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· Public charity

The Center for CC&D of Inherited Blood Disorders

To improve health and longevity and lower costs of care; by providing education, support, and services to deliver comprehensive care for patients and their families with rare, chronic inherited blood disorders.

$4.8M
Granted FY2025still arriving
24
Grants FY2025still arriving
9
States reached
$1.7M
Largest
01What it funds
01100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2024.

Health$28M
02FY2025 · 24 grants

Where the money goes

Grants by size, and the largest recipients.

By grant size · FY2025

  • Under $10k1 grant · $5k
  • $10k–50k4 grants · $143k
  • $50k–250k15 grants · $1.7M
  • $250k+4 grants · $3.0M
$109,061
Median grant
9
States reached
$85M
Total assets
Largest grants
RecipientAmount
SICKLE CELL DISEASE FOUNDATION OF CALIFORNIA$1,665,421
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA (DAVIS)$515,135
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA (UCSF)$439,866
UCSF BENIOFF CHILDREN'S HOSPITALS FOUNDATION$350,918
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA (UCSD)$228,544
LUNDQUIST INSTITUTE FOR BIOMEDICAL INNOVATION AT HARBOR-UCLA MEDICAL$170,895
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA (UCLA)$160,820
ARROWHEAD REGIONAL MEDICAL CENTER$155,377
HEMOSTASIS AND THROMBOSIS CENTER OF NV$115,554
KERN MEDICAL CENTER FOUNDATION$113,701
VALLEY CHILDREN'S HOSPITAL OF CENTRAL CALIFORNIA$110,594
LOMA LINDA UNIVERSITY HEALTH CARE$109,061
LUCILE PACKARD CHILDREN'S HOSPITAL AT STANFORD$108,368
SEATTLE CHILDREN'S HOSPITAL$88,076
CHILDREN'S HOSPITAL LOS ANGELES$84,693
02The need
03

Does the money reach high-need areas?

Each grant placed by the hardship in its grantee’s ZIP, against the area’s typical level.

show:

Dollar for dollar, its grants (FY17–25) land where the poverty rate runs at 13%, against an area that typically sits at 10%. 94% of its dollars go to grantees based in above-average-need neighborhoods. Most of its grants land in higher-need ZIPs.

area typical 10%THE UNIVERSITY OF ARIZONA: $134k → 15%LUCILE PACKARD CHILDREN'S HOSPITAL AT STANFORD: $108k → 8%UCSF BENIOFF CHILDREN'S HOSPITALS FOUNDATION: $351k → 10%THE REGENTS OF THE UNIVERSITY OF CALIFORNIA (DAVIS): $515k → 12%ARROWHEAD REGIONAL MEDICAL CENTER: $155k → 14%CHILDREN'S HOSPITAL LOS ANGELES: $89k → 14%KERN MEDICAL CENTER FOUNDATION: $458k → 18%SEATTLE CHILDREN'S HOSPITAL: $88k → 9%HEMOSTASIS AND THROMBOSIS CENTER OF NV: $116k → 13%LUCILE PACKARD CHILDREN'S HOSPITAL AT STANFORD: $85k → 8%UCSF BENIOFF CHILDREN'S HOSPITALS FOUNDATION: $192k → 10%THE REGENTS OF THE UNIVERSITY OF CALIFORNIA (DAVIS): $423k → 12%ARROWHEAD REGIONAL MEDICAL CENTER: $146k → 14%CHILDREN'S HOSPITAL LOS ANGELES: $88k → 14%KERN MEDICAL CENTER FOUNDATION: $114k → 18%HEMOSTASIS AND THROMBOSIS CENTER OF NV: $107k → 13%CHILDREN'S HOSPITAL AND RESEARCH CENTER AT OAKLAND: $447k → 10%THE REGENTS OF THE UNIVERSITY OF CALIFORNIA (DAVIS): $274k → 12%CHILDREN'S HOSPITAL LOS ANGELES: $85k → 14%KERN MEDICAL CENTER FOUNDATION: $100k → 18%HEMOSTASIS AND THROMBOSIS CENTER OF NV: $97k → 13%LOMA LINDA UNIVERSITY HEALTH CARE: $561k → 14%LOMA LINDA UNIVERSITY HEALTH CARE: $110k → 14%LOMA LINDA UNIVERSITY HEALTH CARE: $109k → 14%SICKLE CELL DISEASE FOUNDATION OF CALIFORNIA: $3.1M → 14%SICKLE CELL DISEASE FOUNDATION OF CALIFORNIA: $2.8M → 14%SICKLE CELL DISEASE FOUNDATION OF CALIFORNIA: $2.7M → 14%SICKLE CELL DISEASE FOUNDATION OF CALIFORNIA: $1.7M → 14%SICKLE CELL DISEASE FOUNDATION OF CALIFORNIA: $1.0M → 14%SICKLE CELL DISEASE FOUNDATION OF CALIFORNIA: $515k → 14%SICKLE CELL DISEASE FOUNDATION OF CALIFORNIA: $284k → 14%SICKLE CELL DISEASE FOUNDATION OF CALIFORNIA: $218k → 14%SICKLE CELL DISEASE FOUNDATION OF CALIFORNIA: $177k → 14%THE REGENTS OF THE UNIVERSITY OF CALIFORNIA (UCSD): $375k → 11%SICKLE CELL DISEASE FOUNDATION OF CALIFORNIA: $163k → 14%THE REGENTS OF THE UNIVERSITY OF CALIFORNIA (UCSD): $237k → 11%SICKLE CELL DISEASE FOUNDATION OF CALIFORNIA: $158k → 14%LUNDQUIST INSTITUTE FOR BIOMEDICAL INNOVATION AT HARBOR-UCLA MEDICAL: $171k → 14%THE REGENTS OF THE UNIVERSITY OF CALIFORNIA (UCSD): $229k → 11%SICKLE CELL DISEASE FOUNDATION OF CALIFORNIA: $141k → 14%LUNDQUIST INSTITUTE FOR BIOMEDICAL INNOVATION AT HARBOR-UCLA MEDICAL: $119k → 14%THE REGENTS OF THE UNIVERSITY OF CALIFORNIA (UCSD): $229k → 11%SICKLE CELL DISEASE FOUNDATION OF CALIFORNIA: $107k → 14%SICKLE CELL DISEASE FOUNDATION OF CALIFORNIA: $101k → 14%THE REGENTS OF THE UNIVERSITY OF CALIFORNIA (UCLA): $220k → 14%SICKLE CELL DISEASE FOUNDATION OF CALIFORNIA: $95k → 14%THE REGENTS OF THE UNIVERSITY OF CALIFORNIA (UCLA): $161k → 14%THE REGENTS OF THE UNIVERSITY OF CALIFORNIA (UCLA): $134k → 14%0%20%40%50%more need →
grant to an above-average-need area below average· circle size = grant amount
How this is measured
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty line in the grantee’s ZIP, averaged from the tracts in that ZIP.

Which US states its grants reach

WA
ID
OR
NV
CA
UT
CO
MD
AZ
HI
How this is measured
US grants placed by each grantee’s ZIP, which can differ from where services are delivered. Need from public data (U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA), shown as context about the area, never attributed to the funder’s giving.
04

Where the work is directed

The same grants placed two ways: where each recipient sits, and where its stated purpose sends the money.

About 10% of The Center for CC&D of Inherited Blood Disorders’s grant dollars are earmarked for a different county than the recipient’s own address. By recipient address, 91% of the giving stays in CA; by stated purpose, 85%.

The Center for CC&D of Inherited Blood Disorderslessmore of its giving
Placed by recipient address
How this is measured
Recipient view: each grant at its grantee’s ZIP, mapped to a county. Directed view: each grant at the county its stated purpose names, falling back to the recipient’s county when the purpose names no place; US grants only. A county shows only if it carries the top 95% of that view’s dollars. Purposes are read from the funder’s own 990 grant descriptions.
03Its grantees
repeat funding

Who it funds again

Organizations funded in more than one year, against those funded once.

100%of every dollar goes to organizations it has funded before.
$32M · 27 repeat orgs$30k to everyone else

27 repeat relationships: 23 still active in FY2025, 4 since wound down.

How the two cohorts compare

Re-uppedFunded once

Organizations

27
2

Total granted

$32M
$30k

Median revenue growth · since first grant

+38%
+39%

Still filing today

63%
0%

New vs renewed · share of each year

In FY2025, 100% of grant dollars renewed an existing relationship; $0 went to new ones.

50%100%’17’18’19’20’21’22’23’24’25
RenewedFirst-time

Where new relationships form · theme of each grantee’s first grant

’17’18’19’20’21’22’23’24’25
HealthEducationOther
How this is measured
First-time means a grantee’s first year in the filing window; renewed means funded in an earlier year too. The renewed share climbs naturally as a portfolio matures, so the signal is a year that bucks it (a wave of new grantees). The earliest year is left-censored: relationships that predate the data read as new. Theme is the grantee’s IRS cause.

Backed again, and grew

  • CH
    Children's Hospital Los Angeles
    9× · 2017–2025 · $867k · revenue +78%
  • LL
    Loma Linda University Health Care
    3× · 2023–2025 · $780k · revenue +23%
  • CH
    CHILDREN'S HOSPITAL & RESEARCH CENTER AT OAKLAND
    4× · 2017–2020 · $761k · revenue +47%

Funded once

  • LA
    LOS ANGELES COUNTY REGISTRAR-RECORDERCOUNTY CLERK
    one grant, 2017 · $20k
  • MS
    Mountain States Tumor Institute Inc
    one grant, 2017 · $10k · revenue +39%
How this is measured

Repeat means funded in two or more distinct years. Growth and survival are read from each grantee’s own subsequent IRS filings.

04Its field

Closest unfunded matches

The nonprofits that most resemble its grantees but are not funded by it, scored along the direction from the rest of the field toward the portfolio. A resemblance in what they say they do, not a recommendation.

1
Sutter Bay Hospitals

MISSION STATEMENT: MISSION: CARING FOR OUR PATIENTS FIRST AND OUR PEOPLE ALWAYS. VISION: TO BE THE MOST COMPREHENSIVE, INTEGRATED AND CONNECTED HEALTH SYSTEM FOR GETTING AND STAYING WELL. VALUES: EXCELLENCE - We deliver high-quality,…

Health
2
Children's Hospital Corporation

Provider of pediatric healthcare, education, research & community service

Health
3
Southern California University of Health Sciences

The mission of southern california university of health sciences (scu) is to educate students as competent, caring and successful practitioners of integrative healthcare. the university is committed to providing excellence in academics,…

Education
4
Children's Health Care

We champion the health needs of children and families. we are committed to improving children's health by providing the highest-quality, family centered care, advanced through research and education.

Health
5
The Johns Hopkins Hospital

For more than 125 years, the mission of the johns hopkins hospital has been to lead the world in the diagnosis and treatment of disease and to train tomorrow's great physicians, nurses and scientists. above all, we aim to provide the…

Health
6
University of Southern California

The central mission of the university of southern california is the development of human beings and society as a whole through the cultivation and enrichment of the human mind and spirit. the principal means by which our mission is…

Education
7
Pasadena Hospital Association Ltd

Huntington Health stands for community. We stand for compassion. But more than anything, Huntington stands for health. Providing world-class health care is our specialty, and it's what we've been doing for the San Gabriel Valley since…

Health
8
Beth Israel Hospital & Children's Hospital Medical Care Corporation

Pediatric healthcare, education & research

—
9
Fresno Community Hospital and Medical Center

Fresno community hospital and medical center's (fch&mc's) exists to better the lives of all those we serve

Health
10
Truman Medical Center Incorporated

University health is an academic health center providing accessible, state-of-the-art quality healthcare to our community regardless of the ability to pay.

Health
11
Sutter Valley Hospitals

MISSION STATEMENT: MISSION: CARING FOR OUR PATIENTS FIRST AND OUR PEOPLE ALWAYS. VISION: TO BE THE MOST COMPREHENSIVE, INTEGRATED AND CONNECTED HEALTH SYSTEM FOR GETTING AND STAYING WELL. VALUES: EXCELLENCE - We deliver high-quality,…

Health
12
East Tennessee Children's Hospital Association Inc

East tennessee children's hospital is a free-standing, independent, not-for-profit pediatric health care system which serves the east tennessee region. children's hospital is certified by the state of tennessee as a comprehensive regional…

Health
How this is measured
The grantee most central to the portfolio’s shape is Orthopaedic Hospital; the most unlike its peers is Kern Medical Center Foundation. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.
05the grantee network

19 grantees tracked through their own filings, 2017–2025.

Each grant beside the grantee’s revenue from every source, year by year.

How this is measured

Counted here: distinct organizations funded across 2017 to 2025, not grant rows in a single year, so this will not match the grant count on the cover. 19 of the 30 grantees resolved in that span have returns of their own we could reconcile.

Each grantee is resolved to its own IRS returns. Association, dated; never a causal claim.

2
Load-bearing (≥25% of a budget)
1
Early backer (in before they grew)
18/19
Grantees still filing
16/19
Grew since first funded

Where the money sits, by cause and then by grantee

Sickle Cell Disease Foundation of California: $13,384,531 · HealthSickle Cell Disease Foundation of CaliforniaChildren's Hospital Los Angeles: $866,696 · HealthLoma Linda University Health Care: $780,197 · HealthCHILDREN'S HOSPITAL & RESEARCH CENTER AT OAKLAND: $761,242 · HealthHEMOSTASIS AND THROMBOSIS CENTER OF NEVADA: $697,885 · Health+11 more: $4,032,483 · Health+11 moreUNIVERSITY OF CALIFORNIA SAN FRANCISCO: $5,470,061 · OtherUNIVERSITY OF CALIFORNIA SAN FRANCISCOUNIVERSITY OF CALIFORNIA DAVIS: $1,723,106 · OtherUNIVERSITY OF CALIFORNIA DAVISREGENTS OF THE UNIVERSITY OF CALIFORNIA AT SAN DIEGO: $1,441,675 · OtherREGENTS OF THE UNIVERSITY OF CALIFORNIA …REGENTS UNIV OF CALIFORNIA: $846,591 · OtherREGENTS UNIV OF CALIFORNIAPEDIATRIC SUBSPECIALTY FACULTY: $487,004 · OtherUNIVERSITY OF ARIZONA: $429,511 · OtherKAPI OLANI MEDICAL CENTER FOR WOMEN & CHILDREN: $406,427 · Other+5 more: $897,010 · Other+5 moreTHE BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY: $658,878 · Education+1 more: $10,000 · Education
Health$20,523,034Other$11,701,385Education$668,878

Each grantee by its size and the funder’s share of it; top left is load-bearing

25%50%75%100%$10M$100Mgrantee revenue →↑ funder's share of their budgetSickle Cell Disease Foundation of California: $13,384,531 over 9y, 85% of budgetChildren's Hospital Los Angeles: $866,696 over 9y, 0.0% of budgetLoma Linda University Health Care: $780,197 over 3y, 0.3% of budgetCHILDREN'S HOSPITAL & RESEARCH CENTER AT OAKLAND: $761,242 over 4y, 0.1% of budgetHEMOSTASIS AND THROMBOSIS CENTER OF NEVADA: $697,885 over 8y, 5.6% of budgetKern Medical Center Foundation: $671,592 over 3y, 28% of budgetVALLEY CHILDREN'S HOSPITAL: $667,197 over 9y, 0.0% of budgetTHE BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY: $658,878 over 9y, 0.0% of budgetORTHOPAEDIC HOSPITAL: $599,847 over 9y, 0.1% of budgetCHILDREN'S HOSPITAL & RESEARCH CNTR FNDN: $543,061 over 2y, 1.3% of budgetRADY CHILDREN'S HOSPITAL SAN DIEGO: $355,101 over 9y, 0.0% of budgetLUNDQUIST INSTITUTE FOR BIOMEDICAL INNOVATION AT HARBOR-UCLA MEDICAL CENTER: $317,840 over 3y, 0.2% of budgetPhoenix Children's Hospital: $296,686 over 6y, 0.0% of budgetSEATTLE CHILDREN'S HOSPITAL: $280,744 over 9y, 0.0% of budgetIHC HEALTH SERVICES INC: $135,550 over 4y, 0.0% of budgetALLIANCE FOR CHILDHOOD DISEASES: $96,621 over 2y, 0.2% of budgetBECKMAN RESEARCH INSTITUTE OF THE CITY OF HOPE: $68,244 over 3y, 0.0% of budgetMountain States Tumor Institute Inc: $10,359 over 1y, 0.0% of budgetJOHNS HOPKINS UNIVERSITY: $10,000 over 2y, 0.0% of budget
Grantee by grantee: a decade per organization, before and after funding

A decade per grantee: revenue shaded, grants as bars, all rows on one timeline.

  • Who funds Sickle Cell Disease Foundation of California ↗
  • Who funds Children's Hospital Los Angeles ↗
  • Who funds Loma Linda University Health Care ↗
  • Who funds CHILDREN'S HOSPITAL & RESEARCH CENTER AT OAKLAND ↗
  • Who funds HEMOSTASIS AND THROMBOSIS CENTER OF NEVADA ↗
  • Who funds Kern Medical Center Foundation ↗
  • Who funds VALLEY CHILDREN'S HOSPITAL ↗
  • Who funds THE BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY ↗
  • Who funds ORTHOPAEDIC HOSPITAL ↗
  • Who funds CHILDREN'S HOSPITAL & RESEARCH CNTR FNDN ↗
  • Who funds RADY CHILDREN'S HOSPITAL SAN DIEGO ↗
  • Who funds LUNDQUIST INSTITUTE FOR BIOMEDICAL INNOVATION AT HARBOR-UCLA MEDICAL CENTER ↗
  • Who funds Phoenix Children's Hospital ↗
  • Who funds SEATTLE CHILDREN'S HOSPITAL ↗
  • Who funds IHC HEALTH SERVICES INC ↗
  • Who funds ALLIANCE FOR CHILDHOOD DISEASES ↗
  • Who funds BECKMAN RESEARCH INSTITUTE OF THE CITY OF HOPE ↗
  • Who funds Mountain States Tumor Institute Inc ↗
  • Who funds JOHNS HOPKINS UNIVERSITY ↗

Co-funders

Grantmakers whose grantees overlap with this funder’s far more than size alone predicts. Closer means stronger alignment; arcs show where they also fund each other. Here they form a tightly interlocked group: most of these funders back each other's grantees too.

Public Health InstituteCA21.4× affinity8 shared granteesties to 11 of 11Hover any node to trace its alignments.Compare side by side →

Open a dossier: Public Health Institute · American Thrombosis and Hemostasis Network Inc · The Children's Hospital of Philadelphia · American Cancer Society Inc · Reach Out and Read Inc · Kaiser Foundation Hospitals · Direct Relief · California Community Foundation · Johns Hopkins University · The Albertsons Companies Foundation · The Blackbaud Giving Fund · Charities Aid Foundation America

How this is measured
Affinity is a Gamma-Poisson posterior co-funding rate, re-centered on the typical rate, so thin evidence shrinks toward no signal. Overlap is association, not proof of shared intent.

How much its grantees rely on government

Each dot is one organization The Center for CC&D of Inherited Blood Disorders funds: left to right is the share of its income from government, bottom to top the share from The Center for CC&D of Inherited Blood Disorders. Bigger dots raise more.

2024
’20’21’22’23’24’25
no gov · 00%6%25%56%100%funder's share of their income ↑0%19%38%56%75%share of the org’s income from government →median 12%
  • Johns Hopkins University: 12% of income from government
no gov moneyreceives it· size = income
0get no government money at all
0rely on government for over half their income
⤢ axis zoomed · 0–75%
typical government reliance, FY20–25
How this is measured
Government income is each org’s traced federal awards (USASpending grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that a grant caused the public funding. Coverage is precision-first, a floor rather than a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12 to 24 months.
05Through Plinth

Warm introductions · Powered by PlinthPlus

How do I get to The Center for CC&D of Inherited Blood Disorders?

Find your warmest path to The Center for CC&D of Inherited Blood Disorders through trustees and officers whose names appear on both boards. Search for your organization and Plinth traces the shortest route it can evidence.

Each link is a name appearing on two organizations’ public IRS 990 filings, matched on that name and, where the filings support it, on location. A same-state match has geographic support, which is a second matching feature rather than confirmation that the two are one person; a cross-state one is the likeliest to be two people who share a name. Every hop shows its tier, low-confidence and distant paths are held back rather than guessed, and it is worth confirming the person before you use the introduction.

On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 30 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

How this is measured
Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

Generated from the IRS Form 990 e-file return for fiscal year 2025, released 2025. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

Source object · view filing

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