Massachusetts · Nonprofit
AMERICAN MYALGIC ENCEPHALOMYELITIS & CHRONIC FATIGUE SYNDROME SOCIETY
AMERICAN MYALGIC ENCEPHALOMYELITIS & CHRONIC FATIGUE SYNDROME SOCIETY (Massachusetts) receives grants from 7 organizations whose IRS filings report $56,635 to it, the largest being NETWORK FOR GOOD ($18,326). 4 of them have funded it in more than one year, and 100% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- Revenue FY2025
- $57k
- Funders on record
- 7
- Grants received
- $57k
- Net assets
- $38k
What American Myalgic Encephalomyelitis & Chronic Fatigue Syndrome Society does
Mission
The American Myalgic Encephalomyelitis and Chronic Fatigue Syndrome Society (AMMES) is dedicated to serving the needs of patients and caregivers through support, advocacy, and education. AMMES provides direct support to disabled patients who are unable to meet their critical needs, such as food, rent, and clothing, through the AMMES Financial Crisis Fund.
As stated on its FY2025 Form 990-EZ.
Programs
In 2025 AMMES made individual grants from the financial crisis fund as follows: $52,130 for housing (10 people), medical grants totaled $9,610 (8 people), utilities grants totaled $10,400 (8 people), food totaled $4,700 (8 people), household expenses totaled $1,430 (4 people), moving expenses totaled $2,505 (2 people), transportation totaled $2,180 (5 people)
$1,186 spentof which $82,955 as grants50% of program spendingAMMES distributed a monthly newsletter through Email Octopus. AMMES maintained and expanded its website. AMMES maintained its corporate status with the state of Massachusetts. AMMES distributed funds through the financial crisis fund.
$1,186 spentof which $84,141 as grants50% of program spending
The 2 programs described on its FY2025 Form 990-EZ. Program spending in total: $2,372.
The organization over time
Each line starts at 100 in 2019, so what you read is the shape rather than the size: 150 means half as much again as 2019, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2023 to 2024, from $128k to $67k (−48%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
100% of AMERICAN MYALGIC ENCEPHALOMYELITIS & CHRONIC FATIGUE SYNDROME SOCIETY’s revenue is contributions — more reliant on donations than three-quarters of its peers (100% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 2 of the last 6 reported years ran a deficit.
Who funds it, year by year
2018 → 2023: the base held at 1 funder, grant income fell $8k → $349.
5 of 7 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 100% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of AMERICAN MYALGIC ENCEPHALOMYELITIS & CHRONIC FATIGUE SYNDROME SOCIETY’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
AMERICAN MYALGIC ENCEPHALOMYELITIS & CHRONIC FATIGUE SYNDROME SOCIETY leans on a few funders — its largest provides 32% of grant income and the top three 80%; half comes from just 2 funders.
the vertical line marks half of all grant income — 2 funders to its left
100% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund AMERICAN MYALGIC ENCEPHALOMYELITIS & CHRONIC FATIGUE SYNDROME SOCIETY.
Largest funder’s share by year: 2018 100% · 2019 52% · 2020 65% · 2021 93% · 2022 95% · 2023 100% — broadly stable.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Where its funders are
100% of AMERICAN MYALGIC ENCEPHALOMYELITIS & CHRONIC FATIGUE SYNDROME SOCIETY's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $158 that is directly attributable, 100% of it comes from funders outside Massachusetts, across 2 states.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $56k arriving through sponsors registered in 4 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
AMERICAN MYALGIC ENCEPHALOMYELITIS & CHRONIC FATIGUE SYNDROME SOCIETY has grown faster than half of the 6,360 health nonprofits its size.
this organization peer median middle 50% of peers· 6,360 health nonprofits under $100k, FY2025
Organizations like AMERICAN MYALGIC ENCEPHALOMYELITIS & CHRONIC FATIGUE SYNDROME SOCIETY
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Massachusetts
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Public support
100%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 1 state
Screen this organization
A dated, signed PDF of the compliance screen for AMERICAN MYALGIC ENCEPHALOMYELITIS & CHRONIC FATIGUE SYNDROME SOCIETY: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds AMERICAN MYALGIC ENCEPHALOMYELITIS & CHRONIC FATIGUE SYNDROME SOCIETY?
- AMERICAN MYALGIC ENCEPHALOMYELITIS & CHRONIC FATIGUE SYNDROME SOCIETY (Massachusetts) receives grants from 7 organizations whose IRS filings report $56,635 to it, the largest being NETWORK FOR GOOD ($18,326). 4 of them have funded it in more than one year, and 100% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- How many funders does AMERICAN MYALGIC ENCEPHALOMYELITIS & CHRONIC FATIGUE SYNDROME SOCIETY have?
- IRS filings report 7 organizations giving $56,635 in grants to AMERICAN MYALGIC ENCEPHALOMYELITIS & CHRONIC FATIGUE SYNDROME SOCIETY, 4 of which have funded it in more than one year.
- Who is the largest funder of AMERICAN MYALGIC ENCEPHALOMYELITIS & CHRONIC FATIGUE SYNDROME SOCIETY?
- NETWORK FOR GOOD is the largest funder on record, with $18,326 in grants. The full list of funders is on this page.
- How can an organization like AMERICAN MYALGIC ENCEPHALOMYELITIS & CHRONIC FATIGUE SYNDROME SOCIETY find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Massachusetts. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
Play a game about who funds American Myalgic Encephalomyelitis & Chronic Fatigue Syndrome Society →
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2019–2025), and the filings of 7 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing