Colorado · Nonprofit
MOVEMENT DISORDERS FOUNDATION
MOVEMENT DISORDERS FOUNDATION (Colorado) receives grants from 6 organizations whose IRS filings report $871,048 to it, the largest being THE CHARLES AND MARY HEIDER FAMILY FOUNDATION ($400,000). 4 of them have funded it in more than one year.
- Revenue FY2025
- $256k
- Funders on record
- 6
- Grants received
- $871k
- Net assets
- $596k
What Movement Disorders Foundation does
Mission
We accelerate breakthroughs in Parkinson's disease, Huntington's disease, dystonia, essential tremor and related movement disorders by funding bold, cutting edge research; empowering scientists to pursue innovative ideas that translate laboratory discoveries into life-extending and life-enriching treatments and therapies; fostering collaboration across the global research community; and bridging the gap between scientists and society by mobilizing public engagement in movement disorders research.
As stated on its FY2025 Form 990.
Programs
In 2025, the Movement Disorders Foundation (MDF) Board of Directors provided ongoing oversight and strategic development of the YOUNG INVESTIGATOR PILOT GRANT (YIPG) program, a cornerstone of MDF's research mission. The Board focused on strengthening scientific review, enhancing accountability for funded research, refining program scope, and positioning the program for long-term growth and donor engagement. Board members reviewed progress reports from active grantees, applying qualitative and quantitative criteria. Funding decisions were contingent in some cases on clarification, revised reporting, or adjusted timelines, balancing scientific accountability with support for early-career investigators. By year-end, all 2024 awardees had received full $50,000 grants, phased according to demonstrated progress. The Board also developed draft criteria for second-year funding, considering progress, likelihood of external support, adherence to acknowledgment requirements, and alignment with MDF research priorities. Beyond grant administration, the Board emphasized donor-facing strategies, including framing YIPGs as catalytic seed investments, exploring flexible funding models, and…
$200,000 spentof which $175,000 as grants$200,000 earned by the program76% of program spendingIn 2025, the Movement Disorders Foundation (MDF) and Rocky Mountain Movement Disorders Center (RMMDC) maintained operations of the HUNTINGTON'S DISEASE SOCIETY OF AMERICA (HDSA) CENTER OF EXCELLENCE (COE) program while navigating leadership transitions, funding adjustments, and evolving program requirements. Early in the year, RMMDC advanced its leadership transition from Dr. Rajeev Kumar to Dr. Meagen Salinas, who formally assumed COE directorship in April. In response to a nationwide HDSA funding reduction of approximately 15%, Dr. Salinas presented a revised clinic structure to preserve required services while managing costs. By June, RMMDC delivered twelve clinics, including ten fully compliant multidisciplinary sessions and two modified-service clinics, ensuring continuity of care and compliance with HDSA standards. MDF supported the Annual Rocky Mountain Huntington's Disease Family Education Day on October 18 at the CU Anschutz Medical Campus and facilitated a November 1 rebroadcast to extend outreach. In November, HDSA maintained funding for an additional six months and indicated potential structural changes to its COE network. The Board recognized that program scale and…
$36,788 spent$36,500 earned by the program14% of program spendingIn 2025, the Movement Disorders Foundation (MDF) advanced its mission by modernizing communications and digital infrastructure. The weekly electronic newsletter was rebranded as MOVEMENT DISORDERS RESEARCH NEWS, emphasizing its role as a nationally relevant, research-focused publication supporting innovative, disease-modifying studies. Despite a net loss of 252 subscribers, engagement remained strong, with a 46% open rate and stable click-through activity. Editorial enhancements expanded coverage of global research developments, emerging therapies, and scientific advances, providing readers with accessible, in-depth content. MDF also initiated sponsorship planning and conducted outreach through clinical centers, professional networks, and conferences, increasing visibility and strengthening donor messaging. MDF redesigned its website to prioritize donor engagement, simplify navigation, and provide clear access to research funding opportunities. Integration with the Colorado Gives platform streamlined online giving and reinforced transparency regarding impact. Strategic planning included exploring digital marketing and AI tools to optimize outreach, engagement, and fundraising.…
$25,000 spent$25,000 earned by the program10% of program spendingOther program services, not described on the e-filed return.
$0 spent0% of program spending
The 4 programs described on its FY2025 Form 990, listed largest first by expense. Program spending in total: $261,788.
The organization over time
Each line starts at 100 in 2018, so what you read is the shape rather than the size: 150 means half as much again as 2018, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2019 to 2020, from $167k to $664k (+298%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
86% of MOVEMENT DISORDERS FOUNDATION’s revenue is contributions — more donation-reliant than the typical peer (82% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 4 of the last 8 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Chief executive
Eugene H Sobczak
Executive Director
As listed on its FY2025 Form 990.
Who funds it, year by year
2019 → 2023: the base broadened from 2 funders to 4 funders, grant income rose $54k → $93k.
4 of 6 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 23% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of MOVEMENT DISORDERS FOUNDATION’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
MOVEMENT DISORDERS FOUNDATION leans on a few funders — its largest provides 46% of grant income and the top three 90%; half comes from just 2 funders.
the vertical line marks half of all grant income — 2 funders to its left
54% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund MOVEMENT DISORDERS FOUNDATION.
Largest funder’s share by year: 2019 65% · 2020 50% · 2021 83% · 2022 58% · 2023 45% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Where its funders are
MOVEMENT DISORDERS FOUNDATION draws 100% of its grant income from funders outside Colorado, across 2 states in all.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $201k arriving through sponsors registered in 4 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
MOVEMENT DISORDERS FOUNDATION has grown faster than half of the 7,883 health nonprofits its size.
this organization peer median middle 50% of peers· 7,883 health nonprofits $100k–$1M, FY2025
Organizations like MOVEMENT DISORDERS FOUNDATION
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Colorado
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
94% of spending goes to programs.
Governance
Public support
89%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 1 state
Screen this organization
A dated, signed PDF of the compliance screen for MOVEMENT DISORDERS FOUNDATION: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds MOVEMENT DISORDERS FOUNDATION?
- MOVEMENT DISORDERS FOUNDATION (Colorado) receives grants from 6 organizations whose IRS filings report $871,048 to it, the largest being THE CHARLES AND MARY HEIDER FAMILY FOUNDATION ($400,000). 4 of them have funded it in more than one year.
- How many funders does MOVEMENT DISORDERS FOUNDATION have?
- IRS filings report 6 organizations giving $871,048 in grants to MOVEMENT DISORDERS FOUNDATION, 4 of which have funded it in more than one year.
- Who is the largest funder of MOVEMENT DISORDERS FOUNDATION?
- THE CHARLES AND MARY HEIDER FAMILY FOUNDATION is the largest funder on record, with $400,000 in grants. The full list of funders is on this page.
- How can an organization like MOVEMENT DISORDERS FOUNDATION find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Colorado. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2018–2025), and the filings of 6 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing