Ohio · Nonprofit
DOWN SYNDROME ASSOCIATION OF THE VALLEY
DOWN SYNDROME ASSOCIATION OF THE VALLEY (Ohio) receives grants from 17 organizations whose IRS filings report $312,431 to it, the largest being YOUNGSTOWN FDN GENERAL ($112,448). 8 of them have funded it in more than one year, and 55% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- Revenue FY2024
- $335k
- Funders on record
- 17
- Grants received
- $312k
- Net assets
- $1.1M
What Down Syndrome Association of the Valley does
Mission
To provide support, resources, advocacy, education and opportunity for those with down syndrome and their families. The association also represents the needs of people with down syndrome and their families to improve quality of life, preserve rights and advance the interest of people with down syndrome thereby enhancing their status as citizens and enabling maximum independence and participation in the community.
As stated on its FY2024 Form 990.
Programs
Providing informational classes, educational materials, learning activities, recreational activities and a study center for families of children with down syndrome. Providing support for the staffing, operation and maintenance of the center for success. The dsav center for success is a centralized facility which provides space for activities, resources, support and educational programs for individuals with down syndrome and their families in eastern ohio and western pennsylvania. The facility enables the dsav to provide up-to-date information, public awareness and outreach for families, community members, educators and health care professionals, while also providing support and information to new parents and expectant mothers who receive a pre-natal diagnosis of down syndrome.
$171,773 spent$133,387 earned by the program92% of program spendingGrants to cover the costs of medical expenses, educational classes and physical training needs. See schedule I for more infomration.
$8,980 spentof which $8,980 as grants5% of program spendingScholarships for individuals seeking higher education in a field complimentary to or mission.
$5,041 spentof which $5,041 as grants3% of program spending
The 3 programs described on its FY2024 Form 990, listed largest first by expense. Program spending in total: $185,794.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2022 to 2023, from $707k to $977k (+38%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
34% of DOWN SYNDROME ASSOCIATION OF THE VALLEY’s revenue is contributions — about as donation-reliant as the typical peer (83% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 1 of the last 8 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Who funds it, year by year
2017 → 2023: the base broadened from 1 funder to 10 funders, grant income rose $14k → $49k.
6 of 17 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 55% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of DOWN SYNDROME ASSOCIATION OF THE VALLEY’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
DOWN SYNDROME ASSOCIATION OF THE VALLEY leans on a few funders — its largest provides 36% of grant income and the top three 69%; half comes from just 2 funders.
the vertical line marks half of all grant income — 2 funders to its left
85% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund DOWN SYNDROME ASSOCIATION OF THE VALLEY.
Largest funder’s share by year: 2017 100% · 2018 99% · 2019 57% · 2020 52% · 2021 63% · 2022 33% · 2023 21% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
80% of DOWN SYNDROME ASSOCIATION OF THE VALLEY's funders are still giving 3 years after their first grant; 47% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
55% of DOWN SYNDROME ASSOCIATION OF THE VALLEY's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $140k that is directly attributable, 52% of it comes from funders outside Ohio, across 4 states.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $172k arriving through sponsors registered in 5 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
DOWN SYNDROME ASSOCIATION OF THE VALLEY runs a healthier operating margin than three-quarters of the 13,769 health nonprofits its size.
this organization peer median middle 50% of peers· 13,769 health nonprofits $100k–$1M, FY2024
Organizations like DOWN SYNDROME ASSOCIATION OF THE VALLEY
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Ohio
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
97% of spending goes to programs.
Governance
Public support
62%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 1 state
Screen this organization
A dated, signed PDF of the compliance screen for DOWN SYNDROME ASSOCIATION OF THE VALLEY: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds DOWN SYNDROME ASSOCIATION OF THE VALLEY?
- DOWN SYNDROME ASSOCIATION OF THE VALLEY (Ohio) receives grants from 17 organizations whose IRS filings report $312,431 to it, the largest being YOUNGSTOWN FDN GENERAL ($112,448). 8 of them have funded it in more than one year, and 55% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- How many funders does DOWN SYNDROME ASSOCIATION OF THE VALLEY have?
- IRS filings report 17 organizations giving $312,431 in grants to DOWN SYNDROME ASSOCIATION OF THE VALLEY, 8 of which have funded it in more than one year.
- Who is the largest funder of DOWN SYNDROME ASSOCIATION OF THE VALLEY?
- YOUNGSTOWN FDN GENERAL is the largest funder on record, with $112,448 in grants. The full list of funders is on this page.
- How can an organization like DOWN SYNDROME ASSOCIATION OF THE VALLEY find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Ohio. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
Play a game about who funds Down Syndrome Association of the Valley →
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2024 (financials across 2017–2024), and the filings of 17 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 22, 2026. What this page cannot tell you · view filing