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Amyotrophic Lateral Sclerosis Assn at a glanceAlso receives grants: funding profile →

· Public charity

Amyotrophic Lateral Sclerosis Assn

The mission of the als association is to make als livable and cure it.

$17M
Granted FY2025still arriving
143
Grants FY2025still arriving
38
States reached
$652k
Largest
01What it fundsRead
02The needRead
03Its granteesRead
04Its fieldRead
01What it funds
01100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2025.

Health$97MEducation$20MScience & Tech$11MArts & Culture$439kCrime & Legal$310kRecreation & Sports$266kCommunity Improvement$253kHuman Services$175kOther$0
02FY2025 · 143 grants

Where the money goes

Grants by size, and the largest recipients.

How this is measured
The 143 grants below total $8,360,937, the rows itemized in this filing. The $16,679,289 headline is the total grant expense on the return; the other $8,318,352 is giving the schedule does not break out (grants under the $5,000 itemization floor, grants to individuals, grants on other schedules). Every figure below describes the itemized rows only.

By grant size · FY2025

  • Under $10k3 grants · $19k
  • $10k–50k96 grants · $1.7M
  • $50k–250k38 grants · $4.1M
  • $250k+6 grants · $2.5M
$21,500
Median grant
38
States reached
$107M
Total assets
Largest grants
RecipientAmount
UNIVERSITY OF MIAMI$652,154
UNIVERSITY MEDICAL SERVICE ASSOCIATION INC$551,417
MAYO CLINIC FLORIDA$426,327
AMERICAN BRAIN FOUNDATION$323,000
ASHA THERAPEUTICS$250,000
MODULO BIO INC$250,000
PROJENX INC$247,700
NOVA SOUTHEASTERN UNIVERSITY$239,332
EVERYLIFE FOUNDATION FOR RARE DISEASES$210,711
THE BRIGHAM AND WOMEN'S HOSPITAL INC$200,000
PICASSO INTELLIGENCE$199,411
TACONIC BIOSCIENCES INC$167,202
ORLANDO HEALTH INC$165,421
SAMSARA THERAPEUTICS LTD$150,000
HOLY CROSS HOSPITAL$147,101
02The need
03

Does the money reach high-need areas?

Each grant placed by the hardship in its grantee’s ZIP, against the area’s typical level.

show:

Its human-services grants (FY17–21, $187k) land where the poverty rate runs at 11%, against an area that typically sits at 10%. 100% of those dollars go to grantees based in above-average-need neighborhoods. Most of its grants land in higher-need ZIPs.

area typical 10%HOPE LOVES COMPANY INC: $50k → 11%HOPE LOVES COMPANY INC: $50k → 11%HOPE LOVES COMPANY INC: $50k → 11%HOPE LOVES COMPANY INC: $25k → 11%HOPE LOVES COMPANY INC: $12k → 11%0%20%40%50%more need →
grant to an above-average-need area below average· circle size = grant amount
How this is measured
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty line in the grantee’s ZIP, averaged from the tracts in that ZIP.

Which US states its grants reach

ME
VT
NH
WA
ID
MN
IL
WI
MI
NY
MA
OR
NV
SD
IA
IN
OH
PA
NJ
CT
RI
CA
UT
CO
NE
MO
KY
VA
MD
DE
AZ
NM
KS
AR
TN
NC
SC
DC
OK
LA
MS
AL
GA
TX
FL

Grants abroad, by region: $2.8M on the FY2025 return

Schedule F, as filed: 2 regions. The IRS asks for region and purpose, not the recipient, so no country or grantee can be named here.

Europe (including Iceland and Greenland)$2.6M · 91% · 13 grants

Stated purpose: CLINICAL TRIAL AWARD · DRUG DEVELOPMENT CONTRACT · PREVENTION PROGRAM

East Asia and the Pacific$250k · 9% · 1 grant

Stated purpose: DRUG DEVELOPMENT CONTRACT

How this is measured
US grants placed by each grantee’s ZIP, which can differ from where services are delivered. Need from public data (U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA), shown as context about the area, never attributed to the funder’s giving. Grants abroad on Schedule F are filed by region, purpose and amount with no recipient name, so they are shown by region and cannot be placed on the country map or matched to a grantee.
03Its grantees
repeat funding

Who it funds again

Organizations funded in more than one year, against those funded once.

94%of every dollar goes to organizations it has funded before.
$112M · 240 repeat orgs$6.6M to everyone else

Grantees it renews have grown median revenue +29% since the first grant, against +10% for those funded once.

240 repeat relationships: 110 still active in FY2025, 130 since wound down; 9 grantees were first funded in FY2025 (too recent to call).

How the two cohorts compare

Re-uppedFunded once

Organizations

240
58

Total granted

$112M
$5.6M

Median revenue growth · since first grant

+29%
+10%

Still filing today

55%
40%

New vs renewed · share of each year

In FY2025, 87% of grant dollars renewed an existing relationship; $1.0M went to new ones.

50%100%’17’18’19’20’21’22’23’24’25
RenewedFirst-time

Where new relationships form · theme of each grantee’s first grant

’17’18’19’20’21’22’23’24’25
HealthEducationScience & TechPhilanthropyRecreation & SportsHuman ServicesOther
How this is measured
First-time means a grantee’s first year in the filing window; renewed means funded in an earlier year too. The renewed share climbs naturally as a portfolio matures, so the signal is a year that bucks it (a wave of new grantees). The earliest year is left-censored: relationships that predate the data read as new. Theme is the grantee’s IRS cause.

Backed again, and grew

  • JOHNS HOPKINS UNIVERSITY
    9× · 2017–2025 · $6.6M · revenue +64%
  • NY
    NEW YORK GENOME CENTER INC
    5× · 2019–2025 · $3.5M · revenue +95%
  • CEDARS-SINAI MEDICAL CENTER
    9× · 2017–2025 · $2.7M · revenue +63%

Funded once

  • CI
    CYTOKINETICS INC
    one grant, 2018 · $800k
  • FU
    FOCUSED ULTRASOUND FOUNDATIONgraduated
    one grant, 2023 · $500k · revenue +214%
  • OL
    OPTIKIRA LLC
    one grant, 2018 · $499k
How this is measured

Repeat means funded in two or more distinct years. Growth and survival are read from each grantee’s own subsequent IRS filings.

04Its field

Closest unfunded matches

The nonprofits that most resemble its grantees but are not funded by it, scored along the direction from the rest of the field toward the portfolio. A resemblance in what they say they do, not a recommendation.

1
University of Minnesota Physicians

University of minnesota physicians serves as the integrated group practice for the university of minnesota medical school full-time faculty to provide the highest quality healthcare to patients and their families.university of minnesota…

Health
2
Rush University Medical Center

The mission of Rush is to improve the health of the individuals and diverse communities we serve through the integration of outstanding patient care, education, research and community partnerships.

Health
3
Mass General Brigham Incorporated & Affiliates Group Return

Mass general brigham incorporated is developing an integrated health care delivery system throughout the region that offers patients a continuum of coordinated, high-quality care.

Health
4
Fred Hutchinson Cancer Center

Fred hutch cancer center ("fred hutch") unites innovative research and compassionate care to prevent and eliminate cancer and infectious disease. continued on schedule o

Health
5
The Johns Hopkins Hospital

For more than 125 years, the mission of the johns hopkins hospital has been to lead the world in the diagnosis and treatment of disease and to train tomorrow's great physicians, nurses and scientists. above all, we aim to provide the…

Health
6
Memorial Sloan-Kettering Cancer Center

Leadership in the prevention, treatment, and cure of cancer through excellence, vision and cost effectiveness in patient care, outreach programs, research, and education.

Health
7
Truman Medical Center Incorporated

University health is an academic health center providing accessible, state-of-the-art quality healthcare to our community regardless of the ability to pay.

Health
8
University of Chicago Medical Center

Our mission at the university of chicago medicine is to provide superior health care through rigorous research, innovative education, and comprehensive care and healing. in partnership with our colleagues, we pursue life-changing…

Health
9
Massachusetts Eye & Ear Infirmary

THE MASSACHUSETTS EYE AND EAR INFIRMARY ("THE INFIRMARY") IS A NOT-FOR-PROFIT TEACHING HOSPITAL CONDUCTING PATIENT CARE AND RESEARCH. THE INFIRMARY IS A TEACHING HOSPITAL OF HARVARD MEDICAL SCHOOL AND AN INTERNATIONAL CENTER FOR RESEARCH.…

Health
10
Rhode Island Hospital

As a founding hospital in the brown university health system, rih is committed to its mission: delivering health with care.

Health
11
Loyola University Medical Center

We, loyola university health system and trinity health, serve together in the spirit of the gospel as a compassionate and transforming healing presence within our communities.lumc is a member of loyola university health system and trinity…

Health
12
Sanford Burnham Prebys Medical Discovery Institute

Sanford burnham prebys medical discovery institute's mission is to advance the biomedical sciences by cultivating the next generation of scientific leaders, providing meaningful opportunities for researchers of all backgrounds to learn,…

Health
How this is measured
The grantee most central to the portfolio’s shape is The Medstar-Georgetown Medical Center Inc; the most unlike its peers is The Leandro P Rizzuto Foundation. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.
04the grantee network

186 grantees tracked through their own filings, 2017–2026.

Each grant beside the grantee’s revenue from every source, year by year.

How this is measured

Counted here: distinct organizations funded across 2017 to 2026, not grant rows in a single year, so this will not match the grant count on the cover. 186 of the 319 grantees resolved in that span have returns of their own we could reconcile.

Each grantee is resolved to its own IRS returns. Association, dated; never a causal claim.

4
Load-bearing (≥25% of a budget)
13
Early backer (in before they grew)
172/186
Grantees still filing
141/186
Grew since first funded

Where the money sits, by cause and then by grantee

MASS GENERAL BRIGHAM INCORPORATED: $12,283,921 · OtherMASS GENERAL BRIGHAM INCORPORATEDUNIVERSITY OF MASSACHUSETTS: $7,368,613 · OtherUNIVERSITY OF MASSACHUSETTSUNIVERSITY OF FLORIDA: $2,656,831 · OtherLudwig Institute for Cancer Research Ltd: $2,393,000 · OtherNIHNIA: $2,348,556 · Other+102 more: $42,262,978 · Other+102 moreJOHNS HOPKINS UNIVERSITY: $6,623,216 · EducationJOHNS HOPKINS UNIVERSITYTHE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK: $5,302,623 · EducationTHE TRUSTEES OF COLUMBIA UN…University of Miami: $1,814,156 · EducationUniversity of MiamiWASHINGTON UNIVERSITY: $1,263,078 · EducationTRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA: $1,227,814 · EducationUNIVERSITY OF SOUTHERN CALIFORNIA: $1,022,974 · EducationPresident and Fellows of Harvard College: $1,016,219 · Education+30 more: $11,988,716 · Education+30 moreNEW YORK GENOME CENTER INC: $3,525,000 · HealthNEW YORK GENOME CENTE…CEDARS-SINAI MEDICAL CENTER: $2,668,954 · HealthCEDARS-SINAI MEDICAL …AMERICAN BRAIN FOUNDATION: $1,861,500 · HealthAMERICAN BRAIN FOUNDA…ST JUDE CHILDREN'S RESEARCH HOSPITAL INC: $1,382,028 · HealthST JUDE CHILDREN'S RE…THE J DAVID GLADSTONE INSTITUTES: $1,300,000 · HealthTHE J DAVID GLADSTONE…NORTH EAST ALS CONSORTIUM INC: $1,095,094 · HealthDIGNITY HEALTH: $914,786 · Health+43 more: $11,606,365 · Health+43 moreBROWN UNIVERSITY: $698,377 · Community ImprovementNorthwestern University: $485,659 · Recreation & SportsCommunity Foundation of Greater Huntsville: $165,000 · PhilanthropyTHE LEANDRO P RIZZUTO FOUNDATION: $100,000 · PhilanthropyCOXHEALTH FOUNDATION: $85,500 · PhilanthropyHope Loves Company Inc: $187,000 · Human Services
Other$69,313,899Education$30,258,796Health$24,353,727Community Improvement$698,377Recreation & Sports$485,659Philanthropy$350,500Human Services$187,000

Showing the 200 largest grantees by grant value.

Each grantee by its size and the funder’s share of it; top left is load-bearing

25%50%75%100%$1.0M$10M$100Mgrantee revenue →↑ funder's share of their budgetJOHNS HOPKINS UNIVERSITY: $6,623,216 over 9y, 0.0% of budgetTHE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK: $5,302,623 over 9y, 0.0% of budgetNEW YORK GENOME CENTER INC: $3,525,000 over 5y, 2.7% of budgetCEDARS-SINAI MEDICAL CENTER: $2,668,954 over 9y, 0.0% of budgetLudwig Institute for Cancer Research Ltd: $2,393,000 over 6y, 0.9% of budgetAMERICAN BRAIN FOUNDATION: $1,861,500 over 7y, 5.4% of budgetUniversity of Miami: $1,814,156 over 4y, 0.0% of budgetAMYOTROPHIC LATERAL SCLEROSIS ASSN MASSACHUSETTS CHAPTER INC: $1,691,112 over 5y, 41% of budgetST JUDE CHILDREN'S RESEARCH HOSPITAL INC: $1,382,028 over 5y, 0.0% of budgetTHE J DAVID GLADSTONE INSTITUTES: $1,300,000 over 5y, 0.8% of budgetWASHINGTON UNIVERSITY: $1,263,078 over 9y, 0.0% of budgetTRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA: $1,227,814 over 7y, 0.0% of budgetNORTH EAST ALS CONSORTIUM INC: $1,095,094 over 7y, 40% of budgetUNIVERSITY OF SOUTHERN CALIFORNIA: $1,022,974 over 8y, 0.0% of budgetPresident and Fellows of Harvard College: $1,016,219 over 7y, 0.0% of budgetEmory University: $968,803 over 8y, 0.0% of budgetUNIVERSITY MEDICAL SERVICE ASSOCIATION INC: $928,923 over 3y, 0.1% of budgetDIGNITY HEALTH: $914,786 over 7y, 0.0% of budgetTARGET ALS FOUNDATION INC: $850,000 over 3y, 1.1% of budgetUNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTITUTE: $800,000 over 2y, 0.3% of budgetUniversity of Chicago: $710,000 over 8y, 0.0% of budgetBROWN UNIVERSITY: $698,377 over 6y, 0.0% of budgetNew York University: $690,740 over 4y, 0.0% of budgetALS THERAPY DEVELOPMENT FOUNDATION INC: $650,000 over 2y, 2.6% of budgetNova Southeastern University Inc: $639,332 over 3y, 0.0% of budgetAMERICAN ACADEMY OF NEUROLOGY INSTITUTE: $604,049 over 4y, 1.2% of budgetHENRY FORD HEALTH SYSTEM: $603,592 over 8y, 0.0% of budgetBaylor College of Medicine: $575,000 over 7y, 0.0% of budgetTemple University - Of The Commonwealth System of Higher Education: $557,918 over 4y, 0.0% of budgetTHE BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY: $550,000 over 6y, 0.0% of budgetTHE ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION: $536,398 over 2y, 6.2% of budgetFOCUSED ULTRASOUND FOUNDATION: $500,000 over 1y, 5.9% of budgetHOLY CROSS HOSPITAL INC: $486,593 over 4y, 0.0% of budgetNorthwestern University: $485,659 over 4y, 0.0% of budgetMAYO CLINIC: $477,000 over 8y, 0.0% of budgetUNIVERSITY OF ROCHESTER: $450,241 over 5y, 0.0% of budgetThe Research Foundation for The State University of New York: $450,000 over 7y, 0.0% of budgetChildren's Hospital Corporation: $400,000 over 2y, 0.0% of budgetTHE METHODIST HOSPITAL FOUNDATION: $400,000 over 8y, 0.3% of budgetTHE CLEVELAND CLINIC FOUNDATION: $398,601 over 8y, 0.0% of budgetTHE MEDICAL COLLEGE OF WISCONSIN INC: $390,000 over 8y, 0.0% of budgetCornell University Medical College Alumni Association Inc: $367,517 over 4y, 38% of budgetKAISER FOUNDATION HOSPITALS: $360,000 over 3y, 0.0% of budgetSYRACUSE UNIVERSITY: $350,000 over 5y, 0.0% of budgetDartmouth-Hitchcock Clinic: $340,000 over 6y, 0.0% of budgetTHOMAS JEFFERSON UNIVERSITY: $340,000 over 3y, 0.0% of budgetThe Kansas University Endowment Association: $339,595 over 7y, 0.0% of budgetAMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION: $338,652 over 4y, 9.2% of budget
Grantee by grantee: a decade per organization, before and after funding

A decade per grantee: revenue shaded, grants as bars, all rows on one timeline.

  • Who funds JOHNS HOPKINS UNIVERSITY ↗
  • Who funds THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK ↗
  • Who funds NEW YORK GENOME CENTER INC ↗
  • Who funds CEDARS-SINAI MEDICAL CENTER ↗
  • Who funds Ludwig Institute for Cancer Research Ltd ↗
  • Who funds AMERICAN BRAIN FOUNDATION ↗
  • Who funds University of Miami ↗
  • Who funds AMYOTROPHIC LATERAL SCLEROSIS ASSN MASSACHUSETTS CHAPTER INC ↗
  • Who funds ST JUDE CHILDREN'S RESEARCH HOSPITAL INC ↗
  • Who funds THE J DAVID GLADSTONE INSTITUTES ↗
  • Who funds WASHINGTON UNIVERSITY ↗
  • Who funds TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA ↗
  • Who funds NORTH EAST ALS CONSORTIUM INC ↗
  • Who funds UNIVERSITY OF SOUTHERN CALIFORNIA ↗
  • Who funds President and Fellows of Harvard College ↗
  • Who funds Emory University ↗
  • Who funds UNIVERSITY MEDICAL SERVICE ASSOCIATION INC ↗
  • Who funds DIGNITY HEALTH ↗
  • Who funds TARGET ALS FOUNDATION INC ↗
  • Who funds UNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTITUTE ↗

Co-funders

Grantmakers whose grantees overlap with this funder’s far more than size alone predicts. Closer means stronger alignment; arcs show where they also fund each other. Here they form a tightly interlocked group: most of these funders back each other's grantees too.

Muscular Dystrophy As…American Cancer Socie…Mayo ClinicChristopher Reeve Fou…American Heart Associ…Northwestern Universi…Cystic Fibrosis Found…Vanderbilt University…Johns Hopkins Univers…Yale UniversityThe Trustees of Colum…University of Pittsbu…
Muscular Dystrophy Association IncIL61.8× affinity29 shared granteesties to 11 of 11Hover any node to trace its alignments.Compare side by side →

Open a dossier: Muscular Dystrophy Association Inc · American Cancer Society Inc · Mayo Clinic · Christopher Reeve Foundation · American Heart Association Inc · Northwestern University · Cystic Fibrosis Foundation · Vanderbilt University Medical Center · Johns Hopkins University · Yale University · The Trustees of Columbia University in the City of New York · University of Pittsburgh

How this is measured
Affinity is a Gamma-Poisson posterior co-funding rate, re-centered on the typical rate, so thin evidence shrinks toward no signal. Overlap is association, not proof of shared intent.

How much its grantees rely on government

Each dot is one organization Amyotrophic Lateral Sclerosis Assn funds: left to right is the share of its income from government, bottom to top the share from Amyotrophic Lateral Sclerosis Assn. Bigger dots raise more.

2024
’20’21’22’23’24’25
no gov · 80%6%25%56%100%funder's share of their income ↑0%23%45%68%90%share of the org’s income from government →median 5%
  • Johns Hopkins University: 12% of income from government
  • Yale University: 12% of income from government
  • Children's Hospital Corporation: 10% of income from government
  • Als Therapy Development Foundation Inc: 8% of income from government
  • President and Fellows of Harvard College: 7% of income from government
  • Northeastern University: 7% of income from government
  • University of Miami: 5% of income from government
  • Nova Southeastern University Inc: 2% of income from government
  • Lahey Clinic Inc: 1% of income from government
  • The University of Vermont Medical Center: 1% of income from government
  • Orlando Health Inc: 0% of income from government
  • Hospital for Special Care: 0% of income from government
  • Holy Cross Hospital Inc: 0% of income from government
no gov moneyreceives it· size = income
8get no government money at all
11report government grants on their 990 we could not trace to a source (not plotted)
0rely on government for over half their income
⤢ axis zoomed · 0–90%
typical government reliance, FY20–25
How this is measured
Government income is each org’s traced federal awards (USASpending grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that a grant caused the public funding. Coverage is precision-first, a floor rather than a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12 to 24 months.

On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 319 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

How this is measured
Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

Generated from the IRS Form 990 e-file return for fiscal year 2025, released 2025. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

Source object · view filing

Play a game based on Amyotrophic Lateral Sclerosis Assn’s filings →

More from the funding graph

The unnamed billions
grants reported with no recipient in the public record
The regranting layer
51% of grant dollars land in the regranting layer
The DAF merry-go-round
$9.7B circulates between donor-advised funds
The endowment market
who holds foundation money, and what just moved
The camps
funders cluster by geography, not ideology
By state
where grant money is based, and what stays home