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· Public charity

The Association for Frontotemporal Degeneration

Promote and fund research into developing better diagnostic processes, therapies, and cures for frontotemporal degeneration (ftd); provide information, education, support and advocacy to persons diagnosed with ftd, their families and caregivers; (continued in sch o) educate physicians and other health professionals about ftd and how to…

$1.9M
Granted FY2025still arriving
6
Grants FY2025still arriving
6
States reached
$700k
Largest
01What you fund
0184% classified

What you funded, over time

Every grant clustered by its grantee’s IRS cause code (NTEE), by year — across FY20172025.

Social Science$8.3MEducation$4.4MHealth$3.2MPhilanthropy$200kArts & Culture$95kOther$3.1M
02FY2025 · 6 grants

Where the money goes

Your grants by size, and where they go.

The 6 grants below total $1,547,368 — the rows itemised in this filing. The $1,942,719 headline is the total grant expense reported on the return, so the remaining $395,351 is giving the schedule does not break out: grants under the $5,000 itemisation floor, grants to individuals, and grants reported on other schedules. Every figure below describes the itemised rows only.

By grant size · FY2025

  • $50k–250k4 grants · $560k
  • $250k+2 grants · $987k
$230,000
Median grant
6
States reached
$60M
Total assets
Largest grants
RecipientAmount
ALZHEIMER'S DRUG DISCOVERY FOUNDATION$700,000
THE FTD DISORDERS REGISTRY$287,374
WASHINGTON UNIVERSITY IN ST LOUIS$230,000
STANFORD UNIVERSITY$120,000
UNIVERSITY OF TEXAS AT AUSTIN$109,994
AMERICAN BRAIN FOUNDATION$100,000
02The need
03

Do your dollars go where the need is?

Each grant placed by the hardship in its grantee’s ZIP, then read against the area’s typical level.

show:

Dollar for dollar, your grants (FY17–25) land where the poverty rate runs at 15%, against an area that typically sits at 10%. 90% of your dollars go to grantees based in above-average-need neighborhoods. Most of your grants land in higher-need ZIPs.

area typical 10%BIOSENSICS LLC: $400k → 8%BOSTON CHILDREN'S HOSPITAL: $515k → 16%INTERNATIONAL SOCIETY FOR FRONTOTEMPORAL DEMENTIAS: $250k → 6%AMERICAN BRAIN FOUNDATION: $200k → 11%THE FTD DISORDERS REGISTRY: $287k → 7%CHILDREN'S HOSPITAL OF PITTSBURGH: $120k → 11%DREXEL UNIVERSITY: $60k → 22%STANFORD UNIVERSITY: $120k → 8%UNIVERSITY OF CALIFORNIA BERKLEY: $120k → 10%UNIVERSITY OF CALIFORNIA - SAN FRANCISCO: $250k → 10%UNIVERSITY OF CALIFORNIA SAN DIEGO DEPT OF CHEMISTRY AND BIOCHEMISTRY: $120k → 11%UNIVERSITY OF CALIFORNIA LOS ANGELES: $120k → 14%REGENERATIVE RESERACH FOUNDATION: $60k → 11%THE TANK LTD: $95k → 17%UNIVERSITY OF TEXAS AT AUSTIN: $110k → 10%NORTH TEXAS COMMUNITY FOUNDATION: $200k → 11%MAYO CLINIC - JACKSONVILLE: $565k → 14%UNIVERSITY OF MICHIGAN: $110k → 14%WASHINGTON UNIVERSITY: $495k → 21%ALZHEIMER'S DRUG DISCOVERY PROGRAM: $700k → 13%GEORGIA STATE UNIVERSITY: $120k → 13%EMORY UNIVERSITY: $110k → 14%NATIONAL INSTITUTE OF NEUROLOGICAL DISORDERS AND STROKE: $120k → 17%FOUNDATION FOR THE NATIONAL INSTITUTES OF HEALTH: $84k → 8%MASSACHUSETTS GENERAL HOSPITAL: $120k → 16%AMERICAN BRAIN FOUNDATION: $100k → 11%THE FTD DISORDERS REGISTRY: $250k → 7%UNIVERSITY OF CALIFORNIA - BERKELEY: $110k → 10%BLUEFIELD PROJECT TO CURE FTD: $290k → 10%ALZHEIMER'S DRUG DISCOVERY FOUNDATION: $1.4M → 17%MAYO CLINIC JACKSONVILLE: $300k → 14%AMERICAN BRAIN FOUNDATION: $100k → 11%THE FTD DISORDERS REGISTRY LLC: $150k → 7%THE FTD DISORDERS REGISTRY LLC: $150k → 10%ALZHEIMER'S DRUG DISCOVERY FOUNDATION: $1.4M → 17%WASHINGTON UNIVERSITY IN ST LOUIS: $230k → 21%THE FTD DISORDERS REGISTRY LLC: $150k → 10%ALZHEIMER'S DRUG DISCOVERY FOUNDATION: $1.4M → 17%THE FTD DISORDERS REGISTRY LLC: $150k → 10%ALZHEIMER'S DRUG DISCOVERY FOUNDATION: $700k → 17%THE FTD DISORDERS REGISTRY LLC: $100k → 10%ALZHEIMER'S DRUG DISCOVERY FOUNDATION: $700k → 17%THE FTD DISORDERS REGISTRY LLC: $100k → 10%ALZHEIMER'S DRUG DISCOVERY FOUNDATION: $700k → 17%ALZHEIMER'S DRUG DISCOVERY FOUNDATION: $600k → 17%ALZHEIMER DRUG DISCOVERY FOUNDATION: $600k → 17%COLUMBIA UNIVERSITY MEDICAL CENTER: $150k → 17%ICAHN SCHOOL OF MEDICINE: $110k → 17%0%20%40%50%more need →
grant to an above-average-need area below average· circle size = grant amount

Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty linein the grantee’s ZIP, averaged from the tracts in that ZIP; grantee ZIP can differ from where services are delivered.

Which US states your grants reach

MN
IL
MI
NY
MA
OR
OH
PA
CA
MO
MD
NC
AL
GA
TX
FL

US grants placed by each grantee’s ZIP, which can differ from where services are actually delivered. Need from public data — U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA — shown as context about the area, never attributed to your giving.

03Your edge
repeat funding

Who you back again

Which organizations you funded more than once, and which you funded a single time. Each grantee is matched to its own filings.

78%of every dollar goes to organizations you’ve funded before.
$15M · 10 repeat orgs$4.2M to everyone else

And the relationships you keep tend to grow: grantees you re-up on have seen median revenue of +43% since the first grant, against +13% for the ones you funded once.

10 repeat relationships — 4 still active in FY2025, 6 since wound down; 1 grantees were first funded in FY2025 (too recent to call).

How the two cohorts compare

Re-uppedFunded once

Organizations

10
24

Total granted

$15M
$4.1M

Median revenue growth · since first grant

+43%
+13%

Still filing today

80%
54%

New vs renewed · share of each year

In FY2025, 92% of grant dollars renewed an existing relationship; $110k went to new ones.

50%100%’17’18’19’20’21’22’23’24’25
RenewedFirst-time

Where new relationships form · theme of each grantee’s first grant

’17’18’19’20’21’22’23’24’25
EducationHealthSocial ScienceArts & CultureOther

First-time = a grantee’s first year in your filing window; renewed = funded in an earlier year too. As a portfolio matures the renewed share naturally climbs — once funded, an org stays “renewable” — so the signal is the years that buck it (a new-grantee intake wave). The earliest year is left-censored: relationships that predate the data read as “new.” Theme is the grantee’s IRS cause.

Backed again, and grew

  • AD
    ALZHEIMER'S DRUG DISCOVERY FOUNDATION
    9× · 2017–2025 · $8.3M · revenue +227%
  • TA
    TARGET ALS FOUNDATION INC
    3× · 2020–2022 · $2.5M · revenue +22%
  • TF
    THE FTD DISORDERS REGISTRY LLC
    8× · 2017–2025 · $1.3M · revenue +43% · 33% of their budget

Funded once

  • MC
    MAYO CLINIC
    one grant, 2019 · $565k
  • CH
    Children's Hospital Corporationgraduated
    one grant, 2017 · $515k · revenue +69%
  • BL
    BIOSENSICS LLC
    one grant, 2024 · $400k

Repeat = funded in two or more distinct years; growth and survival are read from each grantee’s own subsequent IRS filings.

04Your field

The map has a center of gravity: the average direction from the rest of the sector toward the organizations the foundation funds — the shape of its giving. Scoring every nonprofit along that direction surfaces the ones that look most like the portfolio. These are the closest matchesthat aren’t grantees — a resemblance in what they say they do, not a recommendation.

1
New York University

Nyu is a private university with approximately 60,000 matriculating students in 20 schools and institutes. nyu's primary missions are education, research and scholarship, and patient care.

Education
2
Sanford Burnham Prebys Medical Discovery Institute

Sanford burnham prebys medical discovery institute's mission is to advance the biomedical sciences by cultivating the next generation of scientific leaders, providing meaningful opportunities for researchers of all backgrounds to learn,…

Health
3
Albany College of Pharmacy and Health Sciences

We educate the next generation of leaders to improve the health of our society.

Education
4
Fred Hutchinson Cancer Center

Fred hutch cancer center ("fred hutch") unites innovative research and compassionate care to prevent and eliminate cancer and infectious disease. continued on schedule o

Health
5
The Translational Genomics Research Institute

Please see schedule o

Health
6
Hugo W Moser Research Institute At Kennedy Krieger Inc

The hugo w. moser research institute at kennedy krieger, inc. (the "research institute") is an internationally recognized research facility finding answers to problems and injuries that affect a child's developing brain. researchers have…

Science & Tech
7
William Marsh Rice University

As a leading research university with a distinctive commitment to undergraduate education, Rice University aspires to path breaking research, unsurpassed teaching, and contributions to the betterment of our world. It seeks to fulfill this…

Education
8
University of Miami

See Form 990, Part I, Line 1, Description of Organization Mission.

Education
9
University of Minnesota Physicians

University of minnesota physicians serves as the integrated group practice for the university of minnesota medical school full-time faculty to provide the highest quality healthcare to patients and their families.university of minnesota…

Health
10
The Johns Hopkins Hospital

For more than 125 years, the mission of the johns hopkins hospital has been to lead the world in the diagnosis and treatment of disease and to train tomorrow's great physicians, nurses and scientists. above all, we aim to provide the…

Health
11
Institute for Advanced Study - Louis Bamberger & Mrs Felix Fuld Foundation

The institute for advanced study (the institute) is one of the world's leading centers for theoretical research and intellectual inquiry. see schedule o.

Science & Tech
12
Rush University Medical Center

The mission of Rush is to improve the health of the individuals and diverse communities we serve through the integration of outstanding patient care, education, research and community partnerships.

Health

For reference, the grantee most central to the portfolio’s shape is University of Chicago and the most unlike its peers is The Tank Ltd. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.

For each theme you fund, this compares how the sector’s money is shifting with how your own giving is shifting.

← shrinkinggrowing →↓ leaning in → pulling backsteadyCancer Support ServicesCommunity FoundationsHealth Access Advocacy and …Community College Foundatio…Community Arts CentersFaith-Based Liberal Arts Co…
the sector your giving your giving is ahead of the sector the sector’s ahead of you· dot size = how much the theme matters to each side
Ordered by the change in your giving — leaning in on top, pulling back at the bottom. The bar between the two dots is how out of step you are with the sector. Hover any row for detail.

Sector change and giving change are each shown relative to their own range, growing (right) or shrinking (left); both normalized, so inflation isn’t mistaken for growth.

Your grantees are a median of 37 years old; the field is 18. You back the established end — and your money leans older still.

THE FIELDby orgYOUR GRANTEESby number19%0%<5yr14%6%5–10yr20%24%10–20yr19%18%20–35yr13%12%35–55yr16%39%55yr+
THE FIELDby orgYOUR MONEYby value19%0%<5yr14%14%5–10yr20%18%10–20yr19%52%20–35yr13%6%35–55yr16%11%55yr+

The field is 19% startups (under 5 years old) — 0% of your grantees by number, and just 0% of your money.

