New Jersey · Nonprofit
NEW JERSEY CENTER FOR TOURETTE SYNDROME AND ASSOCIATED DISORDERS
NEW JERSEY CENTER FOR TOURETTE SYNDROME AND ASSOCIATED DISORDERS (New Jersey) receives grants from 12 organizations whose IRS filings report $99,034 to it, the largest being AMERICAN ONLINE GIVING FOUNDATION INC ($22,233). 3 of them have funded it in more than one year, and 57% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- Revenue FY2025
- $1.4M
- Funders on record
- 12
- Grants received
- $99k
- Net assets
- $1.5M
What New Jersey Center for Tourette Syndrome and Associated Disorders does
Mission
Mission statement to ensure children and adults with tourette syndrome are empowered and accepted through education, advocacy and research. Vision statement a community in which those with ts and associated disorders are understood and empowered. The vision statement makes a commitment to the future where ts will no longer be misunderstood and unrecognized as a condition that currently affects one million people in the united states. Values f - forward thinking - innovative approach to managing all areas of the business. A - accepting - creating a community where people with ts are accepted. I - inspiring - empowering those with ts to self-advocate. T - transformative - changing the lives of those affected by the disorder. H - holistic - looking behind the ts and seeing the whole person.
As stated on its FY2025 Form 990.
Program
The new jersey center for tourette syndrome (njcts) is the state's only organization exclusively dedicated to serving individuals with tourette syndrome (ts), a neurological disorder characterized by involuntary movements and vocal tics. The cdc estimates that 1 in 50 school-aged children lives with ts or a persistent tic disorder. Njcts's mission is to empower individuals with ts and associated disorders while fostering a culture of acceptance and understanding. We fulfill this mission through a comprehensive suite of programs, including camp fantastic, the tim howard leadership academy, physician referrals, school in-service trainings, medical grand rounds, teen programs, the rutgers ts clinic, and monthly webinars, ensuring meaningful support across all stages of life.
$826,143 spentof which $100,894 as grants100% of program spending
The program described on its FY2024 Form 990. Program spending in total: $826,143.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2024 to 2025, from $1.4M to $1.7M (+23%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2017 66% · 2018 73% · 2019 78% · 2020 81% · 2021 85% · 2022 82% · 2023 75% · 2024 76% · 2025 62%. Grants only. Government contracts and fees sit inside program revenue.
93% of NEW JERSEY CENTER FOR TOURETTE SYNDROME AND ASSOCIATED DISORDERS’s revenue is contributions — more reliant on donations than three-quarters of its peers (51% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 3 of the last 9 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Who funds it, year by year
2020 → 2023: the base broadened from 2 funders to 4 funders, grant income rose $3k → $10k.
5 of 12 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 57% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of NEW JERSEY CENTER FOR TOURETTE SYNDROME AND ASSOCIATED DISORDERS’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
NEW JERSEY CENTER FOR TOURETTE SYNDROME AND ASSOCIATED DISORDERS has a broad base — no single funder exceeds 22% of grant income, and it takes 3 funders to reach half.
the vertical line marks half of all grant income — 3 funders to its left
90% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund NEW JERSEY CENTER FOR TOURETTE SYNDROME AND ASSOCIATED DISORDERS.
Largest funder’s share by year: 2020 95% · 2021 53% · 2022 51% · 2023 81% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
25% of NEW JERSEY CENTER FOR TOURETTE SYNDROME AND ASSOCIATED DISORDERS's funders are still giving 2 years after their first grant; 25% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
57% of NEW JERSEY CENTER FOR TOURETTE SYNDROME AND ASSOCIATED DISORDERS's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $42k that is directly attributable, 64% of it comes from New Jersey funders.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $57k arriving through sponsors registered in 5 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
NEW JERSEY CENTER FOR TOURETTE SYNDROME AND ASSOCIATED DISORDERS holds deeper cash reserves than three-quarters of the 4,665 health nonprofits its size.
this organization peer median middle 50% of peers· 4,665 health nonprofits $1M–$10M, FY2025
Organizations like NEW JERSEY CENTER FOR TOURETTE SYNDROME AND ASSOCIATED DISORDERS
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In New Jersey
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
69% of spending goes to programs.
Governance
Public support
97%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 1 state
Screen this organization
A dated, signed PDF of the compliance screen for NEW JERSEY CENTER FOR TOURETTE SYNDROME AND ASSOCIATED DISORDERS: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds NEW JERSEY CENTER FOR TOURETTE SYNDROME AND ASSOCIATED DISORDERS?
- NEW JERSEY CENTER FOR TOURETTE SYNDROME AND ASSOCIATED DISORDERS (New Jersey) receives grants from 12 organizations whose IRS filings report $99,034 to it, the largest being AMERICAN ONLINE GIVING FOUNDATION INC ($22,233). 3 of them have funded it in more than one year, and 57% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- How many funders does NEW JERSEY CENTER FOR TOURETTE SYNDROME AND ASSOCIATED DISORDERS have?
- IRS filings report 12 organizations giving $99,034 in grants to NEW JERSEY CENTER FOR TOURETTE SYNDROME AND ASSOCIATED DISORDERS, 3 of which have funded it in more than one year.
- Who is the largest funder of NEW JERSEY CENTER FOR TOURETTE SYNDROME AND ASSOCIATED DISORDERS?
- AMERICAN ONLINE GIVING FOUNDATION INC is the largest funder on record, with $22,233 in grants. The full list of funders is on this page.
- How can an organization like NEW JERSEY CENTER FOR TOURETTE SYNDROME AND ASSOCIATED DISORDERS find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in New Jersey. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2017–2025), and the filings of 12 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing