Pennsylvania · Public charity
The Association for Frontotemporal Degeneration
Promote and fund research into developing better diagnostic processes, therapies, and cures for frontotemporal degeneration (ftd); provide information, education, support and advocacy to persons diagnosed with ftd, their families and caregivers; (continued in sch o) educate physicians and other health professionals about ftd and how to…
- $1.9M
- Granted FY2025(still arriving)
- 6
- Itemized grants FY2025
- 10
- Organizations funded FY2024
- 50%
- First-time grantees FY2024
- Itemized, FY2025
- $1.5M
- The rest is grants the schedule does not break out
- Median grant, FY2025
- $230,000
- Largest grant, FY2025
- $700,000
- Organizations funded a year
- 5 to 10
- FY2018 to FY2024
- States reached, FY2025
- 6
- Total assets, FY2025
- $60M
How open it is to new grantees
In FY2024, 50% of the organizations The Association for Frontotemporal Degeneration funded were first-time grantees, receiving 40% of its grant dollars.
New vs renewed · share of each year
In FY2024, 60% of grant dollars renewed an existing relationship; $1000k went to new ones.
Where new relationships form · theme of each grantee’s first grant
How this is measured
The numbers by year
| Fiscal year | Organizations funded | To those organizations | First-time grantees |
|---|---|---|---|
| FY2025still arriving | 5 | $1.4M | 20% |
| FY2024 | 10 | $2.5M | 50% |
| FY2023 | 7 | $1.5M | 57% |
| FY2022 | 9 | $1.9M | 44% |
| FY2021 | 8 | $3.4M | 50% |
| FY2020 | 6 | $2.4M | 50% |
| FY2019 | 7 | $2.4M | 71% |
| FY2018 | 5 | $1.1M | 40% |
What it funded, over time
Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2025.
Where its grants go
Grant dollars by states, across the years we hold.
Which US states its grants reach
Top grantees
Largest recipients by total granted, FY2017 to FY2025, and the share of each one’s budget the grants supplied at peak.
| Grantee | Total granted | Years | Share of their budget |
|---|---|---|---|
| Alzheimer's Drug Discovery Foundation | $8,299,999 | 9 | 6% |
| Target Als Foundation Inc | $2,500,000 | 3 | 18% |
| The Ftd Disorders Registry LLC | $1,337,374 | 8 | 33% |
| Washington University | $758,453 | 3 | 0% |
| University of California San Francisco | $709,965 | 3 | n/a |
| Mayo Clinic | $565,248 | 1 | n/a |
| Children's Hospital Corporation | $515,000 | 1 | 0% |
| American Brain Foundation | $500,000 | 5 | 3% |
| Biosensics LLC | $399,999 | 1 | n/a |
| Mayo Clinic | $300,000 | 1 | n/a |
Show all 35 grantees
| Grantee | Total granted | Years | Share of their budget |
|---|---|---|---|
| Alzheimer's Drug Discovery Foundation | $8,299,999 | 9 | 6% |
| Target Als Foundation Inc | $2,500,000 | 3 | 18% |
| The Ftd Disorders Registry LLC | $1,337,374 | 8 | 33% |
| Washington University | $758,453 | 3 | 0% |
| University of California San Francisco | $709,965 | 3 | n/a |
| Mayo Clinic | $565,248 | 1 | n/a |
| Children's Hospital Corporation | $515,000 | 1 | 0% |
| American Brain Foundation | $500,000 | 5 | 3% |
| Biosensics LLC | $399,999 | 1 | n/a |
| Mayo Clinic | $300,000 | 1 | n/a |
| The Bluefield Project to Cure Frontotemporal Dementia | $290,000 | 1 | 14% |
| International Society for Frontotemporal Dementias Inc | $250,000 | 1 | n/a |
| Regents of the University of California at Berkeley | $230,000 | 2 | n/a |
| Mass General Brigham Incorporated | $180,000 | 1 | n/a |
| Regents Univ of California | $120,000 | 1 | n/a |
| Regenerative Research Foundation | $120,000 | 2 | 2% |
| Nihnia | $120,000 | 1 | n/a |
| Regents of the University of California at San Diego | $120,000 | 1 | n/a |
| Children's Hospital of Pittsburgh Foundation | $120,000 | 1 | 0% |
| Georgia State University Research Foundation Inc | $120,000 | 1 | 0% |
| Baylor College of Medicine | $110,000 | 1 | 0% |
| Emory University | $110,000 | 1 | 0% |
| University of Pittsburgh | $110,000 | 1 | 0% |
| Icahn School of Medicine at Mount Sinai | $110,000 | 1 | 0% |
| University of Texas at Austin | $109,994 | 1 | n/a |
| Regents of the University of Michigan | $109,784 | 1 | n/a |
| Foundation for the National Institutes of Health Inc | $109,388 | 2 | 0% |
| The Tank Ltd | $95,023 | 1 | 6% |
| University of Chicago | $85,000 | 2 | 0% |
| University of North Carolina at Chapel Hill | $60,000 | 1 | n/a |
| Johns Hopkins University | $60,000 | 1 | 0% |
| Case Western Reserve University | $60,000 | 1 | 0% |
| University of Alabama at Birmingham | $60,000 | 1 | n/a |
| Drexel University | $60,000 | 1 | 0% |
| Oregon Health & Science University | $59,689 | 1 | n/a |
Where it is load-bearing
The Association for Frontotemporal Degeneration supplied at least a quarter of the budget for 1 of its grantees at some point. The chart plots its 20 largest grantees; load-bearing ones sit top left.
Tap a dot to name the grantee.
How this is measured
Co-funders
Grantmakers whose grantees overlap with this funder’s far more than size alone predicts. Closer means stronger alignment; arcs show where they also fund each other. Here they form a tightly interlocked group: most of these funders back each other's grantees too.
Open a dossier: Amyotrophic Lateral Sclerosis Assn · Rainwater Charitable Foundation · National Philanthropic Trust · Vanguard Charitable Endowment Program · Donor Advised Charitable Giving Inc · Fidelity Investments Charitable Gift Fund
How this is measured
Compare The Association for Frontotemporal Degeneration with peer funders
About The Association for Frontotemporal Degeneration
- How much does The Association for Frontotemporal Degeneration give?
- The Association for Frontotemporal Degeneration reported 6 itemized grants totaling $1,547,368, out of $1,942,719 in total grant expense reported on the return in its FY2025 IRS filing. It funded between 5 and 10 organizations a year over FY2018 to FY2024.
- What does The Association for Frontotemporal Degeneration fund?
- By grant dollars over FY2017 to FY2025, its largest causes are Health (95%), Science & Tech (3%), Education (2%).
- Who are The Association for Frontotemporal Degeneration's largest grantees?
- By total granted over FY2017 to FY2025: Alzheimer's Drug Discovery Foundation ($8.3M), Target Als Foundation Inc ($2.5M), The Ftd Disorders Registry LLC ($1.3M).
- Does The Association for Frontotemporal Degeneration fund new organizations?
- In FY2024, 50% of the organizations it funded were first-time grantees.
- Which funders back the same organizations as The Association for Frontotemporal Degeneration?
- Its strongest co-funders, measured against what their size predicts, include Amyotrophic Lateral Sclerosis Assn, Rainwater Charitable Foundation, National Philanthropic Trust.
- Where is The Association for Frontotemporal Degeneration based?
- The Association for Frontotemporal Degeneration is based in PA.
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