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Sickle Cell Disease Association of America Inc at a glanceAlso receives grants: funding profile →

· Public charity

Sickle Cell Disease Association of America Inc

To advocate for people affected by sickle cell conditions and empower community-based organizations.

$2.8M
Granted FY2020
16
Grants FY2020
14
States reached
$266k
Largest
01What it fundsRead
02The needRead
03Its granteesRead
04Its fieldRead
05Through PlinthRead
01What it funds
01100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2020.

Health$7.2MEducation$6k
02FY2020 · 16 grants

Where the money goes

Grants by size, and the largest recipients.

How this is measured
The 16 grants below total $2,069,527, the rows itemized in this filing. The $2,816,948 headline is the total grant expense on the return; the other $747,421 is giving the schedule does not break out (grants under the $5,000 itemization floor, grants to individuals, grants on other schedules). Every figure below describes the itemized rows only.

By grant size · FY2020

  • $10k–50k2 grants · $65k
  • $50k–250k13 grants · $1.7M
  • $250k+1 grant · $266k
$123,619
Median grant
14
States reached
$2.3M
Total assets
Largest grants
RecipientAmount
Sickle Cell Foundation of Georgia Inc$266,490
SCDAA-Michigan Chapter Inc$213,813
Piedmont Health Services and Sickle Cell Agency$209,897
Sickle Cell Association of Texas Marc Thomas Foundation$174,203
Supporters of Families with Sickle Cell Disease$153,623
Sickle Cell Dusease Association of Illinois$130,080
James R Clark Memorial Sickle Cell Foundation$126,443
Children's Sickle Cell Foundation$123,619
Cayene wellness Center$116,883
Sickle Cell Association of New Jersey$109,977
Martin Center Sickle Cell Iniative$107,102
The Sickle Cell Thalassemia Network$102,932
Ohio Sickle Cell and Health Association$88,019
Sickle Cell Disease Foundation of California$81,693
Sickle Cell Disease Association of America Mobile Chapter Inc$49,376
02The need
03

Does the money reach high-need areas?

Each grant placed by the hardship in its grantee’s ZIP, against the area’s typical level.

show:

Dollar for dollar, its grants (FY17–20) land where the poverty rate runs at 15%, against an area that typically sits at 13%. 85% of its dollars go to grantees based in above-average-need neighborhoods. Most of its grants land in higher-need ZIPs.

area typical 13%Children's Sickle Cell Foundation: $124k → 11%SICKLE CELL DISEASE FOUNDATION OF CALIFORNIA: $92k → 14%The Sickle Cell Thalassemia Network: $103k → 20%Sickle Cell Association of Texas Marc Thomas Foundation: $174k → 10%Supporters of Families with Sickle Cell Disease: $154k → 14%James R Clark Memorial Sickle Cell Foundation: $126k → 16%SCDAA-Michigan Chapter Inc: $214k → 21%SCDAA CENTRAL ALABAMA CHAPTER: $80k → 16%Sickle Cell Disease Association of America Mobile Chapter Inc: $49k → 19%Piedmont Health Services and Sickle Cell Agency: $210k → 16%Sickle Cell Foundation of Georgia Inc: $266k → 13%Martin Center Sickle Cell Iniative: $107k → 16%Ohio Sickle Cell and Health Association: $88k → 15%Sickle Cell Dusease Association of Illinois: $130k → 14%Children's Sickle Cell Foundation: $124k → 11%Sickle Cell Disease Foundation of California: $82k → 14%The Sickle Cell Thalassemia Network: $103k → 20%Sickle Cell Association of Texas Marc Thomas Foundation: $174k → 10%Supporters of Families with Sickle Cell Disease: $154k → 14%James R Clark Memorial Sickle Cell Foundation: $126k → 16%SCDAA-Michigan Chapter Inc: $214k → 21%Sickle Cell Disease Association of America Mobile Chapter Inc: $49k → 19%Piedmont Health Services and Sickle Cell Agency: $210k → 16%Sickle Cell Foundation of Georgia Inc: $266k → 13%Martin Center Sickle Cell Iniative: $107k → 16%Ohio Sickle Cell and Health Association: $88k → 15%Sickle Cell Dusease Association of Illinois: $130k → 14%Sickle Cell Association of New Jersey: $110k → 16%Children's Sickle Cell Foundation: $124k → 11%Sickle Cell Disease Foundation of California: $82k → 14%The Sickle Cell Thalassemia Network: $103k → 20%Sickle Cell Association of Texas Marc Thomas Foundation: $174k → 10%Supporters of Families with Sickle Cell Disease: $154k → 14%James R Clark Memorial Sickle Cell Foundation: $126k → 16%SCDAA-Michigan Chapter Inc: $214k → 21%Piedmont Health Services and Sickle Cell Agency: $210k → 16%Sickle Cell Foundation of Georgia Inc: $266k → 13%Martin Center Sickle Cell Iniative: $107k → 16%Ohio Sickle Cell and Health Association: $88k → 15%Sickle Cell Dusease Association of Illinois: $130k → 14%Sickle Cell Association of New Jersey: $110k → 16%CHILDRENS SICKLE CELL FOUNDATION INC: $56k → 11%Sickle Cell Disease Foundation of California: $82k → 14%SICKLE CELL DISEASE ASSOCIATION OF AMERICA - MICHIGAN CHAPTER INC: $64k → 21%PIEDMONT HEALTH SERVICES: $87k → 16%SICKLE CELL FOUNDATION OF GEORGIA: $114k → 13%SICKLE CELL DISEASE ASSOCIATION OF ILLINOIS: $70k → 14%Sickle Cell Association of New Jersey: $110k → 16%0%20%40%50%more need →
grant to an above-average-need area below average· circle size = grant amount
How this is measured
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty line in the grantee’s ZIP, averaged from the tracts in that ZIP.

Which US states its grants reach

IL
MI
NY
OR
IN
OH
PA
NJ
CA
MO
MD
DE
TN
NC
SC
OK
AL
GA
TX
How this is measured
US grants placed by each grantee’s ZIP, which can differ from where services are delivered. Need from public data (U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA), shown as context about the area, never attributed to the funder’s giving.
03Its grantees
repeat funding

Who it funds again

Organizations funded in more than one year, against those funded once.

94%of every dollar goes to organizations it has funded before.
$6.8M · 16 repeat orgs$406k to everyone else

Grantees it renews have grown median revenue +70% since the first grant, against +28% for those funded once.

16 repeat relationships: 16 still active in FY2020, 0 since wound down.

How the two cohorts compare

Re-uppedFunded once

Organizations

16
13

Total granted

$6.8M
$406k

Median revenue growth · since first grant

+70%
+28%

Still filing today

88%
85%

New vs renewed · share of each year

In FY2020, 100% of grant dollars renewed an existing relationship; $0 went to new ones.

50%100%’17’18’19’20
RenewedFirst-time

Where new relationships form · theme of each grantee’s first grant

’17’18’19’20
HealthFood & NutritionEducationOther
How this is measured
First-time means a grantee’s first year in the filing window; renewed means funded in an earlier year too. The renewed share climbs naturally as a portfolio matures, so the signal is a year that bucks it (a wave of new grantees). The earliest year is left-censored: relationships that predate the data read as new. Theme is the grantee’s IRS cause.

Backed again, and grew

  • SC
    SICKLE CELL FOUNDATION OF GEORGIA
    4× · 2017–2020 · $913k · revenue +225%
  • PH
    PIEDMONT HEALTH SERVICES AND SICKLE CELL AGENCY
    5× · 2017–2021 · $717k · revenue +32%
  • SC
    SICKLE CELL DISEASE ASSOC OF ILLINOIS
    4× · 2017–2020 · $460k · revenue +69% · 75% of their budget

Funded once

  • SC
    Sickle Cell Disease Foundation of California
    one grant, 2017 · $92k · revenue -51%
  • SC
    Sickle Cell Disease Association of America MI Chapter Incgraduated
    one grant, 2017 · $64k · revenue +56%
  • TM
    THE MARYLAND SICKLE CELL DISEASE SSOCIATION INCORPORATEDgraduated
    one grant, 2017 · $42k · revenue +507%
How this is measured

Repeat means funded in two or more distinct years. Growth and survival are read from each grantee’s own subsequent IRS filings.

04Its field

Closest unfunded matches

The nonprofits that most resemble its grantees but are not funded by it, scored along the direction from the rest of the field toward the portfolio. A resemblance in what they say they do, not a recommendation.

1
Sickle Cell Foundation Inc

Our goal is to identify and educate our communities about the sickle cell trait and deals specifically with persons who have been diagnosed with one of the sickle cell disease to provide immediate relief to a crisis.

—
2
Sickle Cell Association of South Louisia

Assist those affected by sickle cell anemia.

Health
3
Sickle Cell Disease Association of America Inc

To advocate for people affected by sickle cell conditions and empower community-based organizations.

—
4
American Sickle Cell Anemia Association Inc

Providing health awareness and sickle cell testing to population at risk

Health
5
Southwest Louisiana Sickle Cell Anemia Disease Foundation

To enhance the quality of life for persons with sickle cell disease, their families and the community through education, networking, guidance and referral services.

—
6
Southeast Alabama Sickle Cell Association Inc

Provide education and support to alleviate sickle cell

—
7
Sickle Cell Consortium Inc

To harness and amplify the power of the patient s voice. Ensuring that the sickle cell patient and caregiver are at the center of research, education, advocacy, policy and legislation. Nothing for us without us.

Health
8
North Alabama Sickle Cell Foundatio

Sickle cell education, testing and assessment

Health
9
Sickle Cell Anemia Resource Foundat

Provide pediatric clinic for patients 0-17 years old. the foundation participates in patient care for medication, lab work, transportation, and book scholarships. the foundation conducts education programs in the communities and schools…

Human Services
10
Sickle Forward

Transforming the lives of individuals affected by sickle cell disease in low-resource environments by championing access to timely diagnosis and basic treatment.

Health
11
Sickle Cell Association Inc

Provide health education and counseling services counseling and support services community education and awareness on sickle cell disease advocacy and public education awareness,

Health
12
Sickle Cell Reproductive Health Education Directive Inc

The organization focuses on advocating for high quality reproductive and maternal health care for individuals living with all types of sickle cell disease.

Human Services
How this is measured
The grantee most central to the portfolio’s shape is Sickle Cell Disease Association of America Central Alabama Chapter; the most unlike its peers is Emory University. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.
04the grantee network

27 grantees tracked through their own filings, 2017–2025.

Each grant beside the grantee’s revenue from every source, year by year.

How this is measured

Counted here: distinct organizations funded across 2017 to 2025, not grant rows in a single year, so this will not match the grant count on the cover. 27 of the 29 grantees resolved in that span have returns of their own we could reconcile.

Each grantee is resolved to its own IRS returns. Association, dated; never a causal claim.

9
Load-bearing (≥25% of a budget)
15
Early backer (in before they grew)
25/27
Grantees still filing
22/27
Grew since first funded

Where the money sits, by cause and then by grantee

SICKLE CELL FOUNDATION OF GEORGIA: $913,205 · HealthSICKLE CELL FOUNDATION OF GEORGIASickle Cell Texas Marc Thomas Foundation: $522,609 · HealthSickle Cell Texas Marc Thomas FoundationSUPPORTERS OF FAMILIES WITH SICKLE CELL DISEASE: $460,869 · HealthSUPPORTERS OF FAMILIES WITH SICKLE CELL DISEASEJAMES R CLARK MEMORIAL SICKLE CELL FOUNDATION INC: $427,993 · HealthJAMES R CLARK MEMORIAL SICKLE CELL FOUNDATION INCCHILDREN'S SICKLE CELL FOUNDATION INC: $427,173 · HealthCHILDREN'S SICKLE CELL FOUNDATION INCThe Sickle Cell Association of New Jersey: $377,020 · HealthThe Sickle Cell Association of New JerseyMARTIN CENTER INC MARTIN CTR SICKLE CELL INITIATIVE: $368,006 · HealthMARTIN CENTER INC MARTIN CTR SICKLE CELL INITIATIVESICKLE CELL THALASSEMIA PATIENTS NEWORKS INC: $337,564 · HealthSICKLE CELL THALASSEMIA PATIENTS NEWORKS INCOHIO SICKLE CELL HEALTH ASSOCIATION INC: $291,243 · HealthOHIO SICKLE CELL HEALTH ASSOCIATION INC+7 more: $265,185 · Health+7 morePIEDMONT HEALTH SERVICES AND SICKLE CELL AGENCY: $717,099 · OtherPIEDMONT HEALTH SERVICES AND SICKLE CE…SCDAA-Michigan Chapter Inc: $641,439 · OtherSCDAA-Michigan Chapter IncSICKLE CELL DISEASE ASSOC OF ILLINOIS: $459,901 · OtherSICKLE CELL DISEASE ASSOC OF ILLINOISSickle Cell Disease Foundation of California: $245,079 · OtherSickle Cell Disease Foundation of Cali…SICKLE CELL DISEASE ASSOCIATION OF AMERICA MOBILE: $148,128 · OtherSICKLE CELL DISEASE ASSOCIATION OF AME…SICKLE CELL DISEASE ASSOCIATION OF AMERICA CENTRAL ALABAMA CHAPTER: $125,751 · Other+5 more: $134,499 · Other+5 moreCAYENNE WELLNESS CENTER AND CHILDRENS FOUNDATION INC: $367,305 · Food & NutritionEmory University: $6,468 · Education
Health$4,390,867Other$2,471,896Food & Nutrition$367,305Education$6,468

Each grantee by its size and the funder’s share of it; top left is load-bearing

25%50%75%100%$1.0M$10M$100Mgrantee revenue →↑ funder's share of their budgetSICKLE CELL FOUNDATION OF GEORGIA: $913,205 over 4y, 19% of budgetPIEDMONT HEALTH SERVICES AND SICKLE CELL AGENCY: $717,099 over 5y, 11% of budgetSickle Cell Texas Marc Thomas Foundation: $522,609 over 3y, 23% of budgetSICKLE CELL DISEASE ASSOC OF ILLINOIS: $459,901 over 4y, 75% of budgetJAMES R CLARK MEMORIAL SICKLE CELL FOUNDATION INC: $427,993 over 4y, 18% of budgetCHILDREN'S SICKLE CELL FOUNDATION INC: $427,173 over 4y, 51% of budgetThe Sickle Cell Association of New Jersey: $377,020 over 4y, 56% of budgetMARTIN CENTER INC MARTIN CTR SICKLE CELL INITIATIVE: $368,006 over 4y, 15% of budgetCAYENNE WELLNESS CENTER AND CHILDRENS FOUNDATION INC: $367,305 over 4y, 42% of budgetSICKLE CELL THALASSEMIA PATIENTS NEWORKS INC: $337,564 over 4y, 55% of budgetOHIO SICKLE CELL HEALTH ASSOCIATION INC: $291,243 over 5y, 59% of budgetSICKLE CELL DISEASE ASSOCIATION OF AMERICA MOBILE: $148,128 over 3y, 13% of budgetSICKLE CELL DISEASE ASSOCIATION OF AMERICA CENTRAL ALABAMA CHAPTER: $125,751 over 5y, 3.5% of budgetSickle Cell Disease Association of America MI Chapter Inc: $64,058 over 1y, 3.9% of budgetSickle Cell Foundation of Tennessee: $38,310 over 1y, 14% of budgetNYS Sickle Cell Advocacy Network Inc: $35,003 over 1y, 26% of budgetSickle Cell Association: $33,142 over 1y, 34% of budgetSICKLE CELL ANEMIA FOUNDATION OF OREGON INC: $29,689 over 1y, 42% of budgetSickle Cell Disease Association of America: $19,864 over 1y, 5.9% of budgetSICKLE CELL FOUNDATION OF GREATER MONTGOMERY INC: $16,331 over 1y, 5.4% of budgetCOMMUNITY HEALTH INTERVENTIONS AND SICKLE CELL AGENCY INC: $15,166 over 1y, 0.8% of budgetTOVA COMMUNITY HEALTH INC: $8,315 over 1y, 3.9% of budgetSouth Central Pennsylvania Sickle Cell Council: $6,645 over 1y, 3.0% of budgetEmory University: $6,468 over 1y, 0.0% of budget
Grantee by grantee: a decade per organization, before and after funding

A decade per grantee: revenue shaded, grants as bars, all rows on one timeline.

Co-funders

Grantmakers whose grantees overlap with this funder’s far more than size alone predicts. Closer means stronger alignment; arcs show where they also fund each other. Here they form a tightly interlocked group: most of these funders back each other's grantees too.

The Gbt FoundationThe Pfizer Foundation…Network for GoodThe Bank of America C…American Online Givin…Amazonsmile FoundationFidelity Investments …
The Gbt FoundationCA15.7× affinity5 shared granteesties to 6 of 6Hover any node to trace its alignments.Compare side by side →

Open a dossier: The Gbt Foundation · The Pfizer Foundation Inc · Network for Good · The Bank of America Charitable Foundation Inc · American Online Giving Foundation Inc · Amazonsmile Foundation · Fidelity Investments Charitable Gift Fund

How this is measured
Affinity is a Gamma-Poisson posterior co-funding rate, re-centered on the typical rate, so thin evidence shrinks toward no signal. Overlap is association, not proof of shared intent.

How much its grantees rely on government

Each dot is one organization Sickle Cell Disease Association of America Inc funds: left to right is the share of its income from government, bottom to top the share from Sickle Cell Disease Association of America Inc. Bigger dots raise more.

2024
’20’21’22’23’24’25
no gov · 10%4%15%34%60%funder's share of their income ↑0%25%50%75%100%share of the org’s income from government →median 62%
  • Tova Community Health Inc: 69% of income from government
  • Sickle Cell Anemia Foundation of Oregon Inc: 62% of income from government
  • The Sickle Cell Association of New Jersey: 50% of income from government
  • Supporters of Families With Sickle Cell Disease: 26% of income from government
no gov moneyreceives it· size = income
1get no government money at all
6report government grants on their 990 we could not trace to a source (not plotted)
2rely on government for over half their income
typical government reliance, FY20–25
How this is measured
Government income is each org’s traced federal awards (USASpending grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that a grant caused the public funding. Coverage is precision-first, a floor rather than a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12 to 24 months.
05Through Plinth

Warm introductions · Powered by PlinthPlus

How do I get to Sickle Cell Disease Association of America Inc?

Find your warmest path to Sickle Cell Disease Association of America Inc through trustees and officers whose names appear on both boards. Search for your organization and Plinth traces the shortest route it can evidence.

Each link is a name appearing on two organizations’ public IRS 990 filings, matched on that name and, where the filings support it, on location. A same-state match has geographic support, which is a second matching feature rather than confirmation that the two are one person; a cross-state one is the likeliest to be two people who share a name. Every hop shows its tier, low-confidence and distant paths are held back rather than guessed, and it is worth confirming the person before you use the introduction.

On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 29 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

How this is measured
Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

Generated from the IRS Form 990 e-file return for fiscal year 2020, released 2020. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

Possibly out of date. A more recent filing (FY2024) is on record and reports no grant expense, so the figures above are from FY2020, the most recent year this funder made grants.

Source object · view filing

Play a game based on Sickle Cell Disease Association of America’s filings →

More from the funding graph

The unnamed billions
grants reported with no recipient in the public record
The regranting layer
51% of grant dollars land in the regranting layer
The DAF merry-go-round
$9.7B circulates between donor-advised funds
The endowment market
who holds foundation money, and what just moved
The camps
funders cluster by geography, not ideology
By state
where grant money is based, and what stays home