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Washington · Nonprofit

INTRACRANIAL HYPERTENSION RESEARCH FOUNDATION

INTRACRANIAL HYPERTENSION RESEARCH FOUNDATION (Washington) receives grants from 4 organizations whose IRS filings report $85,606 to it, the largest being NETWORK FOR GOOD ($69,536). 3 of them have funded it in more than one year, and 100% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.

Revenue FY2024
$15k
Funders on record
4
Grants received
$86k
Net assets
$116k
3/4 repeat funderspeak grant-dependency 61%
01What it does

What Intracranial Hypertension Research Foundation does

Mission

Fund and conduct research relating to intracranial hypertension disorder; to develop therapies, treatments, and ultimately a cure for people suffering from such disorder; to disseminate such information to the medical community and patients and the general public at large; and to develop all databases and patient registries incident thereto.

As stated on its FY2024 Form 990-EZ.

Programs

  1. The foundation (ihrf) maintained and expanded its website (ihrfoundation.org) and facebook with information in the ongoing effort to disseminate, educate and update physicians, researchers, patients and other organizations. There were approximately 34,000 user visits from 140 countries with 111,506 sessions in 2024. To keep patients up to date, ihrf publishes an online newsletter providing general information and reviews of newly published medical literature.ihrf continues its service of responding to patients, physicians, researchers and others whose inquiries made up more than 2,800 emails and phone calls in 2024.

    $3,410 spent
    100% of program spending
  2. In march of 2020, because of covid, oregon health & science university medical center (ohsu) required that all non-essential offices had to be closed. As a result, the intracranial registry, co-sponsored with the casey eye institute, was unable to function, as research coordinators and all volunteers had to work from home. This made it impossible to function and it remains closed since june of that year. Designed exclusively for intracranial hypertension research, it contained the largest number of chronic ih patients worldwide with an enrollment data base of 2,675 patients from over 40 countries and had continued to add 5-7 new patients per month at the time of closure. It also collected extensive medical data and imaging studies on each enrollee, filed on a pac system at the neuro-radiology dept at ohsu, most likely the largest collection in the world of ih patients, numbering approximately 17,500.our last completed study of data on long-term outcomes of bariatric surgery in patients with idiopathic ih, long term outcomes of bariatric surgery in idiopathic intracranial hypertension patients was published in the public access system of the neurologist, june 2022. The print…

The 2 programs described on its FY2024 Form 990-EZ. Program spending in total: $3,410.

02The organization over time

The organization over time

Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.

100 = 20172017 Revenue 100 ($37k) Expenses 100 ($148k) Net assets 100 ($255k)2019 Revenue 155 ($58k) Expenses 105 ($154k) Net assets 26 ($67k)2020 Revenue 89 ($33k) Expenses 27 ($41k) Net assets 23 ($60k)2021 Revenue 63 ($24k) Expenses 4 ($6k) Net assets 30 ($77k)2022 Revenue 60 ($23k) Expenses 5 ($8k) Net assets 36 ($92k)2023 Revenue 55 ($20k) Expenses 4 ($5k) Net assets 42 ($107k)2024 Revenue 40 ($15k) Expenses 4 ($6k) Net assets 46 ($116k)
2017201920202021202220232024
Revenue (40)Expenses (4)Net assets (46)Peer revenue range

Balance sheet

Total assets at each year end, in dollars. The largest one-year move in total assets was 2020 to 2021, from $60k to $77k (+29%).

$255k
$67k
$60k
$77k
$92k
$107k
$116k
2017201920202021202220232024
Total assets

How it's funded, over time

Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.

2017
2019
2020
2021
2022
2023
2024
ContributionsProgram revenueInvestmentOther

69% of INTRACRANIAL HYPERTENSION RESEARCH FOUNDATION’s revenue is contributions — about as donation-reliant as the typical peer (95% for the typical peer).

This organization
Typical peer · 8,549 orgs

Surplus & reserves

Operating surplus or deficit each year, and months of liquidity in hand. 3 of the last 7 reported years ran a deficit.

−$110k
’17
−$96k
’19
−$7k
’20
$17k
’21
$15k
’22
$15k
’23
$9k
’24

Leadership and staff

Board chair

Emanuel Tanne Md

Chairman

As listed on its FY2024 Form 990-EZ.

03Who funds it

Who funds it, year by year

2018 → 2023: the base broadened from 1 funder to 2 funders, grant income fell $21k → $6k.

3 of 4 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 100% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.

From the IRS filings of INTRACRANIAL HYPERTENSION RESEARCH FOUNDATION’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

How concentrated its funding is

INTRACRANIAL HYPERTENSION RESEARCH FOUNDATION leans on a few funders — its largest provides 81% of grant income and the top three 100%; half comes from just 1 funder.

the vertical line marks half of all grant income — 1 funder to its left

100% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund INTRACRANIAL HYPERTENSION RESEARCH FOUNDATION.

81%
largest funder
100%
top three
~1
effective funders

Largest funder’s share by year: 2018 100% · 2019 100% · 2020 66% · 2021 85% · 2022 80% · 2023 84% — diversifying over time.

“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

Where its funders are

100% of INTRACRANIAL HYPERTENSION RESEARCH FOUNDATION's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $16 that is directly attributable, 100% of it comes from funders outside Washington, across 1 state.

NY

Funder states come from each funder’s own filing. $86k arriving through sponsors registered in 3 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

04Its place in the field

Against its field

INTRACRANIAL HYPERTENSION RESEARCH FOUNDATION runs a healthier operating margin than three-quarters of the 7,183 philanthropy nonprofits its size.

Operating margin61% · top quartile
Revenue growth (annualized)−12% · below the median

this organization peer median middle 50% of peers· 7,183 philanthropy nonprofits under $100k, FY2024

Organizations like INTRACRANIAL HYPERTENSION RESEARCH FOUNDATION

Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.

In Washington

Nationally

05Profile & governance

Read directly from this organization’s own Form 990, as neutral context.

Public support

59%

Share of support from the public (Schedule A) — the basis for its public-charity status.

Screen this organization

A dated, signed PDF of the compliance screen for INTRACRANIAL HYPERTENSION RESEARCH FOUNDATION: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.

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Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf

Questions and answers

Who funds INTRACRANIAL HYPERTENSION RESEARCH FOUNDATION?
INTRACRANIAL HYPERTENSION RESEARCH FOUNDATION (Washington) receives grants from 4 organizations whose IRS filings report $85,606 to it, the largest being NETWORK FOR GOOD ($69,536). 3 of them have funded it in more than one year, and 100% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
How many funders does INTRACRANIAL HYPERTENSION RESEARCH FOUNDATION have?
IRS filings report 4 organizations giving $85,606 in grants to INTRACRANIAL HYPERTENSION RESEARCH FOUNDATION, 3 of which have funded it in more than one year.
Who is the largest funder of INTRACRANIAL HYPERTENSION RESEARCH FOUNDATION?
NETWORK FOR GOOD is the largest funder on record, with $69,536 in grants. The full list of funders is on this page.
How can an organization like INTRACRANIAL HYPERTENSION RESEARCH FOUNDATION find more funders?
Start with the funders already giving here, then look at the foundations that back similar organizations in Washington. The funding by cause and by state pages list the largest funders for a given area and how to approach them.

Play a game about who funds Intracranial Hypertension Research →

These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2024 (financials across 2017–2024), and the filings of 4 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing