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Families of Spinal Muscular Atrophy Dba Cure Sma at a glanceMostly funded, not a grantmaker: see who funds it →

· Public charity

Families of Spinal Muscular Atrophy Dba Cure Sma

Our mission is to drive research for treatments and a cure for sma, and to support and empower everyone impacted by sma today.

$2.6M
Granted FY2025still arriving
9
Grants FY2025still arriving
7
States reached
$347k
Largest
01What it fundsRead
02The needRead
03Its granteesRead
04Its fieldRead
01What it funds
01100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2025.

Health$11MEducation$4.2MScience & Tech$2.4MHuman Services$150k
02FY2025 · 9 grants

Where the money goes

Grants by size, and the largest recipients.

How this is measured
The 9 grants below total $1,802,574, the rows itemized in this filing. The $2,564,862 headline is the total grant expense on the return; the other $762,288 is giving the schedule does not break out (grants under the $5,000 itemization floor, grants to individuals, grants on other schedules). Every figure below describes the itemized rows only.

By grant size · FY2025

  • Under $10k1 grant · $915
  • $10k–50k1 grant · $44k
  • $50k–250k3 grants · $544k
  • $250k+4 grants · $1.2M
$230,000
Median grant
7
States reached
$11M
Total assets
Largest grants
RecipientAmount
BOSTON CHILDREN'S HOSPITAL$346,620
ANN & ROBERT H LURIE CHILDREN'S HOSPITAL OF CHICAGO$307,490
TRUSTEES OF COLUMBIA UNIVERSITY - NYC$306,885
LELAND STANFORD JUNIOR UNIVERSITY$252,500
UNIVERSITY OF ROCHESTER$230,000
CHILDREN'S HOSPITAL OF PHILADELPHIA$164,300
JOHN HOPKINS UNIVERSITY$149,695
CASE WESTERN UNIVERSITY$44,169
MEDICAL COLLEGE OF WISCONSIN$915
02The need
03

Does the money reach high-need areas?

Each grant placed by the hardship in its grantee’s ZIP, against the area’s typical level.

show:

Dollar for dollar, its grants (FY17–25) land where the poverty rate runs at 14%, against an area that typically sits at 11%. 79% of its dollars go to grantees based in above-average-need neighborhoods. Most of its grants land in higher-need ZIPs.

area typical 11%BOSTON CHILDREN'S HOSPITAL: $412k → 16%CHILDREN'S HOSPITAL OF PHILADELPHIA: $175k → 22%SALK INSTITUTE FOR BIOLOGICAL STUDIES: $150k → 11%UNIVERSITY OF ROCHESTER: $230k → 14%TRUSTEES OF COLUMBIA UNIVERSITY - NYC: $190k → 17%TEXAS TECH UNIVERITY HEALTH SCIENCE CENTER: $150k → 21%UNIVERSITY OF IOWA: $150k → 15%MEDICAL COLLEGE OF WISCONSIN INC: $150k → 17%COLORADO DEPT OF PUBLIC HEALTH AND ENVIRONMENTAL: $126k → 12%OHIO STATE UNIVERSITY: $215k → 15%ANN & ROBERT H LURIE CHILDREN'S HOSPITAL OF CHICAGO: $307k → 14%VIRGINIA DGS: $150k → 22%BOSTON CHILDREN'S HOSPITAL: $347k → 16%CHILDREN'S HOSPITAL OF PHILADELPHIA: $164k → 22%LELAND STANFORD JUNIOR UNIVERITY: $375k → 8%UNIVERSITY OF ROCHESTER: $210k → 14%MEDICAL COLLEGE OF WISCONSIN: $150k → 17%OHIO STATE UNIVERSITY: $150k → 15%BOSTON CHILDREN'S HOSPITAL: $250k → 16%CHILDREN'S HOSPITAL OF PHILADELPHIA: $150k → 22%LELAND STANFORD JUNIOR UNIVERSITY: $253k → 8%UNIVERSITY OF ROCHESTER: $160k → 14%TRUSTEES OF COLUMBIA UNIVERSITY - NYC: $700k → 17%MEDICAL COLLEGE OF WISCONSIN: $149k → 17%THE OHIO STATE UNIVERSITY: $99k → 15%BOSTON CHILDREN'S HOSPITAL: $240k → 16%CHILDREN'S HOSPITAL OF PHILADELPHIA: $135k → 22%LELAND STANFORD JUNIOR UNIVERSITY: $245k → 8%UNIVERSITY OF ROCHESTER: $150k → 14%TRUSTEES OF COLUMBIA UNIVERSITY - NYC: $375k → 17%BOSTON CHILDREN'S HOSPITAL: $150k → 16%CHILDREN'S HOSPITAL OF PHILADELPHIA: $100k → 22%LELAND STANFORD JUNIOR UNIVERITY: $200k → 8%UNIVERSITY OF ROCHESTERDEPT OF NEUROLOGY: $150k → 14%TRUSTEES OF COLUMBIA UNIVERSITY - NYC: $307k → 17%ARIZONA DEPARTMENT OF HEALTH SERVICES: $100k → 11%BOSTON CHILDREN'S HOSPITAL: $127k → 16%LELAND STANFORD JUNIOR UNIVERSITY: $150k → 8%UNIVERSITY OF ROCHESTER: $91k → 14%TRUSTEES OF COLUMBIA UNIVERSITY - NYC: $250k → 17%RTI INTERNATIONAL: $150k → 11%BOSTON CHILDREN'S HOSPITAL: $87k → 16%LELAND STANFORD JUNIOR UNIVERSITY: $90k → 8%TRUSTEES OF COLUMBIA UNIVERSITY - NYC: $250k → 17%UNIVERSITY OF UTAH: $150k → 8%TRUSTEES OF COLUMBIA UNIVERSITY - NYC: $150k → 17%TRUSTEES OF COLUMBIA UNIVERSITY - NYC: $108k → 17%TRUSTEES OF COLUMBIA UNIVERSITY - NYC: $100k → 17%0%20%40%50%more need →
grant to an above-average-need area below average· circle size = grant amount
How this is measured
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty line in the grantee’s ZIP, averaged from the tracts in that ZIP.

Which US states its grants reach

WA
MN
IL
WI
MI
NY
MA
IA
OH
PA
CT
CA
UT
CO
MO
VA
MD
AZ
NM
KS
AR
NC
DC
AL
GA
TX
FL

Grants abroad, by region: $563k on the FY2025 return

Schedule F, as filed: 2 regions. The IRS asks for region and purpose, not the recipient, so no country or grantee can be named here.

Europe (including Iceland and Greenland)$513k · 91% · 2 grants

Stated purpose: BASIC RESEARCH · CLINICAL TRIALS

East Asia and the Pacific$50k · 9% · 1 grant

Stated purpose: BASIC RESEARCH

How this is measured
US grants placed by each grantee’s ZIP, which can differ from where services are delivered. Need from public data (U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA), shown as context about the area, never attributed to the funder’s giving. Grants abroad on Schedule F are filed by region, purpose and amount with no recipient name, so they are shown by region and cannot be placed on the country map or matched to a grantee.
03Its grantees
repeat funding

Who it funds again

Organizations funded in more than one year, against those funded once.

81%of every dollar goes to organizations it has funded before.
$11M · 31 repeat orgs$2.4M to everyone else

Grantees it renews have grown median revenue +64% since the first grant, against +19% for those funded once.

31 repeat relationships: 6 still active in FY2025, 25 since wound down; 1 grantees were first funded in FY2025 (too recent to call).

How the two cohorts compare

Re-uppedFunded once

Organizations

31
23

Total granted

$11M
$2.4M

Median revenue growth · since first grant

+64%
+19%

Still filing today

68%
35%

New vs renewed · share of each year

In FY2025, 96% of grant dollars renewed an existing relationship; $44k went to new ones.

50%100%’17’18’19’20’21’22’23’24’25
RenewedFirst-time

Where new relationships form · theme of each grantee’s first grant

’17’18’19’20’21’22’23’24’25
HealthEducationScience & TechRecreation & SportsOther
How this is measured
First-time means a grantee’s first year in the filing window; renewed means funded in an earlier year too. The renewed share climbs naturally as a portfolio matures, so the signal is a year that bucks it (a wave of new grantees). The earliest year is left-censored: relationships that predate the data read as new. Theme is the grantee’s IRS cause.

Backed again, and grew

  • CH
    Children's Hospital Corporation
    7× · 2019–2025 · $1.9M · revenue +75%
  • UNIVERSITY OF ROCHESTER
    8× · 2018–2025 · $1.3M · revenue +65%
  • CR
    CHILDREN'S RESEARCH INSTITUTE
    7× · 2019–2025 · $949k · revenue +68%

Funded once

  • UO
    University of Wisconsin Madison
    one grant, 2018 · $211k
  • UNIVERSITY OF PITTSBURGHgraduated
    one grant, 2020 · $190k · revenue +26%
  • MG
    MASS GENERAL BRIGHAM INCORPORATED
    one grant, 2018 · $175k
How this is measured

Repeat means funded in two or more distinct years. Growth and survival are read from each grantee’s own subsequent IRS filings.

04Its field

Closest unfunded matches

The nonprofits that most resemble its grantees but are not funded by it, scored along the direction from the rest of the field toward the portfolio. A resemblance in what they say they do, not a recommendation.

1
Rush University Medical Center

The mission of Rush is to improve the health of the individuals and diverse communities we serve through the integration of outstanding patient care, education, research and community partnerships.

Health
2
New York University

Nyu is a private university with approximately 60,000 matriculating students in 20 schools and institutes. nyu's primary missions are education, research and scholarship, and patient care.

Education
3
University of Minnesota Physicians

University of minnesota physicians serves as the integrated group practice for the university of minnesota medical school full-time faculty to provide the highest quality healthcare to patients and their families.university of minnesota…

Health
4
Rhode Island Hospital

As a founding hospital in the brown university health system, rih is committed to its mission: delivering health with care.

Health
5
Fred Hutchinson Cancer Center

Fred hutch cancer center ("fred hutch") unites innovative research and compassionate care to prevent and eliminate cancer and infectious disease. continued on schedule o

Health
6
Texas Children's Hospital

Texas children's hospital, headquartered in houston, texas, is a not-for-profit organization whose mission is to create a healthier future for children and women throughout our global community by leading in patient care, education and…

Health
7
University of Southern California

The central mission of the university of southern california is the development of human beings and society as a whole through the cultivation and enrichment of the human mind and spirit. the principal means by which our mission is…

Education
8
The Johns Hopkins Hospital

For more than 125 years, the mission of the johns hopkins hospital has been to lead the world in the diagnosis and treatment of disease and to train tomorrow's great physicians, nurses and scientists. above all, we aim to provide the…

Health
9
Children's Health Care

We champion the health needs of children and families. we are committed to improving children's health by providing the highest-quality, family centered care, advanced through research and education.

Health
10
University of Chicago Medical Center

Our mission at the university of chicago medicine is to provide superior health care through rigorous research, innovative education, and comprehensive care and healing. in partnership with our colleagues, we pursue life-changing…

Health
11
Drexel University

Drexel university fulfills its founder's vision of preparing each new generation of students for productive professional and civic lives while also focusing its collective expertise on solving society's greatest problems. drexel is an…

Education
12
Thomas Jefferson University

Thomas jefferson university ("tju") is a comprehensive university with preeminence in transdisciplinary, experiential professional education, research and discovery, delivering exceptional value for the 21st century students with…

Education
How this is measured
The grantee most central to the portfolio’s shape is Johns Hopkins University; the most unlike its peers is Phoenix Children's Hospital. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.
04the grantee network

33 grantees tracked through their own filings, 2017–2025.

Each grant beside the grantee’s revenue from every source, year by year.

How this is measured

Counted here: distinct organizations funded across 2017 to 2025, not grant rows in a single year, so this will not match the grant count on the cover. 33 of the 58 grantees resolved in that span have returns of their own we could reconcile.

Each grantee is resolved to its own IRS returns. Association, dated; never a causal claim.

0
Load-bearing (≥25% of a budget)
1
Early backer (in before they grew)
33/33
Grantees still filing
31/33
Grew since first funded

Where the money sits, by cause and then by grantee

THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK: $3,254,077 · EducationTHE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF…THE BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY: $1,529,367 · EducationTHE BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIO…UNIVERSITY OF ROCHESTER: $1,276,537 · EducationUNIVERSITY OF ROCHESTERJOHNS HOPKINS UNIVERSITY: $686,585 · EducationJOHNS HOPKINS UNIVERSITYTHE MEDICAL COLLEGE OF WISCONSIN INC: $450,000 · EducationTHE MEDICAL COLLEGE OF WISCONSIN INC+7 more: $801,692 · Education+7 moreChildren's Hospital Corporation: $1,877,079 · HealthChildren's Hospital CorporationCHILDREN'S RESEARCH INSTITUTE: $949,138 · HealthCHILDREN'S RESEARCH INSTITUTEAnn & Robert H Lurie Children's Hospital of Chicago: $522,490 · HealthAnn & Robert H Lurie Children's…Gillette Children's Specialty Healthcare: $300,300 · HealthGillette Children's Specialty H…Phoenix Children's Hospital: $220,150 · Health+11 more: $1,073,772 · Health+11 moreTHE OHIO STATE UNIVERSITY: $645,873 · OtherTHE OHIO STATE UNIVERSITYUNIVERSITY OF UTAH: $398,674 · OtherUNIVERSITY OF UTAHMASS GENERAL BRIGHAM INCORPORATED: $300,000 · OtherMASS GENERAL BRIGHAM INCORPO…MICHIGAN DEP OF HEALTH & HUMAN SERVICES: $288,940 · OtherMICHIGAN DEP OF HEALTH & HUM…UNIVERSITY OF ALABAMA AT BIRMINGHAM: $226,654 · OtherARKANSAS CHILDREN'S RESEARCH INSTITUTE: $218,843 · OtherUniversity of Wisconsin Madison: $211,247 · OtherREGENTS OF THE UNIVERSITY OF COLORADO: $201,849 · OtherMASS GENERAL BRIGHAM INCORPORATED: $175,000 · Other+18 more: $1,889,167 · Other+18 moreResearch Triangle Institute: $197,940 · Science & TechThe Salk Institute for Biological Studies: $150,000 · Science & TechNorthwestern University: $105,000 · Recreation & Sports
Education$7,998,258Health$4,942,929Other$4,556,247Science & Tech$347,940Recreation & Sports$105,000

Each grantee by its size and the funder’s share of it; top left is load-bearing

25%50%75%100%$10M$100Mgrantee revenue →↑ funder's share of their budgetTHE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK: $3,254,077 over 9y, 0.0% of budgetChildren's Hospital Corporation: $1,877,079 over 7y, 0.0% of budgetTHE BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY: $1,529,367 over 7y, 0.0% of budgetUNIVERSITY OF ROCHESTER: $1,276,537 over 8y, 0.0% of budgetCHILDREN'S RESEARCH INSTITUTE: $949,138 over 7y, 0.3% of budgetJOHNS HOPKINS UNIVERSITY: $686,585 over 4y, 0.0% of budgetAnn & Robert H Lurie Children's Hospital of Chicago: $522,490 over 2y, 0.0% of budgetTHE MEDICAL COLLEGE OF WISCONSIN INC: $450,000 over 4y, 0.0% of budgetGillette Children's Specialty Healthcare: $300,300 over 7y, 0.0% of budgetPhoenix Children's Hospital: $220,150 over 5y, 0.0% of budgetARKANSAS CHILDREN'S RESEARCH INSTITUTE: $218,843 over 6y, 0.2% of budgetDUKE UNIVERSITY: $209,510 over 5y, 0.0% of budgetResearch Triangle Institute: $197,940 over 2y, 0.0% of budgetUNIVERSITY OF PITTSBURGH: $190,000 over 1y, 0.0% of budgetSEATTLE CHILDREN'S HOSPITAL: $163,670 over 4y, 0.0% of budgetADVOCATE HEALTH AND HOSPITALS CORP: $153,000 over 5y, 0.0% of budgetThe Salk Institute for Biological Studies: $150,000 over 1y, 0.1% of budgetYale University: $144,085 over 6y, 0.0% of budgetCONNECTICUT CHILDREN'S MEDICAL CENTER: $141,981 over 5y, 0.0% of budgetWASHINGTON UNIVERSITY: $133,079 over 3y, 0.0% of budgetVanderbilt University Medical Center: $119,763 over 4y, 0.0% of budgetTHE NEMOURS FOUNDATION: $107,608 over 2y, 0.0% of budgetCHILDREN'S HEALTHCARE OF ATLANTA INC: $107,000 over 3y, 0.1% of budgetNorthwestern University: $105,000 over 2y, 0.0% of budgetTHE CHILDREN'S HOSPITAL OF PHILADELPHIA: $83,250 over 2y, 0.0% of budgetUT SOUTHWESTERN HEALTH SYSTEMS: $60,000 over 1y, 3.1% of budgetUniversity of Miami: $50,849 over 2y, 0.0% of budgetChildren's Hospital Colorado: $50,000 over 1y, 0.0% of budgetLUCILE PACKARD FOUNDATION FOR CHILDREN'S HEALTH: $50,000 over 1y, 0.1% of budgetCH Neurology Foundation Inc: $50,000 over 1y, 0.1% of budgetCASE WESTERN RESERVE UNIVERSITY: $44,169 over 1y, 0.0% of budgetHENRY M JACKSON FOUNDATION FOR THE ADVANCEMENT OF MILITARY MEDICINE: $37,500 over 1y, 0.0% of budgetBaylor College of Medicine: $30,000 over 1y, 0.0% of budget
Grantee by grantee: a decade per organization, before and after funding

A decade per grantee: revenue shaded, grants as bars, all rows on one timeline.

  • Who funds THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK ↗
  • Who funds Children's Hospital Corporation ↗
  • Who funds THE BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY ↗
  • Who funds UNIVERSITY OF ROCHESTER ↗
  • Who funds CHILDREN'S RESEARCH INSTITUTE ↗
  • Who funds JOHNS HOPKINS UNIVERSITY ↗
  • Who funds Ann & Robert H Lurie Children's Hospital of Chicago ↗
  • Who funds THE MEDICAL COLLEGE OF WISCONSIN INC ↗
  • Who funds Gillette Children's Specialty Healthcare ↗
  • Who funds Phoenix Children's Hospital ↗
  • Who funds ARKANSAS CHILDREN'S RESEARCH INSTITUTE ↗
  • Who funds DUKE UNIVERSITY ↗
  • Who funds Research Triangle Institute ↗
  • Who funds UNIVERSITY OF PITTSBURGH ↗
  • Who funds SEATTLE CHILDREN'S HOSPITAL ↗
  • Who funds ADVOCATE HEALTH AND HOSPITALS CORP ↗
  • Who funds The Salk Institute for Biological Studies ↗
  • Who funds Yale University ↗
  • Who funds CONNECTICUT CHILDREN'S MEDICAL CENTER ↗
  • Who funds WASHINGTON UNIVERSITY ↗
  • Who funds Vanderbilt University Medical Center ↗
  • Who funds THE NEMOURS FOUNDATION ↗

Co-funders

Grantmakers whose grantees overlap with this funder’s far more than size alone predicts. Closer means stronger alignment; arcs show where they also fund each other. Here they form a tightly interlocked group: most of these funders back each other's grantees too.

Cystic Fibrosis Found…Association of Public…Vanderbilt University…Yale UniversityThe Trustees of Colum…Institute for Advance…The Parent Project fo…The Children's Oncolo…Muscular Dystrophy As…The Children's Hospit…Trustees of Boston Un…Washington University
Cystic Fibrosis FoundationMD19.9× affinity7 shared granteesties to 11 of 11Hover any node to trace its alignments.Compare side by side →

Open a dossier: Cystic Fibrosis Foundation · Association of Public Health Laboratories Inc · Vanderbilt University Medical Center · Yale University · The Trustees of Columbia University in the City of New York · Institute for Advanced Clinical Trials for Children · The Parent Project for Muscular Dystrophy Research Inc · The Children's Oncology Group Foundation Inc · Muscular Dystrophy Association Inc · The Children's Hospital of Philadelphia · Trustees of Boston University · Washington University

How this is measured
Affinity is a Gamma-Poisson posterior co-funding rate, re-centered on the typical rate, so thin evidence shrinks toward no signal. Overlap is association, not proof of shared intent.

How much its grantees rely on government

Each dot is one organization Families of Spinal Muscular Atrophy Dba Cure Sma funds: left to right is the share of its income from government, bottom to top the share from Families of Spinal Muscular Atrophy Dba Cure Sma. Bigger dots raise more.

2024
’20’21’22’23’24’25
no gov · 00%0%1%3%5%funder's share of their income ↑0%25%50%75%100%share of the org’s income from government →median 10%
  • Henry M Jackson Foundation for the Advancement of Military Medicine: 100% of income from government
  • Johns Hopkins University: 12% of income from government
  • Yale University: 12% of income from government
  • Children's Hospital Corporation: 10% of income from government
  • University of Miami: 5% of income from government
  • Connecticut Children's Medical Center: 5% of income from government
  • Ch Neurology Foundation Inc: 1% of income from government
  • The Nemours Foundation: 0% of income from government
no gov moneyreceives it· size = income
0get no government money at all
3report government grants on their 990 we could not trace to a source (not plotted)
1rely on government for over half their income
typical government reliance, FY20–25
How this is measured
Government income is each org’s traced federal awards (USASpending grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that a grant caused the public funding. Coverage is precision-first, a floor rather than a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12 to 24 months.

On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 58 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

How this is measured
Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

Generated from the IRS Form 990 e-file return for fiscal year 2025, released 2025. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

Source object · view filing

Play a game based on Families of Spinal Muscular Atrophy Dba Cure Sma’s filings →

More from the funding graph

The unnamed billions
grants reported with no recipient in the public record
The regranting layer
51% of grant dollars land in the regranting layer
The DAF merry-go-round
$9.7B circulates between donor-advised funds
The endowment market
who holds foundation money, and what just moved
The camps
funders cluster by geography, not ideology
By state
where grant money is based, and what stays home