Closures · last 5 years

The orgs you fund almost never close 0.0% lost their exemption, against 10% of the field you don’t fund.

orgs you fund
0.0%0/39
the rest of the field
10%
11,858/120,721

Age = years since IRS exemption (a founding proxy). “Closed” = auto-revocation for 3 years of non-filing — a floor on closure, not proof, and bigger established orgs lapse least. Association, not causation.

04the grantee network

25 grantees tracked through their own filings, 2017–2025.

Each one resolved to its own IRS returns and tracked year by year — your grant beside their revenue from every source. Association, dated; never a causal claim.

Counted here: distinct organizations you funded across 20172025, not grant rows in a single year — so this will not match the grant count on the cover. 25 of the 39 grantees resolved in that span have returns of their own we could reconcile; the rest are funded organizations whose filings we could not track year by year.

1
Load-bearing (≥25% of a budget)
2
Early backer (in before they grew)
25/25
Grantees still filing
21/25
Grew since you first funded

Where your money sits — by cause, then by grantee

ALZHEIMER'S DRUG DISCOVERY FOUNDATION — $8,299,999 · Social ScienceALZHEIMER'S DRUG DISCOVERY FOUNDATIONTARGET ALS FOUNDATION INC — $2,500,000 · EducationTARGET ALS FOUNDATION INCWASHINGTON UNIVERSITY — $758,453 · EducationWASHINGTON UNIVERSITYTHE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK — $180,000 · Education+11 more — $1,005,000 · Education+11 moreTHE FTD DISORDERS REGISTRY LLC — $1,337,374 · HealthTHE FTD DISORDERS …Children's Hospital Corporation — $515,000 · HealthChildren's Hospita…AMERICAN BRAIN FOUNDATION — $500,000 · HealthAMERICAN BRAIN FOU…The Bluefield Project to Cure Frontotemporal Dementia — $290,000 · HealthThe Bluefield Proj…International Society for Frontotemporal Dementias Inc — $250,000 · HealthInternational Soci…CHILDREN'S HOSPITAL OF PITTSBURGH FOUNDATION — $120,000 · HealthREGENERATIVE RESEARCH FOUNDATION — $120,000 · HealthFoundation for the National Institutes of Health Inc — $109,388 · HealthUNIVERSITY OF CALIFORNIA SAN FRANCISCO — $709,965 · OtherUNIVERSITY OF CALI…MAYO CLINIC — $565,248 · OtherMAYO CLINICBIOSENSICS LLC — $399,999 · OtherBIOSENSICS LLCMAYO CLINIC — $300,000 · OtherMAYO CLINICREGENTS OF THE UNIVERSITY OF CALIFORNIA AT BERKELEY — $230,000 · OtherREGENTS OF THE UNI…MASS GENERAL BRIGHAM INCORPORATED — $180,000 · OtherMASS GENERAL BRIGH…REGENTS UNIV OF CALIFORNIA — $120,000 · OtherREGENTS OF THE UNIVERSITY OF CALIFORNIA AT SAN DIEGO — $120,000 · OtherNIHNIA — $120,000 · OtherUNIVERSITY OF TEXAS AT AUSTIN — $109,994 · OtherREGENTS OF THE UNIVERSITY OF MICHIGAN — $109,784 · Other+3 more — $179,689 · Other+3 moreCOMMUNITY FOUNDATION OF NORTH TEXAS (TAX — $200,000 · PhilanthropyTHE TANK LTD — $95,023 · Arts & Culture
Social Science$8,299,999Education$4,443,453Health$3,241,762Other$3,144,679Philanthropy$200,000Arts & Culture$95,023

Each org by its size and your share of it — top-left is where you’re load-bearing

25%50%75%100%$10M$100Mgrantee revenue →↑ your share of their budgetALZHEIMER'S DRUG DISCOVERY FOUNDATION — $8,299,999 over 9y, 6.3% of budgetTARGET ALS FOUNDATION INC — $2,500,000 over 3y, 18% of budgetTHE FTD DISORDERS REGISTRY LLC — $1,337,374 over 8y, 33% of budgetWASHINGTON UNIVERSITY — $758,453 over 3y, 0.0% of budgetChildren's Hospital Corporation — $515,000 over 1y, 0.0% of budgetAMERICAN BRAIN FOUNDATION — $500,000 over 5y, 3.2% of budgetThe Bluefield Project to Cure Frontotemporal Dementia — $290,000 over 1y, 14% of budgetCOMMUNITY FOUNDATION OF NORTH TEXAS (TAX — $200,000 over 1y, 0.3% of budgetTHE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK — $180,000 over 2y, 0.0% of budgetGEORGIA STATE UNIVERSITY RESEARCH FOUNDATION INC — $120,000 over 1y, 0.1% of budgetCHILDREN'S HOSPITAL OF PITTSBURGH FOUNDATION — $120,000 over 1y, 0.2% of budgetREGENERATIVE RESEARCH FOUNDATION — $120,000 over 2y, 1.7% of budgetUNIVERSITY OF PITTSBURGH — $110,000 over 1y, 0.0% of budgetBaylor College of Medicine — $110,000 over 1y, 0.0% of budgetEmory University — $110,000 over 1y, 0.0% of budgetICAHN SCHOOL OF MEDICINE AT MOUNT SINAI — $110,000 over 1y, 0.0% of budgetFoundation for the National Institutes of Health Inc — $109,388 over 2y, 0.1% of budgetTHE TANK LTD — $95,023 over 1y, 5.6% of budgetUniversity of Chicago — $85,000 over 2y, 0.0% of budgetJOHNS HOPKINS UNIVERSITY — $60,000 over 1y, 0.0% of budgetDREXEL UNIVERSITY — $60,000 over 1y, 0.0% of budgetCASE WESTERN RESERVE UNIVERSITY — $60,000 over 1y, 0.0% of budgetTRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA — $60,000 over 1y, 0.0% of budget
Go grantee by grantee — a decade per org, and how each moved after you funded them

A decade per grantee — revenue shaded, your grants as bars, all rows on one timeline.

The grantmakers whose grantees overlap with yours far more than size alone predicts. Each orbits closer the stronger the alignment; the arcs between them show where they also fund each other. Here it reads as a tightly interlocked camp — most of these funders back each other's grantees too.

Amyotrophic Lateral Sclerosis AssnVA13.6× affinity4 shared granteesties to 5 of 5Hover any node to trace its alignments.Compare side by side →

Open a dossier: Amyotrophic Lateral Sclerosis Assn · Rainwater Charitable Foundation · National Philanthropic Trust · Vanguard Charitable Endowment Program · Donor Advised Charitable Giving Inc · Fidelity Investments Charitable Gift Fund

Affinity is a Gamma-Poisson posterior co-funding rate, re-centered on the typical rate, so thin evidence shrinks toward no signal. A research starting point: overlap is association, not proof of shared intent.

Government reliance of your grantees

Every dot is one organization The Association for Frontotemporal Degeneration funds. Left–right is the share of its income from government; up–down is the share from you. Bigger dots raise more. Filter to federal or a single department — and drag the year to watch it move.

2024
202122232425
no gov · 00%6%25%56%100%your share of their income ↑0%25%50%75%100%share of the org’s income from governmentmedian 12%
  • Johns Hopkins University12% of income from government
  • Children's Hospital Corporation10% of income from government
no gov moneyreceives it· size = income
0get no government money at all
3report government grants on their 990 we could not trace to a source (not plotted)
0rely on government for over half their income
typical government reliance, FY2025

Government income is each org’s traced federal awards (USASpending — grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that your grant caused the public funding. Coverage is precision-first — a floor, not a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12–24 months.

On method. Every financial figure here is read directly from IRS e-file XML — your own 990/990-PF and the multi-year returns of the 39 grantees we resolved across every year we hold, several hundred filings in all (a different count from the grant rows on the cover, which are one fiscal year)— each linked to its source. Grantee achievements and outcomes are each organization’s own program-service reporting (Form 990, Part III); we read these as association with sustained funding — the foundation is one of several forces — suppress low-confidence name matches rather than guess, and say so where a figure rests on a single grant or filing. Not everything on this page is a filed figure, and the difference matters. Filed is what you reported on your return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears. How we build these →

Generated from your IRS Form 990 e-file return for fiscal year 2025, released 2025. Filings run roughly 12–24 months behind; figures are dated accordingly.

Source object · view filing

More from the funding graph