Minnesota · Nonprofit
THE KURT B SEYDOW DYSTONIA FOUNDATION
THE KURT B SEYDOW DYSTONIA FOUNDATION (Minnesota) receives grants from 6 organizations whose IRS filings report $63,266 to it, the largest being FIDELITY INVESTMENTS CHARITABLE GIFT FUND ($33,150). 3 of them have funded it in more than one year, and 53% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- Revenue FY2025
- $0
- Funders on record
- 6
- Grants received
- $63k
- Net assets
- $3k
What The Kurt B Seydow Dystonia Foundation does
Mission
Research and treatment of dystonia
As stated on its FY2025 Form 990-EZ.
Program
Kites2kure dystonia annual fundraising event did not occur this year. The organization's mission to fund dystonia research remained the same with respect to fundraising and grant activity.
$0 spent
The program described on its FY2025 Form 990-EZ. Program spending in total: $0.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2021 to 2022, from $109k to $19k (−82%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
0% of THE KURT B SEYDOW DYSTONIA FOUNDATION’s revenue is contributions — more earned-revenue than three-quarters of its peers (100% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 6 of the last 9 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Who funds it, year by year
2019 → 2023: the base narrowed from 2 funders to 1 funder, grant income fell $14k → $27.
2 of 6 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 53% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of THE KURT B SEYDOW DYSTONIA FOUNDATION’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
THE KURT B SEYDOW DYSTONIA FOUNDATION leans on a few funders — its largest provides 52% of grant income and the top three 87%; half comes from just 1 funder.
the vertical line marks half of all grant income — 1 funder to its left
53% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund THE KURT B SEYDOW DYSTONIA FOUNDATION.
Largest funder’s share by year: 2019 64% · 2020 60% · 2021 42% · 2022 100% · 2023 100% — growing more concentrated.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Where its funders are
53% of THE KURT B SEYDOW DYSTONIA FOUNDATION's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $30k that is directly attributable, 83% of it comes from funders outside Minnesota, across 4 states.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $33k arriving through sponsors registered in 2 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
THE KURT B SEYDOW DYSTONIA FOUNDATION's revenue fell 100% between 2017 and 2025.
this organization peer median middle 50% of peers· 6,360 health nonprofits under $100k, FY2025
Organizations like THE KURT B SEYDOW DYSTONIA FOUNDATION
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Minnesota
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Public support
40%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 1 state
Screen this organization
A dated, signed PDF of the compliance screen for THE KURT B SEYDOW DYSTONIA FOUNDATION: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds THE KURT B SEYDOW DYSTONIA FOUNDATION?
- THE KURT B SEYDOW DYSTONIA FOUNDATION (Minnesota) receives grants from 6 organizations whose IRS filings report $63,266 to it, the largest being FIDELITY INVESTMENTS CHARITABLE GIFT FUND ($33,150). 3 of them have funded it in more than one year, and 53% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- How many funders does THE KURT B SEYDOW DYSTONIA FOUNDATION have?
- IRS filings report 6 organizations giving $63,266 in grants to THE KURT B SEYDOW DYSTONIA FOUNDATION, 3 of which have funded it in more than one year.
- Who is the largest funder of THE KURT B SEYDOW DYSTONIA FOUNDATION?
- FIDELITY INVESTMENTS CHARITABLE GIFT FUND is the largest funder on record, with $33,150 in grants. The full list of funders is on this page.
- How can an organization like THE KURT B SEYDOW DYSTONIA FOUNDATION find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Minnesota. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2017–2025), and the filings of 6 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing