Florida · Nonprofit
Sickle Cell Medical Advocacy Inc
Sickle Cell Medical Advocacy Inc (Florida) receives grants from 3 organizations whose IRS filings report $20,851 to it, the largest being THE GBT FOUNDATION ($20,000). 1 of them have funded it in more than one year.
- Revenue FY2025
- $491k
- Funders on record
- 3
- Grants received
- $21k
- Net assets
- $48k
What Sickle Cell Medical Advocacy Inc does
Mission
Our mission is to advocate for transformative and quality health care for sickle cell disease (SCD) patients. SCMA trains volunteers nationwide and pairs them with SCD patients. Advocates virtually accompany patients to the emergency department/hospital to respectfully advocate for them, to improve patient health care outcomes. They also serve as a resource to health care providers who are not familiar with the updated treatments or management of the disease.
As stated on its FY2025 Form 990.
Programs
On its FY2025 return the organization reported starting a significant new program and a significant change in how it conducts a program.
We had a significant program service change during the year in that we provided the eight-week self-advocacy course twice during 2025, but in 2024, it was only once. This extra EPT cohort was due to patient demand.
Its own explanation, from Schedule O of that return (Part III, line 2).
We discontinued the Brotherhood of Warriors due to low interest in the support group, which, by design, is limited to men.
Its own explanation, from Schedule O of that return (Part III, line 3).
Sickle Cell Healthcare Navigation Certification - An online program where we rigorously train motivated volunteers over ten weeks to become certified Sickle Cell Healthcare Navigators. Following our intensive curriculum based on NIH and ASH guidelines and expert sickle cell management practices, these students become HIPAA-certified and adept in virtual communication with ER/hospital providers.
$118,236 spent$123,634 earned by the program49% of program spendingNot described on the e-filed return.
$108,081 spent$98,188 earned by the program44% of program spendingNot described on the e-filed return.
$17,314 spent$12,000 earned by the program7% of program spending
The 3 programs described on its FY2025 Form 990, listed largest first by expense. Program spending in total: $243,631.
The organization over time
Each line starts at 100 in 2022, so what you read is the shape rather than the size: 150 means half as much again as 2022, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2024 to 2025, from $32k to $49k (+54%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2025 9%. Grants only. Government contracts and fees sit inside program revenue.
93% of Sickle Cell Medical Advocacy Inc’s revenue is contributions — more donation-reliant than the typical peer (57% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 1 of the last 4 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Chief executive
Simone Uwan
Executive Director
As listed on its FY2025 Form 990.
The chief executive listed changed between the FY2023 and FY2024 filings.
Who funds it, year by year
2022 → 2023: the base broadened from 1 funder to 2 funders, grant income fell $20k → $151.
1 of 3 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 0% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of Sickle Cell Medical Advocacy Inc’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
Sickle Cell Medical Advocacy Inc leans on a few funders — its largest provides 96% of grant income and the top three 100%; half comes from just 1 funder.
the vertical line marks half of all grant income — 1 funder to its left
Largest funder’s share by year: 2022 100% · 2023 66% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Where its funders are
Sickle Cell Medical Advocacy Inc draws 100% of its grant income from funders outside Florida, across 2 states in all.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $51 arriving through sponsors registered in 1 state is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
Sickle Cell Medical Advocacy Inc has grown faster than three-quarters of the 16,849 education nonprofits its size.
this organization peer median middle 50% of peers· 16,849 education nonprofits $100k–$1M, FY2025
Organizations like Sickle Cell Medical Advocacy Inc
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Florida
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
51% of spending goes to programs.
Governance
Public support
100%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 1 state
Screen this organization
A dated, signed PDF of the compliance screen for Sickle Cell Medical Advocacy Inc: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds Sickle Cell Medical Advocacy Inc?
- Sickle Cell Medical Advocacy Inc (Florida) receives grants from 3 organizations whose IRS filings report $20,851 to it, the largest being THE GBT FOUNDATION ($20,000). 1 of them have funded it in more than one year.
- How many funders does Sickle Cell Medical Advocacy Inc have?
- IRS filings report 3 organizations giving $20,851 in grants to Sickle Cell Medical Advocacy Inc, 1 of which have funded it in more than one year.
- Who is the largest funder of Sickle Cell Medical Advocacy Inc?
- THE GBT FOUNDATION is the largest funder on record, with $20,000 in grants. The full list of funders is on this page.
- How can an organization like Sickle Cell Medical Advocacy Inc find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Florida. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
Play a game about who funds Sickle Cell Medical Advocacy →
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2022–2025), and the filings of 3 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing