Texas · Nonprofit
ANDREWS FIREFLY FUND
ANDREWS FIREFLY FUND (Texas) receives grants from 7 organizations whose IRS filings report $852,986 to it, the largest being Together Strong NPC Foundation ($800,001). 3 of them have funded it in more than one year.
- Revenue FY2024
- $649k
- Funders on record
- 7
- Grants received
- $853k
- Net assets
- $12k
What Andrews Firefly Fund does
Mission
To fund and support research and education to acclerate a cure for rare and fatal neurodegenerative genetic diseases that affect children.
As stated on its FY2024 Form 990.
Programs
Since 2017 firefly fund has been leading the npc nbs initiative with a vision that all newborns will be screened for npc, enabeling early diagnosis and intervention. The initiative is led by a broad stakeholder working group, chaired by drs. Elizabeth berry-kravis of rush and marc patterson of mayo clinic, which includes the npc community and industry stakeholders. Twenty nine (29) npc and nbs expert clinicians from around the us and canada make up the npc nbs clinical roundtable serving the initiative as advisors.
$470,576 spentof which $18,000 as grants80% of program spendingFirefly fund supports medical research that could provide therapeutics for the treatment of niemann pick type c disease.
$58,822 spent10% of program spendingWork with academic centers of excellence and patient advocacy organizations to remove barriers to care and access to therapies necessary for their loved ones with an npc diagnosis.
$58,822 spent10% of program spending
The 3 programs described on its FY2024 Form 990, listed largest first by expense. Program spending in total: $588,220.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2020 to 2021, from $261k to $466k (+78%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2017 0% · 2019 0% · 2020 0% · 2021 3%. Grants only. Government contracts and fees sit inside program revenue.
100% of ANDREWS FIREFLY FUND’s revenue is contributions — more reliant on donations than three-quarters of its peers (82% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 4 of the last 7 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Chief executive
Beryl Pam Andrews
Executive director
As listed on its FY2024 Form 990.
Who funds it, year by year
2017 → 2023: the base held at 1 funder, grant income fell $1k → $95.
5 of 7 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 6% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of ANDREWS FIREFLY FUND’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
ANDREWS FIREFLY FUND leans on a few funders — its largest provides 94% of grant income and the top three 99%; half comes from just 1 funder.
the vertical line marks half of all grant income — 1 funder to its left
Largest funder’s share by year: 2017 100% · 2018 52% · 2019 95% · 2020 100% · 2021 97% · 2022 100% · 2023 100% — broadly stable.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Where its funders are
ANDREWS FIREFLY FUND draws 100% of its grant income from funders outside Texas, across 2 states in all.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $52k arriving through sponsors registered in 4 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
ANDREWS FIREFLY FUND has grown faster than half of the 13,754 health nonprofits its size.
this organization peer median middle 50% of peers· 13,754 health nonprofits $100k–$1M, FY2024
Organizations like ANDREWS FIREFLY FUND
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Texas
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
80% of spending goes to programs.
Governance
Public support
67%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Screen this organization
A dated, signed PDF of the compliance screen for ANDREWS FIREFLY FUND: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds ANDREWS FIREFLY FUND?
- ANDREWS FIREFLY FUND (Texas) receives grants from 7 organizations whose IRS filings report $852,986 to it, the largest being Together Strong NPC Foundation ($800,001). 3 of them have funded it in more than one year.
- How many funders does ANDREWS FIREFLY FUND have?
- IRS filings report 7 organizations giving $852,986 in grants to ANDREWS FIREFLY FUND, 3 of which have funded it in more than one year.
- Who is the largest funder of ANDREWS FIREFLY FUND?
- Together Strong NPC Foundation is the largest funder on record, with $800,001 in grants. The full list of funders is on this page.
- How can an organization like ANDREWS FIREFLY FUND find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Texas. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2024 (financials across 2017–2024), and the filings of 7 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing