Tennessee · Nonprofit
USA ANIRIDIA NETWORK DBA ANIRIDIA FOUNDATION INTERNATIONAL
USA ANIRIDIA NETWORK DBA ANIRIDIA FOUNDATION INTERNATIONAL (Tennessee) receives grants from 2 organizations whose IRS filings report $7,357 to it, the largest being NETWORK FOR GOOD ($6,357). 0 of them have funded it in more than one year, and 86% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- Revenue FY2025
- $51k
- Funders on record
- 2
- Grants received
- $7k
- Net assets
- $130k
What USA Aniridia Network Dba Aniridia Foundation International does
Mission
To provide education, peer support, consulting, and programs/services for individuals and families affected by aniridia syndrome, a rare genetic disorder caused by a mutation in the pax6 gene. This condition results in low vision or blindness and is often associated with complex, lifelong medical challenges, including childhood glaucoma, cataracts, retinal disease, corneal complications due to limbal stem cell deficiency (lscd), metabolic disorders, a rare form of monogenic diabetes and neurological conditions. Because aniridia syndrome is degenerative and has no known cure, the organization is dedicated to improving quality of life by advancing knowledge, supporting affected individuals and families, and contributing to research efforts aimed at developing treatments and, ultimately, a cure.
As stated on its FY2025 Form 990-EZ.
Programs
The organization provides education and support to individuals and families affected by aniridia syndrome. Resources include an informational website, educational materials, and the book publication "aniridia and wagr syndrome: a guide for patients and their families." the organization also facilitates connections between affected individuals and families for shared learning and support. Emotional support and peer consulting are central to the mission. Services include mentorship and guidance for parents of newly diagnosed children, as well as support for individuals navigating education, employment, and independent living with visual impairment. Volunteers provide career- related mentoring according to their expertise in the area. Financial support assistance is available for individuals in need through the chris albrecht hope (helping other people) fund, which supports medical, non-medical, and mental health-related expenses based on demonstrated need via application.
$23,906 spentof which $1,847 as grants44% of program spendingThe organization collaborates with medical professionals and researchers to advance understanding of aniridia syndrome. Activities include participation in research initiatives, sharing patient-informed data, and translating complex medical information into accessible resources for affected families. Leadership actively contributes to the field through speaking engagements at medical and vision-related conferences, authorship, and direct consultation with families and professionals. The organization also promotes public awareness through outreach efforts that educate communities about aniridia syndrome, visual impairment, and the importance of research. These efforts aim to increase professional engagement, improve patient outcomes, and encourage broader support for the visually impaired community.
$4,996 spent9% of program spendingThe organization supports and advances research on aniridia syndrome through multiple initiatives: 1.providing funding for research studies, either independently or in collaboration with other vision-focused organizations. 2.partnering with medical professionals and researchers to facilitate clinical trials and encourage participation from affected individuals. 3.maintaining a secure, de-identified patient registry to support research efforts. Access to registry data is granted to qualified researchers upon review and approval by medical and research advisors. Recent research initiatives include studies addressing limbal stem cell deficiency (lscd), with potential applications for individuals with aniridia syndrome. However, we have seen that it could potentially also in addition help others with corneal damage due to lscd from injury (chemical / thermal burns to the eyes) or other corneal disease.
$25,133 spent47% of program spending
The 3 programs described on its FY2025 Form 990-EZ. Program spending in total: $54,035.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2021 to 2022, from $410k to $311k (−24%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
89% of USA ANIRIDIA NETWORK DBA ANIRIDIA FOUNDATION INTERNATIONAL’s revenue is contributions — about as donation-reliant as the typical peer (100% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 5 of the last 9 reported years ran a deficit.
Leadership and staff
Board chair
Michael Marrazzo
Chair
As listed on its FY2025 Form 990-EZ.
Who funds it, year by year
2017 → 2019: the base held at 1 funder, grant income rose $1k → $6k.
1 of 2 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 86% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of USA ANIRIDIA NETWORK DBA ANIRIDIA FOUNDATION INTERNATIONAL’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
USA ANIRIDIA NETWORK DBA ANIRIDIA FOUNDATION INTERNATIONAL leans on a few funders — its largest provides 86% of grant income and the top three 100%; half comes from just 1 funder.
the vertical line marks half of all grant income — 1 funder to its left
86% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund USA ANIRIDIA NETWORK DBA ANIRIDIA FOUNDATION INTERNATIONAL.
Largest funder’s share by year: 2017 100% · 2019 100% — broadly stable.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Where its funders are
86% of USA ANIRIDIA NETWORK DBA ANIRIDIA FOUNDATION INTERNATIONAL's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $1k that is directly attributable, 100% of it comes from funders outside Tennessee, across 1 state.
Funder states come from each funder’s own filing. $6k arriving through sponsors registered in 1 state is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
USA ANIRIDIA NETWORK DBA ANIRIDIA FOUNDATION INTERNATIONAL's revenue fell 66% between 2017 and 2025.
this organization peer median middle 50% of peers· 6,360 health nonprofits under $100k, FY2025
Organizations like USA ANIRIDIA NETWORK DBA ANIRIDIA FOUNDATION INTERNATIONAL
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Tennessee
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Public support
69%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Screen this organization
A dated, signed PDF of the compliance screen for USA ANIRIDIA NETWORK DBA ANIRIDIA FOUNDATION INTERNATIONAL: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds USA ANIRIDIA NETWORK DBA ANIRIDIA FOUNDATION INTERNATIONAL?
- USA ANIRIDIA NETWORK DBA ANIRIDIA FOUNDATION INTERNATIONAL (Tennessee) receives grants from 2 organizations whose IRS filings report $7,357 to it, the largest being NETWORK FOR GOOD ($6,357). 0 of them have funded it in more than one year, and 86% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- How many funders does USA ANIRIDIA NETWORK DBA ANIRIDIA FOUNDATION INTERNATIONAL have?
- IRS filings report 2 organizations giving $7,357 in grants to USA ANIRIDIA NETWORK DBA ANIRIDIA FOUNDATION INTERNATIONAL.
- Who is the largest funder of USA ANIRIDIA NETWORK DBA ANIRIDIA FOUNDATION INTERNATIONAL?
- NETWORK FOR GOOD is the largest funder on record, with $6,357 in grants. The full list of funders is on this page.
- How can an organization like USA ANIRIDIA NETWORK DBA ANIRIDIA FOUNDATION INTERNATIONAL find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Tennessee. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
Play a game about who funds USA Aniridia Network Dba Aniridia Foundation International →
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2017–2025), and the filings of 2 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing