Michigan · Nonprofit
Hope for HIE
Hope for HIE (Michigan) receives grants from 5 organizations whose IRS filings report $68,914 to it, the largest being PAYPAL CHARITABLE GIVING FUND ($37,788). 3 of them have funded it in more than one year, and 95% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- Revenue FY2024
- $395k
- Funders on record
- 5
- Grants received
- $69k
- Net assets
- $236k
What Hope for HIE does
Mission
Hope for HIEs mission is to improve the quality of life for children and families affected by neonatal and pediatric-acquired hypoxic ischemic encephalopathy HIE through awareness advocacy education research and support.
As stated on its FY2024 Form 990.
Programs
Awareness Advocacy and Education - To raise awareness we amplify our families voices and experiences to increase recognition and understanding of HIE across all of its causes impacts and outcomes. We lead global advocacy efforts and empower families to get involved to move forward the unmet needs of the global HIE community. To educate we build heal and scientific literacy through educational materials and resources to empower HIE families and the broader HIE community.
$77,211 spent23% of program spendingResearch - We advance and partner in research with academia and industry to the incidence and impact of HIE.
$2,977 spent1% of program spendingWe offer comprehensive support through credentialed support staff peer connections and programs and services ensuring no family faces HIE alone. Professional support is available from a certified social worker and a certified child life specialist and grief counselor. Peer support consists of our Peer Support Mentor Program HIE Hospital Ambassadors our SOAR Program for children ages 7 - 17 living with HIE our SUPER SIBS program plus in-person and online meet-ups and events.
$90,363 spent27% of program spendingConsists of employee compensation and related expenses to support Hope for HIEs program services.
$163,068 spent49% of program spending
The 4 programs described on its FY2024 Form 990, listed largest first by expense. Program spending in total: $333,619.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2019 to 2020, from $158k to $254k (+61%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
99% of Hope for HIE’s revenue is contributions — more donation-reliant than the typical peer (82% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 2 of the last 4 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Chief executive
Betsy Pilon
Executive Director
Board chair
Amy Cutler
Director - Professional Outreach Chair
As listed on its FY2024 Form 990.
Who funds it, year by year
2021 → 2023: the base broadened from 1 funder to 3 funders, grant income rose $3k → $10k.
3 of 5 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 95% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of Hope for HIE’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
Hope for HIE leans on a few funders — its largest provides 55% of grant income and the top three 95%; half comes from just 1 funder.
the vertical line marks half of all grant income — 1 funder to its left
95% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund Hope for HIE.
Largest funder’s share by year: 2021 100% · 2023 94% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Where its funders are
95% of Hope for HIE's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $3k that is directly attributable, 100% of it comes from funders outside Michigan, across 2 states.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $66k arriving through sponsors registered in 3 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
Hope for HIE has grown faster than three-quarters of the 13,754 health nonprofits its size.
this organization peer median middle 50% of peers· 13,754 health nonprofits $100k–$1M, FY2024
Organizations like Hope for HIE
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Michigan
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
84% of spending goes to programs.
Governance
Public support
100%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 1 state
Screen this organization
A dated, signed PDF of the compliance screen for Hope for HIE: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds Hope for HIE?
- Hope for HIE (Michigan) receives grants from 5 organizations whose IRS filings report $68,914 to it, the largest being PAYPAL CHARITABLE GIVING FUND ($37,788). 3 of them have funded it in more than one year, and 95% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- How many funders does Hope for HIE have?
- IRS filings report 5 organizations giving $68,914 in grants to Hope for HIE, 3 of which have funded it in more than one year.
- Who is the largest funder of Hope for HIE?
- PAYPAL CHARITABLE GIVING FUND is the largest funder on record, with $37,788 in grants. The full list of funders is on this page.
- How can an organization like Hope for HIE find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Michigan. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
Play a game about who funds Hope for HIE →
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2024 (financials across 2017–2024), and the filings of 5 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing