Maryland · Nonprofit
Friends of Patients at the NIH Inc
Friends of Patients at the NIH Inc (Maryland) receives grants from 22 organizations whose IRS filings report $595,541 to it, the largest being NETWORK FOR GOOD ($161,432). 8 of them have funded it in more than one year, and 64% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- Revenue FY2024
- $411k
- Funders on record
- 22
- Grants received
- $596k
- Net assets
- $809k
What Friends of Patients at the NIH Inc does
Mission
To provide assistance to patients and their families undergoing treatment at the NIH Clinical Center.
As stated on its FY2024 Form 990.
Program
Patient Support Services - Friends at NIH provides hope by giving emotional and financial support to patients receiving ground breaking and life saving treatment at the Clinical Center. Friends at NIH helps patients cover their essential needs so that they can focus on recovery. This includes the provision of shelter near the Clinical Center during treatment and assistance with housing costs, support system for patient families and caregivers to enable them to travel to and from the Clinical Center and an allowance to cover meals, utilities, patient insurance, medical and non-medical expenses, long-term patient housing, and other costs incurred during the patients stay at the Clinical Center. RP Awareness and Support - Relapsing polychondritis (RP) is a rare autoimmune disease characterized by recurrent widespread inflammation of different body areas, in particularly, cartilage. Friends at NIH has partnered with the relapsing Polychondritis Awareness and Support Foundation to raise money to provide travel and lodging for patients receiving treatment for this disease. Additional Accomplishments for 2024: 1. Five Local furnished apartments for patients and caregivers stay. Free of…
$369,320 spentof which $179,163 as grants100% of program spending
The program described on its FY2024 Form 990. Program spending in total: $369,320.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2017 to 2018, from $911k to $772k (−15%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2020 15% · 2021 20% · 2023 22%. Grants only. Government contracts and fees sit inside program revenue.
63% of Friends of Patients at the NIH Inc’s revenue is contributions — about as donation-reliant as the typical peer (82% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 7 of the last 8 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Chief executive
Heidi Williams
Chief Executive Officer
As listed on its FY2024 Form 990.
Who funds it, year by year
2017 → 2023: the base broadened from 2 funders to 10 funders, grant income rose $54k → $139k.
9 of 22 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 64% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of Friends of Patients at the NIH Inc’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
Friends of Patients at the NIH Inc has a broad base — no single funder exceeds 27% of grant income, and it takes 3 funders to reach half.
the vertical line marks half of all grant income — 3 funders to its left
87% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund Friends of Patients at the NIH Inc.
Largest funder’s share by year: 2017 80% · 2018 73% · 2019 39% · 2020 55% · 2021 42% · 2022 31% · 2023 31% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
38% of Friends of Patients at the NIH Inc's funders are still giving 3 years after their first grant; 36% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
64% of Friends of Patients at the NIH Inc's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $217k that is directly attributable, 90% of it comes from funders outside Maryland, across 8 states.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $379k arriving through sponsors registered in 9 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
Friends of Patients at the NIH Inc's revenue fell 17% between 2017 and 2024.
this organization peer median middle 50% of peers· 13,754 health nonprofits $100k–$1M, FY2024
Government funding Friends of Patients at the NIH Inc receives
Grants and contracts to this organization from federal (USASpending) and state checkbooks, reconciled to its EIN. $641k on record.
- Department of Health and Human Services$641k
Federal grants vs contracts are distinguished; state line items keep their reported category. Matched by name + geography (the BMF), so coverage is partial and precision-first.
Organizations like Friends of Patients at the NIH Inc
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Maryland
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
87% of spending goes to programs.
Governance
Public support
86%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 1 state
Screen this organization
A dated, signed PDF of the compliance screen for Friends of Patients at the NIH Inc: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds Friends of Patients at the NIH Inc?
- Friends of Patients at the NIH Inc (Maryland) receives grants from 22 organizations whose IRS filings report $595,541 to it, the largest being NETWORK FOR GOOD ($161,432). 8 of them have funded it in more than one year, and 64% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- How many funders does Friends of Patients at the NIH Inc have?
- IRS filings report 22 organizations giving $595,541 in grants to Friends of Patients at the NIH Inc, 8 of which have funded it in more than one year.
- Who is the largest funder of Friends of Patients at the NIH Inc?
- NETWORK FOR GOOD is the largest funder on record, with $161,432 in grants. The full list of funders is on this page.
- How can an organization like Friends of Patients at the NIH Inc find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Maryland. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
Play a game about who funds Friends of Patients at the NIH →
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2024 (financials across 2017–2024), and the filings of 22 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing