Ohio · Nonprofit
Empowering Epilepsy
Empowering Epilepsy (Ohio) receives grants from 24 organizations whose IRS filings report $380,726 to it, the largest being THE CHARLES L SHOR FOUNDATION INC ($131,625). 12 of them have funded it in more than one year.
- Revenue FY2024
- $269k
- Funders on record
- 24
- Grants received
- $381k
- Net assets
- $359k
What Empowering Epilepsy does
Mission
Empowering Epilepsy connects people with epilepsy to experts and peers for education, care, and friendship. We anchor a caring community that empowers our members and their loved ones to better understand and manage their treatment plan throughout their epilepsy journey.
As stated on its FY2024 Form 990.
Program
Founded in 2014, our goal is to advance health equity and quality of life for people with epilepsy through integrated services, peer support, education, and systematic innovation in epilepsy care, grounded in research and lived experience. All of Empowering Epilepsy's programs and services were created by people who have lived experience with epilepsy. 1 in 26 people will be diagnosed with epilepsy in their lifetime. The vast majority of those living with epilepsy feel isolated and alone. They have never met or talked with anyone else who also experiences epilepsy, and they find few resources and help outside of their neurologist or epileptologist's office. That's because people in the general community do not understand that there is so much more to epilepsy than just the seizures. Empowering Epilepsy helps people with epilepsy find proactive ways to lessen their seizures, meet others who are also living with epilepsy, listen to and speak with epilepsy experts, and discover resources to empower their lives. The organization was created by Leigh Goldie, M.Ed., who grew up with Focal Impaired Awareness Seizures, and lived for 14 years with Drug Resistant Epilepsy. She felt…
$275,068 spent$912 earned by the program100% of program spending
The program described on its FY2024 Form 990. Program spending in total: $275,068.
The organization over time
Each line starts at 100 in 2018, so what you read is the shape rather than the size: 150 means half as much again as 2018, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2020 to 2021, from $57k to $310k (+440%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
98% of Empowering Epilepsy’s revenue is contributions — more donation-reliant than the typical peer (83% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 2 of the last 7 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Who funds it, year by year
2017 → 2023: the base broadened from 3 funders to 13 funders, grant income rose $11k → $170k.
5 of 24 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 7% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of Empowering Epilepsy’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
Empowering Epilepsy leans on a few funders — its largest provides 35% of grant income and the top three 64%; half comes from just 2 funders.
the vertical line marks half of all grant income — 2 funders to its left
Largest funder’s share by year: 2017 89% · 2018 67% · 2019 56% · 2020 56% · 2021 39% · 2022 67% · 2023 77% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
40% of Empowering Epilepsy's funders are still giving 3 years after their first grant; 50% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
69% of Empowering Epilepsy's grant income comes from Ohio funders.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $26k arriving through sponsors registered in 5 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
Empowering Epilepsy has grown faster than three-quarters of the 13,769 health nonprofits its size.
this organization peer median middle 50% of peers· 13,769 health nonprofits $100k–$1M, FY2024
Organizations like Empowering Epilepsy
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Ohio
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
86% of spending goes to programs.
Governance
Public support
37%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 1 state
Screen this organization
A dated, signed PDF of the compliance screen for Empowering Epilepsy: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds Empowering Epilepsy?
- Empowering Epilepsy (Ohio) receives grants from 24 organizations whose IRS filings report $380,726 to it, the largest being THE CHARLES L SHOR FOUNDATION INC ($131,625). 12 of them have funded it in more than one year.
- How many funders does Empowering Epilepsy have?
- IRS filings report 24 organizations giving $380,726 in grants to Empowering Epilepsy, 12 of which have funded it in more than one year.
- Who is the largest funder of Empowering Epilepsy?
- THE CHARLES L SHOR FOUNDATION INC is the largest funder on record, with $131,625 in grants. The full list of funders is on this page.
- How can an organization like Empowering Epilepsy find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Ohio. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
Play a game about who funds Empowering Epilepsy →
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2024 (financials across 2018–2024), and the filings of 24 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 22, 2026. What this page cannot tell you · view filing