Kansas · Nonprofit
HEREDITARY NEUROLOGICAL DISEASE CENTER
HEREDITARY NEUROLOGICAL DISEASE CENTER (Kansas) receives grants from 5 organizations whose IRS filings report $115,688 to it, the largest being RONALD AND PAT MCCLAIN GOOD SAMARITAN TR ($93,650). 3 of them have funded it in more than one year.
- Revenue FY2025
- $746k
- Funders on record
- 5
- Grants received
- $116k
- Net assets
- $996k
What Hereditary Neurological Disease Center does
Mission
Provide diagnostic care and disease management to patients and their families dealing with huntingtons disease - no cost to patient or family
As stated on its FY2025 Form 990.
Programs
Crisis intervention (15%), educational services (10%), newsletter (5%), support groups (5%), patient advocacy (15%)
$290,042 spent50% of program spendingDiagnostic care & disease management (30%)
$174,001 spent30% of program spendingGenetic testing service (10%), dna banking services (5%), brain donation services (5%)
$116,001 spent20% of program spending
The 3 programs described on its FY2024 Form 990, listed largest first by expense. Program spending in total: $580,044.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2017 to 2018, from $708k to $0 (−100%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
93% of HEREDITARY NEUROLOGICAL DISEASE CENTER’s revenue is contributions — more donation-reliant than the typical peer (82% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 4 of the last 6 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Chief executive
Gregory Suter
Executive director
Board chair
Lewis Blackwell
Chair
As listed on its FY2025 Form 990.
Who funds it, year by year
2020 → 2023: the base held at 2 funders, grant income fell $1k → $1k.
2 of 5 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 10% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of HEREDITARY NEUROLOGICAL DISEASE CENTER’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
HEREDITARY NEUROLOGICAL DISEASE CENTER leans on a few funders — its largest provides 81% of grant income and the top three 100%; half comes from just 1 funder.
the vertical line marks half of all grant income — 1 funder to its left
Largest funder’s share by year: 2020 95% · 2021 93% · 2022 98% · 2023 96% — broadly stable.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Where its funders are
HEREDITARY NEUROLOGICAL DISEASE CENTER draws 100% of its grant income from funders outside Kansas, across 3 states in all.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $11k arriving through sponsors registered in 2 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
HEREDITARY NEUROLOGICAL DISEASE CENTER is better cushioned than half of the 7,883 health nonprofits its size.
this organization peer median middle 50% of peers· 7,883 health nonprofits $100k–$1M, FY2025
Organizations like HEREDITARY NEUROLOGICAL DISEASE CENTER
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Kansas
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
72% of spending goes to programs.
Governance
Public support
100%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Screen this organization
A dated, signed PDF of the compliance screen for HEREDITARY NEUROLOGICAL DISEASE CENTER: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds HEREDITARY NEUROLOGICAL DISEASE CENTER?
- HEREDITARY NEUROLOGICAL DISEASE CENTER (Kansas) receives grants from 5 organizations whose IRS filings report $115,688 to it, the largest being RONALD AND PAT MCCLAIN GOOD SAMARITAN TR ($93,650). 3 of them have funded it in more than one year.
- How many funders does HEREDITARY NEUROLOGICAL DISEASE CENTER have?
- IRS filings report 5 organizations giving $115,688 in grants to HEREDITARY NEUROLOGICAL DISEASE CENTER, 3 of which have funded it in more than one year.
- Who is the largest funder of HEREDITARY NEUROLOGICAL DISEASE CENTER?
- RONALD AND PAT MCCLAIN GOOD SAMARITAN TR is the largest funder on record, with $93,650 in grants. The full list of funders is on this page.
- How can an organization like HEREDITARY NEUROLOGICAL DISEASE CENTER find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Kansas. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
Play a game about who funds Hereditary Neurological Disease Center →
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2017–2025), and the filings of 5 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing