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Minnesota · Nonprofit

International Society for Frontotemporal Dementias Inc

International Society for Frontotemporal Dementias Inc (Minnesota) receives grants from 7 organizations whose IRS filings report $439,200 to it, the largest being THE ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION ($250,000). 1 of them have funded it in more than one year.

$504k
Revenue FY2025
7
Funders on record
$439k
Grants received
$445k
Net assets
1/7 repeat funderspeak grant-dependency 15%

Against its field

International Society for Frontotemporal Dementias Inc runs a healthier operating margin than three-quarters of the 6,881 health nonprofits its size.

Operating margin68% · top quartile
Months of reserve17.6mo · top quartile
Revenue growth (annualized)48% · top quartile

this organization peer median middle 50% of peers· 6,881 health nonprofits $100k–$1M, FY2025

Three funders worth looking at

Grantmakers with no record of funding this organization, ranked by how strongly the co-funder graph and the mission embeddings agree. The evidence is in section 03.

See all 12 prospects and why each one surfaced →
01The organization over time

The organization over time

Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.

100 = 20172017 Revenue 100 ($21k) Expenses 100 ($24k) Net assets 100 ($39k)2018 Revenue 99 ($21k) Expenses 70 ($17k) Net assets 112 ($44k)2019 Revenue 81 ($17k) Expenses 128 ($30k) Net assets 79 ($31k)2020 Revenue 72 ($15k) Expenses 60 ($14k) Net assets 83 ($32k)2021 Revenue 222 ($48k) Expenses 92 ($22k) Net assets 148 ($58k)2022 Revenue 178 ($38k) Expenses 89 ($21k) Net assets 192 ($75k)2023 Revenue 134 ($29k) Expenses 164 ($39k) Net assets 166 ($65k)2024 Revenue 627 ($134k) Expenses 110 ($26k) Net assets 442 ($174k)2025 Revenue 2356 ($504k) Expenses 683 ($161k) Net assets 1133 ($445k)
'17'18'19'20'21'22'23'24'25
Revenue (2356)Expenses (683)Net assets (1133)Peer revenue range

How it's funded, over time

Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.

2017
2018
2019
2020
2021
2022
2023
2024
2025
ContributionsProgram revenueInvestmentOther

100% of International Society for Frontotemporal Dementias Inc’s revenue is contributions — more donation-reliant than the typical peer (83% for the typical peer).

This organization
Typical peer · 14,844 orgs

Surplus & reserves

Operating surplus or deficit each year, and months of liquidity in hand. 3 of the last 9 reported years ran a deficit.

$2k
17
$5k
18
$13k
19
$1k
20
$26k
21
$17k
22
$10k
23
$108k
24
$344k
25
18
months of
reserve
02Who funds it

Who funds it, year by year

Grant support over time, funder by funder — shade shows the grant size each year.

2 of 7 of your funders are donor-advised or pass-through sponsors (tagged DAF)39% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.

From the IRS filings of International Society for Frontotemporal Dementias Inc’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

How concentrated its funding is

International Society for Frontotemporal Dementias Inc leans on a few funders — its largest provides 57% of grant income and the top three 96%; half comes from just 1 funder.

the vertical line marks half of all grant income — 1 funder to its left

96% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund International Society for Frontotemporal Dementias Inc.

57%
largest funder
96%
top three
~2
effective funders

“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

Where its funders are

International Society for Frontotemporal Dementias Inc draws 100% of its grant income from funders outside Minnesota, across 3 states in all.

IL
PA
TX

Funder states come from each funder’s own filing. $173k arriving through sponsors registered in 2 statesis excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

03Its place in the field

Funders to approach

Grantmakers that don’t fund you yet, surfaced two ways: they back organizations that share your funders, or their grantees resemble your mission. The ones both signals agree on come first. Your 7 funders put you under-funded among the 400 organizations that share them.

From the co-funder graph (funders backing at least two comparable organizations, shrunk for grantee count, donor-advised and mega-funds excluded) and the universe embeddings. A research starting point; overlap is association, not a guarantee of fit.

Organizations like International Society for Frontotemporal Dementias Inc

Nonprofits whose mission and program text most resemble this one, by semantic similarity over the universe of US filings — the closest peers, and often the clearest route to shared or prospective funders.

In Minnesota

Nationally

04Profile & governance

Read directly from this organization’s own Form 990, as neutral context.

Where the money goes

83% of spending goes to programs.

Program 83%Management 17%Fundraising 0%

Governance

8
board members
100%
independent
Conflict-of-interest policyWhistleblower policyDocument retentionBoard reviewed the 990Audited financials

Public support

100%

Share of support from the public (Schedule A) — the basis for its public-charity status.

Footprint & structure

Files a return copy in 2 states

MN
IN

Screen this organization

A dated, signed PDF of the compliance screen for International Society for Frontotemporal Dementias Inc: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.

A paid feature, included from the $75 plan up. Sign in to download.

Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. How the screen works · on the API as GET /api/screening/{ein}?format=pdf

Questions and answers

Who funds International Society for Frontotemporal Dementias Inc?
International Society for Frontotemporal Dementias Inc (Minnesota) receives grants from 7 organizations whose IRS filings report $439,200 to it, the largest being THE ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION ($250,000). 1 of them have funded it in more than one year.
How many funders does International Society for Frontotemporal Dementias Inc have?
IRS filings report 7 organizations giving $439,200 in grants to International Society for Frontotemporal Dementias Inc, 1 of which have funded it in more than one year.
Who is the largest funder of International Society for Frontotemporal Dementias Inc?
THE ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION is the largest funder on record, with $250,000 in grants. The full list of funders is on this page.
How can an organization like International Society for Frontotemporal Dementias Inc find more funders?
Start with the funders already giving here, then look at the foundations that back similar organizations in Minnesota. The funding by cause and by state pages list the largest funders for a given area and how to approach them.

These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2017–2025), and the filings of 7funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported August 27, 2026. What this page cannot tell you · view filing