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Pennsylvania · Nonprofit

CHILDREN'S SICKLE CELL FOUNDATION INC

CHILDREN'S SICKLE CELL FOUNDATION INC (Pennsylvania) receives grants from 11 organizations whose IRS filings report $520,681 to it, the largest being Sickle Cell Disease Association of America Inc ($427,173). 5 of them have funded it in more than one year.

Revenue FY2024
$604k
Funders on record
11
Grants received
$521k
Net assets
$222k
5/11 repeat funderspeak grant-dependency 53%
01What it does

What Children's Sickle Cell Foundation Inc does

Mission

The corporation was formed to provide quality programs for children with sickle cell disease (scd) and their families in the areas of education, social and economic support through an integrated community system, and to conduct informational activities to increase public awareness of sickle cell disease.

As stated on its FY2024 Form 990.

Program

  1. Economic, education and social support for children and their families with the sickle cell disease. The number of persons who benefited was 3,649.

    $595,202 spent
    100% of program spending

The program described on its FY2023 Form 990. Program spending in total: $595,202.

02The organization over time

The organization over time

Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.

100 = 20172017 Revenue 100 ($180k) Expenses 100 ($175k) Net assets -83 ($-13070)2018 Revenue 135 ($243k) Expenses 154 ($271k) Net assets -263 ($-41171)2019 Revenue 205 ($369k) Expenses 178 ($312k) Net assets 100 ($16k)2020 Revenue 353 ($635k) Expenses 285 ($499k) Net assets 970 ($152k)2021 Revenue 362 ($651k) Expenses 303 ($531k) Net assets 1735 ($272k)2022 Revenue 464 ($835k) Expenses 364 ($638k) Net assets 2994 ($469k)2023 Revenue 373 ($670k) Expenses 407 ($713k) Net assets 2720 ($426k)2024 Revenue 336 ($604k) Expenses 461 ($808k) Net assets 1420 ($222k)
'17'18'19'20'21'22'23'24
Revenue (336)Expenses (461)Net assets (1420)Peer revenue range

Balance sheet

Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2023 to 2024, from $432k to $222k (−49%).

$7k
$8k
$38k
$164k
$272k
$469k
$432k
$222k
'17'18'19'20'21'22'23'24
Total assetsTotal liabilities

How it's funded, over time

Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.

2017
2018
2019
2020
2021
2022
2023
2024
ContributionsProgram revenueInvestmentOther

Government-grant reliance: 2017 25% · 2018 50% · 2019 34% · 2020 57% · 2021 60% · 2022 67% · 2023 99% · 2024 95%. Grants only. Government contracts and fees sit inside program revenue.

100% of CHILDREN'S SICKLE CELL FOUNDATION INC’s revenue is contributions — more reliant on donations than three-quarters of its peers (82% for the typical peer).

This organization
Typical peer · 14,893 orgs

Surplus & reserves

Operating surplus or deficit each year, and months of liquidity in hand. 3 of the last 8 reported years ran a deficit.

$5k
’17
−$28k
’18
$57k
’19
$136k
’20
$120k
’21
$197k
’22
−$43k
’23
−$204k
’24
3.2
months of
reserve

Leadership and staff

The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.

Chief executive

Michael L Matthews

Executive director

Board chair

Tahar Boumaza

Board chair

As listed on its FY2024 Form 990.

'17'18'19'20'21'22'23'24
Listed1720171213131212
Joined·+7+0+0+1+3+2+5
No longer listed·4350335
03Who funds it

Who funds it, year by year

2017 → 2023: the base broadened from 4 funders to 5 funders, grant income fell $62k → $5k.

3 of 11 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 4% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.

From the IRS filings of CHILDREN'S SICKLE CELL FOUNDATION INC’s funders (the co-funder graph). Top 9 of 11 funders by total. Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

How concentrated its funding is

CHILDREN'S SICKLE CELL FOUNDATION INC leans on a few funders — its largest provides 82% of grant income and the top three 95%; half comes from just 1 funder.

the vertical line marks half of all grant income — 1 funder to its left

89% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund CHILDREN'S SICKLE CELL FOUNDATION INC.

82%
largest funder
95%
top three
~1
effective funders

Largest funder’s share by year: 2017 90% · 2018 96% · 2019 96% · 2020 86% · 2021 100% · 2022 99% · 2023 92% — broadly stable.

“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

How long its funders stay

33% of CHILDREN'S SICKLE CELL FOUNDATION INC's funders are still giving 3 years after their first grant; 45% give in more than one year at all.

first grant+1y+2y+3y

Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.

Where its funders are

CHILDREN'S SICKLE CELL FOUNDATION INC draws 96% of its grant income from funders outside Pennsylvania, across 4 states in all.

NY
PA
CA
MD

In-state vs out-of-state, by year

’17
’18
’19
’20
’22
’23
Pennsylvania out of state home

Funder states come from each funder’s own filing. $22k arriving through sponsors registered in 3 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

04Its place in the field

Against its field

CHILDREN'S SICKLE CELL FOUNDATION INC has grown faster than half of the 13,754 health nonprofits its size.

Operating margin−34% · bottom quartile
Months of reserve3.2mo · below the median
Revenue growth (annualized)19% · above the median

this organization peer median middle 50% of peers· 13,754 health nonprofits $100k–$1M, FY2024

Government funding CHILDREN'S SICKLE CELL FOUNDATION INC receives

Grants and contracts to this organization from federal (USASpending) and state checkbooks, reconciled to its EIN. $1.1M on record.

Federal$1.1M
grants $1.1Mcontracts $0
21
22
23
24
25
Top agencies
  • Department of Health and Human Services$1.1M

Federal grants vs contracts are distinguished; state line items keep their reported category. Matched by name + geography (the BMF), so coverage is partial and precision-first.

Organizations like CHILDREN'S SICKLE CELL FOUNDATION INC

Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.

In Pennsylvania

Nationally

05Profile & governance

Read directly from this organization’s own Form 990, as neutral context.

Where the money goes

82% of spending goes to programs.

Program 82%Management 18%Fundraising 0%

Governance

12
board members
92%
independent
–Conflict-of-interest policy–Whistleblower policy–Document retention–Board reviewed the 990–Audited financials

Public support

100%

Share of support from the public (Schedule A) — the basis for its public-charity status.

Footprint & structure

Files a return copy in 1 state

PA

Screen this organization

A dated, signed PDF of the compliance screen for CHILDREN'S SICKLE CELL FOUNDATION INC: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.

A paid feature, included from the $75 plan up. Sign in to download.

Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf

Questions and answers

Who funds CHILDREN'S SICKLE CELL FOUNDATION INC?
CHILDREN'S SICKLE CELL FOUNDATION INC (Pennsylvania) receives grants from 11 organizations whose IRS filings report $520,681 to it, the largest being Sickle Cell Disease Association of America Inc ($427,173). 5 of them have funded it in more than one year.
How many funders does CHILDREN'S SICKLE CELL FOUNDATION INC have?
IRS filings report 11 organizations giving $520,681 in grants to CHILDREN'S SICKLE CELL FOUNDATION INC, 5 of which have funded it in more than one year.
Who is the largest funder of CHILDREN'S SICKLE CELL FOUNDATION INC?
Sickle Cell Disease Association of America Inc is the largest funder on record, with $427,173 in grants. The full list of funders is on this page.
How can an organization like CHILDREN'S SICKLE CELL FOUNDATION INC find more funders?
Start with the funders already giving here, then look at the foundations that back similar organizations in Pennsylvania. The funding by cause and by state pages list the largest funders for a given area and how to approach them.

Play a game about who funds Children's Sickle Cell →

These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2024 (financials across 2017–2024), and the filings of 11 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing