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National Scleroderma Foundation Inc at a glanceAlso receives grants: funding profile →

· Public charity

National Scleroderma Foundation Inc

The national scleroderma foundation's mission is to advance medical research, promote disease awareness, and provide support and education to people with scleroderma, their families and support networks.

$1.5M
Granted FY2024still arriving
6
Grants FY2024still arriving
5
States reached
$200k
Largest
01What it fundsRead
02The needRead
03Its granteesRead
04Its fieldRead

Read this first · the figures below need context

50% of National Scleroderma Foundation Inc’s FY2025 grant dollars went to Yale University, not to grantees.

Its money now reaches organizations through that sponsor, which does not report who recommended each grant. FY2025 names 3 organizations directly, so a portfolio cannot be read from it. Everything below is therefore FY2024, the last year National Scleroderma Foundation Inc named its own grantees at scale: 5 organizations, $1M. It is dated, not current.

Organizations named directly on the return

8
’17
7
’18
6
’19
8
’20
7
’21
11
’22
7
’23
5
’24
3
’25

Amber years are those where most dollars went to a sponsor.

01What it funds
01100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2025.

Health$5.4MScience & Tech$4.5MEducation$2.3MRecreation & Sports$300k
02FY2024 · 6 grants

Where the money goes

Grants by size, and the largest recipients.

How this is measured
The 6 grants below total $1,200,000, the rows itemized in this filing. The $1,453,529 headline is the total grant expense on the return; the other $253,529 is giving the schedule does not break out (grants under the $5,000 itemization floor, grants to individuals, grants on other schedules). Every figure below describes the itemized rows only.
$200,000
Median grant
5
States reached
$11M
Total assets
Largest grants
RecipientAmount
CASE WESTERN RESERVE UNIVERSITY$200,000
THE REGENTS OF THE UNIVERSITY OF MICHIGAN$200,000
THE REGENTS OF THE UNIVERSITY OF MICHIGAN$200,000
VIRGINIA COMMONWEALTH UNIVERSITY$200,000
KAO AUTOIMMUNITY INSTITUTE CEDARS-SINAI MEDICAL CENTER$200,000
THE UNIVERSITY OF TEXAS AT EL PASO$200,000
02The need
03

Does the money reach high-need areas?

Each grant placed by the hardship in its grantee’s ZIP, against the area’s typical level.

show:

Dollar for dollar, its grants (FY17–25) land where the poverty rate runs at 14%, against an area that typically sits at 11%. 85% of its dollars go to grantees based in above-average-need neighborhoods. Most of its grants land in higher-need ZIPs.

area typical 11%INTERNATIONAL WORKSHOP ON SCLERODERMA RESEARCH CORPORATION: $25k → 8%FNIH BIOMARKERS CONSORTIUM PROJECT: $200k → 10%BRIGHAM AND WOMEN'S HOSPITAL: $150k → 16%UNIVERSITY OF PITTSBURGH: $150k → 11%DREXEL UNIVERSITY: $100k → 22%UNIVERSITY OF CALIFORNIA SAN DIEGO: $150k → 11%KAO AUTOIMMUNITY INSTITUTE CEDARS-SINAI MEDICAL CENTER: $200k → 14%ROCHESTER INSTITUTE OF TECHNOLOGY: $200k → 14%HOSPITAL FOR SPECIAL SURGERY: $150k → 17%THE UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT HOUSTON: $150k → 16%THE MEDICAL UNIVERSITY OF SOUTH CAROLINA (GRANT 2): $150k → 12%REGENTS OF UNIVERSITY OF MICHIGAN: $150k → 14%UNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTITUTE: $200k → 16%UNIVERSITY OF UTAH: $150k → 8%CASE WESTERN RESERVE UNIVERSITY: $200k → 17%BENAROYA RESEARCH INSTITUTE AT VIRGINIA MASON: $200k → 9%NORTHWESTERN UNIVERSITY: $150k → 14%VIRGINIA COMMONWEALTH UNIVERSITY: $150k → 22%LOUISIANA STATE UNIVERSITY HEALTH SCIENCES CENTER: $150k → 23%JOHNS HOPKINS UNIVERSITY: $150k → 19%TRUSTEES OF DARTMOUTH COLLEGE: $200k → 10%TRUSTEES OF BOSTON UNIVERSITY BUMC: $150k → 16%UNIVERSITY OF PITTSBURGH: $150k → 11%THOMAS JEFFERSON UNIVERSITY: $123k → 22%UNIVERSITY OF ROCHESTER: $150k → 14%HOSPITAL FOR SPECIAL SURGERY: $150k → 17%THE MEDICAL UNIVERSITY OF SOUTH CAROLINA (GRANT 1): $150k → 12%REGENTS OF THE UNIVERSITY OF MICHIGAN PROJECT REPRESENTATIVE (GRANT 2): $150k → 14%ANN & ROBERT H CHILDREN'S HOSPITAL OF CHICAGO: $150k → 14%VIRGINIA COMMONWEALTH UNIVERSITY: $200k → 22%JOHN HOPKINS UNIVERSITY SCHOOL OF MEDICINE: $150k → 19%TRUSTEES OF DARTMOUTH COLLEGE: $150k → 10%TRUSTEES OF BOSTON UNIVERSITY BUMC: $150k → 16%UNIVERSITY OF PITTSBURGH: $150k → 11%HOSPITAL FOR SPECIAL SURGERY: $150k → 17%MEDICAL UNIVERSITY OF SOUTH CAROLINA: $200k → 12%REGENTS OF THE UNIVERSITY OF MICHIGAN PROJECT REPRESENTATIVE (GRANT 1): $150k → 14%NORTHWESTERN UNIVERSITY FEINBERG SCHOOL OF MEDICINE: $150k → 14%BALTIMORE RESEARCH AND EDUCATION FOUNDATION: $150k → 19%TUFTS UNIVERSITY: $150k → 16%UNIVERSITY OF PITTSBURGH: $150k → 11%MEDICAL UNIVERSITY OF SOUTH CAROLINA: $200k → 12%NORTHWESTERN UNIVERSITY: $150k → 14%MASSACHUSETTS GENERAL HOSPITAL: $150k → 16%MEDICAL UNIVERSITY OF SOUTH CAROLINA: $150k → 12%MASSACHUSETTS GENERAL HOSPITAL: $150k → 16%MEDICAL UNIVERSITY OF SOUTH CAROLINA: $150k → 12%0%20%40%50%more need →
grant to an above-average-need area below average· circle size = grant amount
How this is measured
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty line in the grantee’s ZIP, averaged from the tracts in that ZIP.

Which US states its grants reach

NH
WA
MN
IL
MI
NY
MA
OH
PA
CT
CA
UT
VA
MD
NM
KS
SC
LA
TX
How this is measured
US grants placed by each grantee’s ZIP, which can differ from where services are delivered. Need from public data (U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA), shown as context about the area, never attributed to the funder’s giving.
03Its grantees
repeat funding

Who it funds again

Organizations funded in more than one year, against those funded once.

53%of every dollar goes to organizations it has funded before.
$6.3M · 8 repeat orgs$5.5M to everyone else

Grantees it renews have grown median revenue +45% since the first grant, against +28% for those funded once.

8 repeat relationships: 1 still active in FY2024, 7 since wound down; 5 grantees were first funded in FY2024 (too recent to call). Read against FY2024, the last year this funder named its own grantees directly; its giving has since run through a sponsor, which reports no donor behind each grant.

How the two cohorts compare

Re-uppedFunded once

Organizations

8
28

Total granted

$6.3M
$4.5M

Median revenue growth · since first grant

+45%
+28%

Still filing today

75%
61%

New vs renewed · share of each year

In FY2025, 67% of grant dollars renewed an existing relationship; $200k went to new ones.

50%100%’17’18’19’20’21’22’23’24’25
RenewedFirst-time

Where new relationships form · theme of each grantee’s first grant

’17’18’19’20’21’22’23’24’25
HealthEducationRecreation & SportsOther
How this is measured
First-time means a grantee’s first year in the filing window; renewed means funded in an earlier year too. The renewed share climbs naturally as a portfolio matures, so the signal is a year that bucks it (a wave of new grantees). The earliest year is left-censored: relationships that predate the data read as new. Theme is the grantee’s IRS cause.

Backed again, and grew

  • TRUSTEES OF BOSTON UNIVERSITY
    6× · 2017–2023 · $1.6M · revenue +45%
  • UNIVERSITY OF PITTSBURGH
    4× · 2019–2022 · $1.1M · revenue +28%
  • JOHNS HOPKINS UNIVERSITY
    4× · 2017–2025 · $700k · revenue +64%

Funded once

  • Rochester Institute of Technology
    one grant, 2022 · $200k · revenue +10%
  • UO
    UNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTITUTEgraduated
    one grant, 2022 · $200k · revenue +51%
  • UO
    UNIVERSITY OF NEW MEXICO
    one grant, 2022 · $200k
How this is measured

Repeat means funded in two or more distinct years. Growth and survival are read from each grantee’s own subsequent IRS filings.

04Its field

Closest unfunded matches

The nonprofits that most resemble its grantees but are not funded by it, scored along the direction from the rest of the field toward the portfolio. A resemblance in what they say they do, not a recommendation.

1
Rush University Medical Center

The mission of Rush is to improve the health of the individuals and diverse communities we serve through the integration of outstanding patient care, education, research and community partnerships.

Health
2
Thomas Jefferson University

Thomas jefferson university ("tju") is a comprehensive university with preeminence in transdisciplinary, experiential professional education, research and discovery, delivering exceptional value for the 21st century students with…

Education
3
New York University

Nyu is a private university with approximately 60,000 matriculating students in 20 schools and institutes. nyu's primary missions are education, research and scholarship, and patient care.

Education
4
Fred Hutchinson Cancer Center

Fred hutch cancer center ("fred hutch") unites innovative research and compassionate care to prevent and eliminate cancer and infectious disease. continued on schedule o

Health
5
Rhode Island Hospital

As a founding hospital in the brown university health system, rih is committed to its mission: delivering health with care.

Health
6
University of Miami

See Form 990, Part I, Line 1, Description of Organization Mission.

Education
7
Trustees of the University of Pennsylvania

The trustees of the university of pennsylvania (the "university") sees itself as having a public service mission. in such regard, the university aims to provide a rich and diverse educational environment for its students; to pioneer…

Education
8
The Johns Hopkins Hospital

For more than 125 years, the mission of the johns hopkins hospital has been to lead the world in the diagnosis and treatment of disease and to train tomorrow's great physicians, nurses and scientists. above all, we aim to provide the…

Health
9
University of Minnesota Physicians

University of minnesota physicians serves as the integrated group practice for the university of minnesota medical school full-time faculty to provide the highest quality healthcare to patients and their families.university of minnesota…

Health
10
Albany College of Pharmacy and Health Sciences

We educate the next generation of leaders to improve the health of our society.

Education
11
William Marsh Rice University

As a leading research university with a distinctive commitment to undergraduate education, Rice University aspires to path breaking research, unsurpassed teaching, and contributions to the betterment of our world. It seeks to fulfill this…

Education
12
Massachusetts Eye & Ear Infirmary

THE MASSACHUSETTS EYE AND EAR INFIRMARY ("THE INFIRMARY") IS A NOT-FOR-PROFIT TEACHING HOSPITAL CONDUCTING PATIENT CARE AND RESEARCH. THE INFIRMARY IS A TEACHING HOSPITAL OF HARVARD MEDICAL SCHOOL AND AN INTERNATIONAL CENTER FOR RESEARCH.…

Health
How this is measured
The grantee most central to the portfolio’s shape is Trustees of Tufts College; the most unlike its peers is International Workshop On Scleroderma Research Corporation. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.
04the grantee network

28 grantees tracked through their own filings, 2017–2025.

Each grant beside the grantee’s revenue from every source, year by year.

How this is measured

Counted here: distinct organizations funded across 2017 to 2025, not grant rows in a single year, so this will not match the grant count on the cover. 28 of the 43 grantees resolved in that span have returns of their own we could reconcile.

Each grantee is resolved to its own IRS returns. Association, dated; never a causal claim.

0
Load-bearing (≥25% of a budget)
1
Early backer (in before they grew)
27/28
Grantees still filing
23/28
Grew since first funded

Where the money sits, by cause and then by grantee

TRUSTEES OF BOSTON UNIVERSITY: $1,550,000 · OtherTRUSTEES OF BOSTON UNIVERSITYREGENTS OF THE UNIVERSITY OF MICHIGAN: $1,249,998 · OtherREGENTS OF THE UNIVERSITY OF MICHIGANPHI CHI MEDICAL FRATERNITY INC: $500,000 · OtherPHI CHI MEDICAL FRATERNITY INCUNIVERSITY OF TEXAS AT EL PASO: $200,000 · OtherUNIVERSITY OF NEW MEXICO: $200,000 · OtherWeill Medical College of Cornell Univers: $200,000 · OtherUNIVERSITY OF MINNESOTA: $200,000 · OtherUVA CANCER CENTERUVA HEALTH SYSTEM: $200,000 · OtherUNIVERSITY OF WASHINGTON: $199,998 · Other+7 more: $1,050,000 · Other+7 moreUNIVERSITY OF PITTSBURGH: $1,050,000 · EducationUNIVERSITY OF PITTSBURGHJOHNS HOPKINS UNIVERSITY: $699,998 · EducationJOHNS HOPKINS UNIVERSITYYale University: $399,996 · EducationYale UniversityTrustees of Dartmouth College: $349,998 · EducationTrustees of Dartmouth CollegeRochester Institute of Technology: $200,000 · EducationRochester Institute of Technolo…THE UNIVERSITY OF TOLEDO FOUNDATION: $200,000 · EducationTHE UNIVERSITY OF TOLEDO FOUNDA…CASE WESTERN RESERVE UNIVERSITY: $200,000 · EducationCASE WESTERN RESERVE UNIVERSITYUNIVERSITY OF ROCHESTER: $150,000 · EducationTrustees of Tufts College: $150,000 · Education+1 more: $100,000 · EducationMEDICAL UNIVERSITY OF SOUTH CAROLINA FOUNDATION: $500,000 · HealthMEDICAL UNIVERSITY OF SOUTH…NEW YORK SOCIETY FOR THE RELIEF OF THE RUPTURED AND CRIPPLED MAINTAINING THE: $300,000 · HealthNEW YORK SOCIETY FOR THE RE…UNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTITUTE: $200,000 · HealthUNIVERSITY OF KANSAS MEDICA…HMH HOSPITALS CORPORATION: $200,000 · HealthHMH HOSPITALS CORPORATIONFoundation for the National Institutes of Health Inc: $200,000 · HealthFoundation for the National…Children's Hospital Corporation: $200,000 · HealthChildren's Hospital Corpora…BENAROYA RESEARCH INSTITUTE AT VIRGINIA: $200,000 · HealthBENAROYA RESEARCH INSTITUTE…CEDARS-SINAI MEDICAL CENTER: $200,000 · HealthCEDARS-SINAI MEDICAL CENTERAnn & Robert H Lurie Children's Hospital of Chicago: $150,000 · HealthBALTIMORE RESEARCH & EDUCATION FOUNDATION INC: $150,000 · HealthLSU HEALTH FOUNDATION NEW ORLEANS: $150,000 · HealthThe Hospital for Special Surgery Fund Inc: $150,000 · HealthUPMC: $150,000 · HealthTHE CLEVELAND CLINIC FOUNDATION: $150,000 · HealthTHOMAS JEFFERSON UNIVERSITY HOSPITALS INC: $122,909 · Health+1 more: $25,000 · HealthNorthwestern University: $450,000 · Recreation & Sports
Other$5,549,996Education$3,499,992Health$3,047,909Recreation & Sports$450,000

Each grantee by its size and the funder’s share of it; top left is load-bearing

25%50%75%100%$1.0M$10M$100Mgrantee revenue →↑ funder's share of their budgetTRUSTEES OF BOSTON UNIVERSITY: $1,550,000 over 6y, 0.0% of budgetUNIVERSITY OF PITTSBURGH: $1,050,000 over 4y, 0.0% of budgetJOHNS HOPKINS UNIVERSITY: $699,998 over 4y, 0.0% of budgetMEDICAL UNIVERSITY OF SOUTH CAROLINA FOUNDATION: $500,000 over 3y, 0.2% of budgetNorthwestern University: $450,000 over 3y, 0.0% of budgetYale University: $399,996 over 1y, 0.0% of budgetTrustees of Dartmouth College: $349,998 over 2y, 0.0% of budgetNEW YORK SOCIETY FOR THE RELIEF OF THE RUPTURED AND CRIPPLED MAINTAINING THE: $300,000 over 2y, 0.0% of budgetRochester Institute of Technology: $200,000 over 1y, 0.0% of budgetUNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTITUTE: $200,000 over 1y, 0.1% of budgetFoundation for the National Institutes of Health Inc: $200,000 over 1y, 0.3% of budgetTHE UNIVERSITY OF TOLEDO FOUNDATION: $200,000 over 1y, 0.7% of budgetCASE WESTERN RESERVE UNIVERSITY: $200,000 over 1y, 0.0% of budgetChildren's Hospital Corporation: $200,000 over 1y, 0.0% of budgetBENAROYA RESEARCH INSTITUTE AT VIRGINIA: $200,000 over 1y, 0.2% of budgetCEDARS-SINAI MEDICAL CENTER: $200,000 over 1y, 0.0% of budgetAnn & Robert H Lurie Children's Hospital of Chicago: $150,000 over 1y, 0.0% of budgetBALTIMORE RESEARCH & EDUCATION FOUNDATION INC: $150,000 over 1y, 6.7% of budgetUNIVERSITY OF ROCHESTER: $150,000 over 1y, 0.0% of budgetTrustees of Tufts College: $150,000 over 1y, 0.0% of budgetLSU HEALTH FOUNDATION NEW ORLEANS: $150,000 over 1y, 1.0% of budgetThe Hospital for Special Surgery Fund Inc: $150,000 over 1y, 0.7% of budgetUPMC: $150,000 over 1y, 0.0% of budgetTHE CLEVELAND CLINIC FOUNDATION: $150,000 over 1y, 0.0% of budgetTHOMAS JEFFERSON UNIVERSITY HOSPITALS INC: $122,909 over 1y, 0.0% of budgetDREXEL UNIVERSITY: $100,000 over 1y, 0.0% of budgetINTERNATIONAL WORKSHOP ON SCLERODERMA RESEARCH CORPORATION: $25,000 over 1y, 7.3% of budget
Grantee by grantee: a decade per organization, before and after funding

A decade per grantee: revenue shaded, grants as bars, all rows on one timeline.

Co-funders

Grantmakers whose grantees overlap with this funder’s far more than size alone predicts. Closer means stronger alignment; arcs show where they also fund each other. Here they form a tightly interlocked group: most of these funders back each other's grantees too.

Johns Hopkins Univers…Fidelity Investments …
Johns Hopkins UniversityMD13.2× affinity4 shared granteesties to 1 of 1Hover any node to trace its alignments.Compare side by side →

Open a dossier: Johns Hopkins University · Fidelity Investments Charitable Gift Fund

How this is measured
Affinity is a Gamma-Poisson posterior co-funding rate, re-centered on the typical rate, so thin evidence shrinks toward no signal. Overlap is association, not proof of shared intent.

How much its grantees rely on government

Each dot is one organization National Scleroderma Foundation Inc funds: left to right is the share of its income from government, bottom to top the share from National Scleroderma Foundation Inc. Bigger dots raise more.

2024
’20’21’22’23’24’25
no gov · 10%1%3%6%10%funder's share of their income ↑0%25%50%75%100%share of the org’s income from government →median 12%
  • Trustees of Tufts College: 13% of income from government
  • Trustees of Boston University: 12% of income from government
  • Johns Hopkins University: 12% of income from government
  • Yale University: 12% of income from government
  • Children's Hospital Corporation: 10% of income from government
no gov moneyreceives it· size = income
1get no government money at all
5report government grants on their 990 we could not trace to a source (not plotted)
0rely on government for over half their income
typical government reliance, FY20–25
How this is measured
Government income is each org’s traced federal awards (USASpending grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that a grant caused the public funding. Coverage is precision-first, a floor rather than a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12 to 24 months.

On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 43 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

How this is measured
Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

Generated from the IRS Form 990 e-file return for fiscal year 2024, released 2024. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

Source object · view filing

Play a game based on National Scleroderma’s filings →

More from the funding graph

The unnamed billions
grants reported with no recipient in the public record
The regranting layer
51% of grant dollars land in the regranting layer
The DAF merry-go-round
$9.7B circulates between donor-advised funds
The endowment market
who holds foundation money, and what just moved
The camps
funders cluster by geography, not ideology
By state
where grant money is based, and what stays home