Idaho · Nonprofit
Hope for Hypothalamic Hamartomas
Hope for Hypothalamic Hamartomas (Idaho) receives grants from 7 organizations whose IRS filings report $231,192 to it, the largest being GREATER HOUSTON COMMUNITY FOUNDATION ($70,000). 4 of them have funded it in more than one year, and 97% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- Revenue FY2025
- $86k
- Funders on record
- 7
- Grants received
- $231k
- Net assets
- $409k
What Hope for Hypothalamic Hamartomas does
Mission
Primary Exempt Purpose - To provide information, suport and community to Hypothalamic Hamartomas (HH) patients, caregivers and healthcare providers. We promote research into early detection, improved treatments, living with HH as a complex medical syndrome, and cure. Part III Line 28 Awareness continued - Increasing knowledge of HH worldwide by advocating at various medical conferences around the globe, and utilizing social media platforms to reach families directly impacted by the condition. Part III Line 29 - Research continued - We facilitate and seed research collaborations, hosting International Symposiums every 3 years to bring the medical community together to discuss the advances and challenges of this complex condition and drive research forward. Part III Line 30 - Support continued - the diagnosis. We offer individual request for support, provide information to families as they progress through their HH journey, empower patients to seek better treatments, and provide opportunities to meet / engage with others through social media platforms as well as live in-person events.
As stated on its FY2025 Form 990-EZ.
Programs
Awareness - Hope for HH is dedicated to raising awareness of Hypothalamic Hamartomas Syndrome by building partnerships with other strategic organizations (continued on Sch O)
$7,820 spent38% of program spendingResearch - Hope for HH funds cutting edge research to advance the understanding of HH and improve quality of life for those impacted by the syndrome. (continued on Sch O)
$9,653 spent47% of program spendingSupport - Hope for HH is dedicated to supporting those diagnosed with Hypothalamic Hamartomas Syndrome as well as those caring for someone with the (continued on Sch O)
$3,213 spent16% of program spending
The 3 programs described on its FY2024 Form 990-EZ. Program spending in total: $20,686.
The organization over time
Each line starts at 100 in 2019, so what you read is the shape rather than the size: 150 means half as much again as 2019, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2021 to 2022, from $294k to $355k (+21%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
100% of Hope for Hypothalamic Hamartomas’s revenue is contributions — about as donation-reliant as the typical peer (100% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 2 of the last 7 reported years ran a deficit.
Who funds it, year by year
2017 → 2023: the base broadened from 1 funder to 3 funders, grant income rose $20k → $32k.
6 of 7 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 97% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of Hope for Hypothalamic Hamartomas’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
Hope for Hypothalamic Hamartomas leans on a few funders — its largest provides 30% of grant income and the top three 77%; half comes from just 2 funders.
the vertical line marks half of all grant income — 2 funders to its left
100% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund Hope for Hypothalamic Hamartomas.
Largest funder’s share by year: 2017 100% · 2018 100% · 2019 100% · 2020 61% · 2021 77% · 2022 66% · 2023 77% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Where its funders are
97% of Hope for Hypothalamic Hamartomas's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $6k that is directly attributable, 100% of it comes from funders outside Idaho, across 1 state.
Funder states come from each funder’s own filing. $225k arriving through sponsors registered in 5 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
Hope for Hypothalamic Hamartomas runs a healthier operating margin than three-quarters of the 9,787 human services nonprofits its size.
this organization peer median middle 50% of peers· 9,787 human services nonprofits under $100k, FY2025
Organizations like Hope for Hypothalamic Hamartomas
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Idaho
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Public support
88%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 5 states
Screen this organization
A dated, signed PDF of the compliance screen for Hope for Hypothalamic Hamartomas: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds Hope for Hypothalamic Hamartomas?
- Hope for Hypothalamic Hamartomas (Idaho) receives grants from 7 organizations whose IRS filings report $231,192 to it, the largest being GREATER HOUSTON COMMUNITY FOUNDATION ($70,000). 4 of them have funded it in more than one year, and 97% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- How many funders does Hope for Hypothalamic Hamartomas have?
- IRS filings report 7 organizations giving $231,192 in grants to Hope for Hypothalamic Hamartomas, 4 of which have funded it in more than one year.
- Who is the largest funder of Hope for Hypothalamic Hamartomas?
- GREATER HOUSTON COMMUNITY FOUNDATION is the largest funder on record, with $70,000 in grants. The full list of funders is on this page.
- How can an organization like Hope for Hypothalamic Hamartomas find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Idaho. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
Play a game about who funds Hope for Hypothalamic Hamartomas →
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2019–2025), and the filings of 7 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing