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Hydrocephalus Association at a glanceMostly funded, not a grantmaker: see who funds it →

· Public charity

Hydrocephalus Association

Find a cure for hyrocephalus and improve the lives of those impacted.

$880k
Granted FY2024still arriving
11
Grants FY2024still arriving
8
States reached
$173k
Largest
01What it fundsRead
02The needRead
03Its granteesRead
04Its fieldRead
01What it funds
01100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2024.

Health$6.9MEducation$50k
02FY2024 · 11 grants

Where the money goes

Grants by size, and the largest recipients.

How this is measured
The 11 grants below total $823,833, the rows itemized in this filing. The $879,590 headline is the total grant expense on the return; the other $55,757 is giving the schedule does not break out (grants under the $5,000 itemization floor, grants to individuals, grants on other schedules). Every figure below describes the itemized rows only.

By grant size · FY2024

  • $10k–50k2 grants · $96k
  • $50k–250k9 grants · $728k
$75,000
Median grant
8
States reached
$3.5M
Total assets
Largest grants
RecipientAmount
UNIVERSITY OF UTAH$173,222
BOSTON CHILDREN'S HOSPITAL$85,000
UMASS CHAN MEDICAL SCHOOL FOUNDATION$85,000
JOHNS HOPKINS UNIVERSITY$85,000
PRIMARY CHILDREN'S FOUNDATION$75,000
UNIVERSITY OF CALIFORNIA SAN FRANCISCO FOUNDATION$75,000
YALE UNIVERSITY$50,000
CHILDREN'S HOSPITAL LOS ANGELES$50,000
VIRGINIA COMMONWEALTH UNIVERSITY FOUNDATION$50,000
UNIVERSITY OF COLORADO FOUNDATION$49,400
CLEVELAND CLINIC FOUNDATION$46,211
02The need
03

Does the money reach high-need areas?

Each grant placed by the hardship in its grantee’s ZIP, against the area’s typical level.

show:

Dollar for dollar, its grants (FY17–24) land where the poverty rate runs at 12%, against an area that typically sits at 11%. 40% of its dollars go to grantees based in above-average-need neighborhoods. Its grants spread fairly evenly across need levels.

area typical 11%UNIVERSITY OF ARIZONA: $50k → 15%BOSTON CHILDREN'S HOSPITAL: $85k → 16%STANFORD UNIVERSITY: $50k → 8%UNIVERSITY OF CALIFORNIA SAN FRANCISCO FOUNDATION: $75k → 10%SANFORD BURNHAM PREBYS MEDICAL DISCOVERY INSTITUTE: $85k → 11%LOMA LINDA UNIVERSITY: $50k → 14%CHILDREN'S HOSPITAL LOS ANGELES: $50k → 14%BAYLOR COLLEGE OF MEDICINE: $50k → 16%UNIVERISTY OF IOWA: $50k → 15%UNIVERSITY OF MICHIGAN: $50k → 14%WAYNE STATE UNIVERSITY: $100k → 21%WASHINGTON UNIVERSITY: $199k → 21%UNIVERSITY OF CONNECTICUT: $75k → 11%PRIMARY CHILDREN'S FOUNDATION: $347k → 8%UNIVERSITY OF COLORADO FOUNDATION: $49k → 12%INDIANA UNIVERSITY: $50k → 18%CINCINNATI CHILDREN'S HOSPITAL MEDICAL CENTER: $50k → 16%HACKENSACK UNIVERSITY MEDICAL CENTER: $247k → 7%VIRGINIA COMMONWEALTH UNIVERSITY FOUNDATION: $50k → 22%JOHNS HOPKINS UNIVERSITY: $28k → 19%BOSTON CHILDREN'S HOSPITAL: $50k → 16%UNIVERSITY OF CALIFORNIA SAN FRANCISCO FOUNDATION: $50k → 10%SCINTILLON INSTITUTE: $100k → 11%REGENTS OF THE UNIVERSITY OF MICHIGAN: $50k → 14%WAYNE STATE UNIVERSITY: $50k → 21%WASHINGTON UNIVERSITY: $199k → 21%PRIMARY CHILDREN'S FOUNDATION: $283k → 8%JOHNS HOPKINS UNIVERSITY: $85k → 19%BOSTON CHILDREN'S HOSPITAL: $50k → 16%SCINTILLON INSTITUTE: $100k → 11%WASHINGTON UNIVERSITY: $196k → 21%PRIMARY CHILDREN'S FOUNDATION: $100k → 8%BETH ISRAEL DEACONESS MEDICAL CENTER: $50k → 16%SCINTILLON INSTITUTE: $99k → 11%WASHINGTON UNIVERSITY IN ST LOUIS: $100k → 21%PRIMARY CHILDREN'S FOUNDATION: $100k → 8%WASHINGTON UNIVERSITY: $100k → 21%PRIMARY CHILDREN'S FOUNDATION: $100k → 8%WASHINGTON UNIVERSITY: $50k → 21%PRIMARY CHILDREN'S FOUNDATION: $75k → 8%WASHINGTON UNIVERSITY: $49k → 21%UNIVERISTY OF UTAH: $293k → 8%UNIVERISTY OF UTAH: $262k → 8%UNIVERSITY OF UTAH: $173k → 8%UNIVERSITY OF UTAH: $145k → 8%UNIVERSITY OF UTAH: $141k → 8%UNIVERSITY OF UTAH: $101k → 8%UNIVERISTY OF UTAH: $52k → 8%0%20%40%50%more need →
grant to an above-average-need area below average· circle size = grant amount
How this is measured
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty line in the grantee’s ZIP, averaged from the tracts in that ZIP.

Which US states its grants reach

WA
MI
NY
MA
IA
IN
OH
NJ
CT
CA
UT
CO
MO
KY
VA
MD
AZ
SC
TX
How this is measured
US grants placed by each grantee’s ZIP, which can differ from where services are delivered. Need from public data (U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA), shown as context about the area, never attributed to the funder’s giving.
03Its grantees
repeat funding

Who it funds again

Organizations funded in more than one year, against those funded once.

77%of every dollar goes to organizations it has funded before.
$5.0M · 10 repeat orgs$1.5M to everyone else

Grantees it renews have grown median revenue +76% since the first grant, against +51% for those funded once.

10 repeat relationships: 4 still active in FY2024, 6 since wound down; 6 grantees were first funded in FY2024 (too recent to call).

How the two cohorts compare

Re-uppedFunded once

Organizations

10
17

Total granted

$5.0M
$1.1M

Median revenue growth · since first grant

+76%
+51%

Still filing today

60%
41%

New vs renewed · share of each year

In FY2024, 48% of grant dollars renewed an existing relationship; $404k went to new ones.

50%100%’17’18’19’20’21’22’23’24
RenewedFirst-time

Where new relationships form · theme of each grantee’s first grant

’17’18’19’20’21’22’23’24
HealthEducationScience & TechPhilanthropyOther
How this is measured
First-time means a grantee’s first year in the filing window; renewed means funded in an earlier year too. The renewed share climbs naturally as a portfolio matures, so the signal is a year that bucks it (a wave of new grantees). The earliest year is left-censored: relationships that predate the data read as new. Theme is the grantee’s IRS cause.

Backed again, and grew

  • WASHINGTON UNIVERSITY
    7× · 2017–2023 · $893k · revenue +76%
  • TC
    THE CLEVELAND CLINIC FOUNDATION GROUP RETURN
    8× · 2017–2024 · $338k · revenue +83%
  • TS
    THE SCINTILLON INSTITUTE
    3× · 2018–2020 · $299k · revenue +72%

Funded once

  • HH
    HMH HOSPITALS CORPORATION
    one grant, 2017 · $247k
  • WS
    WAYNE STATE UNIVERSITY
    one grant, 2022 · $100k
  • SB
    SANFORD BURNHAM PREBYS MEDICAL DISCOVERY INSTITUTE
    one grant, 2017 · $85k · revenue -15%
How this is measured

Repeat means funded in two or more distinct years. Growth and survival are read from each grantee’s own subsequent IRS filings.

04Its field

Closest unfunded matches

The nonprofits that most resemble its grantees but are not funded by it, scored along the direction from the rest of the field toward the portfolio. A resemblance in what they say they do, not a recommendation.

1
The Johns Hopkins Hospital

For more than 125 years, the mission of the johns hopkins hospital has been to lead the world in the diagnosis and treatment of disease and to train tomorrow's great physicians, nurses and scientists. above all, we aim to provide the…

Health
2
University of Minnesota Physicians

University of minnesota physicians serves as the integrated group practice for the university of minnesota medical school full-time faculty to provide the highest quality healthcare to patients and their families.university of minnesota…

Health
3
University of Southern California

The central mission of the university of southern california is the development of human beings and society as a whole through the cultivation and enrichment of the human mind and spirit. the principal means by which our mission is…

Education
4
New York University

Nyu is a private university with approximately 60,000 matriculating students in 20 schools and institutes. nyu's primary missions are education, research and scholarship, and patient care.

Education
5
Southern California University of Health Sciences

The mission of southern california university of health sciences (scu) is to educate students as competent, caring and successful practitioners of integrative healthcare. the university is committed to providing excellence in academics,…

Education
6
Rhode Island Hospital

As a founding hospital in the brown university health system, rih is committed to its mission: delivering health with care.

Health
7
Cornell University

Education, research, medical services and other public services.

Education
8
Rush University Medical Center

The mission of Rush is to improve the health of the individuals and diverse communities we serve through the integration of outstanding patient care, education, research and community partnerships.

Health
9
Fred Hutchinson Cancer Center

Fred hutch cancer center ("fred hutch") unites innovative research and compassionate care to prevent and eliminate cancer and infectious disease. continued on schedule o

Health
10
Thomas Jefferson University

Thomas jefferson university ("tju") is a comprehensive university with preeminence in transdisciplinary, experiential professional education, research and discovery, delivering exceptional value for the 21st century students with…

Education
11
University of Chicago Medical Center

Our mission at the university of chicago medicine is to provide superior health care through rigorous research, innovative education, and comprehensive care and healing. in partnership with our colleagues, we pursue life-changing…

Health
12
Mass General Brigham Incorporated & Affiliates Group Return

Mass general brigham incorporated is developing an integrated health care delivery system throughout the region that offers patients a continuum of coordinated, high-quality care.

Health
How this is measured
The grantee most central to the portfolio’s shape is Baylor College of Medicine; the most unlike its peers is Sanford Burnham Prebys Medical Discovery Institute. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.
04the grantee network

22 grantees tracked through their own filings, 2017–2025.

Each grant beside the grantee’s revenue from every source, year by year.

How this is measured

Counted here: distinct organizations funded across 2017 to 2025, not grant rows in a single year, so this will not match the grant count on the cover. 22 of the 36 grantees resolved in that span have returns of their own we could reconcile.

Each grantee is resolved to its own IRS returns. Association, dated; never a causal claim.

0
Load-bearing (≥25% of a budget)
2
Early backer (in before they grew)
20/22
Grantees still filing
19/22
Grew since first funded

Where the money sits, by cause and then by grantee

PRIMARY CHILDREN'S CANCER: $1,443,734 · OtherPRIMARY CHILDREN'S CANCERUNIVERSITY OF UTAH: $1,292,785 · OtherUNIVERSITY OF UTAHBOSTON CHILDRENS HOSPITAL: $198,000 · OtherBOSTON CHILDRENS HOSPITAL+11 more: $655,880 · Other+11 moreWASHINGTON UNIVERSITY: $892,698 · EducationWASHINGTON UNIVERSITYYale University: $411,139 · EducationYale UniversityUNIVERSITY OF CALIFORNIA SAN FRANCISCO FOUNDATION: $125,000 · EducationUNIVERSITY OF CALIFORNIA SAN …+8 more: $377,286 · Education+8 moreTHE CLEVELAND CLINIC FOUNDATION GROUP RETURN: $338,408 · HealthTHE CLEVELAND CLINI…HMH HOSPITALS CORPORATION: $247,242 · HealthHMH HOSPITALS CORPO…Children's Hospital Corporation: $199,000 · HealthChildren's Hospital…SEATTLE CHILDREN'S HOSPITAL: $100,000 · HealthSEATTLE CHILDREN'S …SANFORD BURNHAM PREBYS MEDICAL DISCOVERY INSTITUTE: $85,000 · HealthSANFORD BURNHAM PRE…Boston Children's Network Specialty Physicians Inc: $85,000 · HealthBoston Children's N…Children's Hospital Los Angeles: $50,000 · HealthBETH ISRAEL DEACONESS MEDICAL CENTER INC: $50,000 · HealthCHILDREN'S HOSPITAL MEDICAL CENTER: $50,000 · HealthTHE SCINTILLON INSTITUTE: $299,000 · Science & TechUMASS CHAN MEDICAL SCHOOL FOUNDATION INC: $85,000 · Philanthropy
Other$3,590,399Education$1,806,123Health$1,204,650Science & Tech$299,000Philanthropy$85,000

Each grantee by its size and the funder’s share of it; top left is load-bearing

25%50%75%100%$10M$100Mgrantee revenue →↑ funder's share of their budgetWASHINGTON UNIVERSITY: $892,698 over 7y, 0.0% of budgetYale University: $411,139 over 5y, 0.0% of budgetTHE CLEVELAND CLINIC FOUNDATION GROUP RETURN: $338,408 over 8y, 0.0% of budgetTHE SCINTILLON INSTITUTE: $299,000 over 3y, 8.7% of budgetHMH HOSPITALS CORPORATION: $247,242 over 1y, 0.0% of budgetChildren's Hospital Corporation: $199,000 over 3y, 0.0% of budgetUNIVERSITY OF CALIFORNIA SAN FRANCISCO FOUNDATION: $125,000 over 2y, 0.0% of budgetSEATTLE CHILDREN'S HOSPITAL: $100,000 over 2y, 0.0% of budgetSANFORD BURNHAM PREBYS MEDICAL DISCOVERY INSTITUTE: $85,000 over 1y, 0.1% of budgetBoston Children's Network Specialty Physicians Inc: $85,000 over 1y, 0.4% of budgetThe Research Foundation for The State University of New York: $50,000 over 1y, 0.0% of budgetChildren's Hospital Los Angeles: $50,000 over 1y, 0.0% of budgetBaylor College of Medicine: $50,000 over 1y, 0.0% of budgetTHE BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY: $50,000 over 1y, 0.0% of budgetLOMA LINDA UNIVERSITY: $50,000 over 1y, 0.0% of budgetWESTERN MICHIGAN UNIVERSITY HOMER STRYKER MD SCHOOL OF MEDICINE: $50,000 over 1y, 0.0% of budgetBETH ISRAEL DEACONESS MEDICAL CENTER INC: $50,000 over 1y, 0.0% of budgetVIRGINIA COMMONWEALTH UNIVERSITY FOUNDAT: $50,000 over 1y, 0.3% of budgetCHILDREN'S HOSPITAL MEDICAL CENTER: $50,000 over 1y, 0.0% of budgetUNIVERSITY OF COLORADO FOUNDATION: $49,400 over 1y, 0.0% of budgetJOHNS HOPKINS UNIVERSITY: $27,886 over 1y, 0.0% of budget
Grantee by grantee: a decade per organization, before and after funding

A decade per grantee: revenue shaded, grants as bars, all rows on one timeline.

Co-funders

Grantmakers whose grantees overlap with this funder’s far more than size alone predicts. Closer means stronger alignment; arcs show where they also fund each other. Here they form a tightly interlocked group: most of these funders back each other's grantees too.

American Endowment Fo…Charities Aid Foundat…National Philanthropi…Donor Advised Charita…Fidelity Investments …Amazonsmile Foundation
American Endowment FoundationOH10× affinity5 shared granteesties to 5 of 5Hover any node to trace its alignments.Compare side by side →

Open a dossier: American Endowment Foundation · Charities Aid Foundation America · National Philanthropic Trust · Donor Advised Charitable Giving Inc · Fidelity Investments Charitable Gift Fund · Amazonsmile Foundation

How this is measured
Affinity is a Gamma-Poisson posterior co-funding rate, re-centered on the typical rate, so thin evidence shrinks toward no signal. Overlap is association, not proof of shared intent.

How much its grantees rely on government

Each dot is one organization Hydrocephalus Association funds: left to right is the share of its income from government, bottom to top the share from Hydrocephalus Association. Bigger dots raise more.

2024
’20’21’22’23’24’25
no gov · 10%0%1%3%5%funder's share of their income ↑0%25%50%75%100%share of the org’s income from government →median 12%
  • Johns Hopkins University: 12% of income from government
  • Yale University: 12% of income from government
  • Children's Hospital Corporation: 10% of income from government
  • Beth Israel Deaconess Medical Center Inc: 6% of income from government
no gov moneyreceives it· size = income
1get no government money at all
1report government grants on their 990 we could not trace to a source (not plotted)
0rely on government for over half their income
typical government reliance, FY20–25
How this is measured
Government income is each org’s traced federal awards (USASpending grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that a grant caused the public funding. Coverage is precision-first, a floor rather than a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12 to 24 months.

On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 36 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

How this is measured
Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

Generated from the IRS Form 990 e-file return for fiscal year 2024, released 2024. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

Source object · view filing

Play a game based on Hydrocephalus Association’s filings →

More from the funding graph

The unnamed billions
grants reported with no recipient in the public record
The regranting layer
51% of grant dollars land in the regranting layer
The DAF merry-go-round
$9.7B circulates between donor-advised funds
The endowment market
who holds foundation money, and what just moved
The camps
funders cluster by geography, not ideology
By state
where grant money is based, and what stays home