How much does Huntington's Disease Society of America Inc give?

Huntington's Disease Society of America Inc reported 65 itemized grants totaling $2,070,500, out of $2,298,001 in total grant expense reported on the return in its FY2025 IRS filing. It funded between 48 and 62 organizations a year over FY2018 to FY2024.

What does Huntington's Disease Society of America Inc fund?

By grant dollars over FY2017 to FY2025, its largest causes are Health (59%), Education (39%), Science & Tech (1%).

Who are Huntington's Disease Society of America Inc's largest grantees?

By total granted over FY2017 to FY2025: Regents of the University of California at San Diego ($877k), Regents of the University of California at Irvine ($803k), Mass General Brigham Incorporated ($706k).

Does Huntington's Disease Society of America Inc fund new organizations?

In FY2024, 5% of the organizations it funded were first-time grantees.

Which funders back the same organizations as Huntington's Disease Society of America Inc?

Its strongest co-funders, measured against what their size predicts, include American Cancer Society Inc, Muscular Dystrophy Association Inc, American Heart Association Inc.

Where is Huntington's Disease Society of America Inc based?

Huntington's Disease Society of America Inc is based in NY.

Foundation Dossiers Mostly funded, not a grantmaker: see who funds it →

New York · Public charity

Huntington's Disease Society of America Inc

To improve the lives of everyone impacted by huntington's disease by providing support, driving advocacy, and accelerating research.

$2.3M
Granted FY2025(still arriving): 65
Itemized grants FY2025: 62
Organizations funded FY2024: 5%
First-time grantees FY2024

Read the full brief

Itemized, FY2025: $2.1M; The rest is grants the schedule does not break out
Median grant, FY2025: $28,000
Largest grant, FY2025: $100,000
Organizations funded a year: 48 to 62; FY2018 to FY2024
States reached, FY2025: 37
Total assets, FY2025: $18M

How open it is to new grantees

In FY2024, 5% of the organizations Huntington's Disease Society of America Inc funded were first-time grantees, receiving 8% of its grant dollars.

New vs renewed · share of each year

In FY2024, 92% of grant dollars renewed an existing relationship; $232k went to new ones.

RenewedFirst-time

Where new relationships form · theme of each grantee’s first grant

HealthEducationScience & TechMembership BenefitArts & CultureOther

How this is measured

First-time means a grantee’s first year in the filing window; renewed means funded in an earlier year too. The renewed share climbs naturally as a portfolio matures, so the signal is a year that bucks it (a wave of new grantees). The earliest year is left-censored: relationships that predate the data read as new. Theme is the grantee’s IRS cause.

The numbers by year

Fiscal year	Organizations funded	To those organizations	First-time grantees
FY2025still arriving	61	$2.0M	2%
FY2024	62	$2.9M	5%
FY2023	61	$2.9M	3%
FY2022	59	$2.3M	5%
FY2021	56	$2.0M	16%
FY2020	55	$2.0M	24%
FY2019	48	$1.6M	15%
FY2018	49	$1.6M	35%

100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2025.

Health$12MEducation$7.8MScience & Tech$240kArts & Culture$160kCommunity Improvement$23k

Where its grants go

Grant dollars by states, across the years we hold.

Which US states its grants reach

Top grantees

Largest recipients by total granted, FY2017 to FY2025, and the share of each one’s budget the grants supplied at peak.

Grantee	Total granted	Years	Share of their budget
Regents of the University of California at San Diego	$877,117	8	n/a
Regents of the University of California at Irvine	$803,250	7	n/a
Mass General Brigham Incorporated	$706,111	7	n/a
University of Texas Health Science Center Houston	$659,157	9	n/a
University of California Davis	$618,911	9	n/a
Regents Univ of California	$602,848	8	n/a
Vanderbilt University Medical Center	$567,999	9	0%
Rush University Medical Center	$547,575	9	0%
University of Washington	$498,668	6	n/a
University of Massachusetts	$482,000	6	n/a

Show all 98 grantees

All grantees of Huntington's Disease Society of America Inc by total granted
Grantee	Total granted	Years	Share of their budget
Regents of the University of California at San Diego	$877,117	8	n/a
Regents of the University of California at Irvine	$803,250	7	n/a
Mass General Brigham Incorporated	$706,111	7	n/a
University of Texas Health Science Center Houston	$659,157	9	n/a
University of California Davis	$618,911	9	n/a
Regents Univ of California	$602,848	8	n/a
Vanderbilt University Medical Center	$567,999	9	0%
Rush University Medical Center	$547,575	9	0%
University of Washington	$498,668	6	n/a
University of Massachusetts	$482,000	6	n/a
Beth Israel Deaconess Medical Center Inc	$464,688	9	0%
Rector & Visitors of the University of Virginia	$398,468	9	n/a
Northwestern University	$383,650	9	0%
Washington University	$355,250	9	0%
Johns Hopkins University	$319,850	9	0%
Upmc	$318,842	9	n/a
State University of Iowa	$296,224	9	n/a
University of Miami	$294,500	7	0%
Hennepin Healthcare Research Institute	$290,515	9	0%
Ohio State University Foundation	$287,935	6	0%
Duke University	$273,513	9	0%
University of Central Florida	$273,250	5	n/a
Movement Disorders Foundation	$269,900	7	38%
University of Rochester	$269,500	6	0%
University of Alabama at Birmingham	$261,851	6	n/a
University of California San Francisco	$246,000	9	n/a
University of Utah	$246,000	9	n/a
Emory University	$245,500	9	0%
Albany Med Health System	$245,160	7	n/a
The Salk Institute for Biological Studies	$240,000	1	0%
Georgetown University	$227,000	7	0%
University of Florida	$218,250	9	n/a
Indiana University School of Medicine	$210,446	8	n/a
University of South Florida	$210,203	5	n/a
Regents of the University of Colorado	$204,250	8	n/a
Columbia University Health Care Inc	$203,940	3	0%
Ochsner Clinic Foundation	$200,455	9	0%
Vcuvcu Health Campus	$196,750	9	n/a
New York University School of Medicine	$180,000	1	n/a
Uc Healthcare System	$166,250	5	0%
Washington University Student Media Inc	$160,490	3	17%
The Ohio State University	$150,644	4	n/a
California Institute of Technology	$150,000	1	0%
Mass General Brigham Incorporated	$150,000	1	n/a
Dignity Health	$147,000	5	0%
The Cleveland Clinic Educational Foundation	$147,000	5	n/a
University of Louisville Research Foundation	$144,250	5	0%
The University of Vermont Medical Center	$142,031	7	0%
University Neurology Inc	$137,000	7	0%
Research Foundation of the City University of New York	$136,830	1	0%
University of Alabama Health Services Foundation PC	$129,707	3	0%
Oregon Health & Science University	$129,083	9	n/a
University of Rochester	$122,800	3	n/a
University of South Florida Foundation Inc	$120,900	4	0%
The Scripps Research Institute	$120,000	1	0%
Sanford	$118,087	7	n/a
Board of Regents of the University of Nebraska	$114,676	6	n/a
Stanford Health Care	$111,923	6	0%
University of Wisconsin Madison	$111,050	6	n/a
Rowan University	$110,090	6	n/a
University of Miss Medical Center	$103,719	6	n/a
University Health System Inc	$101,000	8	0%
Regents of the University of Michigan	$100,000	1	n/a
The Research Foundation for The State University of New York	$99,053	6	0%
Phi Chi Medical Fraternity Inc	$97,750	5	n/a
University of Arkansas for Medical Sciences	$92,844	5	n/a
The Kansas University Endowment Association	$89,619	5	0%
Henry Ford Health System	$82,000	5	0%
Erlanger Medical Center	$77,000	6	n/a
Ny Presbyterian Hospital Columbia University Medical Ctrnysna Retiree Medic Al Plan Trust	$75,000	1	8%
Prisma Health-Midlands	$73,000	3	0%
Colorado Neurological Institute	$70,000	2	5%
Albany Med Health System	$67,000	2	0%
USC School of Medicine Greenville	$65,117	4	n/a
The Cleveland Clinic Foundation	$64,600	3	0%
University of Louisville	$54,750	4	n/a
University of South Alabama	$54,088	4	n/a
The University of Vermont Health Network	$49,000	2	0%
University of Connecticut Health Center	$46,250	2	n/a
The Nebraska Medical Center	$45,525	3	0%
Regents of the University of California	$45,000	1	n/a
Selkirk Neurology Pllc	$39,500	4	n/a
University of Wisconsin Medical Alumni Association Inc	$30,450	2	2%
Wesley Neurology Clinic PC	$30,107	2	n/a
AdventHealth Foundation Inc	$29,500	4	0%
Mary Hitchcock Memorial Hospital	$29,500	3	0%
Erlanger Foundation	$26,000	2	0%
The Medstar-Georgetown Medical Center Inc	$25,000	1	0%
The University of Tennessee	$23,000	1	n/a
University of California Irvine Foundation	$17,500	1	0%
University of Mississippi Medical Center Research Development Foundation	$16,800	2	4%
University of Wisconsin	$15,000	1	n/a
OSF Multi-Specialty Group	$14,375	2	0%
University of South Alabama Foundation	$13,900	2	0%
John P McGovern Museum of Health & Medical Science	$12,500	1	0%
University of Kansas Medical Center Research Institute	$9,000	1	0%
University of Minnesota	$7,481	1	n/a
Veracity Neuroscience LLC	$5,923	1	n/a

Huntington's Disease Society of America Inc supplied at least a quarter of the budget for 1 of its grantees at some point. The chart plots its 51 largest grantees; load-bearing ones sit top left.

Tap a dot to name the grantee.

How this is measured

Share of budget is the funder’s grant in a year over the grantee’s total revenue that year, at its highest across the years we hold; revenue is from all sources. Only grantees confirmed against their own filings, whose grants do not exceed their revenue, are plotted: the largest 51.

Nonprofits that may fit its grantmaking

Co-funders

Grantmakers whose grantees overlap with this funder’s far more than size alone predicts. Closer means stronger alignment; arcs show where they also fund each other. Here they form a tightly interlocked group: most of these funders back each other's grantees too.

American Cancer Society IncGA35.1× affinity16 shared granteesties to 11 of 11Hover any node to trace its alignments.Compare side by side →

Open a dossier: American Cancer Society Inc · Muscular Dystrophy Association Inc · American Heart Association Inc · Cystic Fibrosis Foundation · Parkinson's Foundation Inc · The Children's Hospital of Philadelphia · Vanderbilt University Medical Center · Mayo Clinic · The Trustees of Columbia University in the City of New York · The Children's Oncology Group Foundation Inc · Amyotrophic Lateral Sclerosis Assn · Washington University

How this is measured

Affinity is a Gamma-Poisson posterior co-funding rate, re-centered on the typical rate, so thin evidence shrinks toward no signal. Overlap is association, not proof of shared intent.

Compare Huntington's Disease Society of America Inc with peer funders

About Huntington's Disease Society of America Inc

How much does Huntington's Disease Society of America Inc give?: Huntington's Disease Society of America Inc reported 65 itemized grants totaling $2,070,500, out of $2,298,001 in total grant expense reported on the return in its FY2025 IRS filing. It funded between 48 and 62 organizations a year over FY2018 to FY2024.
What does Huntington's Disease Society of America Inc fund?: By grant dollars over FY2017 to FY2025, its largest causes are Health (59%), Education (39%), Science & Tech (1%).
Who are Huntington's Disease Society of America Inc's largest grantees?: By total granted over FY2017 to FY2025: Regents of the University of California at San Diego ($877k), Regents of the University of California at Irvine ($803k), Mass General Brigham Incorporated ($706k).
Does Huntington's Disease Society of America Inc fund new organizations?: In FY2024, 5% of the organizations it funded were first-time grantees.
Which funders back the same organizations as Huntington's Disease Society of America Inc?: Its strongest co-funders, measured against what their size predicts, include American Cancer Society Inc, Muscular Dystrophy Association Inc, American Heart Association Inc.
Where is Huntington's Disease Society of America Inc based?: Huntington's Disease Society of America Inc is based in NY.