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Huntington's Disease Society of America Inc at a glanceMostly funded, not a grantmaker: see who funds it →

· Public charity

Huntington's Disease Society of America Inc

To improve the lives of everyone impacted by huntington's disease by providing support, driving advocacy, and accelerating research.

$2.3M
Granted FY2025still arriving
65
Grants FY2025still arriving
37
States reached
$100k
Largest
01What it fundsRead
02The needRead
03Its granteesRead
04Its fieldRead
01What it funds
01100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2025.

Health$12MEducation$7.8MScience & Tech$240kArts & Culture$160kCommunity Improvement$23k
02FY2025 · 65 grants

Where the money goes

Grants by size, and the largest recipients.

How this is measured
The 65 grants below total $2,070,500, the rows itemized in this filing. The $2,298,001 headline is the total grant expense on the return; the other $227,501 is giving the schedule does not break out (grants under the $5,000 itemization floor, grants to individuals, grants on other schedules). Every figure below describes the itemized rows only.

By grant size · FY2025

  • Under $10k3 grants · $28k
  • $10k–50k57 grants · $1.7M
  • $50k–250k5 grants · $391k
$28,000
Median grant
37
States reached
$18M
Total assets
Largest grants
RecipientAmount
REGENTS OF THE UNIVERSITY OF MICHIGAN$100,000
MASSACHUSETTS GENERAL HOSPITAL$90,000
MASSACHUSETTS GENERAL HOSPITAL$90,000
REGENTS OF THE UNIVERSITY OF CALIFORNIA DAVIS HEALTH$60,500
UNIV OF WASHINGTON$50,000
UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER$47,000
TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA$46,500
VANDERBILT UNIVERSITY MEDICAL CENTER$45,000
OHIO STATE UNIVERSITY WEXNER MEDICAL CENTER$42,750
UNIVERSITY OF SOUTH FLORIDA$42,750
REGENTS UNIVERSITY OF CA LOS ANGELES$42,500
UNIVERSITY OF ALABAMA BIRMINGHAM$42,000
UNIVERSITY OF CALIFORNIA SAN DIEGO$41,750
RUSH UNIVERSITY MEDICAL CENTER$41,500
UNIVERSITY OF ROCHESTER MEDICAL CENTER$41,000
02The need
03

Does the money reach high-need areas?

Each grant placed by the hardship in its grantee’s ZIP, against the area’s typical level.

show:

Dollar for dollar, its grants (FY17–25) land where the poverty rate runs at 14%, against an area that typically sits at 11%. 84% of its dollars go to grantees based in above-average-need neighborhoods. Most of its grants land in higher-need ZIPs.

area typical 11%THE GENERAL HOSPITAL CORPORATION: $180k → 8%Beth Israel Deaconess Medical Center: $150k → 16%THE REGENTS OF THE UNIVERSITY OF CALIFORNIA IRVINE: $300k → 10%THE SALK INSTITUTE FOR BIOLOGICAL STUDIES: $240k → 11%REGENTS OF THE UNIVERSITY OF CALIFORNIA DAVIS HEALTH: $73k → 12%California Institute of Technology: $150k → 14%NEW YORK UNIVERSITY GROSSMAN SCHOOL OF MEDICINE: $180k → 17%THE UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT HOUSTON: $299k → 16%University of Central Florida: $94k → 13%University of Miami: $150k → 15%REGENTS OF THE UNIVERSITY OF MICHIGAN: $100k → 14%University of Washington: $60k → 9%Massachusetts General Hospital: $150k → 8%University of California Irvine: $240k → 10%Scripps Florida: $120k → 11%REGENTS OF THE UNIVERSITY OF CALIFORNIA DAVIS HEALTH: $73k → 12%THE UNIVERSITY OF CALIFORNIA LOS ANGELES: $240k → 14%Columbia University HD Center: $120k → 17%UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER: $56k → 16%UNIV OF WASHINGTON: $60k → 9%REGENTS OF THE UNIVERSITY OF CA AT IRVINE: $150k → 10%REGENTS OF THE UNIVERSITY OF CA SAN DIEGO: $276k → 11%Regents of the University of California Davis Hea: $71k → 12%UNIV OF WASHINGTON: $60k → 9%UNIVERSITY OF CALIFORNIA SAN DIEGO: $199k → 11%REGENTS OF THE UNIVERSITY OF CALIFORNIA DAVIS HEALTH: $71k → 12%UNIV OF WASHINGTON: $60k → 9%Regents of the University of California: $95k → 11%THE REGENTS OF THE UNIVERSITY OF CALIFORNIA DAVIS HEALTH: $70k → 12%Columbia University Medical Center: $75k → 17%UNIVERSITY OF WASHINGTON: $58k → 9%Regents of the University of California: $70k → 11%Univ of California Davis Medi: $70k → 12%THE UNIVERSITY OF CENTRAL FLORIDA BOARD OF TRUSTEES: $75k → 13%University of Washington: $58k → 9%Univ of California Davis Medi: $65k → 12%THE UNIVERSITY OF CENTRAL FLORIDA BOARD OF TRUSTEES: $75k → 13%VANDERBILT UNIVERSITY MEDICAL CENTER: $150k → 14%Univ of California Davis Medi: $65k → 12%MASSACHUSETTS GENERAL HOSPITAL: $149k → 16%REGENTS OF THE UNIVERSITY OF CALIFORNIA DAVIS HEALTH: $61k → 12%MASSACHUSETTS GENERAL HOSPITAL: $90k → 16%RESEARCH FOUNDATION OF THE CITY UNIVERSITY OF NEW YORK: $137k → 17%MASSACHUSETTS GENERAL HOSPITAL: $90k → 16%UNIVERSITY OF WASHINGTON: $150k → 17%RUSH UNIVERSITY MEDICAL CENTER: $149k → 14%Massachusetts General Hospital: $98k → 16%Rush University Medical Center: $56k → 14%0%20%40%50%more need →
grant to an above-average-need area below average· circle size = grant amount
How this is measured
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty line in the grantee’s ZIP, averaged from the tracts in that ZIP.

Which US states its grants reach

VT
NH
WA
ND
MN
IL
WI
MI
NY
MA
OR
IA
IN
OH
PA
NJ
CT
CA
UT
CO
NE
MO
KY
VA
MD
AZ
KS
AR
TN
NC
SC
DC
LA
MS
AL
GA
TX
FL
How this is measured
US grants placed by each grantee’s ZIP, which can differ from where services are delivered. Need from public data (U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA), shown as context about the area, never attributed to the funder’s giving.
03Its grantees
repeat funding

Who it funds again

Organizations funded in more than one year, against those funded once.

93%of every dollar goes to organizations it has funded before.
$18M · 81 repeat orgs$1.3M to everyone else

Grantees it renews have grown median revenue +55% since the first grant, against +14% for those funded once.

81 repeat relationships: 60 still active in FY2025, 21 since wound down; 1 grantees were first funded in FY2025 (too recent to call).

How the two cohorts compare

Re-uppedFunded once

Organizations

81
16

Total granted

$18M
$1.2M

Median revenue growth · since first grant

+55%
+14%

Still filing today

48%
56%

New vs renewed · share of each year

In FY2025, 95% of grant dollars renewed an existing relationship; $100k went to new ones.

50%100%’17’18’19’20’21’22’23’24’25
RenewedFirst-time

Where new relationships form · theme of each grantee’s first grant

’17’18’19’20’21’22’23’24’25
HealthEducationRecreation & SportsEmploymentMembership BenefitArts & CultureOther
How this is measured
First-time means a grantee’s first year in the filing window; renewed means funded in an earlier year too. The renewed share climbs naturally as a portfolio matures, so the signal is a year that bucks it (a wave of new grantees). The earliest year is left-censored: relationships that predate the data read as new. Theme is the grantee’s IRS cause.

Backed again, and grew

  • VU
    Vanderbilt University Medical Center
    9× · 2017–2025 · $568k · revenue +120%
  • RU
    Rush University Medical Center
    9× · 2017–2025 · $548k · revenue +51%
  • BI
    BETH ISRAEL DEACONESS MEDICAL CENTER INC
    9× · 2017–2025 · $465k · revenue +99%

Funded once

  • TS
    The Salk Institute for Biological Studies
    one grant, 2022 · $240k · revenue +12%
  • NY
    NEW YORK UNIVERSITY SCHOOL OF MEDICINE
    one grant, 2024 · $180k
  • CI
    CALIFORNIA INSTITUTE OF TECHNOLOGY
    one grant, 2017 · $150k · revenue +14%
How this is measured

Repeat means funded in two or more distinct years. Growth and survival are read from each grantee’s own subsequent IRS filings.

04Its field

Closest unfunded matches

The nonprofits that most resemble its grantees but are not funded by it, scored along the direction from the rest of the field toward the portfolio. A resemblance in what they say they do, not a recommendation.

1
University of Minnesota Physicians

University of minnesota physicians serves as the integrated group practice for the university of minnesota medical school full-time faculty to provide the highest quality healthcare to patients and their families.university of minnesota…

Health
2
New York University

Nyu is a private university with approximately 60,000 matriculating students in 20 schools and institutes. nyu's primary missions are education, research and scholarship, and patient care.

Education
3
Thomas Jefferson University

Thomas jefferson university ("tju") is a comprehensive university with preeminence in transdisciplinary, experiential professional education, research and discovery, delivering exceptional value for the 21st century students with…

Education
4
University of Chicago Medical Center

Our mission at the university of chicago medicine is to provide superior health care through rigorous research, innovative education, and comprehensive care and healing. in partnership with our colleagues, we pursue life-changing…

Health
5
Truman Medical Center Incorporated

University health is an academic health center providing accessible, state-of-the-art quality healthcare to our community regardless of the ability to pay.

Health
6
University of Southern California

The central mission of the university of southern california is the development of human beings and society as a whole through the cultivation and enrichment of the human mind and spirit. the principal means by which our mission is…

Education
7
Cornell University

Education, research, medical services and other public services.

Education
8
The Johns Hopkins Hospital

For more than 125 years, the mission of the johns hopkins hospital has been to lead the world in the diagnosis and treatment of disease and to train tomorrow's great physicians, nurses and scientists. above all, we aim to provide the…

Health
9
Massachusetts Eye & Ear Infirmary

THE MASSACHUSETTS EYE AND EAR INFIRMARY ("THE INFIRMARY") IS A NOT-FOR-PROFIT TEACHING HOSPITAL CONDUCTING PATIENT CARE AND RESEARCH. THE INFIRMARY IS A TEACHING HOSPITAL OF HARVARD MEDICAL SCHOOL AND AN INTERNATIONAL CENTER FOR RESEARCH.…

Health
10
Mass General Brigham Incorporated & Affiliates Group Return

Mass general brigham incorporated is developing an integrated health care delivery system throughout the region that offers patients a continuum of coordinated, high-quality care.

Health
11
Case Western Reserve University

Case Western Reserve University is an independent, research-oriented university with broadly based strengths in health, including medicine, nursing and dentistry; in engineering; in the arts and sciences; and in law, management and social…

Education
12
Rhode Island Hospital

As a founding hospital in the brown university health system, rih is committed to its mission: delivering health with care.

Health
How this is measured
The grantee most central to the portfolio’s shape is The Medstar-Georgetown Medical Center Inc; the most unlike its peers is Washington University Student Media Inc. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.
04the grantee network

54 grantees tracked through their own filings, 2017–2025.

Each grant beside the grantee’s revenue from every source, year by year.

How this is measured

Counted here: distinct organizations funded across 2017 to 2025, not grant rows in a single year, so this will not match the grant count on the cover. 54 of the 101 grantees resolved in that span have returns of their own we could reconcile.

Each grantee is resolved to its own IRS returns. Association, dated; never a causal claim.

1
Load-bearing (≥25% of a budget)
1
Early backer (in before they grew)
51/54
Grantees still filing
48/54
Grew since first funded

Where the money sits, by cause and then by grantee

REGENTS OF THE UNIVERSITY OF CALIFORNIA AT SAN DIEGO: $877,117 · OtherREGENTS OF THE UNIVERSITY OF CALIFORNIA AT SAN DIEGOREGENTS OF THE UNIVERSITY OF CALIFORNIA AT IRVINE: $803,250 · OtherREGENTS OF THE UNIVERSITY OF CALIFORNIA AT IRVINEMASS GENERAL BRIGHAM INCORPORATED: $706,111 · OtherMASS GENERAL BRIGHAM INCORPORATEDUNIVERSITY OF TEXAS HEALTH SCIENCE CENTER HOUSTON: $659,157 · OtherUNIVERSITY OF TEXAS HEALTH SCIENCE CENTER HOUSTONUNIVERSITY OF CALIFORNIA DAVIS: $618,911 · OtherUNIVERSITY OF CALIFORNIA DAVISREGENTS UNIV OF CALIFORNIA: $602,848 · OtherREGENTS UNIV OF CALIFORNIAUNIVERSITY OF WASHINGTON: $498,668 · OtherUNIVERSITY OF MASSACHUSETTS: $482,000 · OtherRECTOR & VISITORS OF THE UNIVERSITY OF VIRGINIA: $398,468 · Other+41 more: $5,244,635 · Other+41 moreVanderbilt University Medical Center: $567,999 · HealthVanderbilt University M…Rush University Medical Center: $547,575 · HealthRush University Medical…BETH ISRAEL DEACONESS MEDICAL CENTER INC: $464,688 · HealthBETH ISRAEL DEACONESS M…HENNEPIN HEALTHCARE RESEARCH INSTITUTE: $290,515 · HealthHENNEPIN HEALTHCARE RES…MOVEMENT DISORDERS FOUNDATION: $269,900 · HealthMOVEMENT DISORDERS FOUN…Columbia University Health Care Inc: $203,940 · HealthOCHSNER CLINIC FOUNDATION: $200,455 · HealthUC HEALTHCARE SYSTEM: $166,250 · HealthDIGNITY HEALTH: $147,000 · HealthTHE UNIVERSITY OF VERMONT MEDICAL CENTER: $142,031 · HealthUNIVERSITY NEUROLOGY INC: $137,000 · Health+16 more: $967,930 · Health+16 moreTHE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK: $420,936 · EducationTHE TRUSTEES OF COLUMB…TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA: $358,000 · EducationTRUSTEES OF THE UNIVER…WASHINGTON UNIVERSITY: $355,250 · EducationWASHINGTON UNIVERSITYJOHNS HOPKINS UNIVERSITY: $319,850 · EducationJOHNS HOPKINS UNIVERSI…University of Miami: $294,500 · EducationUniversity of MiamiOHIO STATE UNIVERSITY FOUNDATION: $287,935 · EducationOHIO STATE UNIVERSITY …DUKE UNIVERSITY: $273,513 · EducationDUKE UNIVERSITYUNIVERSITY OF ROCHESTER: $269,500 · EducationUNIVERSITY OF ROCHESTE…Emory University: $245,500 · EducationEmory UniversityGEORGETOWN UNIVERSITY: $227,000 · EducationGEORGETOWN UNIVERSITYCALIFORNIA INSTITUTE OF TECHNOLOGY: $150,000 · EducationUniversity of Louisville Research Foundation: $144,250 · EducationResearch Foundation of the City University of New York: $136,830 · Education+6 more: $371,722 · Education+6 moreNorthwestern University: $383,650 · Recreation & SportsThe Salk Institute for Biological Studies: $240,000 · Science & TechWASHINGTON UNIVERSITY STUDENT MEDIA INC: $160,490 · EmploymentNY PRESBYTERIAN HOSPITAL COLUMBIA UNIVERSITY MEDICAL CTRNYSNA RETIREE MEDIC AL PLAN TRUST: $75,000 · Membership BenefitJohn P McGovern Museum of Health & Medical Science: $12,500 · Arts & Culture
Other$10,891,165Health$4,105,283Education$3,854,786Recreation & Sports$383,650Science & Tech$240,000Employment$160,490Membership Benefit$75,000Arts & Culture$12,500

Each grantee by its size and the funder’s share of it; top left is load-bearing

25%50%75%100%$1.0M$10M$100Mgrantee revenue →↑ funder's share of their budgetVanderbilt University Medical Center: $567,999 over 9y, 0.0% of budgetRush University Medical Center: $547,575 over 9y, 0.0% of budgetBETH ISRAEL DEACONESS MEDICAL CENTER INC: $464,688 over 9y, 0.0% of budgetTHE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK: $420,936 over 7y, 0.0% of budgetNorthwestern University: $383,650 over 9y, 0.0% of budgetTRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA: $358,000 over 9y, 0.0% of budgetWASHINGTON UNIVERSITY: $355,250 over 9y, 0.0% of budgetJOHNS HOPKINS UNIVERSITY: $319,850 over 9y, 0.0% of budgetUniversity of Miami: $294,500 over 7y, 0.0% of budgetHENNEPIN HEALTHCARE RESEARCH INSTITUTE: $290,515 over 9y, 0.1% of budgetOHIO STATE UNIVERSITY FOUNDATION: $287,935 over 6y, 0.0% of budgetDUKE UNIVERSITY: $273,513 over 9y, 0.0% of budgetMOVEMENT DISORDERS FOUNDATION: $269,900 over 7y, 38% of budgetUNIVERSITY OF ROCHESTER: $269,500 over 6y, 0.0% of budgetEmory University: $245,500 over 9y, 0.0% of budgetThe Salk Institute for Biological Studies: $240,000 over 1y, 0.1% of budgetGEORGETOWN UNIVERSITY: $227,000 over 7y, 0.0% of budgetColumbia University Health Care Inc: $203,940 over 3y, 0.4% of budgetOCHSNER CLINIC FOUNDATION: $200,455 over 9y, 0.0% of budgetUC HEALTHCARE SYSTEM: $166,250 over 5y, 0.0% of budgetWASHINGTON UNIVERSITY STUDENT MEDIA INC: $160,490 over 3y, 17% of budgetCALIFORNIA INSTITUTE OF TECHNOLOGY: $150,000 over 1y, 0.0% of budgetDIGNITY HEALTH: $147,000 over 5y, 0.0% of budgetUniversity of Louisville Research Foundation: $144,250 over 5y, 0.0% of budgetTHE UNIVERSITY OF VERMONT MEDICAL CENTER: $142,031 over 7y, 0.0% of budgetUNIVERSITY NEUROLOGY INC: $137,000 over 7y, 0.1% of budgetResearch Foundation of the City University of New York: $136,830 over 1y, 0.0% of budgetUNIVERSITY OF ALABAMA HEALTH SERVICES FOUNDATION PC: $129,707 over 3y, 0.0% of budgetUniversity of South Florida Foundation Inc: $120,900 over 4y, 0.0% of budgetTHE SCRIPPS RESEARCH INSTITUTE: $120,000 over 1y, 0.0% of budgetSTANFORD HEALTH CARE: $111,923 over 6y, 0.0% of budgetUNIVERSITY HEALTH SYSTEM INC: $101,000 over 8y, 0.0% of budgetThe Research Foundation for The State University of New York: $99,053 over 6y, 0.0% of budgetThe Kansas University Endowment Association: $89,619 over 5y, 0.0% of budgetHENRY FORD HEALTH SYSTEM: $82,000 over 5y, 0.0% of budgetNY PRESBYTERIAN HOSPITAL COLUMBIA UNIVERSITY MEDICAL CTRNYSNA RETIREE MEDIC AL PLAN TRUST: $75,000 over 1y, 7.9% of budgetPrisma Health-Midlands: $73,000 over 3y, 0.0% of budgetCOLORADO NEUROLOGICAL INSTITUTE: $70,000 over 2y, 4.7% of budgetALBANY MED HEALTH SYSTEM: $67,000 over 2y, 0.0% of budgetTHE CLEVELAND CLINIC FOUNDATION: $64,600 over 3y, 0.0% of budgetTHE UNIVERSITY OF VERMONT HEALTH NETWORK: $49,000 over 2y, 0.1% of budgetThe Nebraska Medical Center: $45,525 over 3y, 0.0% of budgetTHE BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY: $30,750 over 2y, 0.0% of budgetUNIVERSITY OF WISCONSIN MEDICAL ALUMNI ASSOCIATION INC: $30,450 over 2y, 2.3% of budgetAdventHealth Foundation Inc: $29,500 over 4y, 0.0% of budgetMary Hitchcock Memorial Hospital: $29,500 over 3y, 0.0% of budgetERLANGER FOUNDATION: $26,000 over 2y, 0.1% of budgetTHE MEDSTAR-GEORGETOWN MEDICAL CENTER INC: $25,000 over 1y, 0.0% of budget
Grantee by grantee: a decade per organization, before and after funding

A decade per grantee: revenue shaded, grants as bars, all rows on one timeline.

  • Who funds Vanderbilt University Medical Center ↗
  • Who funds Rush University Medical Center ↗
  • Who funds BETH ISRAEL DEACONESS MEDICAL CENTER INC ↗
  • Who funds THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK ↗
  • Who funds Northwestern University ↗
  • Who funds TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA ↗
  • Who funds WASHINGTON UNIVERSITY ↗
  • Who funds JOHNS HOPKINS UNIVERSITY ↗
  • Who funds University of Miami ↗
  • Who funds HENNEPIN HEALTHCARE RESEARCH INSTITUTE ↗
  • Who funds OHIO STATE UNIVERSITY FOUNDATION ↗
  • Who funds DUKE UNIVERSITY ↗
  • Who funds MOVEMENT DISORDERS FOUNDATION ↗
  • Who funds UNIVERSITY OF ROCHESTER ↗
  • Who funds Emory University ↗
  • Who funds The Salk Institute for Biological Studies ↗
  • Who funds GEORGETOWN UNIVERSITY ↗
  • Who funds Columbia University Health Care Inc ↗
  • Who funds OCHSNER CLINIC FOUNDATION ↗

Co-funders

Grantmakers whose grantees overlap with this funder’s far more than size alone predicts. Closer means stronger alignment; arcs show where they also fund each other. Here they form a tightly interlocked group: most of these funders back each other's grantees too.

American Cancer Socie…Muscular Dystrophy As…American Heart Associ…Cystic Fibrosis Found…Parkinson's Foundatio…The Children's Hospit…Vanderbilt University…Mayo ClinicThe Trustees of Colum…The Children's Oncolo…Amyotrophic Lateral S…Washington University
American Cancer Society IncGA35.1× affinity16 shared granteesties to 11 of 11Hover any node to trace its alignments.Compare side by side →

Open a dossier: American Cancer Society Inc · Muscular Dystrophy Association Inc · American Heart Association Inc · Cystic Fibrosis Foundation · Parkinson's Foundation Inc · The Children's Hospital of Philadelphia · Vanderbilt University Medical Center · Mayo Clinic · The Trustees of Columbia University in the City of New York · The Children's Oncology Group Foundation Inc · Amyotrophic Lateral Sclerosis Assn · Washington University

How this is measured
Affinity is a Gamma-Poisson posterior co-funding rate, re-centered on the typical rate, so thin evidence shrinks toward no signal. Overlap is association, not proof of shared intent.

How much its grantees rely on government

Each dot is one organization Huntington's Disease Society of America Inc funds: left to right is the share of its income from government, bottom to top the share from Huntington's Disease Society of America Inc. Bigger dots raise more.

2024
’20’21’22’23’24’25
no gov · 10%2%8%17%30%funder's share of their income ↑0%25%50%75%100%share of the org’s income from government →median 5%
  • Johns Hopkins University: 12% of income from government
  • Beth Israel Deaconess Medical Center Inc: 6% of income from government
  • University of Miami: 5% of income from government
  • The University of Vermont Health Network: 2% of income from government
  • The University of Vermont Medical Center: 1% of income from government
no gov moneyreceives it· size = income
1get no government money at all
7report government grants on their 990 we could not trace to a source (not plotted)
0rely on government for over half their income
typical government reliance, FY20–25
How this is measured
Government income is each org’s traced federal awards (USASpending grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that a grant caused the public funding. Coverage is precision-first, a floor rather than a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12 to 24 months.

On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 101 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

How this is measured
Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

Generated from the IRS Form 990 e-file return for fiscal year 2025, released 2025. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

Source object · view filing

Play a game based on Huntington's Disease Society of America’s filings →

More from the funding graph

The unnamed billions
grants reported with no recipient in the public record
The regranting layer
51% of grant dollars land in the regranting layer
The DAF merry-go-round
$9.7B circulates between donor-advised funds
The endowment market
who holds foundation money, and what just moved
The camps
funders cluster by geography, not ideology
By state
where grant money is based, and what stays home