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Indiana · Nonprofit

The Bev Hartig Huntingtons Disease Foundation Inc

The Bev Hartig Huntingtons Disease Foundation Inc (Indiana) receives grants from 14 organizations whose IRS filings report $445,629 to it, the largest being AMERICAN ENDOWMENT FOUNDATION ($137,500). 10 of them have funded it in more than one year, and 66% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.

Revenue FY2025
$391k
Funders on record
14
Grants received
$446k
Net assets
$397k
10/14 repeat funderspeak grant-dependency 32%
01What it does

What The Bev Hartig Huntingtons Disease Foundation Inc does

Mission

To find a cure for Huntington's Disease

As stated on its FY2025 Form 990.

Programs

  1. Wenzhen Duan - Professor of Psychiatry at Johns Hopkins University. Working on neuron conversion for treating Huntington's disease.

    $162,691 spent
    45% of program spending
  2. Myriam Heiman, Ph.D, at MIT - Project works on finding a gene theory for Huntington's Disease.

    $100,000 spent
    28% of program spending
  3. Huntington's Disease Society - Funding researcher working on cure for Huntington's Disease

    $75,000 spent
    21% of program spending
  4. Indiana University - Toward salary for a social worker working with Huntington's disease patients.

    $20,000 spent
    6% of program spending
  5. Summerfield Health Care - Working with Huntington disease patients

    $5,000 spent
    1% of program spending

The 5 programs described on its FY2024 Form 990, listed largest first by expense. Program spending in total: $362,691.

02The organization over time

The organization over time

Each line starts at 100 in 2018, so what you read is the shape rather than the size: 150 means half as much again as 2018, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.

100 = 20182018 Revenue 100 ($213k) Expenses 100 ($374k) Net assets 100 ($359k)2019 Revenue 138 ($294k) Expenses 57 ($212k) Net assets 123 ($441k)2020 Revenue 89 ($191k) Expenses 87 ($327k) Net assets 85 ($304k)2021 Revenue 191 ($407k) Expenses 61 ($228k) Net assets 135 ($484k)2022 Revenue 140 ($298k) Expenses 87 ($326k) Net assets 127 ($456k)2023 Revenue 138 ($295k) Expenses 73 ($275k) Net assets 133 ($476k)2024 Revenue 132 ($281k) Expenses 101 ($380k) Net assets 105 ($378k)2025 Revenue 183 ($391k) Expenses 99 ($373k) Net assets 111 ($397k)
'18'19'20'21'22'23'24'25
Revenue (183)Expenses (99)Net assets (111)Peer revenue range

Balance sheet

Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2020 to 2021, from $304k to $484k (+59%).

$359k
$441k
$304k
$484k
$456k
$476k
$378k
$397k
'18'19'20'21'22'23'24'25
Total assetsTotal liabilities

How it's funded, over time

Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.

2018
2019
2020
2021
2022
2023
2024
2025
ContributionsProgram revenueInvestmentOther

78% of The Bev Hartig Huntingtons Disease Foundation Inc’s revenue is contributions — about as donation-reliant as the typical peer (82% for the typical peer).

This organization
Typical peer · 14,893 orgs

Surplus & reserves

Operating surplus or deficit each year, and months of liquidity in hand. 4 of the last 8 reported years ran a deficit.

−$161k
’18
$82k
’19
−$136k
’20
$179k
’21
−$28k
’22
$20k
’23
−$99k
’24
$19k
’25
13
months of
reserve

Leadership and staff

The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.

'18'19'20'21'22'23'24'25
Listed78776888
Joined·+2+0+0+0+3+0+0
No longer listed·1101100
03Who funds it

Who funds it, year by year

2017 → 2023: the base broadened from 2 funders to 6 funders, grant income rose $8k → $79k.

8 of 14 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 66% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.

From the IRS filings of The Bev Hartig Huntingtons Disease Foundation Inc’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

How concentrated its funding is

The Bev Hartig Huntingtons Disease Foundation Inc leans on a few funders — its largest provides 31% of grant income and the top three 67%; half comes from just 2 funders.

the vertical line marks half of all grant income — 2 funders to its left

66% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund The Bev Hartig Huntingtons Disease Foundation Inc.

31%
largest funder
67%
top three
~5
effective funders

Largest funder’s share by year: 2017 94% · 2018 57% · 2019 80% · 2020 94% · 2021 43% · 2022 62% · 2023 41% — diversifying over time.

“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

How long its funders stay

50% of The Bev Hartig Huntingtons Disease Foundation Inc's funders are still giving 3 years after their first grant; 71% give in more than one year at all.

first grant+1y+2y+3y+4y

Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.

Where its funders are

66% of The Bev Hartig Huntingtons Disease Foundation Inc's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $150k that is directly attributable, 82% of it comes from funders outside Indiana, across 5 states.

IL
IN
NJ
CA
CO

In-state vs out-of-state, by year

’17
’18
’19
’20
’21
’22
’23
Indiana out of state home

Funder states come from each funder’s own filing. $296k arriving through sponsors registered in 8 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

04Its place in the field

Against its field

The Bev Hartig Huntingtons Disease Foundation Inc is better cushioned than half of the 7,883 health nonprofits its size.

Operating margin5% · below the median
Months of reserve12.6mo · above the median
Revenue growth (annualized)9% · above the median

this organization peer median middle 50% of peers· 7,883 health nonprofits $100k–$1M, FY2025

Organizations like The Bev Hartig Huntingtons Disease Foundation Inc

Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.

In Indiana

Nationally

05Profile & governance

Read directly from this organization’s own Form 990, as neutral context.

Where the money goes

97% of spending goes to programs.

Program 97%Management 3%Fundraising 0%

Governance

8
board members
100%
independent
–Conflict-of-interest policy–Whistleblower policy–Document retention✓Board reviewed the 990–Audited financials

Public support

86%

Share of support from the public (Schedule A) — the basis for its public-charity status.

Footprint & structure

Files a return copy in 1 state

IN

Screen this organization

A dated, signed PDF of the compliance screen for The Bev Hartig Huntingtons Disease Foundation Inc: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.

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Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf

Questions and answers

Who funds The Bev Hartig Huntingtons Disease Foundation Inc?
The Bev Hartig Huntingtons Disease Foundation Inc (Indiana) receives grants from 14 organizations whose IRS filings report $445,629 to it, the largest being AMERICAN ENDOWMENT FOUNDATION ($137,500). 10 of them have funded it in more than one year, and 66% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
How many funders does The Bev Hartig Huntingtons Disease Foundation Inc have?
IRS filings report 14 organizations giving $445,629 in grants to The Bev Hartig Huntingtons Disease Foundation Inc, 10 of which have funded it in more than one year.
Who is the largest funder of The Bev Hartig Huntingtons Disease Foundation Inc?
AMERICAN ENDOWMENT FOUNDATION is the largest funder on record, with $137,500 in grants. The full list of funders is on this page.
How can an organization like The Bev Hartig Huntingtons Disease Foundation Inc find more funders?
Start with the funders already giving here, then look at the foundations that back similar organizations in Indiana. The funding by cause and by state pages list the largest funders for a given area and how to approach them.

These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2018–2025), and the filings of 14 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing