Washington, D.C. · Nonprofit
THE HIV AND HEPATITIS POLICY INSTITUTE
THE HIV AND HEPATITIS POLICY INSTITUTE (Washington, D.C.) receives grants from 2 organizations whose IRS filings report $862,500 to it, the largest being PHARMACEUTICAL RESEARCH AND MANUFACTURERS OF AMERICA ($825,000). 2 of them have funded it in more than one year.
- Revenue FY2024
- $1.3M
- Funders on record
- 2
- Grants received
- $863k
- Net assets
- $1.1M
What The HIV and Hepatitis Policy Institute does
Mission
The hiv+hepatitis policy institute promotes quality and affordable healthcare for people living with or at risk of hiv, hepatitis, and other serious and chronic health conditions. Monitors policies that impact the prevention and treatment of hiv, viral hepatitis, and other health conditions in the united states. Communicates with members of the hiv, hepatitis, and other patient group communities on key policy issues that impact their access to healthcare. Educates policymakers and members of the media about efforts to end both hiv and hepatitis in the united states and to improve access to quality and affordable healthcare for people with or at risk of serious or chronic health conditions.
As stated on its FY2024 Form 990.
Programs
Hiv: hiv+hep carried out activities that advance policies and programs that increase hiv prevention and treatment, including the ryan white hiv/aids program and the activities of the centers for disease control and prevention hiv division. As the federal government continues to focus on activities to end hiv in the united states, hiv+hep participated in ongoing opportunities to develop and implement the programs and policies to achieve the goals of the initiative. One area of focus was pre-exposure prophylaxis (prep), a drug that prevents hiv, including private insurance coverage, zero patient cost-sharing obligations by insurers, and the creation of a national prep program. We responded to many complaints by prep users who were being illegally charged cost-sharing for prep or the associated labs and helped them with their insurers and regulators. We brought this ongoing issue to policymakers and the media. We also monitored a legal case that challenged the preventive services coverage requirements included in the affordable care act. Hiv+hep worked to ensure access to all antiretrovirals to treat hiv in the medicare part d program and the private insurance market. We reviewed…
$539,775 spent50% of program spendingHepatitis: hiv+hep carried out activities that advance policies and programs that increase viral hepatitis prevention and treatment, including the activities of the centers for disease control and prevention viral hepatitis division. The principal focus of hiv+hep's activities was to ensure there are sufficient resources for states and community-based organizations to offer hepatitis testing, conduct surveillance, and link people with hepatitis to healthcare and the treatment they need to maintain their health or in the case of hepatitis c, to be cured. Hiv+hep offered comments on the administration's proposal to end hepatitis c. Hiv+hep submitted public comments and testimony, issued press releases, responded to media inquiries, and conducted other media activities. This work was conducted on its own and in coalition with others, including the hepatitis appropriations coalition.
$122,670 spent11% of program spendingGeneral healthcare access: hiv+hep worked to ensure people living with serious and chronic health conditions have access to affordable healthcare, including prescription drugs. This included policy analysis in the areas of medicaid, medicare, and private insurance. Hiv+hep educated the patient community, the media, and policymakers at the federal and state levels, on the importance of copay assistance for prescription drugs. We successfully won a legal challenge of the federal regulation that allows insurers to implement copay accumulator programs and urged the federal government to comply with the court's decision. Hiv+hep also participated in the activities of the national association of insurance commissioners, where we focused on the impact of pharmacy benefit managers on patient access and affordability of prescription drugs, prior authorization processes, and coverage of preventive services. Hiv+hep submitted comments on proposed executive agency regulations, issued press releases and responded to media inquiries, and presented before patient groups. This work was performed on its own and in coalition with other patient groups, including the partnership for part d, medicare…
$409,623 spent38% of program spending
The 3 programs described on its FY2024 Form 990, listed largest first by expense. Program spending in total: $1,072,068.
The organization over time
Each line starts at 100 in 2020, so what you read is the shape rather than the size: 150 means half as much again as 2020, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2020 to 2021, from $261k to $713k (+173%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
99% of THE HIV AND HEPATITIS POLICY INSTITUTE’s revenue is contributions — more reliant on donations than three-quarters of its peers (51% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 0 of the last 5 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Who funds it, year by year
2020 → 2023: the base narrowed from 2 funders to 1 funder, grant income rose $160k → $175k.
From the IRS filings of THE HIV AND HEPATITIS POLICY INSTITUTE’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
THE HIV AND HEPATITIS POLICY INSTITUTE leans on a few funders — its largest provides 96% of grant income and the top three 100%; half comes from just 1 funder.
the vertical line marks half of all grant income — 1 funder to its left
100% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund THE HIV AND HEPATITIS POLICY INSTITUTE.
Largest funder’s share by year: 2020 94% · 2021 95% · 2022 96% · 2023 100% — growing more concentrated.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Where its funders are
100% of THE HIV AND HEPATITIS POLICY INSTITUTE's grant income comes from Washington, D.C. funders.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
THE HIV AND HEPATITIS POLICY INSTITUTE holds deeper cash reserves than three-quarters of the 8,121 health nonprofits its size.
this organization peer median middle 50% of peers· 8,121 health nonprofits $1M–$10M, FY2024
Organizations like THE HIV AND HEPATITIS POLICY INSTITUTE
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Washington, D.C.
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
87% of spending goes to programs.
Governance
Public support
72%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Screen this organization
A dated, signed PDF of the compliance screen for THE HIV AND HEPATITIS POLICY INSTITUTE: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds THE HIV AND HEPATITIS POLICY INSTITUTE?
- THE HIV AND HEPATITIS POLICY INSTITUTE (Washington, D.C.) receives grants from 2 organizations whose IRS filings report $862,500 to it, the largest being PHARMACEUTICAL RESEARCH AND MANUFACTURERS OF AMERICA ($825,000). 2 of them have funded it in more than one year.
- How many funders does THE HIV AND HEPATITIS POLICY INSTITUTE have?
- IRS filings report 2 organizations giving $862,500 in grants to THE HIV AND HEPATITIS POLICY INSTITUTE, 2 of which have funded it in more than one year.
- Who is the largest funder of THE HIV AND HEPATITIS POLICY INSTITUTE?
- PHARMACEUTICAL RESEARCH AND MANUFACTURERS OF AMERICA is the largest funder on record, with $825,000 in grants. The full list of funders is on this page.
- How can an organization like THE HIV AND HEPATITIS POLICY INSTITUTE find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Washington, D.C.. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
Play a game about who funds HIV and Hepatitis Policy Institute →
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2024 (financials across 2020–2024), and the filings of 2 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing