Minnesota · Nonprofit
International Society for Frontotemporal Dementias Inc
International Society for Frontotemporal Dementias Inc (Minnesota) receives grants from 8 organizations whose IRS filings report $489,200 to it, the largest being THE ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION ($250,000). 1 of them have funded it in more than one year.
- Revenue FY2025
- $504k
- Funders on record
- 8
- Grants received
- $489k
- Net assets
- $445k
What International Society for Frontotemporal Dementias Inc does
Mission
To lead global efforts in understanding and treating frontotemporal dementias by advancing breakthrough research, fostering interdisciplinary collaboration, supporting emerging scientists, and promoting excellence in educational initiatives.
As stated on its FY2025 Form 990.
Program
ISFTD organized and hosted the 2024 International ALS-FTD Workshop in Amsterdam, convening 150 FTD professionals to advance understanding and collaboration in the FTD and ALS fields. ISFTD also launched a new strategic planning initiative, expanded educational offerings through webinars, and began developing support programs for early- and mid-career researchers.
$132,833 spentof which $25,000 as grants$7,451 earned by the program100% of program spending
The program described on its FY2024 Form 990. Program spending in total: $132,833.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2024 to 2025, from $174k to $483k (+178%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
100% of International Society for Frontotemporal Dementias Inc’s revenue is contributions — more donation-reliant than the typical peer (82% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 3 of the last 9 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Chief executive
David Casalod
Executive Director
As listed on its FY2025 Form 990.
Who funds it, year by year
Grant support over time, funder by funder — shade shows the grant size each year.
3 of 8 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 46% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of International Society for Frontotemporal Dementias Inc’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
International Society for Frontotemporal Dementias Inc leans on a few funders — its largest provides 51% of grant income and the top three 92%; half comes from just 1 funder.
the vertical line marks half of all grant income — 1 funder to its left
97% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund International Society for Frontotemporal Dementias Inc.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Where its funders are
International Society for Frontotemporal Dementias Inc draws 100% of its grant income from funders outside Minnesota, across 3 states in all.
Funder states come from each funder’s own filing. $223k arriving through sponsors registered in 3 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
International Society for Frontotemporal Dementias Inc runs a healthier operating margin than three-quarters of the 7,883 health nonprofits its size.
this organization peer median middle 50% of peers· 7,883 health nonprofits $100k–$1M, FY2025
Organizations like International Society for Frontotemporal Dementias Inc
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Minnesota
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
83% of spending goes to programs.
Governance
Public support
100%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 2 states
Screen this organization
A dated, signed PDF of the compliance screen for International Society for Frontotemporal Dementias Inc: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds International Society for Frontotemporal Dementias Inc?
- International Society for Frontotemporal Dementias Inc (Minnesota) receives grants from 8 organizations whose IRS filings report $489,200 to it, the largest being THE ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION ($250,000). 1 of them have funded it in more than one year.
- How many funders does International Society for Frontotemporal Dementias Inc have?
- IRS filings report 8 organizations giving $489,200 in grants to International Society for Frontotemporal Dementias Inc, 1 of which have funded it in more than one year.
- Who is the largest funder of International Society for Frontotemporal Dementias Inc?
- THE ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION is the largest funder on record, with $250,000 in grants. The full list of funders is on this page.
- How can an organization like International Society for Frontotemporal Dementias Inc find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Minnesota. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
Play a game about who funds International Society for Frontotemporal Dementias →
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2017–2025), and the filings of 8 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing