Florida · Nonprofit
SPINA BIFIDA ASSOCATION OF JACKSONVILLE INC
SPINA BIFIDA ASSOCATION OF JACKSONVILLE INC (Florida) receives grants from 10 organizations whose IRS filings report $488,408 to it, the largest being THE AMELIA ISLAND CONCOURS D'ELEGANCE FOUNDATION INC ($360,550). 4 of them have funded it in more than one year.
- Revenue FY2025
- $98k
- Funders on record
- 10
- Grants received
- $488k
- Net assets
- $1.2M
What Spina Bifida Assocation of Jacksonville Inc does
Mission
Spina bifida of jacksonville, established in 1973, is a 501(c)(3) non- profit organization dedicated to supporting individuals and families affected by spina bifida. Their mission focuses on advocacy, education, and providing essential services to the local community.
As stated on its FY2025 Form 990.
Program
Advocacy and education: the organization actively raises awareness about spina bifida, a neural tube defect resulting from the spine's failure to close properly during early pregnancy. We provide information and support to families, helping them navigate the challenges associated with the condition. Support programs: spina bifida of jacksonville offers various programs, including: -medical resources: provide information and specialized medical resources. We also provide medical reimbursements for medically necessary items not covered by insurance. -medical supplies: assisting families in obtaining necessary medical equipment. -medical education opportunities: sponsor families at an annual medical convention. -transportation resources: offering support for transportation needs. -family socials and gatherings: events and dinners for the whole family catered to their unique needs. "love what drives you" campaign: this initiative collaborates with the automotive community to enhance mobility for families affected by spina bifida. The campaign focuses on updating vehicles with ramps and adaptive equipment, which are then donated to families in need. Our goal is to "fuel independence in…
$254,412 spent100% of program spending
The program described on its FY2023 Form 990. Program spending in total: $254,412.
The organization over time
Each line starts at 100 in 2022, so what you read is the shape rather than the size: 150 means half as much again as 2022, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2022 to 2023, from $491k to $1.4M (+185%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
100% of SPINA BIFIDA ASSOCATION OF JACKSONVILLE INC’s revenue is contributions — about as donation-reliant as the typical peer (100% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 2 of the last 4 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Board chair
Dr Micheal Erhard
Chairman
As listed on its FY2025 Form 990.
Who funds it, year by year
2017 → 2023: the base broadened from 1 funder to 7 funders, grant income rose $38k → $106k.
7 of 10 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 24% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of SPINA BIFIDA ASSOCATION OF JACKSONVILLE INC’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
SPINA BIFIDA ASSOCATION OF JACKSONVILLE INC leans on a few funders — its largest provides 74% of grant income and the top three 85%; half comes from just 1 funder.
the vertical line marks half of all grant income — 1 funder to its left
100% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund SPINA BIFIDA ASSOCATION OF JACKSONVILLE INC.
Largest funder’s share by year: 2017 100% · 2018 100% · 2019 100% · 2020 100% · 2021 94% · 2022 93% · 2023 29% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
50% of SPINA BIFIDA ASSOCATION OF JACKSONVILLE INC's funders are still giving 2 years after their first grant; 40% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
97% of SPINA BIFIDA ASSOCATION OF JACKSONVILLE INC's grant income comes from Florida funders.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $117k arriving through sponsors registered in 7 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
SPINA BIFIDA ASSOCATION OF JACKSONVILLE INC holds deeper cash reserves than three-quarters of the 6,360 health nonprofits its size.
this organization peer median middle 50% of peers· 6,360 health nonprofits under $100k, FY2025
Organizations like SPINA BIFIDA ASSOCATION OF JACKSONVILLE INC
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Florida
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
100% of spending goes to programs.
Governance
Public support
100%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Screen this organization
A dated, signed PDF of the compliance screen for SPINA BIFIDA ASSOCATION OF JACKSONVILLE INC: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds SPINA BIFIDA ASSOCATION OF JACKSONVILLE INC?
- SPINA BIFIDA ASSOCATION OF JACKSONVILLE INC (Florida) receives grants from 10 organizations whose IRS filings report $488,408 to it, the largest being THE AMELIA ISLAND CONCOURS D'ELEGANCE FOUNDATION INC ($360,550). 4 of them have funded it in more than one year.
- How many funders does SPINA BIFIDA ASSOCATION OF JACKSONVILLE INC have?
- IRS filings report 10 organizations giving $488,408 in grants to SPINA BIFIDA ASSOCATION OF JACKSONVILLE INC, 4 of which have funded it in more than one year.
- Who is the largest funder of SPINA BIFIDA ASSOCATION OF JACKSONVILLE INC?
- THE AMELIA ISLAND CONCOURS D'ELEGANCE FOUNDATION INC is the largest funder on record, with $360,550 in grants. The full list of funders is on this page.
- How can an organization like SPINA BIFIDA ASSOCATION OF JACKSONVILLE INC find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Florida. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
Play a game about who funds Spina Bifida Assocation of Jacksonville →
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2022–2025), and the filings of 10 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing