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National Ataxia Foundation Incorporated at a glanceMostly funded, not a grantmaker: see who funds it →

· Public charity

National Ataxia Foundation Incorporated

The National Ataxia Foundation's mission is to accelerate the development of treatments and a cure while working to improve the lives of those living with Ataxia.

$2.5M
Granted FY2025still arriving
31
Grants FY2025still arriving
17
States reached
$197k
Largest
01What it fundsRead
02The needRead
03Its granteesRead
04Its fieldRead
01What it funds
01100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2025.

Science & Tech$4.3MHealth$4.0MEducation$620kRecreation & Sports$466k
02FY2025 · 31 grants

Where the money goes

Grants by size, and the largest recipients.

How this is measured
The 31 grants below total $1,834,987, the rows itemized in this filing. The $2,459,416 headline is the total grant expense on the return; the other $624,429 is giving the schedule does not break out (grants under the $5,000 itemization floor, grants to individuals, grants on other schedules). Every figure below describes the itemized rows only.

By grant size · FY2025

  • Under $10k2 grants · $12k
  • $10k–50k10 grants · $269k
  • $50k–250k19 grants · $1.6M
$50,000
Median grant
17
States reached
$12M
Total assets
Largest grants
RecipientAmount
Regents of the University of MN$196,568
University of Chicago$122,384
University of Texas Southwestern$111,369
University of South Florida$102,852
Columbia University New York$101,150
Regents of the University of Michigan$89,450
University of North Carolina Chapel Hill$85,000
Massachusetts General Hospital$84,000
Regents of the University of California dba University of California Irvin$75,000
Indiana University - Purdue$72,608
Regents of the University of California Los Angeles$71,400
GeneMatters$63,256
Emory University$61,600
Science Coach Inc$60,000
Greenwood Genetic Center Inc$57,200
02The need
03

Does the money reach high-need areas?

Each grant placed by the hardship in its grantee’s ZIP, against the area’s typical level.

show:

Dollar for dollar, its grants (FY17–25) land where the poverty rate runs at 15%, against an area that typically sits at 11%. 94% of its dollars go to grantees based in above-average-need neighborhoods. Most of its grants land in higher-need ZIPs.

area typical 11%Arizona State University: $50k → 11%Brigham & Women's Hospital: $50k → 16%Children's Hospital of Philadelphia: $50k → 22%GeneMatters: $63k → 7%Regents of the University of California dba University of California Irvin: $75k → 10%UCLA Regents: $135k → 14%Research Foundation for SUNY obo Univ at Buffalo: $50k → 13%Columbia University New York: $151k → 17%University of Texas Southwestern: $147k → 14%Baylor College of Medicine: $85k → 16%Greenwood Genetic Center Inc: $57k → 18%University of South Florida: $129k → 13%Wayne State University: $100k → 21%University of North Carolina Chapel Hill: $85k → 13%Northwestern University: $110k → 14%Johns Hopkins University Department of Neurology: $53k → 19%Regents of the University of California Los Angeles: $122k → 14%Columbia University New York: $101k → 17%University of Texas Southwestern: $111k → 14%Greenwood Genetic Center Inc: $50k → 18%University of South Florida: $106k → 13%University of Michigan Neurology Dept: $100k → 14%Wayne State University: $100k → 21%Science Coach Inc: $60k → 21%Duke University Medical Center: $75k → 11%NORTHWESTERN UNIVERSITY: $100k → 14%Johns Hopkins University Department of Neurology: $51k → 19%Massachusetts General Hospital: $89k → 16%Regents of the University of California Los Angeles: $95k → 14%Columbia University New York: $71k → 17%University of Texas Southwestern: $63k → 14%University of South Florida: $103k → 13%Regents of the University of Michigan: $193k → 14%Northwestern University: $85k → 14%Massachusetts General Hospital: $84k → 16%Regents of the University of California Los Angeles: $71k → 14%University of South Florida: $94k → 13%Regents of the University of Michigan: $190k → 14%Northwestern University: $68k → 14%Massachusetts General Hospital: $67k → 16%Regents of the University of California Los Angeles: $70k → 14%University of South Florida: $56k → 13%Regents of the University of Michigan: $132k → 14%Regents of the University of California Los Angeles: $68k → 14%Regents of the University of Michigan: $89k → 14%University of Chicago: $122k → 14%University of Chicago Medical Center: $107k → 14%The University of Chicago: $52k → 14%0%20%40%50%more need →
grant to an above-average-need area below average· circle size = grant amount
How this is measured
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty line in the grantee’s ZIP, averaged from the tracts in that ZIP.

Which US states its grants reach

WA
MN
IL
WI
MI
NY
MA
OR
PA
CT
RI
CA
UT
CO
MO
MD
AZ
TN
NC
SC
MS
GA
TX
FL

Grants abroad, by region: $575k on the FY2025 return

Schedule F, as filed: 3 regions. The IRS asks for region and purpose, not the recipient, so no country or grantee can be named here.

Europe (including Iceland and Greenland)$423k · 74% · 4 grants

Stated purpose: Research grants to recipients in the region

North America (Canada and Mexico)$102k · 18% · 3 grants

Stated purpose: Research grants to recipients in the region

East Asia and the Pacific$50k · 9% · 1 grant

Stated purpose: Research grants to recipients in the region

How this is measured
US grants placed by each grantee’s ZIP, which can differ from where services are delivered. Need from public data (U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA), shown as context about the area, never attributed to the funder’s giving. Grants abroad on Schedule F are filed by region, purpose and amount with no recipient name, so they are shown by region and cannot be placed on the country map or matched to a grantee.
03Its grantees
repeat funding

Who it funds again

Organizations funded in more than one year, against those funded once.

79%of every dollar goes to organizations it has funded before.
$6.7M · 25 repeat orgs$1.8M to everyone else

25 repeat relationships: 17 still active in FY2025, 8 since wound down; 11 grantees were first funded in FY2025 (too recent to call).

How the two cohorts compare

Re-uppedFunded once

Organizations

25
32

Total granted

$6.7M
$1.3M

Median revenue growth · since first grant

+52%
+54%

Still filing today

52%
31%

New vs renewed · share of each year

In FY2025, 70% of grant dollars renewed an existing relationship; $511k went to new ones.

50%100%’17’18’19’20’21’22’23’24’25
RenewedFirst-time

Where new relationships form · theme of each grantee’s first grant

’17’18’19’20’21’22’23’24’25
HealthEducationRecreation & SportsScience & TechOther
How this is measured
First-time means a grantee’s first year in the filing window; renewed means funded in an earlier year too. The renewed share climbs naturally as a portfolio matures, so the signal is a year that bucks it (a wave of new grantees). The earliest year is left-censored: relationships that predate the data read as new. Theme is the grantee’s IRS cause.

Backed again, and grew

  • Northwestern University
    8× · 2017–2025 · $462k · revenue +41%
  • JOHNS HOPKINS UNIVERSITY
    8× · 2017–2025 · $323k · revenue +64%
  • University of Chicago
    7× · 2017–2025 · $301k · revenue +56%

Funded once

  • UO
    University of Chicago Medical Center
    one grant, 2024 · $107k · revenue +11%
  • TC
    THE CHILDREN'S HOSPITAL OF PHILADELPHIA FOUNDATIONgraduated
    one grant, 2019 · $100k · revenue +148%
  • BC
    BOSTON CHILDRENS HOSPITAL
    one grant, 2017 · $65k
How this is measured

Repeat means funded in two or more distinct years. Growth and survival are read from each grantee’s own subsequent IRS filings.

04Its field

Closest unfunded matches

The nonprofits that most resemble its grantees but are not funded by it, scored along the direction from the rest of the field toward the portfolio. A resemblance in what they say they do, not a recommendation.

1
New York University

Nyu is a private university with approximately 60,000 matriculating students in 20 schools and institutes. nyu's primary missions are education, research and scholarship, and patient care.

Education
2
University of Southern California

The central mission of the university of southern california is the development of human beings and society as a whole through the cultivation and enrichment of the human mind and spirit. the principal means by which our mission is…

Education
3
University of Minnesota Physicians

University of minnesota physicians serves as the integrated group practice for the university of minnesota medical school full-time faculty to provide the highest quality healthcare to patients and their families.university of minnesota…

Health
4
William Marsh Rice University

As a leading research university with a distinctive commitment to undergraduate education, Rice University aspires to path breaking research, unsurpassed teaching, and contributions to the betterment of our world. It seeks to fulfill this…

Education
5
Drexel University

Drexel university fulfills its founder's vision of preparing each new generation of students for productive professional and civic lives while also focusing its collective expertise on solving society's greatest problems. drexel is an…

Education
6
Fred Hutchinson Cancer Center

Fred hutch cancer center ("fred hutch") unites innovative research and compassionate care to prevent and eliminate cancer and infectious disease. continued on schedule o

Health
7
Cornell University

Education, research, medical services and other public services.

Education
8
The Johns Hopkins Hospital

For more than 125 years, the mission of the johns hopkins hospital has been to lead the world in the diagnosis and treatment of disease and to train tomorrow's great physicians, nurses and scientists. above all, we aim to provide the…

Health
9
Thomas Jefferson University

Thomas jefferson university ("tju") is a comprehensive university with preeminence in transdisciplinary, experiential professional education, research and discovery, delivering exceptional value for the 21st century students with…

Education
10
Albany College of Pharmacy and Health Sciences

We educate the next generation of leaders to improve the health of our society.

Education
11
Rhode Island Hospital

As a founding hospital in the brown university health system, rih is committed to its mission: delivering health with care.

Health
12
Southern California University of Health Sciences

The mission of southern california university of health sciences (scu) is to educate students as competent, caring and successful practitioners of integrative healthcare. the university is committed to providing excellence in academics,…

Education
How this is measured
The grantee most central to the portfolio’s shape is University of Chicago; the most unlike its peers is Friedreich's Ataxia Research Alliance. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.
04the grantee network

31 grantees tracked through their own filings, 2017–2025.

Each grant beside the grantee’s revenue from every source, year by year.

How this is measured

Counted here: distinct organizations funded across 2017 to 2025, not grant rows in a single year, so this will not match the grant count on the cover. 31 of the 71 grantees resolved in that span have returns of their own we could reconcile.

Each grantee is resolved to its own IRS returns. Association, dated; never a causal claim.

0
Load-bearing (≥25% of a budget)
1
Early backer (in before they grew)
31/31
Grantees still filing
23/31
Grew since first funded

Where the money sits, by cause and then by grantee

REGENTS OF THE UNIVERSITY OF MICHIGAN: $977,955 · OtherREGENTS OF THE UNIVERSITY OF MICHIGANREGENTS UNIV OF CALIFORNIA: $660,800 · OtherREGENTS UNIV OF CALIFORNIAUNIVERSITY OF FLORIDA: $508,261 · OtherUNIVERSITY OF FLORIDAUNIVERSITY OF SOUTH FLORIDA: $498,120 · OtherUNIVERSITY OF SOUTH FLORIDAUNIVERSITY OF MINNESOTA: $418,092 · OtherUNIVERSITY OF MINNESOTAMASS GENERAL BRIGHAM INCORPORATED: $335,665 · OtherMASS GENERAL BRIGHAM INCORPORATEDTHE UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTE: $322,219 · OtherTHE UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTEWAYNE STATE UNIVERSITY: $200,000 · Other+32 more: $1,662,908 · Other+32 moreTHE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK: $558,050 · EducationTHE TRUSTEES OF COLUMBIA UN…JOHNS HOPKINS UNIVERSITY: $322,735 · EducationJOHNS HOPKINS UNIVERSITYUniversity of Chicago: $300,884 · EducationUniversity of ChicagoTRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA: $196,100 · EducationTRUSTEES OF THE UNIVERSITY …Baylor College of Medicine: $185,000 · EducationBaylor College of MedicineEmory University: $182,400 · EducationEmory UniversityDUKE UNIVERSITY: $100,000 · EducationTHE ROCKEFELLER UNIVERSITY: $85,000 · EducationYale University: $81,250 · Education+6 more: $260,000 · Education+6 moreTHE CHILDREN'S HOSPITAL OF PHILADELPHIA: $220,000 · HealthTHE CHILDREN…THE METHODIST HOSPITAL FOUNDATION: $128,850 · HealthTHE METHODIS…GREENWOOD GENETIC CENTER INC: $107,600 · HealthGREENWOOD GE…University of Chicago Medical Center: $107,393 · HealthUniversity o…THE CHILDREN'S HOSPITAL OF PHILADELPHIA FOUNDATION: $100,000 · HealthTHE CHILDREN…AMERICAN BRAIN FOUNDATION: $86,666 · HealthAMERICAN BRA…THE METHODIST HOSPITAL: $70,000 · HealthTHE METHODIS…UT SOUTHWESTERN HEALTH SYSTEMS: $57,650 · HealthUT SOUTHWEST…MASS GENERAL BRIGHAM INCORPORATED: $50,000 · HealthBaylor University Medical Center: $50,000 · Health+4 more: $100,000 · Health+4 moreNorthwestern University: $462,050 · Recreation & SportsGORDON RESEARCH CONFERENCES INC: $5,000 · Science & Tech
Other$5,584,020Education$2,271,419Health$1,078,159Recreation & Sports$462,050Science & Tech$5,000

Each grantee by its size and the funder’s share of it; top left is load-bearing

25%50%75%100%$1.0M$10M$100Mgrantee revenue →↑ funder's share of their budgetTHE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK: $558,050 over 8y, 0.0% of budgetNorthwestern University: $462,050 over 8y, 0.0% of budgetJOHNS HOPKINS UNIVERSITY: $322,735 over 8y, 0.0% of budgetUniversity of Chicago: $300,884 over 7y, 0.0% of budgetTHE CHILDREN'S HOSPITAL OF PHILADELPHIA: $220,000 over 3y, 0.0% of budgetTRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA: $196,100 over 5y, 0.0% of budgetBaylor College of Medicine: $185,000 over 3y, 0.0% of budgetEmory University: $182,400 over 5y, 0.0% of budgetTHE METHODIST HOSPITAL FOUNDATION: $128,850 over 4y, 0.1% of budgetGREENWOOD GENETIC CENTER INC: $107,600 over 2y, 0.2% of budgetUniversity of Chicago Medical Center: $107,393 over 1y, 0.0% of budgetDUKE UNIVERSITY: $100,000 over 3y, 0.0% of budgetTHE CHILDREN'S HOSPITAL OF PHILADELPHIA FOUNDATION: $100,000 over 1y, 0.1% of budgetAMERICAN BRAIN FOUNDATION: $86,666 over 2y, 1.7% of budgetTHE ROCKEFELLER UNIVERSITY: $85,000 over 2y, 0.0% of budgetYale University: $81,250 over 3y, 0.0% of budgetTHE METHODIST HOSPITAL: $70,000 over 3y, 0.0% of budgetSCIENCE COACH INC: $60,000 over 1y, 6.4% of budgetUT SOUTHWESTERN HEALTH SYSTEMS: $57,650 over 2y, 2.1% of budgetMASS GENERAL BRIGHAM INCORPORATED: $50,000 over 1y, 0.0% of budgetUniversity of Miami: $50,000 over 1y, 0.0% of budgetThe Research Foundation for The State University of New York: $50,000 over 1y, 0.0% of budgetBaylor University Medical Center: $50,000 over 1y, 0.0% of budgetICAHN SCHOOL OF MEDICINE AT MOUNT SINAI: $35,000 over 1y, 0.0% of budgetTHE SCRIPPS RESEARCH INSTITUTE: $35,000 over 1y, 0.0% of budgetWASHINGTON UNIVERSITY: $35,000 over 1y, 0.0% of budgetChildren's Hospital Los Angeles: $35,000 over 1y, 0.0% of budgetTHE MEDICAL COLLEGE OF WISCONSIN INC: $30,000 over 1y, 0.0% of budgetRush University Medical Center: $25,000 over 1y, 0.0% of budgetGORDON RESEARCH CONFERENCES INC: $5,000 over 1y, 0.0% of budgetFRIEDREICH'S ATAXIA RESEARCH ALLIANCE: $5,000 over 1y, 0.1% of budget
Grantee by grantee: a decade per organization, before and after funding

A decade per grantee: revenue shaded, grants as bars, all rows on one timeline.

  • Who funds THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK ↗
  • Who funds Northwestern University ↗
  • Who funds JOHNS HOPKINS UNIVERSITY ↗
  • Who funds University of Chicago ↗
  • Who funds THE CHILDREN'S HOSPITAL OF PHILADELPHIA ↗
  • Who funds TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA ↗
  • Who funds Baylor College of Medicine ↗
  • Who funds Emory University ↗
  • Who funds THE METHODIST HOSPITAL FOUNDATION ↗
  • Who funds GREENWOOD GENETIC CENTER INC ↗
  • Who funds University of Chicago Medical Center ↗
  • Who funds DUKE UNIVERSITY ↗
  • Who funds THE CHILDREN'S HOSPITAL OF PHILADELPHIA FOUNDATION ↗
  • Who funds AMERICAN BRAIN FOUNDATION ↗
  • Who funds THE ROCKEFELLER UNIVERSITY ↗
  • Who funds Yale University ↗
  • Who funds THE METHODIST HOSPITAL ↗
  • Who funds SCIENCE COACH INC ↗
  • Who funds UT SOUTHWESTERN HEALTH SYSTEMS ↗
  • Who funds MASS GENERAL BRIGHAM INCORPORATED ↗

Co-funders

Grantmakers whose grantees overlap with this funder’s far more than size alone predicts. Closer means stronger alignment; arcs show where they also fund each other. Here they form a tightly interlocked group: most of these funders back each other's grantees too.

President and Fellows…American Cancer Socie…National Philanthropi…Morgan Stanley Global…Vanguard Charitable E…Donor Advised Charita…American Online Givin…Fidelity Investments …
President and Fellows of Harvard CollegeMA13.4× affinity4 shared granteesties to 7 of 7Hover any node to trace its alignments.Compare side by side →

Open a dossier: President and Fellows of Harvard College · American Cancer Society Inc · National Philanthropic Trust · Morgan Stanley Global Impact Funding Trust Inc · Vanguard Charitable Endowment Program · Donor Advised Charitable Giving Inc · American Online Giving Foundation Inc · Fidelity Investments Charitable Gift Fund

How this is measured
Affinity is a Gamma-Poisson posterior co-funding rate, re-centered on the typical rate, so thin evidence shrinks toward no signal. Overlap is association, not proof of shared intent.

How much its grantees rely on government

Each dot is one organization National Ataxia Foundation Incorporated funds: left to right is the share of its income from government, bottom to top the share from National Ataxia Foundation Incorporated. Bigger dots raise more.

2024
’20’21’22’23’24’25
no gov · 10%1%3%6%10%funder's share of their income ↑0%15%30%45%60%share of the org’s income from government →median 12%
  • Johns Hopkins University: 12% of income from government
  • Yale University: 12% of income from government
  • University of Miami: 5% of income from government
no gov moneyreceives it· size = income
1get no government money at all
2report government grants on their 990 we could not trace to a source (not plotted)
0rely on government for over half their income
⤢ axis zoomed · 0–60%
typical government reliance, FY20–25
How this is measured
Government income is each org’s traced federal awards (USASpending grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that a grant caused the public funding. Coverage is precision-first, a floor rather than a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12 to 24 months.

On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 71 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

How this is measured
Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

Generated from the IRS Form 990 e-file return for fiscal year 2025, released 2025. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

Source object · view filing

Play a game based on National Ataxia’s filings →

More from the funding graph

The unnamed billions
grants reported with no recipient in the public record
The regranting layer
51% of grant dollars land in the regranting layer
The DAF merry-go-round
$9.7B circulates between donor-advised funds
The endowment market
who holds foundation money, and what just moved
The camps
funders cluster by geography, not ideology
By state
where grant money is based, and what stays home