Kentucky · Nonprofit
A CURE FOR ROBERT INC
A CURE FOR ROBERT INC (Kentucky) receives grants from 16 organizations whose IRS filings report $513,176 to it, the largest being LIFT A LIFE FOUNDATION INC ($160,000). 12 of them have funded it in more than one year.
- Revenue FY2024
- $736k
- Funders on record
- 16
- Grants received
- $513k
- Net assets
- $1.6M
What A Cure for Robert Inc does
Mission
The organization is working to find a cure or treatment for mucopolysaccharidosis type iva ("morquio") through fundraising and granting of funds to various research institutions.
As stated on its FY2024 Form 990.
Program
The organization is working to find a cure or treatment for mucopolysaccharidosis type iva ("morquio") through fundraising and granting of funds to various research institutions.this disease is a rare genetic disease that prohibits the body from breaking down certain sugars. It is severely progressive, and the effects of the disease will get significantly worse with time. The disease affects about 1 in 200,000 people, but the effects are felt in communities through the united states and world. There is one treatment available- a slow weekly intravenous medication that is disruptive, expensive, causes adverse reactions (many cannot take it), and worse, has been proven to have limited effects.
$181,012 spentof which $180,000 as grants100% of program spending
The program described on its FY2023 Form 990. Program spending in total: $181,012.
The organization over time
Each line starts at 100 in 2021, so what you read is the shape rather than the size: 150 means half as much again as 2021, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2022 to 2023, from $723k to $1.2M (+69%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
103% of A CURE FOR ROBERT INC’s revenue is contributions — more reliant on donations than three-quarters of its peers (82% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 0 of the last 4 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Who funds it, year by year
2021 → 2023: the base broadened from 5 funders to 13 funders, grant income rose $46k → $154k.
7 of 16 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 38% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of A CURE FOR ROBERT INC’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
A CURE FOR ROBERT INC has a broad base — no single funder exceeds 31% of grant income, and it takes 3 funders to reach half.
the vertical line marks half of all grant income — 3 funders to its left
44% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund A CURE FOR ROBERT INC.
Largest funder’s share by year: 2021 44% · 2022 35% · 2023 32% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Where its funders are
A CURE FOR ROBERT INC draws 92% of its grant income from funders outside Kentucky, across 7 states in all.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $196k arriving through sponsors registered in 6 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
A CURE FOR ROBERT INC runs a healthier operating margin than three-quarters of the 13,754 health nonprofits its size.
this organization peer median middle 50% of peers· 13,754 health nonprofits $100k–$1M, FY2024
Organizations like A CURE FOR ROBERT INC
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Kentucky
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
99% of spending goes to programs.
Governance
Footprint & structure
Files a return copy in 1 state
Screen this organization
A dated, signed PDF of the compliance screen for A CURE FOR ROBERT INC: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds A CURE FOR ROBERT INC?
- A CURE FOR ROBERT INC (Kentucky) receives grants from 16 organizations whose IRS filings report $513,176 to it, the largest being LIFT A LIFE FOUNDATION INC ($160,000). 12 of them have funded it in more than one year.
- How many funders does A CURE FOR ROBERT INC have?
- IRS filings report 16 organizations giving $513,176 in grants to A CURE FOR ROBERT INC, 12 of which have funded it in more than one year.
- Who is the largest funder of A CURE FOR ROBERT INC?
- LIFT A LIFE FOUNDATION INC is the largest funder on record, with $160,000 in grants. The full list of funders is on this page.
- How can an organization like A CURE FOR ROBERT INC find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Kentucky. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2024 (financials across 2021–2024), and the filings of 16 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing