Skip to content

Colorado · Nonprofit

ALS NEVERSURRENDER FOUNDATION

ALS NEVERSURRENDER FOUNDATION (Colorado) receives grants from 3 organizations whose IRS filings report $315,153 to it, the largest being AMYOTROPHIC LATERAL SCLEROSIS ASSN ($300,000). 2 of them have funded it in more than one year.

Revenue FY2024
$1
Funders on record
3
Grants received
$315k
Net assets
$121k
2/3 repeat fundersgrants exceed reported revenue in one year
01What it does

What Als Neversurrender Foundation does

Mission

The ALS NeverSurrender Foundation primary exempt purpose is the development of the ALS iNVOLVE mobile app that brings patient monitoring to the hands of ALS patients using a mobile app and helps clinical teams get more frequent measurements outside of the regularly scheduled clinic visits.

As stated on its FY2024 Form 990-EZ.

Program

  1. Building out the ALS iNVOLVE and iKINETICS application and clinical trial web portal to prove efficiency of the app before submitting it to the FDA. Additionally working with our clinical trail site to develop protocol for the upcoming clinical study.

    $9,055 spent
    100% of program spending

The program described on its FY2024 Form 990-EZ. Program spending in total: $9,055.

02The organization over time

The organization over time

Each line starts at 100 in 2020, so what you read is the shape rather than the size: 150 means half as much again as 2020, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.

100 = 20202020 Revenue 100 ($121k) Expenses 100 ($127k) Net assets 100 ($7k)2021 Revenue 84 ($101k) Expenses 38 ($48k) Net assets 916 ($60k)2022 Revenue 43 ($52k) Expenses 13 ($16k) Net assets 1472 ($96k)2023 Revenue 42 ($50k) Expenses 12 ($16k) Net assets 1999 ($130k)2024 Revenue 0 ($1) Expenses 7 ($9k) Net assets 1860 ($121k)
20202021202220232024
Revenue (0)Expenses (7)Net assets (1860)Peer revenue range

Balance sheet

Total assets at each year end, in dollars. The largest one-year move in total assets was 2020 to 2021, from $7k to $60k (+816%).

$7k
$60k
$96k
$130k
$121k
20202021202220232024
Total assets

How it's funded, over time

Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.

2020
2021
2022
2023
2024
ContributionsProgram revenueInvestmentOther

100% of ALS NEVERSURRENDER FOUNDATION’s revenue is contributions — more reliant on donations than three-quarters of its peers (100% for the typical peer).

This organization
Typical peer · 12,214 orgs

Surplus & reserves

Operating surplus or deficit each year, and months of liquidity in hand. 2 of the last 5 reported years ran a deficit.

−$7k
’20
$53k
’21
$36k
’22
$34k
’23
−$9k
’24

Leadership and staff

Chief executive

Nicholas Friedman

CEO

As listed on its FY2024 Form 990-EZ.

03Who funds it

Who funds it, year by year

2020 → 2023: the base narrowed from 3 funders to 2 funders, grant income fell $115k → $50k.

Funder
'20
'21
'22
'23
total
funders
3
2
2
2

2 of 3 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 5% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.

From the IRS filings of ALS NEVERSURRENDER FOUNDATION’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

How concentrated its funding is

ALS NEVERSURRENDER FOUNDATION leans on a few funders — its largest provides 95% of grant income and the top three 100%; half comes from just 1 funder.

the vertical line marks half of all grant income — 1 funder to its left

100% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund ALS NEVERSURRENDER FOUNDATION.

95%
largest funder
100%
top three
~1
effective funders

Largest funder’s share by year: 2020 87% · 2021 100% · 2022 100% · 2023 100% — growing more concentrated.

“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

Where its funders are

ALS NEVERSURRENDER FOUNDATION draws 100% of its grant income from funders outside Colorado, across 1 state in all.

VA

In-state vs out-of-state, by year

’20
’21
’22
’23
Colorado out of state home

Funder states come from each funder’s own filing. $15k arriving through sponsors registered in 2 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

04Its place in the field

Against its field

ALS NEVERSURRENDER FOUNDATION's revenue fell 100% between 2020 and 2024.

Operating margin−905400% · bottom quartile
Revenue growth (annualized)−95% · bottom quartile

this organization peer median middle 50% of peers· 9,898 health nonprofits under $100k, FY2024

Organizations like ALS NEVERSURRENDER FOUNDATION

Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.

In Colorado

Nationally

05Profile & governance

Read directly from this organization’s own Form 990, as neutral context.

Public support

100%

Share of support from the public (Schedule A) — the basis for its public-charity status.

Footprint & structure

Files a return copy in 1 state

CO

Screen this organization

A dated, signed PDF of the compliance screen for ALS NEVERSURRENDER FOUNDATION: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.

A paid feature, included from the $75 plan up. Sign in to download.

Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf

Questions and answers

Who funds ALS NEVERSURRENDER FOUNDATION?
ALS NEVERSURRENDER FOUNDATION (Colorado) receives grants from 3 organizations whose IRS filings report $315,153 to it, the largest being AMYOTROPHIC LATERAL SCLEROSIS ASSN ($300,000). 2 of them have funded it in more than one year.
How many funders does ALS NEVERSURRENDER FOUNDATION have?
IRS filings report 3 organizations giving $315,153 in grants to ALS NEVERSURRENDER FOUNDATION, 2 of which have funded it in more than one year.
Who is the largest funder of ALS NEVERSURRENDER FOUNDATION?
AMYOTROPHIC LATERAL SCLEROSIS ASSN is the largest funder on record, with $300,000 in grants. The full list of funders is on this page.
How can an organization like ALS NEVERSURRENDER FOUNDATION find more funders?
Start with the funders already giving here, then look at the foundations that back similar organizations in Colorado. The funding by cause and by state pages list the largest funders for a given area and how to approach them.

Play a game about who funds Als Neversurrender →

These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2024 (financials across 2020–2024), and the filings of 3 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing