Skip to content

North Carolina · Nonprofit

THE CHAMP FOUNDATION

THE CHAMP FOUNDATION (North Carolina) receives grants from 11 organizations whose IRS filings report $848,513 to it, the largest being Silicon Valley Community Foundation ($615,000). 7 of them have funded it in more than one year, and 93% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.

Revenue FY2024
$74k
Funders on record
11
Grants received
$849k
Net assets
$245k
7/11 repeat funderspeak grant-dependency 77%
01What it does

What The Champ Foundation does

Mission

In 2024, The Champ Foundation continued to support a multi-site Natural History Study at the Cleveland Clinic and the the Children's HOspital of Philadelphia and the Champ Foundation Registry, a research study of individuals with single large scale mtDNA deletion syndromes, like Pearson syndrome. We support patient travel to participate in the Natural History Study. We continued to fund research projects at University College of London and Children's Hospital of Philadelphia.

As stated on its FY2024 Form 990.

Program

  1. In 2023, The Champ Foundation continued to support a multi-site Natural History Study at the Cleveland Clinic and Children's Hospital of Philadelphia and the Champ Foundation Registry, a research study of individuals with single large-scale mitochondrial DNA deletions (SLSMDS). We support patient travel to participate in the Natural History Study. We continued to fund research projects at CHOP, University of Cambridge, University of Pittsburgh, and University College of London. We disseminated findings from our registry data through peer reviewed manuscripts and mitochondrial disease conferences.

    $127,953 spentof which $104,205 as grants
    100% of program spending

The program described on its FY2024 Form 990. Program spending in total: $127,953.

02The organization over time

The organization over time

Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.

100 = 20172017 Revenue 100 ($174k) Expenses 100 ($174k) Net assets 100 ($240k)2018 Revenue 60 ($104k) Expenses 98 ($171k) Net assets 72 ($173k)2019 Revenue 85 ($147k) Expenses 137 ($238k) Net assets 34 ($82k)2020 Revenue 366 ($637k) Expenses 147 ($256k) Net assets 193 ($463k)2021 Revenue 108 ($187k) Expenses 126 ($219k) Net assets 180 ($431k)2022 Revenue 272 ($474k) Expenses 222 ($386k) Net assets 216 ($519k)2023 Revenue 69 ($121k) Expenses 195 ($338k) Net assets 126 ($301k)2024 Revenue 42 ($74k) Expenses 75 ($130k) Net assets 102 ($245k)
'17'18'19'20'21'22'23'24
Revenue (42)Expenses (75)Net assets (102)Peer revenue range

Balance sheet

Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2019 to 2020, from $82k to $467k (+471%).

$240k
$173k
$82k
$467k
$431k
$519k
$301k
$245k
'17'18'19'20'21'22'23'24
Total assetsTotal liabilities

How it's funded, over time

Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.

2017
2018
2019
2020
2021
2022
2023
2024
ContributionsProgram revenueInvestmentOther

99% of THE CHAMP FOUNDATION’s revenue is contributions — about as donation-reliant as the typical peer (100% for the typical peer).

This organization
Typical peer · 12,248 orgs

Surplus & reserves

Operating surplus or deficit each year, and months of liquidity in hand. 5 of the last 8 reported years ran a deficit.

$429
’17
−$67k
’18
−$91k
’19
$381k
’20
−$31k
’21
$88k
’22
−$218k
’23
−$57k
’24
23
months of
reserve

Leadership and staff

The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.

20202021202220232024
Listed55555
Joined·+0+1+0+0
No longer listed·0100
03Who funds it

Who funds it, year by year

2017 → 2023: the base broadened from 2 funders to 5 funders, grant income rose $13k → $34k.

5 of 11 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 93% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.

From the IRS filings of THE CHAMP FOUNDATION’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

How concentrated its funding is

THE CHAMP FOUNDATION leans on a few funders — its largest provides 72% of grant income and the top three 95%; half comes from just 1 funder.

the vertical line marks half of all grant income — 1 funder to its left

93% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund THE CHAMP FOUNDATION.

72%
largest funder
95%
top three
~2
effective funders

Largest funder’s share by year: 2017 96% · 2018 67% · 2019 92% · 2020 95% · 2021 76% · 2022 82% · 2023 74% — diversifying over time.

“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

How long its funders stay

29% of THE CHAMP FOUNDATION's funders are still giving 3 years after their first grant; 64% give in more than one year at all.

first grant+1y+2y+3y+4y

Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.

Where its funders are

93% of THE CHAMP FOUNDATION's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $56k that is directly attributable, 100% of it comes from funders outside North Carolina, across 5 states.

NY
WY
CA
MD
TX

In-state vs out-of-state, by year

’17
’18
’19
’21
’22
’23
North Carolina out of state home

Funder states come from each funder’s own filing. $793k arriving through sponsors registered in 5 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

04Its place in the field

Against its field

THE CHAMP FOUNDATION is better cushioned than half of the 9,907 health nonprofits its size.

Operating margin−77% · bottom quartile
Months of reserve22.5mo · above the median
Revenue growth (annualized)−12% · below the median

this organization peer median middle 50% of peers· 9,907 health nonprofits under $100k, FY2024

Organizations like THE CHAMP FOUNDATION

Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.

In North Carolina

Nationally

05Profile & governance

Read directly from this organization’s own Form 990, as neutral context.

Where the money goes

98% of spending goes to programs.

Program 98%Management 2%Fundraising 0%

Governance

5
board members
100%
independent
✓Conflict-of-interest policy✓Whistleblower policy✓Document retention✓Board reviewed the 990–Audited financials

Public support

69%

Share of support from the public (Schedule A) — the basis for its public-charity status.

Screen this organization

A dated, signed PDF of the compliance screen for THE CHAMP FOUNDATION: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.

A paid feature, included from the $75 plan up. Sign in to download.

Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf

Questions and answers

Who funds THE CHAMP FOUNDATION?
THE CHAMP FOUNDATION (North Carolina) receives grants from 11 organizations whose IRS filings report $848,513 to it, the largest being Silicon Valley Community Foundation ($615,000). 7 of them have funded it in more than one year, and 93% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
How many funders does THE CHAMP FOUNDATION have?
IRS filings report 11 organizations giving $848,513 in grants to THE CHAMP FOUNDATION, 7 of which have funded it in more than one year.
Who is the largest funder of THE CHAMP FOUNDATION?
Silicon Valley Community Foundation is the largest funder on record, with $615,000 in grants. The full list of funders is on this page.
How can an organization like THE CHAMP FOUNDATION find more funders?
Start with the funders already giving here, then look at the foundations that back similar organizations in North Carolina. The funding by cause and by state pages list the largest funders for a given area and how to approach them.

These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2024 (financials across 2017–2024), and the filings of 11 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 22, 2026. What this page cannot tell you · view filing