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Down Syndrome Diagnosis Network at a glanceMostly funded, not a grantmaker: see who funds it →

· Public charity

Down Syndrome Diagnosis Network

To connect support and provide accurate information to families with a down syndrome diagnosis

$14k
Granted FY2024still arriving
1
Grants FY2024still arriving
1
States reached
$14k
Largest
01What it fundsRead
02The needRead
03Its fieldRead
01What it funds
01100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2020 to 2024.

Health$38k
02FY2024 · 1 grant

Where the money goes

Grants by size, and the largest recipients.

$13,750
Median grant
1
States reached
$549k
Total assets
Largest grants
RecipientAmount
NATIONAL DOWN SYNDROME CONGRESS$13,750
02The need
03

Does the money reach high-need areas?

Each grant placed by the hardship in its grantee’s ZIP, against the area’s typical level.

show:

Its human-services grants (FY20–20, $1k) land where the poverty rate runs at 11%, against an area that typically sits at 10%. 100% of those dollars go to grantees based in above-average-need neighborhoods. Most of its grants land in higher-need ZIPs.

area typical 10%DOWN SYNDROME ASSOCIATION OF CENTRAL NEW JERSEY: $1k → 11%0%20%40%50%more need →
grant to an above-average-need area below average· circle size = grant amount
How this is measured
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty line in the grantee’s ZIP, averaged from the tracts in that ZIP.

Which US states its grants reach

MI
OR
NJ
CT
KY
NC
OK
GA
TX
How this is measured
US grants placed by each grantee’s ZIP, which can differ from where services are delivered. Need from public data (U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA), shown as context about the area, never attributed to the funder’s giving.
03Its field

Closest unfunded matches

The nonprofits that most resemble its grantees but are not funded by it, scored along the direction from the rest of the field toward the portfolio. A resemblance in what they say they do, not a recommendation.

1
Down Syndrome Association of South Georgia Inc
Health
2
Down Syndrome Society of Rhode Island Inc

A parent support organization dedicated to promoting the rights, dignity and potential of all individuals with down syndrome through advocacy, education, public awareness and support.

Health
3
Down Syndrome Support Group of South Central Kentucky Inc

The mission of the organization is to be a local advocate for the value, acceptance and inclusion of people in south central kentucky with down syndrome

Human Services
4
Ds Connections

Support families with Children diagnosed with Down Syndrome.

Health
5
Down Syndrome Association of Acadiana

To provide information, advocacy and support concerning all aspects of life for individuals with down syndrome, their families, and our community.

Health
6
Down Syndrome Association of Tallahassee Inc

The Down Syndrome Association of Tallahassee supports individuals with Down Syndromes, their families and caregivers through education, support groups, community awareness and acceptance, conferences and assistance with therapy services.

Education
7
Eastern Idaho Down Syndrome Family Connect Llc

Our mission is to build a positive connection between individuals with down syndrome, their families, and eastern idaho. we do this by providing education, advocacy, support, and resources to help facilitate inclusion within the local…

Human Services
8
The Down Syndrome Association of Greater Charlotte Inc

Providing information and support to individuals with down syndrome along with families, professionals, and the community through educational and social activities.

—
9
Down Syndrome Association of the Heartland Inc

Down syndrome association of the heartland, inc. is an organization that offers support to people with down syndrome, as well as their families, friends, teachers, employers, and co-workers.

Human Services
10
Down Syndrome Network of Onslow & Cartertet Counties

Connecting families and enhancing the lives of people with Down Syndrome in our community by providing emotional educational and social support to them and the professionals that serve them

Health
11
Champaign County Down Syndrome Network

To offer support to families with members with downs syndrome and to raise awareness of down syndrome in the community.

Health
12
Down Syndrome Association of Brazos Valley

To insure that individuals born with down syndrome are born into an undertanding and inclusive community where there abilities and potential are recognized and they thrive in the life of their choosing

Health
How this is measured
The grantee most central to the portfolio’s shape is Down Syndrome Association of Tulsa; the most unlike its peers is Piedmont Down Syndrome Support Ne. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.
04the grantee network

10 grantees tracked through their own filings, 2017–2025.

Each grant beside the grantee’s revenue from every source, year by year.

How this is measured

Counted here: distinct organizations funded across 2017 to 2025, not grant rows in a single year, so this will not match the grant count on the cover.

Each grantee is resolved to its own IRS returns. Association, dated; never a causal claim.

0
Load-bearing (≥25% of a budget)
4
Early backer (in before they grew)
9/10
Grantees still filing
7/10
Grew since first funded

Where the money sits, by cause and then by grantee

NATIONAL DOWN SYNDROME CONGRESS: $23,750 · HealthNATIONAL DOWN SYNDROME CONGRESSDown Syndrome Association of Central Oklahoma: $2,100 · HealthDown Syndrome Association of Central OklahomaFAMILIES EXPLORING DOWN SYNDROME: $2,100 · HealthFAMILIES EXPLORING DOWN SYNDROMEDOWN SYNDROME NETWORK OREGON: $2,100 · HealthDOWN SYNDROME NETWORK OREGONPIEDMONT DOWN SYNDROME SUPPORT NE: $2,100 · HealthPIEDMONT DOWN SYNDROME SUPPORT NEDOWN SYNDROME ASSOCIATION OF TULSA: $2,100 · HealthDOWN SYNDROME ASSOCIATION OF TULSA+1 more: $500 · HealthDOWN SYNDROME ASSN OF CENTRAL TEXAS: $2,100 · OtherDOWN SYNDROME ASSOCIATION OF CONNEC: $500 · OtherDOWN SYNDROME ASSOCIATION OF CENTRAL NEW JERSEY INC: $1,000 · Human Services
Health$34,750Other$2,600Human Services$1,000

Each grantee by its size and the funder’s share of it; top left is load-bearing

25%50%75%100%$100k$1.0Mgrantee revenue →↑ funder's share of their budgetNATIONAL DOWN SYNDROME CONGRESS: $23,750 over 3y, 0.8% of budgetDOWN SYNDROME ASSN OF CENTRAL TEXAS: $2,100 over 1y, 0.8% of budgetDown Syndrome Association of Central Oklahoma: $2,100 over 1y, 0.5% of budgetDOWN SYNDROME NETWORK OREGON: $2,100 over 1y, 7.3% of budgetPIEDMONT DOWN SYNDROME SUPPORT NE: $2,100 over 1y, 1.0% of budgetDOWN SYNDROME ASSOCIATION OF TULSA: $2,100 over 1y, 4.5% of budgetDOWN SYNDROME ASSOCIATION OF CONNEC: $500 over 1y, 13% of budgetDown Syndrome of Louisville Inc: $500 over 1y, 0.0% of budget
Grantee by grantee: a decade per organization, before and after funding

A decade per grantee: revenue shaded, grants as bars, all rows on one timeline.

Co-funders

Grantmakers whose grantees overlap with this funder’s far more than size alone predicts. Closer means stronger alignment; arcs show where they also fund each other. Here they form a tightly interlocked group: most of these funders back each other's grantees too.

Global Down Syndrome …Network for GoodAmerican Online Givin…Fidelity Investments …Amazonsmile Foundation
Global Down Syndrome FoundationCO13.6× affinity4 shared granteesties to 4 of 4Hover any node to trace its alignments.Compare side by side →

Open a dossier: Global Down Syndrome Foundation · Network for Good · American Online Giving Foundation Inc · Fidelity Investments Charitable Gift Fund · Amazonsmile Foundation

How this is measured
Affinity is a Gamma-Poisson posterior co-funding rate, re-centered on the typical rate, so thin evidence shrinks toward no signal. Overlap is association, not proof of shared intent.

How much its grantees rely on government

Each dot is one organization Down Syndrome Diagnosis Network funds: left to right is the share of its income from government, bottom to top the share from Down Syndrome Diagnosis Network. Bigger dots raise more.

2024
’20’21’22’23’24’25
no gov · 30%1%4%8%15%funder's share of their income ↑0%3%5%8%10%share of the org’s income from government →median 0%
  • Down Syndrome Association of Connec: 0% of income from government
no gov moneyreceives it· size = income
3get no government money at all
3report government grants on their 990 we could not trace to a source (not plotted)
0rely on government for over half their income
⤢ axis zoomed · 0–10%
typical government reliance, FY20–25
How this is measured
Government income is each org’s traced federal awards (USASpending grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that a grant caused the public funding. Coverage is precision-first, a floor rather than a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12 to 24 months.

On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 10 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

How this is measured
Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

Generated from the IRS Form 990 e-file return for fiscal year 2024, released 2024. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

Possibly out of date. A more recent filing (FY2025) is on record and reports $11k of grant expense, but none of it to a named recipient. On a Form 990 that can mean grants abroad, filed by region only (Schedule F), grants under $5,000, which are not itemized, or a schedule referenced as an attachment the e-file does not carry. The figures above are therefore from FY2024, the most recent year this funder named its grantees.

Source object · view filing

Play a game based on Down Syndrome Diagnosis Network’s filings →

More from the funding graph

The unnamed billions
grants reported with no recipient in the public record
The regranting layer
51% of grant dollars land in the regranting layer
The DAF merry-go-round
$9.7B circulates between donor-advised funds
The endowment market
who holds foundation money, and what just moved
The camps
funders cluster by geography, not ideology
By state
where grant money is based, and what stays home