· Public charity
The Association for Frontotemporal Degeneration
Promote and fund research into developing better diagnostic processes, therapies, and cures for frontotemporal degeneration (ftd); provide information, education, support and advocacy to persons diagnosed with ftd, their families and caregivers; (continued in sch o) educate physicians and other health professionals about ftd and how to…
What you funded, over time
Every grant clustered by its grantee’s IRS cause code (NTEE), by year — across FY2017–2025.
Where the money goes
Your grants by size, and where they go.
The 6 grants below total $1,547,368 — the rows itemised in this filing. The $1,942,719 headline is the total grant expense reported on the return, so the remaining $395,351 is giving the schedule does not break out: grants under the $5,000 itemisation floor, grants to individuals, and grants reported on other schedules. Every figure below describes the itemised rows only.
By grant size · FY2025
- $50k–250k4 grants · $560k
- $250k+2 grants · $987k
| Recipient | Amount |
|---|---|
| ALZHEIMER'S DRUG DISCOVERY FOUNDATION | $700,000 |
| THE FTD DISORDERS REGISTRY | $287,374 |
| WASHINGTON UNIVERSITY IN ST LOUIS | $230,000 |
| STANFORD UNIVERSITY | $120,000 |
| UNIVERSITY OF TEXAS AT AUSTIN | $109,994 |
| AMERICAN BRAIN FOUNDATION | $100,000 |
Do your dollars go where the need is?
Each grant placed by the hardship in its grantee’s ZIP, then read against the area’s typical level.
Dollar for dollar, your grants (FY17–25) land where the poverty rate runs at 15%, against an area that typically sits at 10%. 90% of your dollars go to grantees based in above-average-need neighborhoods. Most of your grants land in higher-need ZIPs.
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty linein the grantee’s ZIP, averaged from the tracts in that ZIP; grantee ZIP can differ from where services are delivered.
Which US states your grants reach
US grants placed by each grantee’s ZIP, which can differ from where services are actually delivered. Need from public data — U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA — shown as context about the area, never attributed to your giving.
Who you back again
Which organizations you funded more than once, and which you funded a single time. Each grantee is matched to its own filings.
And the relationships you keep tend to grow: grantees you re-up on have seen median revenue of +43% since the first grant, against +13% for the ones you funded once.
10 repeat relationships — 4 still active in FY2025, 6 since wound down; 1 grantees were first funded in FY2025 (too recent to call).
How the two cohorts compare
Organizations
Total granted
Median revenue growth · since first grant
Still filing today
New vs renewed · share of each year
In FY2025, 92% of grant dollars renewed an existing relationship; $110k went to new ones.
Where new relationships form · theme of each grantee’s first grant
First-time = a grantee’s first year in your filing window; renewed = funded in an earlier year too. As a portfolio matures the renewed share naturally climbs — once funded, an org stays “renewable” — so the signal is the years that buck it (a new-grantee intake wave). The earliest year is left-censored: relationships that predate the data read as “new.” Theme is the grantee’s IRS cause.
Backed again, and grew
- ADALZHEIMER'S DRUG DISCOVERY FOUNDATION9× · 2017–2025 · $8.3M · revenue +227%
- TATARGET ALS FOUNDATION INC3× · 2020–2022 · $2.5M · revenue +22%
- TFTHE FTD DISORDERS REGISTRY LLC8× · 2017–2025 · $1.3M · revenue +43% · 33% of their budget
Funded once
- MCMAYO CLINICone grant, 2019 · $565k
- CHChildren's Hospital Corporationgraduatedone grant, 2017 · $515k · revenue +69%
- BLBIOSENSICS LLCone grant, 2024 · $400k
Repeat = funded in two or more distinct years; growth and survival are read from each grantee’s own subsequent IRS filings.
The map has a center of gravity: the average direction from the rest of the sector toward the organizations the foundation funds — the shape of its giving. Scoring every nonprofit along that direction surfaces the ones that look most like the portfolio. These are the closest matchesthat aren’t grantees — a resemblance in what they say they do, not a recommendation.
Nyu is a private university with approximately 60,000 matriculating students in 20 schools and institutes. nyu's primary missions are education, research and scholarship, and patient care.
Sanford burnham prebys medical discovery institute's mission is to advance the biomedical sciences by cultivating the next generation of scientific leaders, providing meaningful opportunities for researchers of all backgrounds to learn,…
We educate the next generation of leaders to improve the health of our society.
Fred hutch cancer center ("fred hutch") unites innovative research and compassionate care to prevent and eliminate cancer and infectious disease. continued on schedule o
Please see schedule o
The hugo w. moser research institute at kennedy krieger, inc. (the "research institute") is an internationally recognized research facility finding answers to problems and injuries that affect a child's developing brain. researchers have…
As a leading research university with a distinctive commitment to undergraduate education, Rice University aspires to path breaking research, unsurpassed teaching, and contributions to the betterment of our world. It seeks to fulfill this…
See Form 990, Part I, Line 1, Description of Organization Mission.
University of minnesota physicians serves as the integrated group practice for the university of minnesota medical school full-time faculty to provide the highest quality healthcare to patients and their families.university of minnesota…
For more than 125 years, the mission of the johns hopkins hospital has been to lead the world in the diagnosis and treatment of disease and to train tomorrow's great physicians, nurses and scientists. above all, we aim to provide the…
The institute for advanced study (the institute) is one of the world's leading centers for theoretical research and intellectual inquiry. see schedule o.
The mission of Rush is to improve the health of the individuals and diverse communities we serve through the integration of outstanding patient care, education, research and community partnerships.
For reference, the grantee most central to the portfolio’s shape is University of Chicago and the most unlike its peers is The Tank Ltd. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.
For each theme you fund, this compares how the sector’s money is shifting with how your own giving is shifting.
Sector change and giving change are each shown relative to their own range, growing (right) or shrinking (left); both normalized, so inflation isn’t mistaken for growth.
Your grantees are a median of 37 years old; the field is 18. You back the established end — and your money leans older still.
The field is 19% startups (under 5 years old) — 0% of your grantees by number, and just 0% of your money.
The orgs you fund almost never close — 0.0% lost their exemption, against 10% of the field you don’t fund.
Age = years since IRS exemption (a founding proxy). “Closed” = auto-revocation for 3 years of non-filing — a floor on closure, not proof, and bigger established orgs lapse least. Association, not causation.
25 grantees tracked through their own filings, 2017–2025.
Each one resolved to its own IRS returns and tracked year by year — your grant beside their revenue from every source. Association, dated; never a causal claim.
Counted here: distinct organizations you funded across 2017–2025, not grant rows in a single year — so this will not match the grant count on the cover. 25 of the 39 grantees resolved in that span have returns of their own we could reconcile; the rest are funded organizations whose filings we could not track year by year.
Where your money sits — by cause, then by grantee
Each org by its size and your share of it — top-left is where you’re load-bearing
Go grantee by grantee — a decade per org, and how each moved after you funded them
A decade per grantee — revenue shaded, your grants as bars, all rows on one timeline.
- Who funds ALZHEIMER'S DRUG DISCOVERY FOUNDATION ↗
- Who funds TARGET ALS FOUNDATION INC ↗
- Who funds THE FTD DISORDERS REGISTRY LLC ↗
- Who funds WASHINGTON UNIVERSITY ↗
- Who funds Children's Hospital Corporation ↗
- Who funds AMERICAN BRAIN FOUNDATION ↗
- Who funds The Bluefield Project to Cure Frontotemporal Dementia ↗
- Who funds International Society for Frontotemporal Dementias Inc ↗
- Who funds COMMUNITY FOUNDATION OF NORTH TEXAS (TAX ↗
- Who funds THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK ↗
- Who funds GEORGIA STATE UNIVERSITY RESEARCH FOUNDATION INC ↗
- Who funds CHILDREN'S HOSPITAL OF PITTSBURGH FOUNDATION ↗
- Who funds REGENERATIVE RESEARCH FOUNDATION ↗
- Who funds THE BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY ↗
- Who funds UNIVERSITY OF PITTSBURGH ↗
- Who funds Baylor College of Medicine ↗
- Who funds Emory University ↗
- Who funds ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI ↗
- Who funds Foundation for the National Institutes of Health Inc ↗
- Who funds THE TANK LTD ↗
- Who funds University of Chicago ↗
- Who funds JOHNS HOPKINS UNIVERSITY ↗
- Who funds DREXEL UNIVERSITY ↗
- Who funds CASE WESTERN RESERVE UNIVERSITY ↗
- Who funds TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA ↗
The grantmakers whose grantees overlap with yours far more than size alone predicts. Each orbits closer the stronger the alignment; the arcs between them show where they also fund each other. Here it reads as a tightly interlocked camp — most of these funders back each other's grantees too.
Open a dossier: Amyotrophic Lateral Sclerosis Assn · Rainwater Charitable Foundation · National Philanthropic Trust · Vanguard Charitable Endowment Program · Donor Advised Charitable Giving Inc · Fidelity Investments Charitable Gift Fund
Affinity is a Gamma-Poisson posterior co-funding rate, re-centered on the typical rate, so thin evidence shrinks toward no signal. A research starting point: overlap is association, not proof of shared intent.
Government reliance of your grantees
Every dot is one organization The Association for Frontotemporal Degeneration funds. Left–right is the share of its income from government; up–down is the share from you. Bigger dots raise more. Filter to federal or a single department — and drag the year to watch it move.
- Johns Hopkins University — 12% of income from government
- Children's Hospital Corporation — 10% of income from government
Government income is each org’s traced federal awards (USASpending — grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that your grant caused the public funding. Coverage is precision-first — a floor, not a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12–24 months.