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· Public charity

Alzheimers Disease Data Initiative Inc

Alzheimer's Disease Data Initiative is a coalition of leading academic, advocacy, government, industry, and philanthropy organizations that recognizes the need for dementia researchers to find easier ways to share data, analytical tools, and scientific findings.

$3.0M
Granted FY2024still arriving
9
Grants FY2024still arriving
1
States reached
$225k
Largest
01What it funds
01100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2021 to 2024.

Health$4.0MScience & Tech$745kEducation$150k
02FY2024 · 9 grants

Where the money goes

Grants by size, and the largest recipients.

How this is measured
The 9 grants below total $1,095,289, the rows itemized in this filing. The $3,014,488 headline is the total grant expense on the return; the other $1,919,199 is giving the schedule does not break out (grants under the $5,000 itemization floor, grants to individuals, grants on other schedules). Every figure below describes the itemized rows only.
$125,289
Median grant
1
States reached
$2.0M
Total assets
Largest grants
RecipientAmount
Davos Alzheimer's Collaborative (DAC)$225,000
Georgia State University Research Foundation (GSU)$200,000
Sage Bionetworks$195,000
Individual grant recipient$150,000
American Heart Association (AHA)$125,289
Washington University in St Louis$50,000
University of California San Francisco (UCSF)$50,000
State of Maryland University of Maryland Baltimore$50,000
Alleo Labs Corporation$50,000
02The need
03

Does the money reach high-need areas?

Each grant placed by the hardship in its grantee’s ZIP, against the area’s typical level.

show:

Dollar for dollar, its grants (FY21–24) land where the poverty rate runs at 14%, against an area that typically sits at 9%. 96% of its dollars go to grantees based in above-average-need neighborhoods. Most of its grants land in higher-need ZIPs.

area typical 9%BANNER ALZHEIMERs INSTITUTE: $296k → 11%Critical Path Institute: $1.8M → 15%Vivli Inc: $55k → 8%Boston University: $366k → 16%Alleo Labs Corporation: $50k → 10%Davos Alzheimers Collaborative Inc: $560k → 14%Washington University in St Louis: $50k → 11%University of Washington Foundation: $91k → 9%Answer ALS: $150k → 15%State of Maryland University of Maryland Baltimore: $50k → 19%Banner Health: $296k → 11%Alleo Labs Corporation: $50k → 10%0%20%40%50%more need →
grant to an above-average-need area below average· circle size = grant amount
How this is measured
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty line in the grantee’s ZIP, averaged from the tracts in that ZIP.

Which US states its grants reach

WA
MA
CA
MO
MD
AZ
DC
LA

Grants abroad, by region: $1.9M on the FY2024 return

Schedule F, as filed: 3 regions. The IRS asks for region and purpose, not the recipient, so no country or grantee can be named here.

Europe (including Iceland and Greenland)$1.8M · 95% · 6 grants

Stated purpose: Platform interoperability, data sharing, data harmonization · Data sharing, coordination with sites making data sharable · International data sharing and analysis pilot projects

South Asia$50k · 3% · 1 grant

Stated purpose: Gates Sr. AD Fellowship recipient award

East Asia and the Pacific$50k · 3% · 1 grant

Stated purpose: Gates Sr. AD Fellowship recipient award

How this is measured
US grants placed by each grantee’s ZIP, which can differ from where services are delivered. Need from public data (U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA), shown as context about the area, never attributed to the funder’s giving. Grants abroad on Schedule F are filed by region, purpose and amount with no recipient name, so they are shown by region and cannot be placed on the country map or matched to a grantee.
04

Where the work is directed

The same grants placed two ways: where each recipient sits, and where its stated purpose sends the money.

About 25% of Alzheimers Disease Data Initiative Inc’s grant dollars are earmarked for a different county than the recipient’s own address.

Alzheimers Disease Data Initiative Inclessmore of its giving
Placed by recipient address · 12% directed abroad (not shown)
How this is measured
Recipient view: each grant at its grantee’s ZIP, mapped to a county. Directed view: each grant at the county its stated purpose names, falling back to the recipient’s county when the purpose names no place; US grants only. A county shows only if it carries the top 95% of that view’s dollars. Purposes are read from the funder’s own 990 grant descriptions.
03Its field

Closest unfunded matches

The nonprofits that most resemble its grantees but are not funded by it, scored along the direction from the rest of the field toward the portfolio. A resemblance in what they say they do, not a recommendation.

1
Target Als Foundation Inc

Our mission is to break down barriers to als research to find effective treatments. by uniting academia, the pharma and biotech industry, government, venture capital, related nonprofits, and the als community, we aim to overcome the…

Education
2
Access to Advanced Health Institute

Aahi is a nonprofit biotech research institute, bringing together the best experts, technologies, and platforms to create accessible, high-quality products and solutions for harnessing the immune system to alleviate disease.

Health
3
Foundation for the National Institutes of Health Inc

To create and lead alliances and public-private partnerships that advance breakthrough biomedical discoveries and improve the quality of people's lives

Health
4
Sanford Burnham Prebys Medical Discovery Institute

Sanford burnham prebys medical discovery institute's mission is to advance the biomedical sciences by cultivating the next generation of scientific leaders, providing meaningful opportunities for researchers of all backgrounds to learn,…

Health
5
New York Genome Center Inc

Operate a state-of-the-art, world-class genomic research center that creates and uses advanced genomics to understand the genetic basis of disease. for more information, see schedule o.

Health
6
The Jackson Laboratory

The purposes of the laboratory are scientific, medical, charitable, and educational. our mission is to discover precise genomic solutions for disease and empower the biomedical community.

Health
7
New York University

Nyu is a private university with approximately 60,000 matriculating students in 20 schools and institutes. nyu's primary missions are education, research and scholarship, and patient care.

Education
8
Fred Hutchinson Cancer Center

Fred hutch cancer center ("fred hutch") unites innovative research and compassionate care to prevent and eliminate cancer and infectious disease. continued on schedule o

Health
9
Albany College of Pharmacy and Health Sciences

We educate the next generation of leaders to improve the health of our society.

Education
10
Colorado Longitudinal Study

Advancing the health of people through advancing the science of medicine. the colorado longitudinal study (cols) is building the world's most comprehensive longitudinal collection of biological specimens matched with clinical health and…

Education
11
Lupus Research Alliance Inc

Putting people with lupus at the center of all we do, the lupus research alliance drives the discovery & development of next generation lupus diagnostics and curative treatments through innovative research & collaborations.

Health
12
Palo Alto Veterans Institute for Research

Pavir's mission is advancing veterans and public health through innovative research. pavir works with more than 100 principal investigators and 200 research staff to support basic science, clinical and health services research to realize…

Health
How this is measured
The grantee most central to the portfolio’s shape is Trustees of Boston University; the most unlike its peers is Banner Health. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.
05the grantee network

8 grantees tracked through their own filings, 2017–2025.

Each grant beside the grantee’s revenue from every source, year by year.

How this is measured

Counted here: distinct organizations funded across 2017 to 2025, not grant rows in a single year, so this will not match the grant count on the cover. 8 of the 19 grantees resolved in that span have returns of their own we could reconcile.

Each grantee is resolved to its own IRS returns. Association, dated; never a causal claim.

0
Load-bearing (≥25% of a budget)
0
Early backer (in before they grew)
8/8
Grantees still filing
7/8
Grew since first funded

Where the money sits, by cause and then by grantee

CRITICAL PATH INSTITUTE: $1,833,822 · HealthCRITICAL PATH INSTITUTEBanner Health: $591,000 · HealthBanner HealthDAVOS ALZHEIMER'S COLLABORATIVE INC: $560,000 · HealthDAVOS ALZHEIMER'S COLLABORATIVE INCANSWER ALS: $150,000 · Health+1 more: $54,750 · HealthTRUSTEES OF BOSTON UNIVERSITY: $365,766 · OtherTRUSTEES OF BOSTON UNIVERSITYDavos Alzheimer's Collaborative (DAC): $225,000 · OtherDavos Alzheimer's Collaborative (DAC…Georgia State University Research Foundation (GSU): $200,000 · OtherGeorgia State University Research Fo…Sage Bionetworks: $195,000 · OtherSage BionetworksIndividual grant recipient: $150,000 · OtherIndividual grant recipientAmerican Heart Association (AHA): $125,289 · OtherAmerican Heart Association (AHA)+6 more: $300,000 · Other+6 moreUNIVERSITY OF WASHINGTON FOUNDATION: $91,253 · EducationWASHINGTON UNIVERSITY: $50,000 · Education
Health$3,189,572Other$1,561,055Education$141,253

Each grantee by its size and the funder’s share of it; top left is load-bearing

25%50%75%100%$10M$100Mgrantee revenue →↑ funder's share of their budgetCRITICAL PATH INSTITUTE: $1,833,822 over 1y, 7.5% of budgetBanner Health: $591,000 over 2y, 0.0% of budgetDAVOS ALZHEIMER'S COLLABORATIVE INC: $560,000 over 1y, 5.7% of budgetTRUSTEES OF BOSTON UNIVERSITY: $365,766 over 1y, 0.0% of budgetANSWER ALS: $150,000 over 1y, 4.1% of budgetUNIVERSITY OF WASHINGTON FOUNDATION: $91,253 over 1y, 0.1% of budgetVIVLI INC: $54,750 over 1y, 1.1% of budgetWASHINGTON UNIVERSITY: $50,000 over 1y, 0.0% of budget
Grantee by grantee: a decade per organization, before and after funding

A decade per grantee: revenue shaded, grants as bars, all rows on one timeline.

  • Who funds CRITICAL PATH INSTITUTE ↗
  • Who funds Banner Health ↗
  • Who funds DAVOS ALZHEIMER'S COLLABORATIVE INC ↗
  • Who funds TRUSTEES OF BOSTON UNIVERSITY ↗
  • Who funds ANSWER ALS ↗
  • Who funds UNIVERSITY OF WASHINGTON FOUNDATION ↗
  • Who funds VIVLI INC ↗
  • Who funds WASHINGTON UNIVERSITY ↗

How much its grantees rely on government

Each dot is one organization Alzheimers Disease Data Initiative Inc funds: left to right is the share of its income from government, bottom to top the share from Alzheimers Disease Data Initiative Inc. Bigger dots raise more.

2024
’20’21’22’23’24’25
no gov · 00%1%3%6%10%funder's share of their income ↑0%23%45%68%90%share of the org’s income from government →median 12%
  • Trustees of Boston University: 12% of income from government
no gov moneyreceives it· size = income
0get no government money at all
1report government grants on their 990 we could not trace to a source (not plotted)
0rely on government for over half their income
⤢ axis zoomed · 0–90%
typical government reliance, FY20–25
How this is measured
Government income is each org’s traced federal awards (USASpending grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that a grant caused the public funding. Coverage is precision-first, a floor rather than a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12 to 24 months.
04Through Plinth

Warm introductions · Powered by PlinthPlus

How do I get to Alzheimers Disease Data Initiative Inc?

Find your warmest path to Alzheimers Disease Data Initiative Inc through trustees and officers whose names appear on both boards. Search for your organization and Plinth traces the shortest route it can evidence.

Each link is a name appearing on two organizations’ public IRS 990 filings, matched on that name and, where the filings support it, on location. A same-state match has geographic support, which is a second matching feature rather than confirmation that the two are one person; a cross-state one is the likeliest to be two people who share a name. Every hop shows its tier, low-confidence and distant paths are held back rather than guessed, and it is worth confirming the person before you use the introduction.

On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 19 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

How this is measured
Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

Generated from the IRS Form 990 e-file return for fiscal year 2024, released 2024. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

Source object · view filing

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