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New York · Nonprofit

ROHHAD FIGHT INC

ROHHAD FIGHT INC (New York) receives grants from 5 organizations whose IRS filings report $29,708 to it, the largest being NETWORK FOR GOOD ($23,163). 4 of them have funded it in more than one year, and 88% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.

Revenue FY2025
$4k
Funders on record
5
Grants received
$30k
Net assets
$207k
4/5 repeat funderspeak grant-dependency 42%
01What it does

What Rohhad Fight Inc does

Mission

To expand knowledge of the rare syndrome called rohhad, advance treatment, discover a cure, enhance the quality of life of children with rohhad, and ease the financial burden of families who have children suffering from rohhad.

As stated on its FY2025 Form 990-EZ.

Program

  1. Assistance to rohhad families

    $14,397 spent
    100% of program spending

The program described on its FY2025 Form 990-EZ. Program spending in total: $14,397.

02The organization over time

The organization over time

Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.

100 = 20172017 Revenue 100 ($79k) Expenses 100 ($112k) Net assets 100 ($24k)2018 Revenue 95 ($75k) Expenses 61 ($68k) Net assets 129 ($31k)2019 Revenue 112 ($89k) Expenses 82 ($92k) Net assets 116 ($28k)2020 Revenue 54 ($43k) Expenses 30 ($34k) Net assets 155 ($37k)2021 Revenue 127 ($101k) Expenses 70 ($78k) Net assets 248 ($60k)2022 Revenue 101 ($80k) Expenses 12 ($13k) Net assets 526 ($127k)2023 Revenue 98 ($78k) Expenses 42 ($47k) Net assets 653 ($158k)2024 Revenue 109 ($86k) Expenses 19 ($21k) Net assets 925 ($223k)2025 Revenue 6 ($4k) Expenses 18 ($20k) Net assets 860 ($207k)
'17'18'19'20'21'22'23'24'25
Revenue (6)Expenses (18)Net assets (860)Peer revenue range

Balance sheet

Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2021 to 2022, from $60k to $127k (+112%).

$24k
$31k
$28k
$37k
$60k
$127k
$158k
$223k
$207k
'17'18'19'20'21'22'23'24'25
Total assetsTotal liabilities

How it's funded, over time

Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.

2017
2018
2019
2020
2021
2022
2023
2024
2025
ContributionsProgram revenueInvestmentOther

100% of ROHHAD FIGHT INC’s revenue is contributions — more reliant on donations than three-quarters of its peers (100% for the typical peer).

This organization
Typical peer · 19,498 orgs

Surplus & reserves

Operating surplus or deficit each year, and months of liquidity in hand. 3 of the last 9 reported years ran a deficit.

−$33k
’17
$7k
’18
−$3k
’19
$9k
’20
$22k
’21
$67k
’22
$31k
’23
$66k
’24
−$16k
’25
114
months of
reserve

Leadership and staff

The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.

201720182019202020212022
Listed666666
Joined·+0+0+0+0+0
No longer listed·00000
03Who funds it

Who funds it, year by year

2017 → 2023: the base broadened from 1 funder to 2 funders, grant income rose $250 → $2k.

2 of 5 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 88% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.

From the IRS filings of ROHHAD FIGHT INC’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

How concentrated its funding is

ROHHAD FIGHT INC leans on a few funders — its largest provides 78% of grant income and the top three 95%; half comes from just 1 funder.

the vertical line marks half of all grant income — 1 funder to its left

88% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund ROHHAD FIGHT INC.

78%
largest funder
95%
top three
~2
effective funders

Largest funder’s share by year: 2017 100% · 2018 100% · 2019 100% · 2020 97% · 2021 66% · 2022 100% · 2023 62% — diversifying over time.

“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

Where its funders are

88% of ROHHAD FIGHT INC's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $4k that is directly attributable, 79% of it comes from funders outside New York, across 3 states.

NY
NJ
RI

In-state vs out-of-state, by year

’17
’18
’21
’23
New York out of state home

Funder states come from each funder’s own filing. $26k arriving through sponsors registered in 2 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

04Its place in the field

Against its field

ROHHAD FIGHT INC's revenue fell 94% between 2017 and 2025.

Operating margin−354% · bottom quartile
Revenue growth (annualized)−30% · bottom quartile

this organization peer median middle 50% of peers· 9,787 human services nonprofits under $100k, FY2025

Organizations like ROHHAD FIGHT INC

Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.

In New York

Nationally

05Profile & governance

Read directly from this organization’s own Form 990, as neutral context.

Public support

55%

Share of support from the public (Schedule A) — the basis for its public-charity status.

Footprint & structure

Files a return copy in 1 state

NY

Screen this organization

A dated, signed PDF of the compliance screen for ROHHAD FIGHT INC: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.

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Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf

Questions and answers

Who funds ROHHAD FIGHT INC?
ROHHAD FIGHT INC (New York) receives grants from 5 organizations whose IRS filings report $29,708 to it, the largest being NETWORK FOR GOOD ($23,163). 4 of them have funded it in more than one year, and 88% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
How many funders does ROHHAD FIGHT INC have?
IRS filings report 5 organizations giving $29,708 in grants to ROHHAD FIGHT INC, 4 of which have funded it in more than one year.
Who is the largest funder of ROHHAD FIGHT INC?
NETWORK FOR GOOD is the largest funder on record, with $23,163 in grants. The full list of funders is on this page.
How can an organization like ROHHAD FIGHT INC find more funders?
Start with the funders already giving here, then look at the foundations that back similar organizations in New York. The funding by cause and by state pages list the largest funders for a given area and how to approach them.

These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2017–2025), and the filings of 5 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing