North Carolina · Nonprofit
AMERICAN CLEFT PALATE - CRANIOFACIAL ASSOCIATION
AMERICAN CLEFT PALATE - CRANIOFACIAL ASSOCIATION (North Carolina) receives grants from 15 organizations whose IRS filings report $590,507 to it, the largest being CONRAD N HILTON FOUNDATION ($250,000). 7 of them have funded it in more than one year.
- Revenue FY2024
- $1.7M
- Funders on record
- 15
- Grants received
- $591k
- Net assets
- $4.7M
What American Cleft Palate - Craniofacial Association does
Mission
Partnering with patients, families, and professionals, acpa values excellence in collaboration, support, education, innovative research, and interdisciplinary team care.
As stated on its FY2024 Form 990.
Programs
Professional education related to clinical care and research aims to:a) educate concerned professionals about new clinical and research information.b) provide an opportunity for involved professionals to update their knowledge and skills in their own and related disciplines.c) create an environment that encourages interaction among multidisciplinary participants.d) publish a journal to communicate relevant information to professionals.
$811,368 spentof which $35,500 as grants$690,248 earned by the program60% of program spendingMembership and team services aims to:a) create and maintain a diverse network of professionals involved with clinical team care and research relating to individuals affected by cleft lip, cleft palate, and other craniofacial abnormalities.b) partner with family services to improve the quality of team care and advocate for improved patient care.
$500,464 spent37% of program spendingOutreach and alliances aims to:a) educate the public about the importance of team care as it relates to individuals affected by facial birth defects.b) partner with allied organizations to enhance capabilities to achieve strategic objectives related to patient care.
$36,800 spent3% of program spending
The 3 programs described on its FY2024 Form 990, listed largest first by expense. Program spending in total: $1,348,632.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2020 to 2021, from $3.6M to $4.4M (+21%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2021 16% · 2022 0%. Grants only. Government contracts and fees sit inside program revenue.
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 3 of the last 8 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Chief executive
Adam Levy
Executive director
As listed on its FY2024 Form 990.
Who funds it, year by year
2017 → 2023: the base broadened from 1 funder to 2 funders, grant income rose $200 → $2k.
5 of 15 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 9% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of AMERICAN CLEFT PALATE - CRANIOFACIAL ASSOCIATION’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
AMERICAN CLEFT PALATE - CRANIOFACIAL ASSOCIATION leans on a few funders — its largest provides 42% of grant income and the top three 90%; half comes from just 2 funders.
the vertical line marks half of all grant income — 2 funders to its left
28% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund AMERICAN CLEFT PALATE - CRANIOFACIAL ASSOCIATION.
Largest funder’s share by year: 2017 100% · 2018 93% · 2019 96% · 2020 54% · 2021 96% · 2022 68% · 2023 87% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
22% of AMERICAN CLEFT PALATE - CRANIOFACIAL ASSOCIATION's funders are still giving 3 years after their first grant; 47% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
AMERICAN CLEFT PALATE - CRANIOFACIAL ASSOCIATION draws 100% of its grant income from funders outside North Carolina, across 8 states in all.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $53k arriving through sponsors registered in 5 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Organizations like AMERICAN CLEFT PALATE - CRANIOFACIAL ASSOCIATION
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In North Carolina
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
79% of spending goes to programs.
Governance
Public support
94%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Screen this organization
A dated, signed PDF of the compliance screen for AMERICAN CLEFT PALATE - CRANIOFACIAL ASSOCIATION: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds AMERICAN CLEFT PALATE - CRANIOFACIAL ASSOCIATION?
- AMERICAN CLEFT PALATE - CRANIOFACIAL ASSOCIATION (North Carolina) receives grants from 15 organizations whose IRS filings report $590,507 to it, the largest being CONRAD N HILTON FOUNDATION ($250,000). 7 of them have funded it in more than one year.
- How many funders does AMERICAN CLEFT PALATE - CRANIOFACIAL ASSOCIATION have?
- IRS filings report 15 organizations giving $590,507 in grants to AMERICAN CLEFT PALATE - CRANIOFACIAL ASSOCIATION, 7 of which have funded it in more than one year.
- Who is the largest funder of AMERICAN CLEFT PALATE - CRANIOFACIAL ASSOCIATION?
- CONRAD N HILTON FOUNDATION is the largest funder on record, with $250,000 in grants. The full list of funders is on this page.
- How can an organization like AMERICAN CLEFT PALATE - CRANIOFACIAL ASSOCIATION find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in North Carolina. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2024 (financials across 2017–2024), and the filings of 15 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing