California · Nonprofit
NATIONAL ORGANIZATION FOR DISORDERS OF THE CORPUS CALLOSUM
NATIONAL ORGANIZATION FOR DISORDERS OF THE CORPUS CALLOSUM (California) receives grants from 14 organizations whose IRS filings report $525,373 to it, the largest being FIDELITY INVESTMENTS CHARITABLE GIFT FUND ($109,200). 7 of them have funded it in more than one year, and 55% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- Revenue FY2024
- $434k
- Funders on record
- 14
- Grants received
- $525k
- Net assets
- $512k
What National Organization for Disorders of the Corpus Callosum does
Mission
The nodcc has become the leading nonprofit organization for the disorders of the corpus callosum and is dedicated to raising the profile, understanding and acceptance of these disorders through education, networking, advocacy and being a catalyst for research.
As stated on its FY2024 Form 990.
Programs
The nodcc has several outreach programs to help raise the awareness and improve education among the stakeholders in the community. We host educational exhibits at professional medical conferences & host monthly virtual meetings for parents/caregivers and adjults with dcc in our community.
$32,920 spent$1,301 earned by the program8% of program spendingThe nodcc is deeply committed to improving the lives of those affected by a disorder of the corpus callosum by providing direct support as well as educational resources in collaboration with a wide range of stakeholders to raise awareness and knowledge. In 2024, nodcc staff provided one on one support through phone calls, emails and interactions on social media. We provided welcome packets to newly diagnosed families. We maintain an increasing number of resources on our website, brochure, educational booklets, and educational videos on youtube.
$62,895 spent16% of program spendingThe nodcc conference and regional meetings are a way of providing support and community to our families affected by dcc.
$296,386 spent$209,605 earned by the program76% of program spending
The 3 programs described on its FY2024 Form 990, listed largest first by expense. Program spending in total: $392,201.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2019 to 2020, from $291k to $418k (+44%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
29% of NATIONAL ORGANIZATION FOR DISORDERS OF THE CORPUS CALLOSUM’s revenue is contributions — about as donation-reliant as the typical peer (82% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 2 of the last 8 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Who funds it, year by year
2017 → 2023: the base broadened from 2 funders to 4 funders, grant income rose $29k → $31k.
7 of 14 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 55% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of NATIONAL ORGANIZATION FOR DISORDERS OF THE CORPUS CALLOSUM’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
NATIONAL ORGANIZATION FOR DISORDERS OF THE CORPUS CALLOSUM has a broad base — no single funder exceeds 21% of grant income, and it takes 3 funders to reach half.
the vertical line marks half of all grant income — 3 funders to its left
70% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund NATIONAL ORGANIZATION FOR DISORDERS OF THE CORPUS CALLOSUM.
Largest funder’s share by year: 2017 91% · 2018 50% · 2019 57% · 2020 62% · 2021 53% · 2022 62% · 2023 49% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
43% of NATIONAL ORGANIZATION FOR DISORDERS OF THE CORPUS CALLOSUM's funders are still giving 3 years after their first grant; 50% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
55% of NATIONAL ORGANIZATION FOR DISORDERS OF THE CORPUS CALLOSUM's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $236k that is directly attributable, 96% of it comes from funders outside California, across 6 states.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $289k arriving through sponsors registered in 6 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
NATIONAL ORGANIZATION FOR DISORDERS OF THE CORPUS CALLOSUM has grown faster than half of the 13,754 health nonprofits its size.
this organization peer median middle 50% of peers· 13,754 health nonprofits $100k–$1M, FY2024
Organizations like NATIONAL ORGANIZATION FOR DISORDERS OF THE CORPUS CALLOSUM
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In California
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
90% of spending goes to programs.
Governance
Public support
97%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Screen this organization
A dated, signed PDF of the compliance screen for NATIONAL ORGANIZATION FOR DISORDERS OF THE CORPUS CALLOSUM: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds NATIONAL ORGANIZATION FOR DISORDERS OF THE CORPUS CALLOSUM?
- NATIONAL ORGANIZATION FOR DISORDERS OF THE CORPUS CALLOSUM (California) receives grants from 14 organizations whose IRS filings report $525,373 to it, the largest being FIDELITY INVESTMENTS CHARITABLE GIFT FUND ($109,200). 7 of them have funded it in more than one year, and 55% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- How many funders does NATIONAL ORGANIZATION FOR DISORDERS OF THE CORPUS CALLOSUM have?
- IRS filings report 14 organizations giving $525,373 in grants to NATIONAL ORGANIZATION FOR DISORDERS OF THE CORPUS CALLOSUM, 7 of which have funded it in more than one year.
- Who is the largest funder of NATIONAL ORGANIZATION FOR DISORDERS OF THE CORPUS CALLOSUM?
- FIDELITY INVESTMENTS CHARITABLE GIFT FUND is the largest funder on record, with $109,200 in grants. The full list of funders is on this page.
- How can an organization like NATIONAL ORGANIZATION FOR DISORDERS OF THE CORPUS CALLOSUM find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in California. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
Play a game about who funds National Organization for Disorders of the Corpus Callosum →
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2024 (financials across 2017–2024), and the filings of 14 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing