Florida · Nonprofit
JOUBERT SYNDROME AND RELATED DISORDERS FOUNDATION
JOUBERT SYNDROME AND RELATED DISORDERS FOUNDATION (Florida) receives grants from 7 organizations whose IRS filings report $61,160 to it, the largest being Network for Good ($21,387). 3 of them have funded it in more than one year.
Against its field
JOUBERT SYNDROME AND RELATED DISORDERS FOUNDATION runs a healthier operating margin than three-quarters of the 7,170 philanthropy nonprofits its size.
this organization peer median middle 50% of peers· 7,170 philanthropy nonprofits under $100k, FY2024
Three funders worth looking at
Grantmakers with no record of funding this organization, ranked by how strongly the co-funder graph and the mission embeddings agree. The evidence is in section 03.
- Daisy Marquis Jones Foundationshared funders
- Global Genesportfolio match
- The Joan and George Kessel Foundationportfolio match
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
99% of JOUBERT SYNDROME AND RELATED DISORDERS FOUNDATION’s revenue is contributions — more donation-reliant than the typical peer (95% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 1 of the last 5 reported years ran a deficit.
reserve
Who funds it, year by year
2017 → 2023: the base held at 2 funders, grant income fell $12k → $2k.
2 of 7 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 43% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of JOUBERT SYNDROME AND RELATED DISORDERS FOUNDATION’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
JOUBERT SYNDROME AND RELATED DISORDERS FOUNDATION leans on a few funders — its largest provides 35% of grant income and the top three 88%; half comes from just 2 funders.
the vertical line marks half of all grant income — 2 funders to its left
43% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund JOUBERT SYNDROME AND RELATED DISORDERS FOUNDATION.
Largest funder’s share by year: 2017 83% · 2018 85% · 2019 69% · 2020 58% · 2021 59% · 2022 100% · 2023 65% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Where its funders are
JOUBERT SYNDROME AND RELATED DISORDERS FOUNDATION draws 100% of its grant income from funders outside Florida, across 4 states in all.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $26k arriving through sponsors registered in 2 statesis excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Funders to approach
Grantmakers that don’t fund you yet, surfaced two ways: they back organizations that share your funders, or their grantees resemble your mission. The ones both signals agree on come first.
- Daisy Marquis Jones Foundationshared fundersNY · backs 58 organizations that share your funders
- Global Genesportfolio matchits grantees resemble your mission
- The Joan and George Kessel Foundationportfolio matchits grantees resemble your mission
- Child Neurology Education and Research Foundationportfolio matchits grantees resemble your mission
- Diane and Brent Rosenthal Family Foundationportfolio matchits grantees resemble your mission
- My Child's Hand Foundation Trustportfolio matchits grantees resemble your mission
- Louis & Julie Bucksbaum Fam Foundationportfolio matchits grantees resemble your mission
- Grace Hospice Foundation Incportfolio matchits grantees resemble your mission
- Frank & Victoria Rich Family Foundationportfolio matchits grantees resemble your mission
- Samuel C Cantor Charitable Trustportfolio matchits grantees resemble your mission
- The J Rubin Family Foundationportfolio matchits grantees resemble your mission
- Bloomfield Senior Citizens Housing Felicity Towersportfolio matchits grantees resemble your mission
From the co-funder graph (funders backing at least two comparable organizations, shrunk for grantee count, donor-advised and mega-funds excluded) and the universe embeddings. A research starting point; overlap is association, not a guarantee of fit.
Organizations like JOUBERT SYNDROME AND RELATED DISORDERS FOUNDATION
Nonprofits whose mission and program text most resemble this one, by semantic similarity over the universe of US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Florida
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Public support
94%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Screen this organization
A dated, signed PDF of the compliance screen for JOUBERT SYNDROME AND RELATED DISORDERS FOUNDATION: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds JOUBERT SYNDROME AND RELATED DISORDERS FOUNDATION?
- JOUBERT SYNDROME AND RELATED DISORDERS FOUNDATION (Florida) receives grants from 7 organizations whose IRS filings report $61,160 to it, the largest being Network for Good ($21,387). 3 of them have funded it in more than one year.
- How many funders does JOUBERT SYNDROME AND RELATED DISORDERS FOUNDATION have?
- IRS filings report 7 organizations giving $61,160 in grants to JOUBERT SYNDROME AND RELATED DISORDERS FOUNDATION, 3 of which have funded it in more than one year.
- Who is the largest funder of JOUBERT SYNDROME AND RELATED DISORDERS FOUNDATION?
- Network for Good is the largest funder on record, with $21,387 in grants. The full list of funders is on this page.
- How can an organization like JOUBERT SYNDROME AND RELATED DISORDERS FOUNDATION find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Florida. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2024 (financials across 2017–2024), and the filings of 7funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported August 27, 2026. What this page cannot tell you · view filing