Skip to content

Oklahoma · Nonprofit

SUPPORTERS OF FAMILIES WITH SICKLE CELL DISEASE

SUPPORTERS OF FAMILIES WITH SICKLE CELL DISEASE (Oklahoma) receives grants from 10 organizations whose IRS filings report $830,461 to it, the largest being Sickle Cell Disease Association of America Inc ($460,869). 5 of them have funded it in more than one year.

Revenue FY2025
$605k
Funders on record
10
Grants received
$830k
Net assets
$305k
5/10 repeat funderspeak grant-dependency 9%
01What it does

What Supporters of Families With Sickle Cell Disease does

Mission

To improve Self-efficacy, improve the overall quality of life for patients and their families living with Sickle Cell and Thalassemia within the state of Oklahoma.

As stated on its FY2025 Form 990.

Programs

  1. Ohca: increase the knowledge, awareness, advocacy, and support for the people living with chronic health conditions in underserved communities in oklahoma. Supporters of families with sicklecell disease have provided knowledge and awareness through the many outreach programs held each year providing information to more than five thousand participants who have addtended the many activities held each year. Our goal is to increase our outreach by 10% over the next year.

    $38,535 spent$43,790 earned by the program
    11% of program spending
  2. OSDH EDUCATIONAL GRANT: The SCD Education Program works to help the Oklahoma community understand the plight and impact of sickle cell disease and its inherited disorder and traits in Oklahoma. The program works with individuals and families by creating enriching engagements and resources that foster empowerment, self-efficiency, and advocacy. SFSCD believes in models of holistic and integrated care.

    $114,439 spent$221,781 earned by the program
    34% of program spending
  3. Hrsa program: collect data, provide knowledge, awareness and advocacy for families living with sickle cell disease.

    $183,527 spent$226,235 earned by the program
    55% of program spending

The 3 programs described on its FY2025 Form 990, listed largest first by expense. Program spending in total: $336,501.

02The organization over time

The organization over time

Each line starts at 100 in 2021, so what you read is the shape rather than the size: 150 means half as much again as 2021, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.

100 = 20212021 Revenue 100 ($641k) Expenses 100 ($481k) Net assets 100 ($342k)2022 Revenue 104 ($663k) Expenses 134 ($644k) Net assets 106 ($362k)2024 Revenue 133 ($855k) Expenses 184 ($883k) Net assets 131 ($447k)2025 Revenue 94 ($605k) Expenses 136 ($654k) Net assets 89 ($305k)
2021202220242025
Revenue (94)Expenses (136)Net assets (89)Peer revenue range

Balance sheet

Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2024 to 2025, from $499k to $305k (−39%).

$393k
$413k
$499k
$305k
2021202220242025
Total assetsTotal liabilities

How it's funded, over time

Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.

2021
2022
2024
2025
ContributionsProgram revenueInvestmentOther

Government-grant reliance: 2021 0% · 2022 0% · 2024 0% · 2025 44%. Grants only. Government contracts and fees sit inside program revenue.

61% of SUPPORTERS OF FAMILIES WITH SICKLE CELL DISEASE’s revenue is contributions — about as donation-reliant as the typical peer (82% for the typical peer).

This organization
Typical peer · 14,893 orgs

Surplus & reserves

Operating surplus or deficit each year, and months of liquidity in hand. 2 of the last 4 reported years ran a deficit.

$160k
’21
$19k
’22
−$28k
’24
−$49k
’25
5.6
months of
reserve

Leadership and staff

The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.

Chief executive

Velvet Brown

Executive director

As listed on its FY2025 Form 990.

2021202220242025
Listed6666
Joined·+0·+0
No longer listed·0·0
03Who funds it

Who funds it, year by year

2018 → 2023: the base held at 2 funders, grant income fell $155k → $70k.

2 of 10 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 18% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.

From the IRS filings of SUPPORTERS OF FAMILIES WITH SICKLE CELL DISEASE’s funders (the co-funder graph). Top 9 of 10 funders by total. Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

How concentrated its funding is

SUPPORTERS OF FAMILIES WITH SICKLE CELL DISEASE leans on a few funders — its largest provides 55% of grant income and the top three 88%; half comes from just 1 funder.

the vertical line marks half of all grant income — 1 funder to its left

89% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund SUPPORTERS OF FAMILIES WITH SICKLE CELL DISEASE.

55%
largest funder
88%
top three
~3
effective funders

Largest funder’s share by year: 2018 99% · 2019 100% · 2020 75% · 2021 65% · 2022 65% · 2023 57% — diversifying over time.

“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

How long its funders stay

33% of SUPPORTERS OF FAMILIES WITH SICKLE CELL DISEASE's funders are still giving 2 years after their first grant; 50% give in more than one year at all.

first grant+1y+2y

Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.

Where its funders are

SUPPORTERS OF FAMILIES WITH SICKLE CELL DISEASE draws 87% of its grant income from funders outside Oklahoma, across 4 states in all.

IL
MO
MD
OK

In-state vs out-of-state, by year

’18
’19
’20
’21
’22
’23
Oklahoma out of state home

Funder states come from each funder’s own filing. $146k arriving through sponsors registered in 2 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

04Its place in the field

Against its field

SUPPORTERS OF FAMILIES WITH SICKLE CELL DISEASE receives grants from 10 organizations whose IRS filings report $830k to it.

Operating margin−8% · bottom quartile
Months of reserve5.6mo · below the median
Revenue growth (annualized)−1% · bottom quartile

this organization peer median middle 50% of peers· 7,883 health nonprofits $100k–$1M, FY2025

Government funding SUPPORTERS OF FAMILIES WITH SICKLE CELL DISEASE receives

Grants and contracts to this organization from federal (USASpending) and state checkbooks, reconciled to its EIN. $1.1M on record.

Federal$1.1M
grants $1.1Mcontracts $0
21
22
23
24
25
Top agencies
  • Department of Health and Human Services$1.1M

Federal grants vs contracts are distinguished; state line items keep their reported category. Matched by name + geography (the BMF), so coverage is partial and precision-first.

Organizations like SUPPORTERS OF FAMILIES WITH SICKLE CELL DISEASE

Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.

In Oklahoma

Nationally

05Profile & governance

Read directly from this organization’s own Form 990, as neutral context.

Where the money goes

100% of spending goes to programs.

Program 100%Management 0%Fundraising 0%

Governance

5
board members
0%
independent
✓Conflict-of-interest policy✓Whistleblower policy✓Document retention✓Board reviewed the 990–Audited financials

Public support

100%

Share of support from the public (Schedule A) — the basis for its public-charity status.

Footprint & structure

Files a return copy in 1 state

OK

Screen this organization

A dated, signed PDF of the compliance screen for SUPPORTERS OF FAMILIES WITH SICKLE CELL DISEASE: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.

A paid feature, included from the $75 plan up. Sign in to download.

Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf

Questions and answers

Who funds SUPPORTERS OF FAMILIES WITH SICKLE CELL DISEASE?
SUPPORTERS OF FAMILIES WITH SICKLE CELL DISEASE (Oklahoma) receives grants from 10 organizations whose IRS filings report $830,461 to it, the largest being Sickle Cell Disease Association of America Inc ($460,869). 5 of them have funded it in more than one year.
How many funders does SUPPORTERS OF FAMILIES WITH SICKLE CELL DISEASE have?
IRS filings report 10 organizations giving $830,461 in grants to SUPPORTERS OF FAMILIES WITH SICKLE CELL DISEASE, 5 of which have funded it in more than one year.
Who is the largest funder of SUPPORTERS OF FAMILIES WITH SICKLE CELL DISEASE?
Sickle Cell Disease Association of America Inc is the largest funder on record, with $460,869 in grants. The full list of funders is on this page.
How can an organization like SUPPORTERS OF FAMILIES WITH SICKLE CELL DISEASE find more funders?
Start with the funders already giving here, then look at the foundations that back similar organizations in Oklahoma. The funding by cause and by state pages list the largest funders for a given area and how to approach them.

Play a game about who funds Supporters of Families With Sickle Cell Disease →

These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2021–2025), and the filings of 10 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing