
52% of CHIARI & SYRINGOMYELIA RESEARCH FOUNDATION INC’s revenue is contributions — about as donation-reliant as the typical peer (100% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 4 of the last 9 reported years ran a deficit.
Who funds it, year by year
2018 → 2023: the base broadened from 1 funder to 2 funders, grant income fell $12k → $7k.
2 of 4 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 92% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of CHIARI & SYRINGOMYELIA RESEARCH FOUNDATION INC’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
CHIARI & SYRINGOMYELIA RESEARCH FOUNDATION INC leans on a few funders — its largest provides 88% of grant income and the top three 100%; half comes from just 1 funder.
the vertical line marks half of all grant income — 1 funder to its left
100% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund CHIARI & SYRINGOMYELIA RESEARCH FOUNDATION INC.
Largest funder’s share by year: 2018 100% · 2019 71% · 2020 98% · 2021 95% · 2022 88% · 2023 87% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Where its funders are
92% of CHIARI & SYRINGOMYELIA RESEARCH FOUNDATION INC's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $8k that is directly attributable, 97% of it comes from New York funders.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $86k arriving through sponsors registered in 2 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
CHIARI & SYRINGOMYELIA RESEARCH FOUNDATION INC's revenue fell 45% between 2017 and 2025.
this organization peer median middle 50% of peers· 6,360 health nonprofits under $100k, FY2025
Organizations like CHIARI & SYRINGOMYELIA RESEARCH FOUNDATION INC
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In New York
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Public support
69%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 1 state
Screen this organization
A dated, signed PDF of the compliance screen for CHIARI & SYRINGOMYELIA RESEARCH FOUNDATION INC: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds CHIARI & SYRINGOMYELIA RESEARCH FOUNDATION INC?
- CHIARI & SYRINGOMYELIA RESEARCH FOUNDATION INC (New York) receives grants from 4 organizations whose IRS filings report $93,642 to it, the largest being NETWORK FOR GOOD ($82,355). 2 of them have funded it in more than one year, and 92% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- How many funders does CHIARI & SYRINGOMYELIA RESEARCH FOUNDATION INC have?
- IRS filings report 4 organizations giving $93,642 in grants to CHIARI & SYRINGOMYELIA RESEARCH FOUNDATION INC, 2 of which have funded it in more than one year.
- Who is the largest funder of CHIARI & SYRINGOMYELIA RESEARCH FOUNDATION INC?
- NETWORK FOR GOOD is the largest funder on record, with $82,355 in grants. The full list of funders is on this page.
- How can an organization like CHIARI & SYRINGOMYELIA RESEARCH FOUNDATION INC find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in New York. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
Play a game about who funds Chiari & Syringomyelia Research →
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2017–2025), and the filings of 4 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing